Something not right with 3yr old

Here's where I'm at today... rang ultrasound department, they told me they are STILL waiting for the consultant to send over the information they need before they can book him in! I rang PALs and explained how worried I am, my son has numerous symptoms that should be seen as red flags but nobody is listening to me, I've seen multiple doctors over 10 weeks and been ignored, explained the delays with referrals and said he needs this ultrasound now, she said she was going to speak to the pediatric manager and request repeat blood tests and get the consultant to send the information urgently, they will call me back when this has been done, but it could take up to 3 days.... I have seen many posts on here about limping children and most seem to have had all the relevant tests to rule out everything way quicker than this! If they don't book him straight in for the ultrasound the next step is to go to a children's hospital and refuse to leave without a diagnosis

Ultrasound dept told me to call back and they will sort him an appointment so I'm presuming they will be happy to get him in rather quickly considering we have waited 3 weeks already! I'm so angry! I'm calling them back first thing in the morning and hoping they will get him in in the next day or 2 otherwise I will be taking him elsewhere and ringing PALs to follow up that email! Last time gp sent for bloods the hospital got us in straight away and we had results back by text the next day, I'm honestly so stressed and it's all I can think about, I keep thinking how many times we've been delayed with appointments and it gets me so angry, it's really not fair! We are in West Yorkshire- near Leeds/Manchester.. someone I know had a private ultrasound on her daughter recently and paid £350 without the consultation! I'm going to let them know that I'm mad tomorrow they will be sorting this out and if they don't I'll have no choice but to find the money, or go to a different a&e and refuse to move! This is hell I've never known anything like it and they can't blame the nhs being over crowded because it's the doctors "forgetting" to send correct referrals!

This is a screenshot from a video I took of him limping on Friday, we had taken the older kids to school, he had been running around and riding the bikes in the yard, this was him walking on the way back, look how sad he looks! He was in agony yesterday after riding his scooter round the park and charging around like a maniac, I feel so helpless

I was just saying this to my partner last night, when they took us to minor injuries the 2nd time in a&e I should have insisted he saw a pedestrian then or taken him to a different a&e the 3rd time we went, but I am calling ultrasound department tomorrow and telling them I've waited 3 weeks and won't be waiting any longer, if they don't get him in quick I'm going to a children's a&e! I was wondering if anyone on this thread would know if the pain in his knee getting worse after being active would be reassuring and indicate that this makes it less likely to be caused by cancer? Obviously that's my main concern but part of me thinks if it was that then after 10 weeks surely there would be more telling signs? My head is a wreck thinking about it 24/7 I can't sleep, I really need that ultrasound doing. Also ringing the gp tomorrow to ask for a repeat blood test to check there are no changes there

Yes I absolutely agree with this! I thought this myself today, he clearly is frustrated when it's happening and is thinking mum will you stop going on about it I'm trying to just get on with things! Poor kid, it's breaking my heart but I told myself that this is what I was going to do, instead of questioning him about it I'll just give him a hug and let him know mummy knows and I'm here.. I'm really trying so hard to get him some help I just wish I could speed things up somehow

When I posted this it had been 3 weeks with the limp, it's now been 10 weeks!! I can't believe we still don't have answers and are still experiencing such unnecessary delays! I was worried from the beginning but each day I'm feeling more unsettled, I'm really scared that it genuinely could be cancer but none of the doctors seem to care about that.. I feel like I've hit a brick wall so many times and having to fight through it every time, it's mentally exhausting! I'm going to call ultrasound on Monday and demand an urgent appointment, I'm also going back to the gp to demand urgent repeat bloods, I'm not waiting about anymore I'm really going to get my voice heard! This level of worry is not healthy if they can rule cancer out I will be able to rest but until they do I can't just sit about waiting for nothing with no answers! Sorry for replying to your comment with a massive rant 🤣 all of you guys on here are absolutely great and I really appreciate everyone taking the time to message and try to help with support and advice

Thank you, it's getting to a point now where he will start to limp and not mention it and I'll ask him if he's ok he says no and I'll say oh no what's wrong and he gets frustrated and says it's ok, like he doesn't want me to fuss and it's annoying him, poor thing I just want to get him better but it's just taking so long to get the tests he needs to get a proper diagnosis!

Aww bless your little boy, I'd never heard of that until my son started with this and a few people mentioned it, thankfully this is one of the things that has been ruled out as he's had an xray of the right knee and both of his hips, nothing showed on there, so that would rule out Perthes and fractures of the bones, they say an ultrasound may show things with the ligaments/soft tissues or fluid round the joint, so fingers crossed it shows something that is simple to sort out and that gives us a diagnosis because I'm really scared now and I just need an explanation! I really hope your son is doing well, this sounds like a horrible thing for a child to go through bless him

Exactly my point, my cousin was told the same for months, and another cousins little boy, she was told its unlikely to be anything he probably just bumped himself, 4 months before they did a blood test and biopsy and got a cancer diagnosis! I doubt anyone is told it probably is cancer, I get that they'd want to rule out simple things in the early stages but 10 weeks later you'd think they'd want to look at that being a possibility and rush to rule that out as like they say themselves it's better to be caught early! I really hope it's something far less scary but at this point cancer needs to be ruled out, if nothing else it will stop the unnecessary worry I am experiencing not knowing

I'm going to have to call on Monday and request repeat bloods and see if they will prescribe a different antibiotic. So many phone calls over the last couple of months and still having to make more! Didn't think we'd be still at it all this time later, should have had a diagnosis weeks ago!

I definitely needed to send the email because when it's all written down you can see how bad it looks! I received an email in response just to make me aware the email had gone through but I still haven't heard anything, I'm going to wait until my partner is home from work around 2 and give them a call! I'm absolutely going out of my mind with worry and can't keep waiting around for everyone, I don't understand why nobody is taking it seriously, he's had a limp and localised pain for 10 weeks, in those 10 weeks he's had numerous rashes and cold symptoms that don't go away, the 2 week course of antibiotics haven't helped, nobody has mentioned a repeat blood test and I'm just expected to keep waiting for the ultrasound! Think I've just about lost any patience I had!