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To think if ASD is costing the UK 32bn per year we need to better early screening?

237 replies

Pelot · 12/01/2025 19:21

Autism costs the UK 32bn a year. That's more than cancer, heart disease and stroke combined.

Yet we don't routinely screen all children and get them the services they need early enough. Often the system waits until a child is so unable to cope that they become disruptive in school that a referral is made. Often families don't realise (because no one tells them) that their child is displaying multiple red flags and that they will likely have higher care needs. Those families go on to have multiple affected children because they had no idea what the care needs of the first would be. Surely getting intervention and support sooner would be more cost effective and allow families a chance to be more fully informed when making decisions about subsequent children?

OP posts:
biscuitsandbooks · 12/01/2025 20:22

Kuch3n · 12/01/2025 20:20

Being successful in your career doesn’t mean you function well in the world. Being autistic means you don’t.

Again, you can appear to "function well in the world" when you actually struggle. Massively. It's why there's such a huge connection between high-masking autism and mental health issues.

mum2jakie · 12/01/2025 20:21

Pelot · 12/01/2025 19:57

@BusMumsHoliday I think we could do better with public health awareness campaigns. Not many people seem to know that spacing babies less than 2 years apart significantly increases the risk of ASD.

Do you have any evidence to support this statement?

TheSillyGoose · 12/01/2025 20:21

I have autism and work a high-level, person facing job in the NHS. I also do the admin, my partners civil engineering business, including dealing with customers.

Getting diagnosed with autism changed my outlook on life - it explained why I had struggled in a lot of situations throughout life.

Every diagnosis is valid.

VivienneDelacroix · 12/01/2025 20:20

soupfiend · 12/01/2025 20:15

I dont know if the paediatricians/consultants/teachers/parents/social workers and other childrens workers who talk about it are on this forum

There is growing concern about it. It will change in years to come I can tell you that. Other countries also dont have a blanket diagnosis to describe all people with ND

Either do we?
"Neurodivergent" isn't a diagnosis, there are many different diagnoses that fall under the ND category.

Fargo79 · 12/01/2025 20:20

As a parent in an ND family, I feel like most of that money is spent actively wasting our time and finding ways to withhold the support we're crying out for.

soupfiend · 12/01/2025 20:20

Narkacist · 12/01/2025 20:12

Fetal MRI to detect autism will change things if anx when it’s brought in on a wide scale

This came up on another thread, i think its not foolproof

The current theory that its genetic will be better if we can determine the genetic diagnosis but again, this came up on another thread and someone posted research studies and that also is not that accurate.

As with all things there will be a breakthrough at some point

Kuch3n · 12/01/2025 20:20

VivienneDelacroix · 12/01/2025 20:18

Errm, I have a diagnosis and am very successful in my career in education. What about Cat Burns, Melanie Sykes, Elle McNicoll and so many other successful autistic women with a diagnosis?

Being successful in your career doesn’t mean you function well in the world. Being autistic means you don’t.

biscuitsandbooks · 12/01/2025 20:18

soupfiend · 12/01/2025 20:12

Thats interesting because my sibling received a diagnosis as an adult.

Yep - lots of people work and get diagnosed - it's very, very normal.

Being high-masking and high-functioning (on the surface at least) doesn't mean you don't qualify for a diagnosis of autism.

VivienneDelacroix · 12/01/2025 20:18

Kuch3n · 12/01/2025 20:11

No you can’t, it needs to significantly impact life. Working does not mean you function well in the world.

Errm, I have a diagnosis and am very successful in my career in education. What about Cat Burns, Melanie Sykes, Elle McNicoll and so many other successful autistic women with a diagnosis?

BIossomtoes · 12/01/2025 20:17

soupfiend · 12/01/2025 20:12

Thats interesting because my sibling received a diagnosis as an adult.

Lots of people are being diagnosed as adults.

biscuitsandbooks · 12/01/2025 20:17

Kuch3n · 12/01/2025 20:11

No you can’t, it needs to significantly impact life. Working does not mean you function well in the world.

Yes, you can. I'm in the process of being diagnosed and I run my own business. I have several family members with a diagnosis and they have always worked.

Many autistic people work and "function" on the surface. That doesn't mean they're not struggling and don't have autism.

soupfiend · 12/01/2025 20:17

Pelot · 12/01/2025 19:57

@BusMumsHoliday I think we could do better with public health awareness campaigns. Not many people seem to know that spacing babies less than 2 years apart significantly increases the risk of ASD.

Where have you got this information from?

soupfiend · 12/01/2025 20:15

Kuch3n · 12/01/2025 20:11

No there isn't growing concern just a few MNers who have an issue with verbal autistic people.

I dont know if the paediatricians/consultants/teachers/parents/social workers and other childrens workers who talk about it are on this forum

There is growing concern about it. It will change in years to come I can tell you that. Other countries also dont have a blanket diagnosis to describe all people with ND

Kuch3n · 12/01/2025 20:14

soupfiend · 12/01/2025 20:12

Thats interesting because my sibling received a diagnosis as an adult.

And to get that diagnosis your sibling would have needed to show that his/her autism significantly impacted life.

ballroompink · 12/01/2025 20:13

Kuch3n · 12/01/2025 20:11

No you can’t, it needs to significantly impact life. Working does not mean you function well in the world.

How odd, because my DH who has a well-paid job and certainly functions in the world definitely has a diagnosis.

soupfiend · 12/01/2025 20:12

Kuch3n · 12/01/2025 20:08

“someone with a job in accountancy who functions well in the world.“ wouldn’t get an autism diagnosis.Traits need to significantly impact life.

Thats interesting because my sibling received a diagnosis as an adult.

Narkacist · 12/01/2025 20:12

Fetal MRI to detect autism will change things if anx when it’s brought in on a wide scale

Kuch3n · 12/01/2025 20:11

biscuitsandbooks · 12/01/2025 20:10

You can work, appear to "function well in the world" and get a diagnosis.

No you can’t, it needs to significantly impact life. Working does not mean you function well in the world.

Kuch3n · 12/01/2025 20:11

soupfiend · 12/01/2025 20:02

There is a growing openness now within childrens professionals that there isnt enough focus on attachment and trauma impacting on ASD like symptoms which then lead to a diagnosis. Also that the new way of describing ND as all one thing, when the reality is that there are children/adults with autism who are non verbal and non mobile and will never live independently, and the same diagnosis is used to apply to someone with a job in accountancy who functions well in the world.

It goes down like a bucket of sick for some reason on this forum but the reality is there is growing concern about that.

No there isn't growing concern just a few MNers who have an issue with verbal autistic people.

biscuitsandbooks · 12/01/2025 20:10

Kuch3n · 12/01/2025 20:08

“someone with a job in accountancy who functions well in the world.“ wouldn’t get an autism diagnosis.Traits need to significantly impact life.

You can work, appear to "function well in the world" and get a diagnosis.

Whatzzitz · 12/01/2025 20:10

ThejoyofNC · 12/01/2025 19:42

I am genuinely shocked at how in just a few short years, the amount of people diagnosed with autism has absolutely skyrocketed. I can believe it costs that much, as even the 1-1 support at schools must be astronomical, and that's just for those being supported in mainstream schools.

schools are more pressurised and less accommodating to children with autism these days. As we already know, the more pressure, the more anxiety and likelihood of autistic burnout. The school curriculum also seems less balanced. Gone are the wide practical elements of some subjects like science, while arts and crafts have been minimised on the timetable.

Kuch3n · 12/01/2025 20:08

soupfiend · 12/01/2025 20:02

There is a growing openness now within childrens professionals that there isnt enough focus on attachment and trauma impacting on ASD like symptoms which then lead to a diagnosis. Also that the new way of describing ND as all one thing, when the reality is that there are children/adults with autism who are non verbal and non mobile and will never live independently, and the same diagnosis is used to apply to someone with a job in accountancy who functions well in the world.

It goes down like a bucket of sick for some reason on this forum but the reality is there is growing concern about that.

“someone with a job in accountancy who functions well in the world.“ wouldn’t get an autism diagnosis.Traits need to significantly impact life.

LazJaz · 12/01/2025 20:06

Please provide a source for your claim
about increased ASD with less than 2 years between pregnancies.

WinterBones · 12/01/2025 20:03

ThejoyofNC · 12/01/2025 19:42

I am genuinely shocked at how in just a few short years, the amount of people diagnosed with autism has absolutely skyrocketed. I can believe it costs that much, as even the 1-1 support at schools must be astronomical, and that's just for those being supported in mainstream schools.

That isn't cost to the NHS though. And i'm using NHs as they're comparing it to other health problems like Stroke, Cancer...etc.

soupfiend · 12/01/2025 20:02

There is a growing openness now within childrens professionals that there isnt enough focus on attachment and trauma impacting on ASD like symptoms which then lead to a diagnosis. Also that the new way of describing ND as all one thing, when the reality is that there are children/adults with autism who are non verbal and non mobile and will never live independently, and the same diagnosis is used to apply to someone with a job in accountancy who functions well in the world.

It goes down like a bucket of sick for some reason on this forum but the reality is there is growing concern about that.