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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Not to pursue an ASD diagnosis as an adult

32 replies

ToDiagnoseOrNotToDiagnose · 22/02/2025 04:12

Inspired by another thread where someone is saying that it is very important to get a diagnosis for suspected ASD.

I've taken a bunch of the validated psychological screening tests for ASD, scores suggest I definitely am.
My GP brought it up independently when I was seeing them for something else (I never mentioned it to them at all in any capacity) and offered to refer me for assessment and diagnosis. So far, I haven't taken them up on it.

So far my list looks like this:
I would love to hear other people's points to add to this list, and perspectives I might not have considered.

Pros:
would have a definite answer
might be able to access "reasonable adjustments" at work
might help me understand myself better? I don't think this resonates either - I'm the same me whether someone puts a label on me or not. And I don't find it particularly important personally

Cons:
Autism is classed as a disability - I'm high functioning, high achieving, high earning (and yes, odd, but I'm ok with that) and don't resonate with this label at all.
Potential for disability discrimination in the workplace
Potential for medical discrimination as an older adult if I refuse treatment or want to make decisions doctors disagree with - they're often quite paternalistic, so having a "disability" label makes me suspect they'd be somewhat more likely to push their views harder.
Health, travel insurances might be more expensive if it's diagnosed and I need to disclose it (no idea if this is true, but it's possible)

Neutrals:
I already work in tech and have very flexible working, so not convinced it would make any difference
There is no treatment for it
I'm well past school age, and anyway never needed adjustments for exams or assessments, so no benefit I can see here for further study or similar.
I'm not joining ASD groups or claiming it as an identity, so that makes no difference either.

So AIBU not to pursue diagnosis, or what would you do in my situation?
YABU: You should get assessed/diagnosed (because.... ? )
YANBU: You're fine without (because....?)

OP posts:
4C0rners · 22/02/2025 06:22

pinkstripeycat · 22/02/2025 06:20

High-functioning autism (HFA) is a non-medical term for people with mild autism spectrum disorder (ASD) or ASD Level 1

You don’t need a diagnosis

There is no mild autism.

pinkstripeycat · 22/02/2025 06:20

High-functioning autism (HFA) is a non-medical term for people with mild autism spectrum disorder (ASD) or ASD Level 1

You don’t need a diagnosis

TheWayTheLightFalls · 22/02/2025 06:14

I did, in similar circumstances. In my case I felt compelled to have a definitive answer as to why I have always felt different / not quite able to work and live collectively with others despite being intelligent and generally viewed as a valued member of society. I feel a bit more able now to link my feelings to external factors - like picking up on the fact that the loud environment I have just been in was overwhelming for me, or the particular difficulties I experience as a parent. It has also highlighted my strengths and I feel more able to lean in to them since diagnosis.

I don’t feel disabled, fwiw. I feel like I have been granted something like an instruction manual for myself, and I see it as a positive.

The other point I would mention is that autistic women sometimes find their functioning getting worse or challenges become more apparent around menopause, so that may factor in.

4C0rners · 22/02/2025 06:13

And the way you trivialise a condition that has a massive detrimental impact on life for so many people really makes me question your aims with starting this thread.

4C0rners · 22/02/2025 06:06

GPs aren’t qualified to diagnose and why on earth would a GP bring up potential autism in a discussion about something else?They don’t have the time to discuss what you go in for properly let alone something completely unrelated and that has apparantly in your case not got any symptoms that cause issues. Finally to get a diagnosis autism needs to have significant impact on life. You are “high functioning, high achieving and high earning” who doesn’t need reasonable adjustments. As such I doubt you’d get a diagnosis.

BunsenBurnerBaby · 22/02/2025 05:43

We have a full house of undiagnosed (and hereditary) ND in our household. DD is currently seeking diagnosis because she needs adjustments for school. Her choice; school suggested. Other DD currently out of school because of ND but not seeking diagnosis because there’s no need (long boring story). The “science and theory” of ND is nascent and I am not convinced diagnosis particularly helps. None of us need medication or many adjustments; we know ourselves well and can manage our environments within our tolerance levels, and utilise the theory of what helps where it actually helps us. Unless there is a good reason or need for diagnosis (and for some, the need to know is one of those) then don’t bother.

WiddlinDiddlin · 22/02/2025 05:33

I didn't bother - and my GP offered it along with the opinion that it was pretty much a certainty, and various friends who are medics have said the same (but obviously cannot dx as they are friends)...

But at the same time pointed out how long I might wait for the official dx...

And I can't have any of the relevant medication.
I don't work for anyone but myself and where I sub-contract, I only do so for people who are understanding and can make accomodations for my other far more pertinent disabilities.

I am on full PIP and UC anyway, it would make zero difference there.

I already accept that this is who I am and how my brain works, and those around me do too (unsurprisingly really my partner is dx as are many friends)...

So theres really nothing to be gained from having an official dx for me - its really up to you if it would change things for the better, or not.

I think in your shoes, I probably wouldn't bother, looking at your list of pros and cons.

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