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To think if ASD is costing the UK 32bn per year we need to better early screening?

237 replies

Pelot · 12/01/2025 19:21

Autism costs the UK 32bn a year. That's more than cancer, heart disease and stroke combined.

Yet we don't routinely screen all children and get them the services they need early enough. Often the system waits until a child is so unable to cope that they become disruptive in school that a referral is made. Often families don't realise (because no one tells them) that their child is displaying multiple red flags and that they will likely have higher care needs. Those families go on to have multiple affected children because they had no idea what the care needs of the first would be. Surely getting intervention and support sooner would be more cost effective and allow families a chance to be more fully informed when making decisions about subsequent children?

OP posts:
Kuch3n · 12/01/2025 20:41

Pookypook · 12/01/2025 20:40

This is absolute rubbish, as anyone who knows anything about autism will know. At least half the (diagnosed) autistic adults I’ve met are in work - FT as well as PT. Doesn’t mean we all “function well in the world” outside a safe, predictable routine.

Which is exactly why being able to work doesn’t clarifying somebody as functioning well in the world.

Pookypook · 12/01/2025 20:40

Kuch3n · 12/01/2025 20:11

No you can’t, it needs to significantly impact life. Working does not mean you function well in the world.

This is absolute rubbish, as anyone who knows anything about autism will know. At least half the (diagnosed) autistic adults I’ve met are in work - FT as well as PT. Doesn’t mean we all “function well in the world” outside a safe, predictable routine.

NattyTurtle59 · 12/01/2025 20:39

bradfordisdamned · 12/01/2025 19:45

Of course it's skyrocketed. Parents with autism who have children, are more likely to have kids who also have autism. How is this surprising?

To those of us who have been around a while I can assure you it is surprising. Where were all these people with autism when I was young?

Blue278 · 12/01/2025 20:38

Think of all the people in history who likely had autism. In fact it’s suggested that most of the great scientists may have had it. It’s a type of being human that tends to produce extremes when ability is combined with single mindedness.

gamerchick · 12/01/2025 20:38

This reply has been deleted

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OffMyDahlias · 12/01/2025 20:37

Kuch3n · 12/01/2025 20:08

“someone with a job in accountancy who functions well in the world.“ wouldn’t get an autism diagnosis.Traits need to significantly impact life.

As someone who has worked in accountancy with at least 2 (that I know of) diagnosed adults, you’re ill informed. A lot of autistic people are very capable of functioning in an important or difficult job. There are many ways in which autism can impact people and it’s doesn’t always mean they can’t function well.

biscuitsandbooks · 12/01/2025 20:35

Kuch3n · 12/01/2025 20:31

There is a threshold you need to meet and having persistent deficits in reciprocal social communication and social interaction
restricted, repetitive patterns of behaviour and symptoms causing clinically significant impairment in social, occupational, or other important areas of functioning to the extent you are significantly impacted in life to meet diagnosis criteria would mean you don’t function “well” in life- without support and adjustments .

In the nicest way, you seem quite misinformed.

You can work, be "successful" in a career and still struggle with all the things on your list.

biscuitsandbooks · 12/01/2025 20:33

soupfiend · 12/01/2025 20:31

I know I was being sarcastic, I obviously missed the mark!!

I was agreeing with you, lol.

CautiousLurker01 · 12/01/2025 20:33

Hmmm… my children have cost the taxpayer £0. Not for assessments, not for medication or therapy, not for their education (yep private education, so in fact SAVED them £7k x 8 years for each child)…

Kuch3n · 12/01/2025 20:31

VivienneDelacroix · 12/01/2025 20:25

Being autistic, according to the diagnostic criteria is down to:

  • Persistent deficits in social communication/interaction and
  • Restricted, repetitive patterns of behavior
Sensory sensitivity can also be an additional part.

That's the criteria for diagnosis. I can function well in the world and yet have these three things. My diagnosis helps me to understand how best to manage my social communication deficits, restricted behaviours, and sensory sensitivities - so that I can function well in the world.

There is a threshold you need to meet and having persistent deficits in reciprocal social communication and social interaction
restricted, repetitive patterns of behaviour and symptoms causing clinically significant impairment in social, occupational, or other important areas of functioning to the extent you are significantly impacted in life to meet diagnosis criteria would mean you don’t function “well” in life- without support and adjustments .

soupfiend · 12/01/2025 20:31

biscuitsandbooks · 12/01/2025 20:18

Yep - lots of people work and get diagnosed - it's very, very normal.

Being high-masking and high-functioning (on the surface at least) doesn't mean you don't qualify for a diagnosis of autism.

I know I was being sarcastic, I obviously missed the mark!!

biscuitsandbooks · 12/01/2025 20:31

Blue278 · 12/01/2025 20:29

I often think about a man I managed years ago who very evidently had the form of autism that used to be known as Asperger’s. He struggled so hard but had managed with difficulty to stay in paid work until he was made redundant in his 50s.

He contacted me a few years later to say he’d now been diagnosed with Autism. There must be many like him who just weren’t aware so didn’t get the help they needed.

It is everywhere now. Two of my nephews. One niece. My son’s GF is diagnosed autistic but if she’d grown up when I did I doubt she would have been screened for it or able to get the help she needs. She thinks my son is autistic too and is encouraging him to look into it.

I think being diagnosed in your fifties is surprisingly common. I have two family members diagnosed at that kind of age - both of whom had managed successful careers but who struggled massively in other areas.

Pelot · 12/01/2025 20:30

@LazJaz

autism.org/pregnancy-spacing-may-affect-odds-of-asd/

Here's one but there are quite a few studies to pick from. Too close or even too far apart and the odds jump dramatically.

OP posts:
Blue278 · 12/01/2025 20:29

I often think about a man I managed years ago who very evidently had the form of autism that used to be known as Asperger’s. He struggled so hard but had managed with difficulty to stay in paid work until he was made redundant in his 50s.

He contacted me a few years later to say he’d now been diagnosed with Autism. There must be many like him who just weren’t aware so didn’t get the help they needed.

It is everywhere now. Two of my nephews. One niece. My son’s GF is diagnosed autistic but if she’d grown up when I did I doubt she would have been screened for it or able to get the help she needs. She thinks my son is autistic too and is encouraging him to look into it.

soupfiend · 12/01/2025 20:29

Livelovebehappy · 12/01/2025 20:25

Not sure catching cases of ASD would make much difference. It isn’t something which can be cured, only managed. I think there are so many people with ASD traits, who wouldn’t be classed as having ASD. It must be difficult to diagnose.

Well what would help would be more funding for specialist school places

Current methodology of education is one of inclusivity, it has been fought for, for decades. What this has resulted in, is children's needs not being met under that guise. Its been convenient for successive governments and this then filters down to LAs, to insist that all mainstream can meet most ND/SEN needs

They cant of course and children with challenging needs are being let down and the rest of the class are also let down. The sheer amount of time and resources that schools cant cope with is not recognised.

TippledPink · 12/01/2025 20:29

I manage an Autism social care team- some of our care packages are £7k+ a week for one person- the amount of professionals around the individual is astronomical- we can sit in meetings of 15+ professionals weekly discussing the person's needs. Think of the cost to employ those professionals. Lots stuck in hospital as there isn't an appropriate provider to take on the care package- this is a massive cost to health. The cost of Autism is huge when not managed appropriately.

ThighsYouCantControl · 12/01/2025 20:26

I’m surprised at the cost. And that it’s more than the cost of say, cancer.

I have 3 children and the 2 eldest have ASD. Younger one was diagnosed aged five and the eldest at 15. One is at a special school and may never live independently and the other got As and Bs in their GCSEs, is doing A levels now (all mainstream education) and can’t wait to go to university. Not everyone who is on the spectrum has high care needs but there definitely needs to be more support and research into not just why it occurs but also different education techniques.

My husband and I had a 3rd child together knowing they might also be autistic like their siblings (and if I’m honest, parents.Neither husband or I have been diagnosed but we almost definitely are too).

Sceptical123 · 12/01/2025 20:26

BusMumsHoliday · 12/01/2025 19:35

It "costs" that much because that study includes lost parental productivity and lost opportunity costs. Obviously, those are very real for families with autistic children, but considering that strokes, heart disease, and cancer usually affect older people, for a relatively short amount of time, you're not comparing like with like.

You can't reliably screen for autism before 18 months. Lots of parents have made decisions to have other children before then. Many parents who suspect or know their child is autistic have another child regardless (I did).

I absolutely agree that there needs to be better support and faster diagnosis. But framing all that in economic terms has a gross whiff of eugenics about it.

Edited

Yes, also, subsequent children don’t automatically have autism because their older sibling does!

soupfiend · 12/01/2025 20:26

VivienneDelacroix · 12/01/2025 20:20

Either do we?
"Neurodivergent" isn't a diagnosis, there are many different diagnoses that fall under the ND category.

Im talking about autism and aspergers.

Another thing people argue about on this forum, there are lots of people with a diagnosis of aspergers, posters often try to silence that

Thats why I used the term ND to incorporate those 2 specific conditions, not the other ND conditions.

VivienneDelacroix · 12/01/2025 20:25

Kuch3n · 12/01/2025 20:20

Being successful in your career doesn’t mean you function well in the world. Being autistic means you don’t.

Being autistic, according to the diagnostic criteria is down to:

  • Persistent deficits in social communication/interaction and
  • Restricted, repetitive patterns of behavior
Sensory sensitivity can also be an additional part.

That's the criteria for diagnosis. I can function well in the world and yet have these three things. My diagnosis helps me to understand how best to manage my social communication deficits, restricted behaviours, and sensory sensitivities - so that I can function well in the world.

Livelovebehappy · 12/01/2025 20:25

Not sure catching cases of ASD would make much difference. It isn’t something which can be cured, only managed. I think there are so many people with ASD traits, who wouldn’t be classed as having ASD. It must be difficult to diagnose.

soupfiend · 12/01/2025 20:24

BIossomtoes · 12/01/2025 20:17

Lots of people are being diagnosed as adults.

I know this. Its an area I work in within my role!

Fargo79 · 12/01/2025 20:23

Kuch3n · 12/01/2025 20:20

Being successful in your career doesn’t mean you function well in the world. Being autistic means you don’t.

So no autistic people are functional and happy?

RawBloomers · 12/01/2025 20:23

Pelot · 12/01/2025 19:57

@BusMumsHoliday I think we could do better with public health awareness campaigns. Not many people seem to know that spacing babies less than 2 years apart significantly increases the risk of ASD.

Is that taking parental age into account? It seems like the sort of factor that would be impacted by parental age, which is already a known risk factor.

soupfiend · 12/01/2025 20:22

Kuch3n · 12/01/2025 20:14

And to get that diagnosis your sibling would have needed to show that his/her autism significantly impacted life.

No during her assessment, which I was part of, she talked about the traits she has. She functions very well, she has an extremely well paid job, she has a partner, she has a social life, she is organised, clean, tidy, manages herself and others. But she is ND
You seem really illinformed about the differences between people.