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A reset weekend for me and my teenage son 🥹

115 replies

fifimummy · 13/02/2025 00:11

My 13 year old amazing son was diagnosed (shock) with Crohn's disease in December.
It's been brutal honestly and he "failed" according to the hospital a course of liquid feed, and then had 7 weeks of steroids which has been living hell honestly....
I only took him to the GP because of scalp psoriasis and his life has been totally flipped on its head ...
The Prednisolone gave him rage and insomnia, he started vaping, hanging around with people I'd never heard about and also pretty bad depression, I massively fought against the.medication, but he was told they would work miracles....they haven't worked
He's now been prescribed more tablets and has to have infusions.
Anyway that's the backstory
I want to take him away for a weekend.....
Somewhere back to nature maybe, with walks and pretty scenery ....with phones for just an hour
I'd like for him to ride a horse for the first time.....I used to do it loads and it's pure therapy, there's nothing better in my eyes....be around animals and have a fire or barbecue at night....I feel like I need to reset after all the arguing
Can anyone recommend anything? Don't want to do the big things like center parcs etc xx

A reset weekend for me and my teenage son 🥹
OP posts:
JassyRadlett · 13/02/2025 13:03

We've stayed at Drovers Rest in Herefordshire and loved it. There are cottages and safari tents - each safari tent has its own private bathroom and loo in the main building. The farm itself is lovely with lots of walks, opportunity to feed the animals including alpacas, etc, if he's into the countryside stuff. My eldest was 12 last time we went and loved it.

We stayed in a safari tent in October half term last time. Flipping freezing but the tents had a log burner and the beds had electric blankets so it was unexpectedly cosy! Easy access to Hay-on-Wye and Hereford too.

Drovers Rest » Glamping & Holiday Cottages in Hay-on-Wye Herefordshire

Get back to nature! Explore our stunning accommodation, feast over the fire at our foodie nights and discover a unique rural wedding venue »

https://www.droversrest.co.uk/

onwardsup4 · 13/02/2025 12:53

I'd probably rent a nice cottage in nice scenery with stables etc close by. Hope you both have a lovely time whatever you choose

Genevieva · 13/02/2025 12:22

ShinyAppleDreamingOfTheSea · 13/02/2025 11:51

Please don't even think of doing this unless given specific medical advice. When people have a bad bout of crohns it's normally a liquid diet they are put on or a very bland white fish/chicken/mashed potato/rice type diet.

Which is why I specifically mentioned that he was under the care of an American doctor. It is simply that there are other treatment methods out there. The NHS liquid treatment wasn't working in his case

stayathomer · 13/02/2025 11:55

BlondiePortz

All this would sound fine if this is something he wants to do and not a case of parent going "I have decided we need to do this and in my heads this will be what happens and child / teenager just has to go along with it if they dont poster's will say child is ungrateful''
so does he really want to do this?

This exactly op, only one of my kids enjoyed camping, another a little but the other two HATED it! If he’d prefer a city weekend or just a hotel stay with a cinema trip and some shopping maybe consider that too (and haven’t convinced any of mine to go horse riding which I’ve always been gutted about!!)

Toddlerteaplease · 13/02/2025 11:52

Is perhaps wait until he's stabilised on the infusions and is feeling a bit better before going away.

ShinyAppleDreamingOfTheSea · 13/02/2025 11:51

Genevieva · 13/02/2025 07:15

I have no firsthand experience of crohns so this isn’t advice on what you should do, it’s an anecdote you might find interesting. My friend has crohns. It’s appallingly bad. He’s been to hospital tor it numerous times. The treatment caused him to lose weight dramatically and his mental health fell off a cliff. Eventually, he went to a doctor in the United States and was prescribed a meat only diet. This has, remarkably, enabled him to live a normal life again. He can work and provide for his kids. I think he started with just lamb. No idea why. All I know is that it has worked.

Please don't even think of doing this unless given specific medical advice. When people have a bad bout of crohns it's normally a liquid diet they are put on or a very bland white fish/chicken/mashed potato/rice type diet.

Happyearlyretirement · 13/02/2025 11:42

https://www.living-room.co/contact

we have stayed in these tree houses and they are just wonderful for leaving all your worries behind. I know they are a bit pricey but worth every penny.
i hope whatever you do together you enjoy and re connect, he will be a lost little boy at the moment with everything going on. I’d also say push for a dermatology appointment if psoriasis is starting so young, it takes years to go through all the treatments till you find the correct one, my friend had head to toe psoriasis and finally was put on biologicas it’s completely gone as if it was never there.

Contact | treehouse-wales

https://www.living-room.co/contact

Deebee90 · 13/02/2025 11:18

I’ve got no tips but I wanna thank you for being an amazing mama. I’ve got IBD too but I was diagnosed at 25. It’s a rough ride . Thank you for helping him and supporting him. It will take time but he’ll get there.

Horseradish58 · 13/02/2025 11:02

One Cat Farm in Wales! Not sure about the horses but it is exactly as you describe - no phone signal in the cabins, so much nature around, not far from beaches with dolphins and seals. Outdoor campfire cooking and outdoor kitchens, really secluded and beautiful. They have wood fired baths if you want them. I'm sure they could help recommend somewhere to find horses too.
Best nights sleep I have ever had :)

https://www.onecatfarm.com/

Remote cabin in Wales

Unwind in a remote cabin in Wales. Enjoy a luxury, off-grid stay in a remote cabin in Wales on a secluded woodland nature-reserve.

https://www.onecatfarm.com

piscofrisco · 13/02/2025 10:48

Where abouts are you?
I work on a farm that offers animal experiences-goat walking, alpaca feeding, egg collecting that sort of thing. We also have camping fields and some 'glamping', (though it's a stretch to call it that. It's very basic, a bed in a shed and a log burner really). Lots of walks and off grid-ness. There is a cafe and a pub over the road. It's quite affordable. Something like that? If it sounds the ticket DM me and I'll give you the website. We are just north of London.

snowmichael · 13/02/2025 10:37

I've never been myself, but my sister swears by Centre Parks as a reward/treat for her grandkids

fifimummy · 13/02/2025 10:23

Thanks so much for all of your replies, I'm going to have a proper read when I'm back from work, so this is a bit hurried, but I really appreciate it all.
Maybe I have been a bit guilty of thinking about what I think would help, but the background is that he's always enjoyed things like camping , outdoors, farm parks etc and seems to be a really calming space for him....So it's not something I've plucked out of nowhere. He LOVED Center Parcs, but we went with my Mum not long before she died and none of us fancy going back as it wouldn't feel right xxx
He had virtually no Crohn's symptoms, only now in hindsight we think a few times that things we thought were sickness bugs might have been flares. Doesn't particularly have toilet urgency or anything like that, it's really been a shocker for him. I should've said originally that I'm not planning to put him in the car and drive him to somewhere remote, take his phone and stick him on a highly strung pony all as an idea for a brilliant surprise 😆 I was looking for some suggestions and ideas, which I'd obviously discuss with him first, and do some planning. We're in Leicestershire, and I'd need to organise some time off work as I work retail, so we've got a bit of time.
The steroids , on top of his shock diagnosis plus teenager hormones and probably more things all made it just awful. He's now off the Prednisolone and I've made it known on his file that we'll refuse them again unless it's a medical emergency.....this was his choice by the way, as he hated them and the moonface they gave him.
Really appreciate all of your responses XX I'll read properly later on xx

OP posts:
zeibesaffron · 13/02/2025 10:13

What does your son want to do? I think thats your starting point.

Daisy12Maisie · 13/02/2025 10:06

Air b n b an apartment overlooking the beach. Somewhere like Carbis Bay in Cornwall. Then you could do costal walks and go horse riding if he feels up to it or just stay in the apartment.

BlondiePortz · 13/02/2025 09:39

NormasArse · 13/02/2025 08:56

She doesn’t want Center Parcs.

And the son what does he,want?

Spottyshirt · 13/02/2025 08:58

NormasArse · 13/02/2025 08:56

She doesn’t want Center Parcs.

Not to say he doesn’t want it

but that doesn’t seem to be a priority

NormasArse · 13/02/2025 08:57

Look at Canopy and Stars. Quirky accommodations in beautiful places, but with bathrooms!

NormasArse · 13/02/2025 08:56

LBFseBrom · 13/02/2025 05:34

I agree with that.

Someone above mentioned Center Parcs which would be a good compromise.

However, op, your son is the one most affected by the Crohns and he is acting the way he is because it must be awful to have to adjust to it. He shouldn't have to be on steroids all the time, long term, the disease can be managed in other ways.

Does he want to go away somewhere or is it what you want? Give him time and listen to him.

She doesn’t want Center Parcs.

Porcuporpoise · 13/02/2025 08:55

Horserider5678 · 13/02/2025 08:08

His behavioural changes are nothing to do with the steroids! He’s been told he’s got a life changing condition, he’s young and angry about his diagnosis and rebelling against it. Being stuck in the middle of nowhere with Crohns would not be the best plan. Ask him what things he’d like to do.

Steroids absolutely do affect behaviour @Horserider5678 -pretty dumb to suggest otherwise. Unfortunately they are sometimes necessary to treat acute flaring in crohns. And if you read the OP her son has been moved on to other drugs

LoisLanyard · 13/02/2025 08:52

Hidden valley yurts in wales are amazing - www.hiddenvalleyyurts.co.uk

Anonymouse27 · 13/02/2025 08:51

Where are you? I stayed with two teens in a small hotel near Yorkshire which was in beautiful, natural grounds for walks and had a falconry centre where you could learn about the birds and opportunities to handle them.

We have also stayed in the Ring of Kerry in Ireland, in hotels and apartments and caravan. Beautiful countryside and walks and opportunities for guided horse rides and other physical activities.

Wales is also brilliant for camping/glamping/holiday cottages with beautiful countryside, forests and waterfalls and probably horse riding.

I would also suggest Sherwood Forest which also has horse riding.

I hope things improve for you both xx

Conqueeftador · 13/02/2025 08:49

Monty27 · 13/02/2025 04:39

How was he diagnosed without having taken the pre-med?

Where did anyone mention a pre med?

Op says she took her son for a scalp condition only, that in turn led to a crohn’s diagnosis. Not everyone diagnosed with crohns starts off with bowel issues, some are diagnosed after investigations for issues that turn out to be extra intestinal manifestations such as skin conditions or arthritis. It’s perfectly possible that her son isn’t suffering any gut problems at all, so worrying about immediate toilet access isn’t a concern.

Id also imagine if he isn’t having a lot of other crohn’s symptoms then this diagnosis and aggressive treatment must seem really extreme (both to him and the op). I’d be happy to take anything, whatever the side effects, when I’m in a bad flare up, but I can well imagine I’d feel very differently about it if all I was obviously suffering was a bad skin patch on my scalp to be fair. It’s a massive adjustment to make for a teen.

Have you discussed this with your son op? Would he want a weekend away in the countryside, or might he prefer exploring a city, or some activities maybe? Things we want or enjoy aren’t always what others are so keen on? Where are you based, and how far do you want to travel for your trip? Involving him in the planning, rather than surprising him, might help him feel a little more back in control of his life again.

niadainud · 13/02/2025 08:43

Shouldbedoing · 13/02/2025 07:13

Ditto sitting on a horse.

Water is very calming. Can you have a break at the coast? Skimming stones, playing slot machines etc

Yes, I can't imagine wanting to be shaken around on a horse immediately after a stay in hospital.

TheThreeCheesesOfTheApocalypse44 · 13/02/2025 08:35

You need to ask him what he wants to do and allow him to plan it (( within reason obviously ))

The poor lad doesn't have control over his own body at the moment, I can pretty much guarantee skipping through the forest will be the last thing he wants.

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