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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Surely this level of blood loss should be taken seriously ?

41 replies

FarToo · 04/02/2025 14:27

AIBU to think that excessive period bleeding should not be dismissed?

Im going through a nightmare and not being taken seriously. Im anaemic, exhausted, drained. Has been going on for 3 years.

I can’t take the pill so was given the mini pill initially but it made me bleed constantly. Came off that and was told a non hormonal copper coil would be better. It made it worse which I didn’t think was possible. Had to have iron infusions and then removed it as it was horrible. Tried a mirena and it came out with the next period , had a new one put in and 3 months later that one made an exit with a large clot.

I had to wait 13 months for a gynae appt to be told there’s nothing they can do except manage symptoms so if I need iron supplements or occasional infusions that’s the treatment plan. Discharged.

I’ve had to go to an and e a few times in recent months and got told off! I had soaked through large pads in less than an hour but they were dismissive and said it wasn’t the right place to go for gynae issues.

Im sure if men had to experience this it wouldn’t be dismissed so easily !

OP posts:
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Hankunamatata · 04/02/2025 20:54

FarToo · 04/02/2025 16:54

I’ve always had heavy periods but my cycles used to be longer. Maybe age has made them shorter? But also in the last 3 years they’ve been even heavier and with much much bigger clots

www.balance-menopause.com/menopause-library/heavy-periods-during-the-perimenopause-what-you-need-to-know/

Have a look at this article

MatildaTheCat · 04/02/2025 18:19

ItGhoul · 04/02/2025 14:50

It's a horrible thing to experience but it's not a matter for A&E. Losing the blood that's already built up in your womb lining isn't quite the same as losing blood from an injury. It's awful for you, but not an emergency or anything A&E can solve.

You definitely need further gynae investigations and better medical support, but A&E isn't the place for that.

It can be. I know someone who staggered into A&E on the point of collapsing. Her HB was dangerously low and she was transfused within an hour.

NellyDElephant · 04/02/2025 17:29

Depending on whether or not you have children / want to have children (as I had been sterilised during my c-section with DC3) laser ablation was an absolute life-changer for me.
I had it done 10 years ago now, and have only had a 1day period of barely any bleeding, monthly, since then. Honestly, a revelation, after years and years of horrific bleeding and flooding, and not being able to leave the room on holiday, not being able to take my kids to the beach because of my period etc etc. I saw a male GP at my local surgery who was absolutely sympathetic, horrified at my examples, and referred me straight away. It was done as a day-case in local hospital. Almost painless procedure - way less than the period pains for sure.
*I tried the pill, the mini pill, the injection, the mirena coil, the tranexamic acid tablets - nothing worked.

Ebeneser · 04/02/2025 17:28

FarToo · 04/02/2025 14:27

AIBU to think that excessive period bleeding should not be dismissed?

Im going through a nightmare and not being taken seriously. Im anaemic, exhausted, drained. Has been going on for 3 years.

I can’t take the pill so was given the mini pill initially but it made me bleed constantly. Came off that and was told a non hormonal copper coil would be better. It made it worse which I didn’t think was possible. Had to have iron infusions and then removed it as it was horrible. Tried a mirena and it came out with the next period , had a new one put in and 3 months later that one made an exit with a large clot.

I had to wait 13 months for a gynae appt to be told there’s nothing they can do except manage symptoms so if I need iron supplements or occasional infusions that’s the treatment plan. Discharged.

I’ve had to go to an and e a few times in recent months and got told off! I had soaked through large pads in less than an hour but they were dismissive and said it wasn’t the right place to go for gynae issues.

Im sure if men had to experience this it wouldn’t be dismissed so easily !

I too got similar treatment. They only diagnosed me with cervical erosion and put me on tranexamic acid (and then Tranexamic acid AND Mefenamic acid) and also a repeat prescription of ferrous fumarate as I was anemic. I only found out I had a submucosal fibroid when I was pregnant, I ended up having to have extra scans to make sure the baby had enough room.
At one point if I didn't get up in the night to empty my moon cup (it would be full within about an hour on very heavy days) and change my night time pad I'd literally wake up in a pool of my own blood.
I had some respite when pregnant and was bitterly disappointed when my periods came back (I was breastfeeding and they came back after about 9/10 months). My periods are still heavy but not to quite the same extent, 9 times out of 10 now I can sleep through the night without any major leakage.

If this was a mans problem it would have been solved by now.

biscuitsandbooks · 04/02/2025 17:05

ItGhoul · 04/02/2025 14:50

It's a horrible thing to experience but it's not a matter for A&E. Losing the blood that's already built up in your womb lining isn't quite the same as losing blood from an injury. It's awful for you, but not an emergency or anything A&E can solve.

You definitely need further gynae investigations and better medical support, but A&E isn't the place for that.

This simply isn't true. I've ended up in A&E with my periods before and it was absolutely the right place for me, I was so dizzy I couldn't walk down the stairs without falling. I was losing huge amounts of blood and vomiting too.

Pippa12 · 04/02/2025 17:02

I’m going through similar at present, my ferritin is 11. I’ve been bleeding every day, using super plus tampons and still soaking through. I’ve been referred for a scan (within 3 weeks) and been prescribed medications to help. Im also 40.

Im sorry you’re having such a rubbish experience. Despite not being able to halt the bleeding (despite progesterone, transX acid etc) the Drs so far have been excellent and understanding.

I’m now signed off work as I’m barely functioning. I’m out of breath and utterly exhausted. I hope to God they find something that they can treat promptly as I feel dreadful: on the other hand I’m truly petrified it’s something sinister.

Zanatdy · 04/02/2025 16:58

ItGhoul · 04/02/2025 14:50

It's a horrible thing to experience but it's not a matter for A&E. Losing the blood that's already built up in your womb lining isn't quite the same as losing blood from an injury. It's awful for you, but not an emergency or anything A&E can solve.

You definitely need further gynae investigations and better medical support, but A&E isn't the place for that.

It can be, my 12yr old daughter became dangerously unwell after her first period would not stop. Her iron became dangerously low and she couldn’t even change her pad she became that weak. Hospital said if it ever happened again not to bother contacting GP, straight to A&E

FarToo · 04/02/2025 16:54

Hankunamatata · 04/02/2025 16:36

Has it always been like thos or do the doctors think you peri menopausal?
Wondering if hrt would help

I’ve always had heavy periods but my cycles used to be longer. Maybe age has made them shorter? But also in the last 3 years they’ve been even heavier and with much much bigger clots

OP posts:
littleblackcat247 · 04/02/2025 16:39

@Zippidyza yes - I get that some people have heavy periods all the time.

I was addressing the poster who stipulated that you should never go to A and E for heavy bleeding.

Hankunamatata · 04/02/2025 16:36

Has it always been like thos or do the doctors think you peri menopausal?
Wondering if hrt would help

Zippidyza · 04/02/2025 16:35

@littleblackcat247 i think though the op was told to go to A&E “if getting through a pad within an hour and passing clots brighter than a grape”…that was pretty much “normal” for the heaviest day on most of my last menstrual years, there is a difference between an event that is happening every single month ( and gynae are letting someone down with effective solutions) versus a one off serious blood loss event.

littleblackcat247 · 04/02/2025 16:26

@IncaDove precisely the sort of thing I was thinking about. Good thing you and your friend were persistent!

littleblackcat247 · 04/02/2025 16:23

ItGhoul · 04/02/2025 14:50

It's a horrible thing to experience but it's not a matter for A&E. Losing the blood that's already built up in your womb lining isn't quite the same as losing blood from an injury. It's awful for you, but not an emergency or anything A&E can solve.

You definitely need further gynae investigations and better medical support, but A&E isn't the place for that.

There's bleeding - and then there's bleeding. Poor advice to say people shouldn't go to A and E especially if passing clots +++ over more than an hour.

The person could be having a miscarriage and not realise that they were pregnant etc. It isn't always straightforward.

Thinking back to when I bled out 2/3 of my blood volume over around 4 hours and had an emergency D and C followed by 3 units of blood.

Zippidyza · 04/02/2025 16:12

@FarToo have they tested your thyroid? My excessive bleeding was due to combo of developing hypothyroidism and perimenopause…luckily mirena and thyroid meds worked for me but I feel for you, I started to be too scared to leave the house in case of flooding.

EilonwyWithRedGoldHair · 04/02/2025 16:02

I had a different issue - benign tumour on my ovary that would cause temporary torsions - ended up in A&E a few times with that. Eventually I was told if I was having issues I could phone gynaecology and go straight there, could you ask your GP if that's something that can be done in your area, given that A&E aren't being helpful.

CheeseyOnionPie · 04/02/2025 15:37

That is terrible - you could have fibroids that are causing the heavy bleeding. You need to be properly checked and scanned for everything. Outrageous!

TheSandgroper · 04/02/2025 15:32

Might I suggest getting a digital scale and actually weighing everything that comes out of you? Perhaps over three months? Weigh an empty pad first and count how many pads you use so you can get an accurate figure.

Then you can advocate for yourself with hard data.

And because I am the bloodthirsty, bolshy sort, I would be freezing each clot and presenting the little suckers as show and tell.

Wishing you the best of luck.

IncaDove · 04/02/2025 15:29

This appears to be a common problem, where woman's health concerns are not taken seriously. We are dismissed, accused of being overly anxious about our health.

I was sent home from A&E twice, with my abdominal pains dismissed as period pains. I was 30 I knew it wasn't period pains. It turned out to be an ectopic. It ruptured and I lost a fallopian tube and overly. All because doctors would not take me seriously. I only survived because my friend took me back to A&E a third time and that's where I was when it ruptured. If I had been at home it is very possible I would have died

I took legal action. I did not claim compensation. I just wanted the trust, and the specific doctors to have to face up to the fact that they nearly killed me. I did receive an apology in the end.

NoKnit · 04/02/2025 15:24

FarToo · 04/02/2025 14:59

They were awful they just wouldn’t stay in !!! I had been pleased the insertion wasn’t too bad as heard horror stories and then they came out 😭

Had same mirena just came out.

You need answers OP incant believe they send you home with this.

I'm not in the UK though so our health care is, well better is an understatement 😆

NoKnit · 04/02/2025 15:21

FarToo · 04/02/2025 14:37

I’ve made another gp appt for in 2 weeks as that was the earliest available. My gynae appointment was ridiculous I asked about a scan and was told it wasnt necessary. I might try to see if I can get a private one and take results to the gp. I’m so out of breath my last ferritin level was 10 and I’m barely functioning

OP I'm so sorry you are going through this.
Of course there are things they can do. Firstly you could get a scan I assume it could fibroids. However if you are bleeding this much then they probably won't be able to see much on the scan. This is what happened to me.

Then obviously they can do ablation and if that doesn't work last resort a hysterectomy.

I had hysterectomy last year no regrets best decision I ever made. It was pushed because at the gynecologist I almost destroyed the chair with all the bleeding.

Zanatdy · 04/02/2025 15:19

it should be. My DD became very unwell after her first period wouldn’t stop. Eventually had an emergency transfusion after iron went from normal to below transfusion level in 7 days. She sat on a chair in A&E for 10 mins and it was covered in blood. She was fobbed off at first, but then taken very seriously. Sadly she’s not been right since (4.5yrs on)

PixieLaLar · 04/02/2025 15:16

So sorry OP that sounds awful!

Have you tried different brands of mini pill? I only suggest this because I have had brands where I bled constantly and then a different brand with no bleeding at all.

Anxious153 · 04/02/2025 15:10

I also had previously had a mirena inserted and it fell out after three days which was inserted for prolonged bleeding (in excess of 12 months continually). In the end the only thing that was remotely helpful was ablation and mirena coil fitted at the same time. I had no periods for two years after this procedure but did eventually end up needing a hysterectomy. I would ask for another gynae referral.

JustMyView13 · 04/02/2025 15:03

Do you follow get.the.lowdown on Instagram? They’re honestly amazing, and if you send them a message they are always super helpful.

Also, I’m on the Depo. Have been for over 10yrs and been very happy with it so far. I would say there’s some horror stories online (as with all forms of contraception) but having tried almost everything else this is the one for me. No periods, no hormone fluctuations, no weight gain. Over the course of a year I just get random symptoms, such as random boob soreness for a couple days. Then a random spot or three. But then it’ll be weeks / months with nothing.

FarToo · 04/02/2025 14:59

steff13 · 04/02/2025 14:53

I just reread your OP - I had the same issue with Mirena! Except I got pregnant on it and had a really awful miscarriage.

Have they done an ultrasound to see if you have fibroids or anything? My mother has fibroids her whole life and they always made her periods bad.

They were awful they just wouldn’t stay in !!! I had been pleased the insertion wasn’t too bad as heard horror stories and then they came out 😭

OP posts: