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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think this is diabolical?

79 replies

ChaosAndToast · 14/02/2025 12:27

I have a child whose 4 and they are starting school in September - they have a rare genetic disorder, autism, GDD (currently mentality has been scored between 12-15m) hypermobility and low muscle tone.

He can't walk but is mobile, he walks around on his knees or crawls. Refuses to use walking aids as becomes very distress. He is limited verbal, he can communicate his basic needs (want drink), he isn't potty trained and doesn't understand when he needs to be or knows he needs to be, he has social and emotional needs - he still struggles every morning going to nursery and keeps away from everyone and everything, no awareness of danger - you get the picture.

He has an EHCP.

The local authority have decided he's absolutely fine to attend a mainstream school, one we visited and well, they had a lot of stairs and the headteacher made it very clear he wouldn't be able to support my child in any capacity.

I know it's a money thing and everyone's struggling but it's so shit. I have no idea how my child is going to cope.

OP posts:
FrannyScraps · 14/02/2025 12:31

Well you wouldn't send him would you? I'd appeal and look at private funding a more appropriate setting for him.

Good luck.

SnuffleTruffleHound · 14/02/2025 12:29

You need to appeal the ehc and get a specialist school named.
speak to ipsea if you need help.

username299 · 14/02/2025 12:29

Can you contact Scope or the National Autistic Society for advice.

User7288339 · 14/02/2025 12:29

It's awful, you will have to go down the appeal route.
Lots of info online about it, sadly parents of SEN children have to become experts in the system 😞