Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

AIBU to want to know why husbands infant brother died

137 replies

Rhysinpeices · 12/01/2025 21:00

When my husband was very young, his infant brother died. He doesn’t remember him or when it happened and only found out much later in his childhood (I think he was 10/11) about his existence when a relative dropped something into conversation. It seems to be a subject just not spoken about and i totally respect that.

the only reason I want to know is that I have recently had a dc and I want to know if it was something that could be genetic. I would assume that if it was someone would tell me or should have told DH years ago. Do I have a right to know or at least to know it’s nothing that could have any genetic link?

OP posts:
New posts on this thread. Refresh page
ThatsNotMyTeen · 13/01/2025 13:59

Seeingadistance · 12/01/2025 21:08

My ex-husband had a sister who died as a baby. It never once occurred to me to ask what she died of or that her death had anything to do with me at all, other than to be aware of a tragedy within his family. We do have a child together and I can honestly say that the idea of needing to know in case of heritary illness etc didn't once cross my mind.

Mine neither, but it did clearly cross my MWs mind

P00hsticks · 13/01/2025 13:55

No, you don't have a right to know. Having said that, in England and Wales death certificates are a matter of public record, so if the death occurred there and you know the basic details (name and approximate year and location the death occurred) you could discretely get a copy of the death certificate (there is a gap in the online records between 1958 and 1983 so no good if the death was in those years).

General Register Office (GRO) - Official information on births, marriages, civil partnerships and deaths

ThatsNotMyTeen · 13/01/2025 13:53

You know, I’m going to disagree on the “you have no right to know” stance

When I was pregnant MW asked us about any conditions in the family, my husband’s uncle had a learning disability and she said we should explore what that was. It was tricky as most people were dead/without legal capacity but we did find out it was meningitis so not genetic.

eurochick · 13/01/2025 13:48

I can understand your desire to know. In a first midwife appointment they take a family medical history and are clearly looking for genetic issues that might affect your pregnancy. I wouldn't say you have "a right" to know but if your husband can have a discreet chat with one of his parents that would seem sensible, particularly if you are considering more children.

starfishmummy · 13/01/2025 13:02

No youbcant ask your in laws. If you feel you absolutely have to know, then you can order a death certificate which will give a cause. However you'll then need to keep that to yourself as telling the in laws what you have done would be hugely insensitive.

Allswellthatendswelll · 13/01/2025 12:32

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I hope you and posters like you are happy that you have basically hounded an anxious first time mother, who might have PND, away from mumsnet for simply being concerned for their child.

Dramatic · 13/01/2025 12:05

I think they would have mentioned it had it been something genetic.

My brother died before I was born, my mam rarely talked about it and I didn't like to bring it up in case it upset her. When I became pregnant at a young age she panicked and told me about his genetic condition so I could get screened at scans. I really think they would have told you.

Mydoglovescheese · 13/01/2025 12:00

I think you have a valid point. My DH had an emergency operation as a 6 week old baby but wasn't told about it. The scar on his abdomen was explained as 'he swallowed a sixpence and had to have it removed'

When we had our first DS my MIL finally told DH about the operation which had been necessary because of a genetic condition. Our DS also had the condition and needed a lifesaving operation. Without knowing about the genetic link the doctors wouldn't have been able to make such a swift diagnosis and rectify the problem. Our second DS was monitored but was OK.

It's important to know if there is a potential genetic issue.

marmaladeandpeanutbutter · 13/01/2025 06:53

It is tragic that anyone loses a child , but that doesn't prevent another family member from wanting to check the implications for their own child. There isn't a hierarchy here. And anyway it's quite possible to find out without discussing it if necessary.

It wouldn't be surprising if siblings of a lost child might assume it's wrong to ask, but that the actual bereaved parents understand the reasons .

BrokenHipster · 13/01/2025 00:07

Rhysinpeices · 12/01/2025 21:14

It was a different country

Other countries also have death certificates

Namechangedforspooky · 13/01/2025 00:04

Same issue here with DH’s brother. We don’t even know whether he was stillborn or lived for a while.
His mum doesn’t talk about it and I don’t think I have a right to know although I did wonder about it quite a bit during my own pregnancies.

I think you have to respect her wishes and leave well alone if she doesn’t want to talk about it

Duckingella · 12/01/2025 23:59

I was four when my 6 day old brother died in his sleep.

It still is a painful subject for my family;one of my own children shares a birthday with him;it's always a bitter sweet day.

Although technically it was recorded as SIDS my family were given an explanation for it.It wasn't genetic or environmental.

BBQPete · 12/01/2025 23:56

Rhysinpeices · 12/01/2025 21:37

Thank you for kindness. I think pp is probably right that this is probably some kind of PND reaction where you get hyper focused on a threat. I honestly thought other mums might be more sympathetic to that kind of feeling. Logging out, deleting account. But thank you for those who replied in kindness

Many people replying will be "being sympathetic" to all the Mums who have lost children in infancy.

@KimMumsnet I don't think it is unreasonable for posters to be more empathetic to Mums who have lost a child, than to the OP on this thread.

andthat · 12/01/2025 23:48

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Fucking selfish?

She’s a worried mum, asking on a parenting forum for some advice. Don’t be such an arsehole.

user1492771818 · 12/01/2025 23:44

Very few genetic conditions are caused by single gene mutations. You'll be no further forward in determining absolute risk to your child, unless you knew that you were both definitely carrying a recessive for one of them. It also seems unlikely as why would a your husband's brother die infancy and not him as well?

mainecooncatonahottinroof · 12/01/2025 23:41

I lost an infant brother. I was 7. He was too long being born and he developed meningitis and died at 9 days.

Babies unfortunately die for all sorts of reasons that aren't genetic.

Paisleyandpolkadots · 12/01/2025 23:37

I was mildly concerned about my paternal grandmother's cause of death considering she'd died very young. My father was a child when she died and older relatives were very unforthcoming.It was tuberculosis - I found the death record on line. My mother's family had cited a history of TB in my farher's famly as one of the many reasons why my mother shouldn't marry my father. Then just last year we found out there was even more tuberculosis in my mother's family which had been carefully kept quiet. Neither my father nor mother developed TB and there is no sign of a genetic predisposition to TB in me or my children.

Realistically, the chances are much more likely it was cot death or some infection. It could even have been as a result of a birth injury.

Even if it was genetic, there's no guarantee that your husband even got that same gene and your child's gene pool is half yours. It could even have been a spontabeous mutation in his little sibling just something going awry on the gene split as a matter of pure bad luck. Lots of people have a defective or less than ideal recessive which is masked by the other parent's good gene - as long as there isn't a line of cousins marrying cousins. For example, my father and my husband are both colourblind but neither I nor my sons are colour blind. My sons are not even carriers. They got my mother's good x though I carried my father's defective x as well.

Calliekins · 12/01/2025 23:29

To be honest I would like to think and hope if there was any chance of there being a "genetic" concern, it would have been mentioned before you actually had your own child

marmaladeandpeanutbutter · 12/01/2025 23:14

SwerveCity · 12/01/2025 22:11

I’m so surprised that everyone seems to be against this. I would say you DO have a right to know.

Mumsnet very odd today. She obviously needs to know of genetic issues, I agree.

Vaxtable · 12/01/2025 23:06

Just search for the child’s death certificate and order a copy

cabbageking · 12/01/2025 23:00

You can get a copy of any death certificate you wish. They are a public record

LifeOfBriony · 12/01/2025 22:56

OP, I don’t think you’re unreasonable at all in wanting to know. My DH had an older sibling who died before DH was born. DH didn’t know the cause of death, but knew enough information for us to obtain a birth certificate from the General Register Office (UK). Both DH’s parents had died at this point, so he was unable to ask.

EconomyClassRockstar · 12/01/2025 22:48

I agree with @QueenOfHiraeth You have asked the question to us clumsily so you definitely need to work on your phrasing but I think it's ok for you to ask DH to reach out to one of his parents and ask. Even SIDS can have be genetically related, although rare. Knowledge is power when it comes to medical stuff.

Flopsy145 · 12/01/2025 22:44

I don't think you are being unreasonable, you would hope if it was a genetic condition then you would have been told, but you never know. It could be something like epilepsy which would be good to know if there's family history etc. It's highly likely to sadly have been sids, or something equally as tragic but not a genetic issue. I have a close relationship with my mil, we've had conversations about very personal things that happened to her and I would feel comfortable asking her if this was me, but then nothing is secret or taboo and there isn't the cultural element you speak of.
I would do as a pp suggested and try track down a death certificate or something, that way you can find out without ever mentioning it.
Or possibly get your DH, if he's comfortable enough and close enough with his parents, to ask one of them, or even better an aunt/uncle who will know but it not be a super emotional thing to ask.

Cheerioshesaid · 12/01/2025 22:39

Calochortus · 12/01/2025 22:27

I had my son two years before my other children were born, he died when he was 5 months. Our other children all know about E and the reason he died, if in future any of my children or their partners need to know any more information I’m more than happy to share the copies of his medical records and all records I have of afterwards. If my experience helps them in any way who wouldn’t share important details?

My uncle drowned when he was 5 and my aunt died suddenly when she was 2, I wish I’d known why my aunt died before I had E as it could have been a completely different outcome for us. My grandmother refused to discuss anything about how her children died and my mother claimed she never knew. I never found out until I went looking after I lost my own son. It’s difficult not to be bitter some days.

I am so sorry this happened.