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My aunt and her daughters PIP/ benefits

93 replies

Whatyearisit20 · 05/01/2025 23:04

my cousin has been on dla most of her life, not diagnosed with much but symptomatic of a lot. She does have an autism diagnosis however this is not the main cause of why she was on dla.
she is now moving over to pip and will be able to claim her own UC.
she went to through main stream education and did not require an ehcp of any kind and is a very capable person.
she spend quite a lot of time at our house with my kids because I think she just enjoys the hustle and bustle of it so I know her very well !
i receive Dla for my eldest and aunt rang me to see if I knew any information about how she could be the one to still receive cousins pip ( was dla ) and her universal credit due to her being incapable.
I was slightly taken back by this rightly or wrongly they got my cousin a cash in hand job that she works at Saturday and Sunday perfectly able and take 20 percent of her wages for rent.
she is fairly independent and travels her self, shops her self etc
so I highlighted that I didn’t think this was reasonable and if cousin is entitled to it then she should now receive her money.
I spoke to cousin about what she wanted and she said she wanted it to come to her.
she is very capable I just don’t understand it.
aunt is now annoyed at me and said that daughter was fine with it until I spoke to her and is furious but I just feel like cousin needed to know all
options and is capable of making her own decisions.

OP posts:
Frowningprovidence · 06/01/2025 09:02

Op if I understand you correctly, you are simply asking about your cousins capacity to manage her own money, not whether she is entitled to it.

I can't tell from the info you have given whether she is capable but I think she will have to consent to her mum doing it on her behalf.

I actually think 16 is quite young to manage your own benefits if you are still at home but if she does , her family will have to support her being sensible with it.

Whatyearisit20 · 06/01/2025 09:01

x2boys · 06/01/2025 08:42

The Op Has her staying over 3/4 nights a,week so I assume Has a good idea of her capabilities, I assume your relatives don't have your child staying over 3/4 nights a weeks?

Yes she has stayed with us every week mainly due to I think she just prefers it here as more people her age and she doesn’t always see eye to eye at hers. She goes home from Friday to Monday as she worked Saturday and Sunday.

OP posts:
Whatyearisit20 · 06/01/2025 08:56

x2boys · 06/01/2025 08:45

But the main criteria for PIp is that you are not capable of caring for yourself independently and need help with washing ,dressing ,cooking and cleaning and navigating independent travel ,.

Do you know how many mums are on pip whilst fully able to raise their children ?
being on pip does not mean you are not cabable of having your own money.
my DD is a full time wheelchair user, on treatment over night for something specific which is equal to hospital case / nursing care and partially death ( this was all due to catching severe meningitis ad a child.
she is able to cook, work , and manage her money fine but is also entitled to help.

OP posts:
Whatyearisit20 · 06/01/2025 08:53

pinkroses79 · 06/01/2025 08:18

Sounds as though your aunt is afraid of the drop in income as she has just been adding the DLA to the household budget. It is a shock when benefits come to an end but she needs to be prepared for this.
I wouldn't get involved myself though.

I don’t think it’s the dla as such but the high rate disability child element.

OP posts:
x2boys · 06/01/2025 08:45

Whatyearisit20 · 06/01/2025 08:06

and yet I know those can do those things and earn pip.
I know people who work and independently live and get pip.

But the main criteria for PIp is that you are not capable of caring for yourself independently and need help with washing ,dressing ,cooking and cleaning and navigating independent travel ,.

x2boys · 06/01/2025 08:42

WaitingForMojo · 06/01/2025 02:49

I think we need to suspend judgement on that. We have no idea about this young person’s conditions other than what the op believes. I have relatives who would say the same about my child who claims PIP, and genuinely believe it too. Except he absolutely qualifies and is eligible.

PIP won’t get awarded without supporting medical evidence, so ‘pretending she’s worse than she is’ won’t be an option.

The Op Has her staying over 3/4 nights a,week so I assume Has a good idea of her capabilities, I assume your relatives don't have your child staying over 3/4 nights a weeks?

Totaleclipseofthemind · 06/01/2025 08:28

The main thing you can do is help her set up a bank account in her own name if she doesn’t already have one.

If she does get PIP then she can at least get it paid into her bank account.

Cash in hand job? What is the job? You are aware if anything happens to her while she is doing this job she is not insured. Hopefully, it is a job which has minimum risks to her.

pinkroses79 · 06/01/2025 08:18

Sounds as though your aunt is afraid of the drop in income as she has just been adding the DLA to the household budget. It is a shock when benefits come to an end but she needs to be prepared for this.
I wouldn't get involved myself though.

Whatyearisit20 · 06/01/2025 08:08

Whatyearisit20 · 06/01/2025 08:06

and yet I know those can do those things and earn pip.
I know people who work and independently live and get pip.

I’m going to use my DD as an example here, she needs “ care “ as in for health reasons and treatment but she is full capable and has capacity to make her own decisions in life.

OP posts:
Whatyearisit20 · 06/01/2025 08:06

Agix · 06/01/2025 06:42

You are not entitled to Pip unless you have care needs.

It's nothing to do with how bad your health is. It's to do with whether you need specific care or not.

If she can:

Make food without help
Eat without help
Take meds without help
Washe and bathe without help
Toilet without help
Dress and undress without help
Communicate verbally without help
Read without help
Engage with other people face to face without help
Manage her money without help
Walk without help
Make journeys without help

Then she is not entitled to PIP at all

Edited

and yet I know those can do those things and earn pip.
I know people who work and independently live and get pip.

OP posts:
converseandjeans · 06/01/2025 07:01

I would imagine it is a shock to parents who get UC with childcare to lose that chunk of money. So I think she is probably worried about paying the bills. £70 isn't much really towards food & rent.

It all sounds a bit dodgy though - your cousin seems able to work Saturday & Sunday & they aren't declaring that income. Meanwhile both Aunt & cousin are claiming UC.

Is there a reason your Aunt can't work? Because long term she won't have access to her daughter's benefits & will have to manage without. Also your cousin could lose benefits if they discover she is in fact more capable than they have been told.

Agix · 06/01/2025 06:42

Whatyearisit20 · 06/01/2025 03:59

Just to reply about the comment regarding I don’t think she is entitled to pip as in my cousin - I do not believe that. As I said my own daughter has it based on her health needs nothing to do with her ability to manage her own life and money.
I do know she is capable because as stated she spend most / alor of them at my house. This is not someone who I spend an hour a week with.

You are not entitled to Pip unless you have care needs.

It's nothing to do with how bad your health is. It's to do with whether you need specific care or not.

If she can:

Make food without help
Eat without help
Take meds without help
Washe and bathe without help
Toilet without help
Dress and undress without help
Communicate verbally without help
Read without help
Engage with other people face to face without help
Manage her money without help
Walk without help
Make journeys without help

Then she is not entitled to PIP at all

itsgettingweird · 06/01/2025 04:20

They will do an appointee interview.

My autistic ds wants me to be appointee as he finds it too much dealing with things himself and he also holds down a job.

So they made me appointee at his request.

Your niece can tell them she wants to manage it herself. If they deem her to have mental capacity then they will pay it direct to her.

Whatyearisit20 · 06/01/2025 03:59

Just to reply about the comment regarding I don’t think she is entitled to pip as in my cousin - I do not believe that. As I said my own daughter has it based on her health needs nothing to do with her ability to manage her own life and money.
I do know she is capable because as stated she spend most / alor of them at my house. This is not someone who I spend an hour a week with.

OP posts:
Octavia64 · 06/01/2025 03:23

PIP is intended to support disabled people whether they are in work or not. So her "job" isn't relevant for it.

As others have said her mum can apply to be her appointee.

The process is quite gruelling - I have just been through it. I submitted over 100 pages of medical evidence and had a detailed interview for about 1.5 hours where they picked up on any discrepancies in the medical info and asked for a lot of examples of things.

Many people apply and are turned down.

BeLilacSloth · 06/01/2025 03:13

WaitingForMojo · 06/01/2025 03:05

If the claimant has an appointee to manage their benefits, PIP can be paid into either the appointee’s account or the claimant’s.

WRT the DLA, it is fine for it to become part of household income, there’s no requirement to prove what it was spent on. The parent is covering all the child’s costs, and the money becomes part of that.

Don’t have much experience on PIP so thank you :)
yes completely agree. OP has made it sound like her aunt has just been spending it on herself when it should be used for like you say, the childs costs.

WaitingForMojo · 06/01/2025 03:05

BeLilacSloth · 06/01/2025 02:59

The DLA money recieved so far should not have been spent by your aunt at all, it’s purely for the child who has SN/ disabilities. PIP I believe needs to be in your cousin’s name and bank account. Your aunt has literally been spending money entitled to her daughter and if gov found this out she’d probably need to pay it back. I have a severely disabled daughter on DLA and feel i’m entitled to spend her carers allowance as I please (as that’s for me in my name) but never her DLA money.

If the claimant has an appointee to manage their benefits, PIP can be paid into either the appointee’s account or the claimant’s.

WRT the DLA, it is fine for it to become part of household income, there’s no requirement to prove what it was spent on. The parent is covering all the child’s costs, and the money becomes part of that.

BeLilacSloth · 06/01/2025 02:59

The DLA money recieved so far should not have been spent by your aunt at all, it’s purely for the child who has SN/ disabilities. PIP I believe needs to be in your cousin’s name and bank account. Your aunt has literally been spending money entitled to her daughter and if gov found this out she’d probably need to pay it back. I have a severely disabled daughter on DLA and feel i’m entitled to spend her carers allowance as I please (as that’s for me in my name) but never her DLA money.

WaitingForMojo · 06/01/2025 02:50

BashfulClam · 06/01/2025 01:47

Where does she say cousin is 16?

As another poster said, she is transitioning from DLA to PIP, which means she’s 16.

WaitingForMojo · 06/01/2025 02:49

FrogOnSpeed · 06/01/2025 01:24

There is no way she will qualify for PIP unless they pretend she is worse than she is.

I think we need to suspend judgement on that. We have no idea about this young person’s conditions other than what the op believes. I have relatives who would say the same about my child who claims PIP, and genuinely believe it too. Except he absolutely qualifies and is eligible.

PIP won’t get awarded without supporting medical evidence, so ‘pretending she’s worse than she is’ won’t be an option.

HollyKnight · 06/01/2025 02:39

If she's not in education she should be working because when she leaves education her mother will lose money. Do you actually think she should be able to keep all her money herself and only give her mum £70 a month? That's ridiculous.

Whatyearisit20 · 06/01/2025 02:32

Whatyearisit20 · 06/01/2025 02:26

Because she’s 16 in education but not very much longer.

the main reason she was dla was health
my daughter is on dla for health reasons but is fully capable in every day life in terms of managing her self but has a life limiting disease.

Edited

At the moment her mum is receiving benefits for her and contribution to the rent so why would she be taking more than 70.00 off her !

OP posts:
Whatyearisit20 · 06/01/2025 02:26

HollyKnight · 06/01/2025 02:00

Then why is this capable person only working 2 days a week in a job she didn't get herself? If she gets her PIP money herself is she going to give her mother more than just £70 a month board? Because that is a ridiculous amount for a fully capable adult to contribute to living in someone else's house.

Because she’s 16 in education but not very much longer.

the main reason she was dla was health
my daughter is on dla for health reasons but is fully capable in every day life in terms of managing her self but has a life limiting disease.

OP posts:
HollyKnight · 06/01/2025 02:00

Whatyearisit20 · 06/01/2025 01:17

She is very capable she is here 3 nights and 4 days a week for the last year at least. I don’t supervise her, she cooks her own dinner, she travels by herself, she is most defo capable of looking after a 5 year old for a few hours
I don’t see why she is any less capable of having her own money like she does her wages or any other girl her age who has left school and is now working. Their wages don’t get paid to mum.

Edited

Then why is this capable person only working 2 days a week in a job she didn't get herself? If she gets her PIP money herself is she going to give her mother more than just £70 a month board? Because that is a ridiculous amount for a fully capable adult to contribute to living in someone else's house.

ARichtGoodDram · 06/01/2025 01:53

Where does she say cousin is 16?

16 is the age that people who've been on DLA as children have to apply for PiP instead