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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be angry that the NHS doesn’t take pain seriously?

214 replies

LilyJosephine · 04/03/2025 22:26

AIBU to think that the NHS is regularly dismissive of pain, especially if you are a younger woman? Maybe I’m biased as I’m a regular on the infertility boards (have name changed) where it seems like a lot of women are struggling with a late endometriosis diagnosis (and so now fertility problems) where their pain was dismissed for years.

But now I am in the exact same situation but with my back. After 2 years of extreme pain and having been told by a muscular skeletal specialist (whom you have to be referred to first by your GP as they gatekeep further referral/MRI’s) that there was no way I had spinal stenosis, as I was too young and it’s not genetic 🤷‍♀️ (my parent has it); and that I couldn’t have an MRI as she was sure it was just disc degeneration that everyone gets as they age. She was totally dismissive. Now guess what I’ve just been diagnosed with?

Finally managed to find a sympathetic GP (young male foreign locum if it matters) after multiple visits to others. He was the only one not dismissive of my pain and managed to find a way around to get me an MRI. It’s a good job he did as the spinal stenosis has now progressed to cauda equina and they sent me straight to A and E. The A and E back specialist said “You’ve likely been living with this for years (the spinal stenosis)”. Yeah, you don’t say? 🙄

Two years of struggling to parent my toddler due to the pain (I’m a SMBC) and now I likely face future back operations to avoid paralysis 😢I was planning on having more IVF for a second child and that’s possibly out the window now too. I’m furious.

Thanks if you’ve read all that. AIBU to think the NHS is dismissive of pain? An MRI back then when I needed one would likely have saved NHS costs now as well as my pain - it’s so short sighted!

OP posts:
Roseshavethorns · 05/03/2025 12:22

I think that women tolerate pain better than men. I also think we are conditioned to just carry on with extreme pain. So we keep going with normal life despite being in agony.
So if you tell the doctor you are in pain but they see you walking in a fairly normal manner and hear you are still at work/ looking after the children/ walking the dog, then they think it can't be that bad. What they don't seem to understand is that you will keep going until you drop because you literally have no other choice.
They have to use their experience to try and judge what may be going on as sadly they can't get everyone scanned or referred to specialist services. So if they are used to seeing patients who look like they are in the same level of pain you are presenting with and there is normally nothing that warrants further investigation in those cases then that is what they will expect to find. And that is how they will then treat you. GP's know a little about a lot of things but they are not experts in any one condition.
Unfortunately, as most of us don't go to the Dr much and when we do we rarely see the same doctor twice they don't realise that what you are saying is extremely unusual for you.
I have a pretty high pain threshold and have suffered with that attitude a lot. When having my first child they told me there was no way I was in labour because I wasn't in enough pain. They only agreed to examine me because they had a new batch of students in. Turns out I was 8cm dilated. The same thing happened with my gallbladder and my arthritis.
I don't know what the answer is but like many others it infuriates me when my DH goes to the Dr with a minor irritation and, because he fits some demographic, he gets all sorts of tests and referrals. I can go with the exact same issue and get told to come back in a month if things don't improve.

JoyousGreyOrca · 05/03/2025 12:15

Medics do get it wrong at times like any profession. But some complaints are also because patients do not understand medicine.

So 95% of people over 50 have degeneration in their back, usually in their discs. I have it, nearly everyone at my age has. The NHS has a criteria for an MRI in your back. The idea is that you get an MRI if it looks like surgery may be needed. Because otherwise an MRI is not useful, but costs money.

I have had a back x ray to check for a fracture, so I know I have degeneration in my discs. But knowing that does not change my treatment i.e. painkillers and physio. If we are going to pay for nearly everyone over 50 to have an MRI, we need to increase taxes to pay for the extra MRIs and staff.

JoyousGreyOrca · 05/03/2025 12:09

JourneyToThePlains · 05/03/2025 11:27

It has occurred to me several times before that I would have been put down by now if I was a dog.

I'm not suggesting I should be euthanised on the NHS, but telling me to go away and try pretending I'm not in pain is quite shocking when you consider that an animal in the same amount of pain as me would be put down.

Yes animals are put down when we would not put a human down. Is that a good thing or not?

JoyousGreyOrca · 05/03/2025 12:04

CatStoleMyChocolate · 05/03/2025 09:51

I think there’s something in this. My DH sent in an e-consult a few months ago when he had a (mild but persistent) cough. No red flag symptoms at all. He was given a next day appointment. (I can only think it must have been a quiet week.)

I requested an appointment for lump in throat, persistent sore throat symptoms - lots of symptoms consistent with throat cancer (thankfully it wasn’t). 3 weeks.

Depends how long he had the cough. A persistent cough is a symptom of lung cancer.
Lump in throat and a sore throat is common and not something that would flag throat cancer. By the way dentists are best at recognising the early signs of throat cancer which is why check ups are important. Early signs are usually visible on the skin inside your mouth.

Marv1nGay3 · 05/03/2025 12:00

I have had two hip replacements privately in the last year ( thankfully DH had some insurance through his work). I saw an NHS consultant first, who even though on my X-ray he could see bone on bone arthritis in both hips, caused by dysplasia, said I was too young for a hip replacement ( I am 52) ,and questioned whether I was in enough pain to merit being put on the list. He also said I had ‘excellent mobility’ even though I was really struggling to walk. So no- you are not being unreasonable in my opinion.

Badbadbunny · 05/03/2025 11:52

DemelzaandRoss · 05/03/2025 11:02

I completely agree with you.
Sorry it has taken so long for you to get a diagnosis.
A/E Department refused to x ray my back last year. I was in terrible pain. Told me to go home & take Paracetamol.
Eventually paid for an MRI. Revealed arthritis, bulging disc & fracture at L3.
I know longer felt a fraud for complaining.
Something really needs to be done!

This! It's an absolute lottery whether they'll agree to refer you for an x-ray, MRI scan or CT scan.

Badbadbunny · 05/03/2025 11:50

Fraaances · 05/03/2025 09:38

It’s also well documented that women have to seek medical help 3-4 times when men only go once, reporting exactly the same symptoms.

Nope, my OH spent a couple of years trying to get a succession of GPs to take him seriously, it's definitely not just women. GPs fob everyone off.

LostInAMist · 05/03/2025 11:48

I've just had results back from my MRI, which I got after years of horrendous back pain, losing feelings in my left leg, reduced-nil genital sensation etc etc... basically got told that yes there is degeneration, but that's old age (I'm 37), and there is some bugling with discs that could be why I have nerve pain/issues, but I'm not that bad to warrant any intervention. They will if I become paralysed, but as it's fleeting due to nerve pinches, it's not and emergency. Besides pain is subjective, so take paracetamol if I need to! Great, thanks for that. I give up.

Arraminta · 05/03/2025 11:43

I had a spinal block with DD's C-section. When the spinal block wore off the midwives tried to fob me off with just paracetamol. Yes, really. The pain was horrific.

When I had my tummy tuck at a private hospital I was very nervous about pain after the surgery. I never felt a single twinge or soreness because my pain relief was expertly managed with powerful painkillers.

justasking111 · 05/03/2025 11:32

Our hospital board has hydrotherapy pools in three hospitals. They're all empty and drained. Even privately I can't find one.

My dogs on the other hand have three to choose from.

JourneyToThePlains · 05/03/2025 11:27

Calmestofallthechickens · 05/03/2025 06:30

Mortality rates and life expectancy don’t show the full picture though. There are a great many conditions that are unlikely to kill you but have a significant impact on your quality of life through chronic pain, mobility impairment etc - and in my (and clearly a lot of other people’s!) experience, pain isn’t regarded by doctors as a ‘problem’, especially if you are female.

I think I have a slightly unusual perspective because I work in veterinary medicine. We prioritise welfare (and a huge part of that is being pain free) above everything else (even over longevity) so it’s especially jarring for me when doctors seem to dismiss pain as a symptom that the patient needs to shut up about. I’d like to be treated at least as well as a dog, please…

It has occurred to me several times before that I would have been put down by now if I was a dog.

I'm not suggesting I should be euthanised on the NHS, but telling me to go away and try pretending I'm not in pain is quite shocking when you consider that an animal in the same amount of pain as me would be put down.

DemelzaandRoss · 05/03/2025 11:02

I completely agree with you.
Sorry it has taken so long for you to get a diagnosis.
A/E Department refused to x ray my back last year. I was in terrible pain. Told me to go home & take Paracetamol.
Eventually paid for an MRI. Revealed arthritis, bulging disc & fracture at L3.
I know longer felt a fraud for complaining.
Something really needs to be done!

Msmoonpie · 05/03/2025 10:54

Sorry meant to quote ^^ About a patient advocate.

Gettingbysomehow · 05/03/2025 10:46

I am a medical professional and have worked in the NHS for 45 years. I can tell you the care is diabolical and I have to research all of my medical problems .myself and practically present them with a thesis before they will even think about taking me seriously.

Msmoonpie · 05/03/2025 10:42

I looked into when my consultant was a total cunt and treated me like shit.

Apparently they’re usually via charities for people with disabilities.

I would have willingly have paid for someone to help me but such a thing doesn’t seem to exist. I think there is a real gap in the market here.

This could be a job done by ex medical staff.

tiger2691 · 05/03/2025 10:32

myplace · 05/03/2025 07:25

I think men’s bodies are less complex. It’s a bit more ‘what you see, you get’. Their bodies work until they are broken, so then they get fixed.

Ours fluctuate. We are injury prone at specific times of the month, have cramps as a design feature not a failure, and so on. Our hormonal cycle can get out of whack and then winds down in midlife with various associated unpleasant experiences.

And pregnancy and birth is not ideal for bodies. Pelvic floor dysfunction, softening joints, and birth injuries.

Plus after a lifetime of this shit, we are prone to chronic pain in reaction to it, I reckon. Body is so used to feeling below par it becomes the new normal.

One of the most annoying moments for me, with hindsight, was being told I wasn’t perimenopausal because I wasn’t having hot flushes. Ten years later we seem to know better.

@Halloumiheaven where your first post falls down, for me, is that middle aged women’s chronic pain issues aren’t treated with painkillers as they aren’t responsive to pain killers. It tends to be nerve pain treatments, which are low dose antidepressants I think.

Umm, not quite, been living with this since 2012, Cauda Equina, chronic debilitating pain, the stuff below my waist only works when it wants to.

To be angry that the NHS doesn’t take pain seriously?
Womanofcustard · 05/03/2025 10:30

My daughter had extensive spinal surgery at 13. A few years after she started to get chronic pain. Wanted to be referred to a pain clinic to learn to cope with it. Guess what, all the pain clinics had been closed - to save money! (Scotland)
The GP was sympathetic (!) but could offer no help - for a 16 year old in constant pain.

Fairyliz · 05/03/2025 10:29

I think the NHS is good at dealing with things that might actually kill you, so RTA, heart attack, cancer etc.
However if you are in awful pain but it’s not actually going to kill you then forget it, they are not interested.

justasking111 · 05/03/2025 10:16

Physically I saw my GP in March 2023. Sciatica given pain killers the MRI, physio I sorted myself.

Saw GP last month lump in breast. Fast tracked to breast clinic. Others over the phone.

So twice ftf in two years.

I've now got bad stomach issues, phone consultation in January Omeprazole, gaviscon. Second month had to fight for more omeprazole. Now in third month still struggling again omeprazole cancelled.

Phoned surgery this morning spoke to reception. No appointments left at 9am is it an emergency. We're short staffed. I said yes. I'm tired of being nice. Husband had a chesty cough was called in same morning had antibiotics and steroids.

WasThatACorner · 05/03/2025 10:15

Halloumiheaven · 04/03/2025 23:11

What you've been through sounds horrible and dealing with that diagnosis plus feeling dismissed and disbelieved really adds insult to injury. I hope you're given the very best care and support going forwards.

So, I think you're right about women's symptoms and that includes pain being less believed.

Spinal stenosis is a degenerative condition that can cause really quite severe pain (as you well know). Now, I don't know how to articulate this diplomatically, but I'll try... There are now a lot of "wishy washy" chronic conditions that are applied to people that a Dr or team of specialists cannot find 'proof' of through various tests so a diagnosis of elimination is made that's given a name. It's very subjective and these conditions often co occur with other similar conditions of the same nature. Unfortunately, the people diagnosed with these conditions do often fit a demographic and sadly that demographic tends to be middle aged women with other co morbid mental health conditions. Now this is in no way a judgement on those individuals...

So, my point being, I think that translates to "middle aged women with chronic pain who want loads of strong painkillers for a condition that I can't find proof of " . I think as women we kind of fit into a "stereotype" and it's dangerous.

I'm sorry, I haven't articulated that well. I guess the short answer is, I think it's down to stereotyping. Particularly middle aged women.

I do wish you well for your future treatment and care. I'm glad you've got your answers finally at the very least !

There are a huge number of women who are diagnosed with MH conditions following years of abuse. This trauma, presenting with the same symptoms in men is diagnosed as PTSD and treated much more kindly. The book Sexy but Psycho talks about this much more articulately, going into all of the ways that normal biological responses (if they present in women) have been medicalised and demonised.

There is also a connection between long term trauma and later life chronic pain, the nervous system can only take so much and the body starts to send crazy signals which is extremely distressing.

I went through years of waiting for tests and appointments and eventually got to a pain specialist who in the course of a lot of appointments signposted me to all sorts of articles and books to help explain to me that pain doesn't always have a cause. And that can't be fixed.

LilyJosephine · 05/03/2025 10:09

Thanks to everyone who has shown their love and support on this thread - ❤️ right back at you.

Tbh, even though a part of me suspected it could be the case, I’m shocked at just how many of you seem to have had your or your loved ones symptoms (including pain) seemingly dismissed. Is it bad that it makes me feel better that at least I’m not the only one they ignored? (so it wasn’t just something I said or did that meant they didn’t take me seriously- because I can’t think what it could have been 😢).

Flowers To all those that have shared their stories, I hope things improve for you/your loved ones.

OP posts:
Feelinghurt2 · 05/03/2025 10:08

Iheartmysmart · 05/03/2025 10:06

The utter disinterest of the NHS in women’s healthcare has almost cost me both my sisters and my mum in the last few years. Red flag symptoms dismissed as anxiety or stress when they have in fact been serious illnesses.

Then there is the abysmal care both my grandmothers experienced in hospital resulting in their rapid decline and premature deaths.

It’s an absolute disgrace and I have absolutely no faith in ‘medical professionals’ any longer.

Hear, hear. I have been referred to a physiotherapist about excruciating back pain, and she told me it was likely to be 'stress'. So sorry about what you've been through.

Feelinghurt2 · 05/03/2025 10:06

I am so very sorry that you have gone through this @LilyJosephine. How awful and how frustrating. Your post is very timely for me as I am suffering with back pain after falling down the stairs and feel I have been fobbed off a lot. They won't x-ray me because they say if I had broken something, I would be in more pain and would be incontinent. How do they know what the pain is like for the individual? We all manifest it differently. This is aslo despite me telling them that the pain is unbearable. I have also been told that I can walk and get on with my chores, so I must be okay. I am a single Mum with two school age children so I have no choice but to try to carry on. Even putting a wash load on is so painful that I have to sit for an hour afterwards, in tears.

I hope that you can now get the treatment you need and deserve. I feel for you so much. We shouldn't have to 'prove' that we are in pain.

Iheartmysmart · 05/03/2025 10:06

The utter disinterest of the NHS in women’s healthcare has almost cost me both my sisters and my mum in the last few years. Red flag symptoms dismissed as anxiety or stress when they have in fact been serious illnesses.

Then there is the abysmal care both my grandmothers experienced in hospital resulting in their rapid decline and premature deaths.

It’s an absolute disgrace and I have absolutely no faith in ‘medical professionals’ any longer.

BlondiePortz · 05/03/2025 10:00

I presume medicine is not absolute, if there was a machine that someone could stand in and it gave a definite result of what is actually the matter then doctors could treat that

But no I don't see how women get less answers than men