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To think autism gets worse with each generation

494 replies

eastereggg · 30/12/2024 16:08

Genuine question.

Why does it seem that autism gets worse with each generation?

Example: a mother is a late diagnosed autistic but her child is very clearly autistic and displays much more severe characteristics than she did. The grandmother would probably be diagnosed autistic today as well.

There seems to be a recurring pattern that I'm seeing where autism is getting more severe with each generation. Is there an explanation for this?

OP posts:
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5
Tittat50 · 30/12/2024 20:08

SpringIscomingalso · 30/12/2024 19:57

Well obviously. If you are full time carer and single and do not work, most likely you will get benefits.

Just to ask whether you feel this is more financially beneficial than working and not caring for an Autistic child? I don't want to assume that's the suggestion but it does feel a little like that. Benefits will never cover the outgoings the poster has referenced here.

Those who don't experience this don't realise that incredibly skilled mothers will be leaving their well paying, tax contributing salaries in droves in order to care for children who are unable to care for themselves ( virtually no provision exists any more here). Alternatively, as we see at almost epidemic levels- mum's leaving their tax contributing careers and having to stay home with kids who can't cope in mainstream school and are having mental health breakdowns because of it.

For those who don't have experience, the provision for SEN kids in schools has become so stripped back that parents have nowhere for their kids ( many very capable) to go. This problem is growing significantly and impacts everyone.

There is nothing financially preferable about these situations. Anyone who thinks as much needs to stop reading the Daily Mail.

SpringIscomingalso · 30/12/2024 19:57

Vinvertebrate · 30/12/2024 16:56

And this has precisely….what relevance to autism prevalence?

FWIW my DS8 is autistic and in special education. I have spent over £30k on diagnosis, OT, SALT, play therapy, ADHD assessment and meds, specialist toys and equipment. He can’t use regular childcare or do simple things like queue or stand still. I get middle rate DLA, which iirc is the princely sum of about £240 a month. I would have to receive it for 3 lifetimes to actually fund the out-of-pocket costs of having a disabled autistic child.

If you actually had to care for a dysregulated child with autism on a regular basis, I suspect you’d be singing a rather different tune.

Well obviously. If you are full time carer and single and do not work, most likely you will get benefits.

Verbena17 · 30/12/2024 19:57

Ohthatsabitshit · 30/12/2024 19:37

High and low functioning refer to iq not how happy you are. I’m not sure why you are suggesting more disabled people are default more miserable it’s simply nonsense.

More recently low functioning autistics would be described as having ASD with a LD (learning disability), and High functioning just ASD. These are very useful descriptors and I think there are also many who are not offended by the terms but who are offended by the idea that having a LD is something unmentionable or of no consequence.

The National Autistic Society state the following below…
Taking my own DS as an example, he has level 8 GCSEs, is grade 8 piano, speaks a complex language he’s taught himself, has taught himself to code and has an IQ of between 135-145. And yet….some days he cannot talk due to anxiety, cannot eat due to anxiety and ARFID. He has never called anyone other than me on the phone, he doesn’t go into shops, he won’t use public transport and won’t learn to drive as he doesn’t trust others. Until quite recently he couldn’t tie his laces and cannot currently work as he is selectively mute and therefore cannot do an interview.
He is super intelligent (cognitively and emotionally) and yet isn’t high functioning at all and needs a lot of support from us.

To think autism gets worse with each generation
Majesticalling · 30/12/2024 19:53

Verbena17 · 30/12/2024 18:06

If you think about it though, with each generation, each historical period of time gets more socially overwhelming as well.

So someone who is autistic in the 1950’s had less environmental and social stimuli to cope with than say the next generations in the 70’s and 90’s.

In the 1950’s Tv was only just invented and so children played outside in nature much more. They barely had any toys - just a few special ones.
They had to use their imagination a lot more than today.
School was basic, simple and with lots of playing time and not much homework.

Shopping centres, modern cinemas with surround sound, motorways with tons of traffic, pop music with loud electronic sound ……didn’t exist.

Everything in those days could probably have been a lot more manageable than for an autistic child today. The amount of stimuli our autistic children have to cope with today is just huge.

Put my DS in a class of 30 loud children and he’d have a meltdown when he got home.
Put him in a fast flowing stream with bare feet in Scotland or sitting in a mud hole making mud bombs …..happy as Larry all day long.

Edited

I agree with you verbena17. I The intensity of modern life has created additional stressors.
Also some of the personality traits in my Autistic family members - e.g. deep thinkers and feelers, quiet, taking people and situations at face value, considered, nature loving - are qualities often at odds with modern society.
I wonder if we could (wave a magic wand) reduce some of the modern stimuli and provide the setting, time and space for EVERYONE to process and respond in their own time and way...would there then be a reduction in the examples described by OP and other posters?

lleeggoo · 30/12/2024 19:49

TeamPolin · 30/12/2024 19:43

I think the incidence of autism in general is increasing (and I don't just mean due to better understanding and diagnosis.) When my son was diagnosed 9 years ago we were told it affected 1:100 kids, by the time he started school we were told 1:65 and looking at the kids in his school I think it's probably about 1:30 now. I'm utterly convinced there are triggers in the environment that mankind hasn't identified yet - microplastics, air quality, mercury in fish etc.

I always thought the stats were 1 in X people, not children. Which means I count in the figures of the 2020's but I should have been counted 1980's or late 70's. It makes sense but If the stats are indeed just children, then that's wrong

CautiousLurker01 · 30/12/2024 19:48

I think the society each generation has grown up in has become less nad less tolerant to individual eccentricity such that neurodiversity has become increasingly difficult to manage.

My kids are ND, so am I (late diagnosed) and I am now 100% my mother and uncle were too. Whilst I can see that huge parts of my life were impacted negatively, my daughter has absolutely been blown away by the current education/exam system and the covid/post-covid disconnection she and her peers have experienced.

So no, I personally don’t think each generation is ‘more autistic’, but I do think each generation is experiencing an increasingly stressful and intolerant environment that makes managing autism very difficult.

Kaleidoscopic101 · 30/12/2024 19:47

Government won't do anything about people having children at older ages ...as it would mean they'd have to address the housing situation. This way more of the population have to live in cramped conditions for longer...renting for years, house-shares. That's my opinion anyway. It's a symptom of people having children older which is a symptom of the appalling housing situation

Tittat50 · 30/12/2024 19:45

TeamPolin · 30/12/2024 19:43

I think the incidence of autism in general is increasing (and I don't just mean due to better understanding and diagnosis.) When my son was diagnosed 9 years ago we were told it affected 1:100 kids, by the time he started school we were told 1:65 and looking at the kids in his school I think it's probably about 1:30 now. I'm utterly convinced there are triggers in the environment that mankind hasn't identified yet - microplastics, air quality, mercury in fish etc.

Maybe the figures were always inaccurate and incorrect and those stats were wildly out of touch with reality. How many people who appeared to function better in society would never have been considered years ago. Instead they would just be seen as ' weird' or ' odd' because they were different somehow.

TeamPolin · 30/12/2024 19:43

I think the incidence of autism in general is increasing (and I don't just mean due to better understanding and diagnosis.) When my son was diagnosed 9 years ago we were told it affected 1:100 kids, by the time he started school we were told 1:65 and looking at the kids in his school I think it's probably about 1:30 now. I'm utterly convinced there are triggers in the environment that mankind hasn't identified yet - microplastics, air quality, mercury in fish etc.

Kaleidoscopic101 · 30/12/2024 19:41

People are having children older ...older dads also

Verbena17 · 30/12/2024 19:41

Ohthatsabitshit · 30/12/2024 19:37

High and low functioning refer to iq not how happy you are. I’m not sure why you are suggesting more disabled people are default more miserable it’s simply nonsense.

More recently low functioning autistics would be described as having ASD with a LD (learning disability), and High functioning just ASD. These are very useful descriptors and I think there are also many who are not offended by the terms but who are offended by the idea that having a LD is something unmentionable or of no consequence.

The terms high and low functioning are not referring to IQ. They are literally describing someone’s ability to function.
https://psychiatry-uk.com/higher-or-lower-why-using-functional-labels-to-describe-autism-is-problematic/

Higher or Lower? Why using functional labels to describe autism is problematic - Psychiatry-UK

As a recently diagnosed adult autistic person, I have had a good deal of time to reflect on the diagnostic process and what it really means to be autistic. This has involved a lot of research, finding and joining communities […]

https://psychiatry-uk.com/higher-or-lower-why-using-functional-labels-to-describe-autism-is-problematic

pooballs · 30/12/2024 19:37

Lunedimiel · 30/12/2024 18:32

Having a disabled child is associated with significant additional household costs, and lack of access to suitable childcare, which frequently impacts adversely on maternal incomes. People are impoverished by disability given the lack of support, and the burden that falls on individual families. But here you two are happily stigmatising the families of disabled children.

This

Ohthatsabitshit · 30/12/2024 19:37

Verbena17 · 30/12/2024 19:17

The terms high and low functioning are being phased out.
They are very unhelpful for the most past and are also incorrect for the majority of autism presentations.

Somebody you might class as ‘low functioning’ could be happy as you like, loving each day and yet someone who you might think of as being ‘high functioning’ could find it extremely hard to cope with day to day school life, home life etc and yet be verbal and extremely intelligent.

High and low really don’t fit the majority of autistic people and many are offended by the terms, as they’re very all or nothing terms.

High and low functioning refer to iq not how happy you are. I’m not sure why you are suggesting more disabled people are default more miserable it’s simply nonsense.

More recently low functioning autistics would be described as having ASD with a LD (learning disability), and High functioning just ASD. These are very useful descriptors and I think there are also many who are not offended by the terms but who are offended by the idea that having a LD is something unmentionable or of no consequence.

crackofdoom · 30/12/2024 19:36

Huffalumps · 30/12/2024 16:55

Has anyone mentioned age and adaptation? Although a person carries autism throughout life and never gets 'cured', many do adapt. I've seen this in my family. By 60+ they have some combination of masking techniques, workarounds and simply self knowledge about what they like/works for them. All the adults I know are undiagnosed. In my family and sister's, the kids were worse at school but now in later teens have come to adapt more to NT life. As they are average/above average IQ they will likely learn to adapt to the world a little better. I suspect by the time they are in later life they would present as less ND-y

Not as such, but it's what I was thinking too. Talking to people such as parents who knew "mildly" autistic people when they were kids can be pretty revealing. If you met my boyfriend (high flying career in tech, has friends, can navigate social situations albeit awkwardly), you'd never guess he didn't speak a word until he was 3. If you met me (dozens of friends, usually perfectly happy in social situations), you'd never guess I spent every lunchtime for a year at the age of 9 standing stock still in the corner of the playground with my face in the hedge.

Ceecee2422 · 30/12/2024 19:35

CraftyNavySeal · 30/12/2024 19:29

OTOH there are also a lot of people that 40 years ago would have been perfectly fine at their job in a little workshop or back office, or even in a lab somewhere quietly doing their work. No one would care if they were quiet or said the wrong thing sometimes or was only good at one specific thing. They may well have got married, bought a house and had a family but probably with an NT person.

Now a lot of them wouldn’t get past the first interview, or they get the job but they can’t keep it because they can’t concentrate on doing the job and answering 17 slack channels or they say something inappropriate. I’ve seen this happen to a few people now!

The Sheldon Cooper types can still work in Shoreditch or Silicon Valley because they can either mask or their aptitude outweighs their social difficulties but the more average ones can’t and struggle.

Rolls Royce too is pretty much built on men that would have been classed as having Asperger’s but now ASD………incredibly intelligent but socially awkward.

Tittat50 · 30/12/2024 19:33

catphone · 30/12/2024 18:55

I hate it when people like you try to make out that autism isn’t a disability. Autism is a disability causing a number of deficits in social functioning and understanding! I class what autism is defined as as a malfunction of the wiring of the brain for that reason. I am autistic and it had adversely effected my life

Edited

I don't feel that way. And I have no idea how it is to live in someone else's body so I'm not for a minute saying that. One can be disabled in one aspect yet certainly not what you'd see as malfunctioning.

The problem with these discussions is that every ND person is so different that we just can't ever have a reasonable discussion about this ' group' of individuals because people are exactly that , individuals and not one homogeneous lump.

Within this group of individuals who would be termed Autistic, there will be individuals who are not some sort of malfunction. I believe that for some ( and I have no idea who or how many( that they would possibly not feel so disabled if society was set up completely differently than it is.

I am not for one minute talking about every Autistic person as how do I know what someone is suffering with inside each day. I don't. And I know life is bloody difficult based on the people I care for and know. But there are individuals within this ' lump ' who I believe will see themselves quite differently, not necessarily defective but rather disabled by society more than anything else.

I repeat, it entirely depends on each individual. Every situation and person is unique.

I have no idea how it must be for every person. But I believe what someone says about their own lived experience every time.

Verbena17 · 30/12/2024 19:32

GreekDogRescue · 30/12/2024 19:25

Yes the amount of vaccines babies and very young children are given must surely be a concern.
But anyone expressing concerns is immediately deleted. Isn’t it strange how this cannot even be discussed.

Well I’m too invested so I really don’t care if people try to silence me from discussing the possible triggering effect vaccines might have on babies.

If people stop questioning the science, it really isn’t science any more.
Anyone saying ‘the science is settled’ is wrong! The science is never settled!

People should use their own discernment and never be afraid to question anything.

Interestingly, I’ve read and re-read the retracted MMR research paper and not once did Andrew W say the words ‘MMR vaccine causes autism’. Neither did any of the other 12 doctors who did the research. Yet he was used as the scapegoat and lost his licence permanently…,whilst the other 12 doctors got theirs back once the hype died down.

I’m not saying I definitely believe vaccines are the cause of the increase in autism but i think it’s very interesting to ask questions about. The retracted Lancet MMR paper looked at the relationship between the brain and gut and simply said more research was needed.

CraftyNavySeal · 30/12/2024 19:29

TheWayTheLightFalls · 30/12/2024 16:57

There seems to be anecdotal evidence of this in and around silicon valley too. Two clever techy autistic parents and then a more high needs autistic offspring.

I think the tech industry has a lot to answer for, personally. 40 years ago people like my DH would’ve been sitting in a garage somewhere trying to get one computer to talk to another, with very little consideration for social norms or much else, not necessarily earning very much. Now he and his colleagues are on very attractive salaries at companies you’ve heard of, working in Shoreditch or the City. They’re much more likely partners. So these classically Aspie blokes get married and have children.

No data clearly, plenty of anecdote.

OTOH there are also a lot of people that 40 years ago would have been perfectly fine at their job in a little workshop or back office, or even in a lab somewhere quietly doing their work. No one would care if they were quiet or said the wrong thing sometimes or was only good at one specific thing. They may well have got married, bought a house and had a family but probably with an NT person.

Now a lot of them wouldn’t get past the first interview, or they get the job but they can’t keep it because they can’t concentrate on doing the job and answering 17 slack channels or they say something inappropriate. I’ve seen this happen to a few people now!

The Sheldon Cooper types can still work in Shoreditch or Silicon Valley because they can either mask or their aptitude outweighs their social difficulties but the more average ones can’t and struggle.

Ohthatsabitshit · 30/12/2024 19:27

MyPithyPoster · 30/12/2024 19:24

During the course of my childhood, one kid got hit by a train on a railway. Another one got ran over by his own mother and ended up in a coma with one leg shorter than the other.
Two people fell in the lake that was on the news not so long ago because Four kids drowned when they fell through the ice - those two people didn’t drown but they got stabbed in the stomach by a rusty old car that was in the lake. I personally don’t know how I’m here because I fell off a garage roof.
My sister was sexually assaulted aged three in the local playground.
All whilst the parents were sat in the kitchen having a fag and a cup of coffee.

Ahhh the good old days of less supervision

I didn’t say it was preferable I said it was less rigid in response to a posters belief that there was more of the autism about because kids have less boundaries these days.

changecandles · 30/12/2024 19:27

It's more likely that you only notice when it's that way. Most of the time it seems late diagnosis is brought about because a child is diagnosed first then the parents realise they have traits.
If the child was not autistic or if it was so minor that it was diagnosed later then the parents would not ever be diagnosed.

And if an adult was severely autistic they might be less likely to have a child so wouldn't know if their child would be more or less autistic.

I'm not sure if I'm explaining this well.

I'm trying to say that when things follow the pattern you describe there is more likelihood of diagnoses.
When it follows a different pattern ie. Parent is more obvious than child then you wouldn't notice

Annabella92 · 30/12/2024 19:26

Ablondiebutagoody · 30/12/2024 16:11

Genuine eugenics question?

Eugenics is already practiced today in the NHS. It's clearly not that big a deal anymore.

FreedFromDesireMindAndSensesPurified · 30/12/2024 19:26

People are talking about autistic kids having done better when more of childhood was spent outside. Some of them no doubt did, but I think another factor to take into consideration is that bolters are probably more likely to survive childhood now than they would've done further back in time.

In my extended family, we've quite a wide variety of autism. There are DC who definitely would do better with more outside time. There are a couple of others who are bolters, and who aren't safe outdoors or anyone not contained, without a 1 to 1 and sometimes not even then. It would only be the last couple of generations of my family where this sort of ratio and input could've been afforded. We were all dirt poor until not too long ago, certainly couldn't have spared adults to watch kids constantly to keep them safe until maybe the mid 20th century.

I wonder how many aunties and uncles of today's 1 to 1 ratio kids were autistic bolters back through the centuries, but never lived very long until we stopped being subsistence labourers and then childhood moved more indoors.

GreekDogRescue · 30/12/2024 19:25

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Yes the amount of vaccines babies and very young children are given must surely be a concern.
But anyone expressing concerns is immediately deleted. Isn’t it strange how this cannot even be discussed.

MyPithyPoster · 30/12/2024 19:24

Ohthatsabitshit · 30/12/2024 19:20

Lots of children played out from a very young age and certainly didn’t have their behaviour monitored in the way they do today.

During the course of my childhood, one kid got hit by a train on a railway. Another one got ran over by his own mother and ended up in a coma with one leg shorter than the other.
Two people fell in the lake that was on the news not so long ago because Four kids drowned when they fell through the ice - those two people didn’t drown but they got stabbed in the stomach by a rusty old car that was in the lake. I personally don’t know how I’m here because I fell off a garage roof.
My sister was sexually assaulted aged three in the local playground.
All whilst the parents were sat in the kitchen having a fag and a cup of coffee.

Ahhh the good old days of less supervision

x2boys · 30/12/2024 19:23

TheGander · 30/12/2024 19:18

My husband works in the field and he has observed this with some families. The benefits that come with very disabled adult children with autism support the entire household and are very reluctantly given up, when actually sometimes the person with autism could be doing a lot more outside the home eg day centres, even volunteering, taking public transport but that would involve some loss of benefits and is resisted tooth and nail by the parent(s).

Very disabled children who can volunteer and and get public transport wouldn't be disabled enough to get the highest rates of mobility it's laughable your husband thinks they would
I suggest he should look into a carer change becsuse he clearly had noises has he's talking about