Active discussions

Please or to access all these features

Talk
AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

Likely going to be told I have Functional Neurological Disorder

81 replies

Tilly915 · 25/01/2025 19:51

Sorry for posting this in 2 different places. I just really need support, from somewhere, as I feel like I'm going mad and can't stop sobbing. My stoicism seems to have abandoned me.

I've had weird symptoms for weeks now. Limb weakness, leg not functioning, eye flickering, wet myself in sleep, limb shaking, tinnitus, pins and needles, pain. All on rhs. Had MRI of brain and spine which ruled out anything structural, which I'm glad about. Haven't had follow up with neuro yet but I'm fairly certain he will say it's functional. It came on when I was very, very stressed. I guess I'm just pissed off that this is happening. I feel like my body is falling apart and I've no idea why. I'm so glad my MRI is clear, but equally I don't want to be given a diagnosis of something that's so stigmatised and just want my symptoms to go away. I feel so low, and just need to vent. Feeling really, really hopeless.

OP posts:
Original poster
Tilly915 · 25/01/2025 20:03

ElizabethTaylorsEyebrow · 25/01/2025 20:00

That sounds terrifying OP. I’m so sorry you’re dealing with this. Vent away.

Do you have someone to talk to in real life?

For what it’s worth, I’d never heard of FND or any stigma around it. I bet most people are the same. My first thought on hearing your symptoms is just sympathy for you, nothing else.

Thank you. Just can't believe I'm in my 30s and am scared to sleep incase I wet myself. It's embarrassing. I'm so fed up. I feel gross.

OP posts:
ElizabethTaylorsEyebrow · 25/01/2025 20:00

That sounds terrifying OP. I’m so sorry you’re dealing with this. Vent away.

Do you have someone to talk to in real life?

For what it’s worth, I’d never heard of FND or any stigma around it. I bet most people are the same. My first thought on hearing your symptoms is just sympathy for you, nothing else.

myplace · 25/01/2025 19:57

I’m so sorry, that’s rubbish.

And frustrating. But don’t be too quick to worry. Try and concentrate on looking after yourself generally.

Original poster
Tilly915 · 25/01/2025 19:56

SI85 · 25/01/2025 19:53

The brain is incredibly complex. I understand your worry about the stigma, but even if it is FND, it's still very real. FND is really misunderstood, IMO it's the symptoms that matter and how they are affecting you.

Edited

I just can't believe this is happening. I feel so out of control of my own body.

OP posts:
2025willbemytime · 25/01/2025 19:55

Anyone who stigmatises someone for having FND needs ignoring. It's them with the problem, not you. You have a diagnosis.

Try not to stress as that will make things worse. However you are now doesn't mean that's how you'll be forever so if you're struggling try not to panic.

SI85 · 25/01/2025 19:53

The brain is incredibly complex. I understand your worry about the stigma, but even if it is FND, it's still very real. FND is really misunderstood, IMO it's the symptoms that matter and how they are affecting you.