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AIBU?

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Dad put on end of life, to take time off work?

35 replies

nosent · 05/02/2025 12:54

For context my mother was diagnosed with an autoimmune liver condition last year & placed on the transplant list. She was given her liver transplant on 28th dec 2024 and I have been her primary carer since. I also have 2 small children under 2.

My dad was diagnosed with oesophageal cancer in 2024 as well. He was admitted to hospital in January of this year with pneumonia.

As my mum had been in hospital for 3 weeks post-transplant I was visiting her every day & working from the hospital so nearly doing full time. My brother was visiting my dad who was in a different hospital.

Yesterday they called to say they are putting my dad on end of life care & expect him to have weeks- months left. Obviously this is really upsetting & along with the stress of my mum I am struggling to cope.

I work 85% full time (every 3 Fridays off) and my husband works away in the military Mon-Fri.

Ideally I would like to spend time with my dad in hospital if he is at the end of life, but logistically with work it doesn’t work. My mum can’t visit him as she’s on a high level of immunosuppressants, so he is spending a lot of time alone.

I can’t afford to take unpaid leave as my children are in nursery 4 days per week, mortgage etc.. Would I be unreasonable to get signed off work for a few weeks by the doctor so I can get myself together & focus on my dad?

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Clairey1986 · 05/02/2025 17:49

Not unreasonable at all.

Is there any chance one of your parents could be transferred to the other hospital - still to be on different wards but to make life easier for you.

mathanxiety · 05/02/2025 17:39

What a difficult time this is for you. So much to deal with, all sad and worrying.

Definitely get signed off. It would probably be a good idea anyway just to limit your exposure to germs for your mother's sake, but since you have so much more on your plate and no partner to share the load, you should take med leave.

Iwiicit · 05/02/2025 16:20

I am really sorry you are going through this. I went through something similar with my mum and husband both being gravely ill and I just had to take time off work sick.
I self-certified the first seven days and then emailed the doctors surgery explaining the stress I was under. They gave me a sick note without speaking to me and renewed it when necessary. I ended up being off work for 7 months and I absolutely needed it.

KaylaLS · 05/02/2025 16:13

Kendodd · 05/02/2025 15:25

YANBU but, can a doctor actually sign you off sick if you're not sick?

Stress, lack of sleep, not eating, grief, low mental resilience - therefore unfit for work, which is what a fit note is for.

I'm going through similar. Lack of sleep means my GP is not prepared to say I am fit for work, as I need to drive. Medication for lack of sleep also means I am unable to drive.

Wiseplumant · 05/02/2025 16:07

You would not be at all unreasonable to ask to take time off work, you have done amazingly well so far coping with 2 very young children and everything you are doing for your parents. I hope everything works out for you.

JoyousPinkPeer · 05/02/2025 16:02

You must get signed off by your doctor. You are not superwoman abd you need this time now.
If you've got anybody who can help please try and get additional support.
So sorry you find yourself in this position.

RTkangamummy · 05/02/2025 16:02

Sorry you are going thru this

To help with money worries get the doctor to write an SR1 FORM this gets your father benefits like attendance allowance paid asap within a couple of weeks

You could use this for petrol or parking while you are visiting him or for some comforts for him like something to play music on or podcasts or something like headphones just to give him something listen to

Maraudingmarauders · 05/02/2025 15:58

Can your husband speak to his superior (you don’t say which forces) and explain the situation at home? They’re usually pretty high on family welfare and he might be able to have some time off, or be sent to a nearer base, for a temporary period whilst everything is going on to give you more support. It shouldn’t all be on you, even if it is your parents - they’re his kids that need lifts to nursery etc.
(from ex RAF wife)

but yes I’d definitely look at getting signed off, even reading that made me think how on earth are you coping. Better to take time now than have an unmanaged breakdown later.

TurquoiseDress · 05/02/2025 15:53

Absolutely yes, you should be able to get a medical certificate from your GP and be signed off for a few weeks to enable you to spend time with your parents

Flowers
Cottagecheeseisnotcheese · 05/02/2025 15:46

Sick leave can be stress related, too stressed to work also grief and stress are MH issues just as real as flu.

Kendodd · 05/02/2025 15:25

YANBU but, can a doctor actually sign you off sick if you're not sick?

Only4nomore · 05/02/2025 15:15

I was very lucky in the same situation I went off sick from work and they were extremely understanding have you spoken to them 1st you may not need to be signed off. I was able to stay with my dad day and night until the end. Which was nearly 2 weeks. I then did end up being signed off as I returned to work to soon after so my only advice would be don't rush back. It can take its toll on you being around someone on end of life care trying to be constantly positive in a situation that isn't going to get better really does wear you out. Big hugs x

Colourbrain · 05/02/2025 15:12

Yes this seems pretty clear OP, given your circumstances I would take the time off so you can try and manage all of this. I am so sorry for what you are going through.

JustMyView13 · 05/02/2025 15:11

You sound stressed OP. Anyone would be in your situation, you’re juggling a lot. Sign yourself off sick for a week, book in with your GP, and go and have a good cry in their office. I’m sure after a few weeks off sick you’ll be in a better head space and be more focused on work (the official line). If not, you take more time. Don’t return before you’re ready.

We work to live, not the other way around. Family first. Create some memories with your dad, whatever that looks like in his final chapter x

Paganpentacle · 05/02/2025 15:07

You GP will happily sign you off sick.
Whether you get paid for this depends upon your contact

ZzzzCravingMum · 05/02/2025 15:06

My dad suffered a cardiac arrest last year, it was unlikely he would pull through (he did by some miracle but it was touch and go for a good month), my GP had an online form to fill in for a sick note, I just put the details of what had happened, said i wasn't sure how long I would need given the dire situation and they just sent me a line for 4 weeks. Didn't have to see anyone, was just an email through. At a time of much stress I was incredibly thankful it was one less plate to spin and I could focus on visiting Dad and supporting my mum with whatever she needed.

Daffidale · 05/02/2025 14:46

It’s reasonable to ask for as much unpaid time off as you need right now to be with your Mum and Dad.

If you are genuinely stressed and ill with all this (and I wouldn’t be surprised if you are), then as others say see your GP who will sign you off sick.

If your company has a policy around paid compassionate leave then take some. This varies a lot though as I think it’s entirely discretionary. Some places it’s none. Some places eg civil service you may get a couple of months.

However if your employer doesn’t offer paid compassionate leave and you aren’t sick yourself then expecting to be paid while not working is understandable but not reasonable.

Kindly though It sounds like things with your parents could go on for weeks or months. Depending on your employer may exhaust your allowance for fully paid sick and compassionate leave quite quickly.

Given everything is there anything you can do to put yourself in a position where if you to you can afford some unpaid time off? Do you have an emergency fund saved up? Can you ask for a short repayment break on the mortgage? These things are there for the “rainy days” and it’s definitely pouring for you right now.

OnlyFannys · 05/02/2025 14:46

Absolutely do this OP, you will never look back and regret spending this time with your dad. Your work would suffer anyway and your stress levels must be off the charts. I'm really sorry for what you are going through 💐

Honeyroar · 05/02/2025 14:45

My husband was once very ill in hospital and I was stressing about going sick (after having used up all my leave entitlement). My manager rang me back on his own phone off the record and said if this company wanted to get rid of us it would without a second thought, so don’t put your job above your family. Get yourself signed off, look after your husband, and we’ll sort it all out later. So I did., Funnily enough two years later covid hit and the company, who I’d worked for 23 years, offered voluntary redundancy or a lesser contract. They were awful to us. I ended up leaving.

Take the time off. I was my mum’s carer while my dad was on end of life care. It was an exhausting time. You have to try to look after yourself too. And don’t beat yourself up if you can’t be there every moment. Do your best. He will know.

Createausername1970 · 05/02/2025 14:40

Not at all unreasonable.

LadeedahYadaYada · 05/02/2025 14:38

My dad got cancer - was doing ok, then collapsed and died 3 wks after diagnosis. We got the call from hospital to say he'd died. He was only there to start his chemo. I never got to sit with him, talk to him or say goodbye. So - take the time - and spend the time with your dad.

FindusMakesPancakes · 05/02/2025 14:35

Not unreasonable at all, and completely understandable.
Will your company give you paid time? Or is this going to create other consequences that you may need to consider before committing to it?
As others have said, I would also ask your dad's hospital for clarity on exactly what they mean. And keep asking if you need to. Sometimes it can be a lot to take in at once.
Is there a way that is safer for your mum to be able to see him? When my dad was dying in hospital, she was bed bound at home. Although it was a risk to her, getting her in to say her goodbyes was so important. And seemed to help him to relax and slip away.

Its a lot to deal with. Take care of yourself too.

RB68 · 05/02/2025 14:18

Hospitals must still have the ipads and tablets they used in lockdown for contact - or do you have ones that can be used? Its not the same but its better than no contact. I would also speak to Sister at both hospitals and ask them if they can co-ordinate them being in the same place somehow. Worth a chat.

I would take a couple of weeks now (sick leave) to sort out some ways of dealing with all this and allow yourself to start grieving. You don't say what you do but could you reduce time a bit more to help and still manage financially?

When my Mum was dying and I was helping care (along with others) I know my Dad helped me out financially with some costs as it was a big help to me as self employed and in tricky times as well.

GreyAnt · 05/02/2025 14:13

@nosent you should do what you need to do but I just want to flag up this comment “ they called to say they are putting my dad on end of life care & expect him to have weeks- months left“. I would perhaps clarify with the ward what exactly are they meaning , end of life care would generally mean a short time ( as opposed to palliative care which could even be for years) but this comment suggests they are not looking at imminent end of life and there may be quite a lengthy time ahead. I’m ex-hospice and know that making a prognosis can be very difficult but would highlight that on a number of occasions we had people transferred to us for end of life care, only for us to discharge them home or to a care home because the person improved enough with TLC in the more restful space of a hospice. If things at work may become difficult at a later stage when you would need to take time off again, then just bare this in mind.

noctilucentcloud · 05/02/2025 14:05

I'm sorry, you have an awful lot on your plate. I also think it's worth a trip to your GP, there's only so much someone can cope with at once.

On a different note (and sorry if this is unhelpful), is there anything you can do to facilitate contact between your mum and dad? That must be very tough for them, as well as you and your brother. I was wondering things like asking if your dad could be moved to a side room if possible (if visiting in those circumstances would be possible for your mum, as in she wouldn't be exposed to a main ward), or if your dad would be suitable and would want hospice care (which would have less people so maybe lower risk for your mum), or perhaps zoom/facetime.

I hope everything works out for you and the next few weeks - months are as easy as they can be in the horrible circumstances you're all in.

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