Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to not understand MNers against neurodiversity

484 replies

UkiUki · 12/12/2024 13:30

Inspired by another thread on here today but it’s an ongoing trend.

I’ve noticed that most, if not all of the time, when a poster suggests that a behaviour may be caused by ND, other posters jump on them and seem enraged that ‘everything is explained away with neurodiversity these days’.

There has been a lot of progress in understanding these conditions which has naturally contributed to an increase in people getting diagnosed. It is especially increasing in females as, per most medical issues, the parameters for diagnoses were created around male behaviour.

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described is that my heart goes out to those who could flourish with a little extra understanding of how their brains work, especially children. I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

I feel a lot of irritation and sometimes outright anger from some posters, and the suggestion that people are using ND as an excuse somehow.

Aibu to not understand where this annoyance comes from?

OP posts:
Thread gallery
8
Perzival · 15/12/2024 16:38

@x2boys I know. I know it should only be used as a last resort. I was just showing that restraint isn't uncommon especially for people with more needs.

Team teach scares me, im glad face down holds have been banned, there was a list floating around of the people that have died from them. My son's school use it, thankfully like yours they try everything else first but I do know some children are taken to the safe spaces.

x2boys · 15/12/2024 16:23

Perzival · 15/12/2024 16:05

Restraint is used a lot for children and adults with disabilities. It usually goes by some other wording such as positive handling or a safe hold.

You'll find most special schools have staff trained in team teach or similar and nearly all have safe spaces (usually padded rooms to put a child that is in crisis.

The government have set targets to get people with autism removed from ATU's (units). They get held in these for years esentially because of how funding works. The LA dont want to pay for what the person needs to live in the community so they get hospitalised, which is daft because it usually costs more and is awful for the prrson and their family.

This was in the news a couple of weeks ago.

https://www.bbc.co.uk/news/articles/cjw0e3zjx2lo?fbclid=IwZXh0bgNhZW0CMTEAAR2m-pQ-7MbbuvcWF1-0RkhkuPccHSw6cjm_Y5i_v0arJnEmOeatMe1wfho_aem__nuWarAe8hQkxxpu-SSbzg

They use team teach etc at my sons special school
I know they have restrained him on occasion they do try and divert the situation ,they take him swimming in the hydro pool and for walks on the track but sometimes it's necessary

Perzival · 15/12/2024 16:05

Restraint is used a lot for children and adults with disabilities. It usually goes by some other wording such as positive handling or a safe hold.

You'll find most special schools have staff trained in team teach or similar and nearly all have safe spaces (usually padded rooms to put a child that is in crisis.

The government have set targets to get people with autism removed from ATU's (units). They get held in these for years esentially because of how funding works. The LA dont want to pay for what the person needs to live in the community so they get hospitalised, which is daft because it usually costs more and is awful for the prrson and their family.

This was in the news a couple of weeks ago.

https://www.bbc.co.uk/news/articles/cjw0e3zjx2lo?fbclid=IwZXh0bgNhZW0CMTEAAR2m-pQ-7MbbuvcWF1-0RkhkuPccHSw6cjm_Y5i_v0arJnEmOeatMe1wfho_aem__nuWarAe8hQkxxpu-SSbzg

A still from CCTV footage showing a woman with blonde hair in a ponytail grabbing the wrists of a boy wearing a red hoodie as she pushes him into a windowless room with blue padding on all of the walls

CCTV shows pupils abused and locked in padded room

Police have said staff will not face action over abuse of autistic children shown in videos leaked to the BBC.

https://www.bbc.co.uk/news/articles/cjw0e3zjx2lo?fbclid=IwZXh0bgNhZW0CMTEAAR2m-pQ-7MbbuvcWF1-0RkhkuPccHSw6cjm_Y5i_v0arJnEmOeatMe1wfho_aem__nuWarAe8hQkxxpu-SSbzg

Sugarcoldturkey · 15/12/2024 15:19

ChristmasGrump5 · 15/12/2024 15:07

You introduced restraint into the discussion and are the one saying you want to know how to manage ND children without it and that your government has felt the need to bring in laws to limit it. There are many,many stories of autistic children being subjected to restraint and poor treatment. People with autistim have a much higher likelihood of being subjected to it. That isn’t hyperbolic language, it’s reality.

You're twisting my words. I didn't advocate for restraint, I discussed what is covered under the broad term of seclusion - so keeping a child safe in a classroom for 5 minutes while help is fetched.
In any case, I'll bow out of the conversation now. Have a good Sunday everyone.

ChristmasGrump5 · 15/12/2024 15:10

SquirrelSoShiny · 15/12/2024 14:46

Yes it's really wearing. I hear you! And beautifully illustrates my earlier posts. Thankfully it is genuinely a minority of parents/ children and sometimes it's more about narcissism than ND. The trouble is it prevents open, meaningful discussion about improvements which actually harms the ND children and adults most affected!

Oh do give over. I couldn’t give a stuff if you find it wearing. I didn’t bring restraint into the discussion but since it’s here posters can post realities however wearing you find that.

And as for narcissism seriously what are you talking about?

ChristmasGrump5 · 15/12/2024 15:07

Sugarcoldturkey · 15/12/2024 14:31

Tbh I find this sort of emotive, exaggerated language very emotionally draining to listen to. There obviously aren't "hoards" of children being "locked up" anywhere. I wish we could have debates on this topic without reaching for hyperbolic language that just inflames a situation rather than de-escalates and reassures. It's exhausting.

You introduced restraint into the discussion and are the one saying you want to know how to manage ND children without it and that your government has felt the need to bring in laws to limit it. There are many,many stories of autistic children being subjected to restraint and poor treatment. People with autistim have a much higher likelihood of being subjected to it. That isn’t hyperbolic language, it’s reality.

SquirrelSoShiny · 15/12/2024 14:46

Sugarcoldturkey · 15/12/2024 14:31

Tbh I find this sort of emotive, exaggerated language very emotionally draining to listen to. There obviously aren't "hoards" of children being "locked up" anywhere. I wish we could have debates on this topic without reaching for hyperbolic language that just inflames a situation rather than de-escalates and reassures. It's exhausting.

Yes it's really wearing. I hear you! And beautifully illustrates my earlier posts. Thankfully it is genuinely a minority of parents/ children and sometimes it's more about narcissism than ND. The trouble is it prevents open, meaningful discussion about improvements which actually harms the ND children and adults most affected!

Sugarcoldturkey · 15/12/2024 14:34

drspouse · 15/12/2024 14:18

@BertieBotts and @Sugarcoldturkey the ideal result of bad behaviour would be something that did both.

So if my DS does something silly (banging the milk bottle on the table, calling his sister dumb) we ignore it (often he will then draw attention to his behaviour which we also then ignore!) but tell DD why we are ignoring it. So she can then try that strategy for herself, which she has started to do.

If he hurts someone on purpose or does something to get attention but which could be dangerous for him (e.g. waving scissors around, prancing around naked when we're answering the door) then it's "do you want to do that or do you want your screen time" and we are now up to at least 75% of the time he wants screen time and desists. It has to be immediate and presented as a choice, and it's only worth doing for more serious things where one instance can be dangerous. DD then sees him getting a consequence and we had to persist and also recognise the time limits - no good telling him he'd choosing between pulling his sister's hair now and playing on his Switch tomorrow.

Yes, that sounds like a good strategy.

Sugarcoldturkey · 15/12/2024 14:31

ChristmasGrump5 · 15/12/2024 13:24

We manage children with autism without restraining and locking them in rooms, starting to see why so many kids with autism are abused by services.

”the numbers start to add up”- as I said what is your school doing?We don’t have hoards of children hurt by ND children or ND needing to be restrained. 🤔We meet their needs and have safeguarding measures in place.

Tbh I find this sort of emotive, exaggerated language very emotionally draining to listen to. There obviously aren't "hoards" of children being "locked up" anywhere. I wish we could have debates on this topic without reaching for hyperbolic language that just inflames a situation rather than de-escalates and reassures. It's exhausting.

Tittat50 · 15/12/2024 14:24

@BertieBotts yes! You have just articulated this perfectly.

drspouse · 15/12/2024 14:18

@BertieBotts and @Sugarcoldturkey the ideal result of bad behaviour would be something that did both.

So if my DS does something silly (banging the milk bottle on the table, calling his sister dumb) we ignore it (often he will then draw attention to his behaviour which we also then ignore!) but tell DD why we are ignoring it. So she can then try that strategy for herself, which she has started to do.

If he hurts someone on purpose or does something to get attention but which could be dangerous for him (e.g. waving scissors around, prancing around naked when we're answering the door) then it's "do you want to do that or do you want your screen time" and we are now up to at least 75% of the time he wants screen time and desists. It has to be immediate and presented as a choice, and it's only worth doing for more serious things where one instance can be dangerous. DD then sees him getting a consequence and we had to persist and also recognise the time limits - no good telling him he'd choosing between pulling his sister's hair now and playing on his Switch tomorrow.

Thedogstolemyheatedblanket · 15/12/2024 13:48

orangeblosssom · 15/12/2024 13:10

I hate it when people say 'I'm ND, so other People who are neurodivergent should do exactly what I do.'
Each person has their own unique challenges and your experiences are your own and don't necessarily work for others.

As a society we should be more understanding and inclusive and change school and work environments to help people teach their full potential.

Equally we have to respect the needs of everyone in society, so certain rules have to apply irrespective or the difficulty some people may have in complying with them

Eg. It should be absolutely unacceptable to sexually or physically harass/assault. I'm afraid I don't care how difficult someone finds it to adhere to those rules, everyone deserves to feel safe from physical or sexual harassment /assault when they go to work /school/ out in the world generally

Jifmicroliquid · 15/12/2024 13:24

orangeblosssom · 15/12/2024 13:10

I hate it when people say 'I'm ND, so other People who are neurodivergent should do exactly what I do.'
Each person has their own unique challenges and your experiences are your own and don't necessarily work for others.

As a society we should be more understanding and inclusive and change school and work environments to help people teach their full potential.

The problem with this is that a change to help one person might not help another. There comes a point where it’s unworkable, hence why a general standard of conformity currently exists.

ChristmasGrump5 · 15/12/2024 13:24

Sugarcoldturkey · 15/12/2024 12:45

They aren't, but over a long career and in a school of several thousand pupils, the numbers do start adding up. It's also the pressure of the "what if". We have to plan for every reasonable eventuality, and a kid having a meltdown is a reasonable possibility. It's tiring to know that no matter what you do, someone won't be happy about it.

We manage children with autism without restraining and locking them in rooms, starting to see why so many kids with autism are abused by services.

”the numbers start to add up”- as I said what is your school doing?We don’t have hoards of children hurt by ND children or ND needing to be restrained. 🤔We meet their needs and have safeguarding measures in place.

orangeblosssom · 15/12/2024 13:10

Jifmicroliquid · 12/12/2024 13:43

I am autistic, but I do believe people are too quick to jump to the ND ‘label’.
I was diagnosed late and I am relieved that was the case. I learnt to adapt to society as I had no choice. As a result I am a fully functioning member of society who nobody would suspect was autistic. Given too much help or leeway, I don’t think I’d be the capable and independent person I am today.
That’s what frustrates me I suppose, the notion that the world is going to bend for ND people. It doesn’t. And that’s why we need to prepare ND people for living in it, and that often means tough love and pushing people out of their comfort zone.
Schools are doing ND kids a huge disservice by not setting them up for the real world. Yes it’s harder for us, but that’s just the way it is.

I hate it when people say 'I'm ND, so other People who are neurodivergent should do exactly what I do.'
Each person has their own unique challenges and your experiences are your own and don't necessarily work for others.

As a society we should be more understanding and inclusive and change school and work environments to help people teach their full potential.

WasThatACorner · 15/12/2024 12:50

DyddEira · 12/12/2024 14:58

I think the problem with neurodiversity is that behaviour affects not just the individual displaying it, but those around them, be that within an intimate relationship or in a classroom setting, and when those behaviour traits are negative they can cause lasting damage.

A new kid started in DD class who clearly has some fairly significant ND and accompanying behavioural issues. Unfortunately his behaviour has had a negative and lasting impact on several of his classmates, impacting their education and mental health. But I have definitely notice a degree of dismissiveness from some with ND used as an excuse. Frankly my priority is my DD safety and education, his ND is not my problem.

His ND is your problem if it is impacting on your daughter. I'm not sure what your point is here. In order for your daughter (and the other childrens) schoolday to be safe and happy this boy needs support and understanding.

By reducing the focus on this boy he is more likely to become dysregulated and cause disruption to the class.

Isxmasoveryet · 15/12/2024 12:50

I think it more my kid jumpzd in a puddle my kid had a tantrum my kid wont eat x y n z my kid said x y z all these r signs of nd er no thet r signs of normal kids it seems to be a competition on here to get kids diagnosis from day n hour they r born so the parent can fit in with latzst trends

Sugarcoldturkey · 15/12/2024 12:45

ChristmasGrump5 · 15/12/2024 12:42

Why are ND children in your school regularly having melt downs? Melt downs are due to needs not being met .

They aren't, but over a long career and in a school of several thousand pupils, the numbers do start adding up. It's also the pressure of the "what if". We have to plan for every reasonable eventuality, and a kid having a meltdown is a reasonable possibility. It's tiring to know that no matter what you do, someone won't be happy about it.

Sugarcoldturkey · 15/12/2024 12:42

ChristmasGrump5 · 15/12/2024 12:25

Oh come on, name me a school that doesn’t put consequences into place if children are physically attacked? How are they passing Ofsted safeguarding inspections?

If you are a teacher you must know that it’s perfectly possible to put in meaningful consequences and procedures so that it doesn’t happen again. All school should be doing that. If they’re not and have children repeatedly attacked by children ALL children are being let down. A child repeatedly attacking other children is not having his/her( yes girls can lash out) needs met.

It’s funny I work in a school with a high level of need and children getting hurt by other children is rare. When it happens for whatever reason consequences and procedures are put in place. Nearly all our children who have a tricky start make so much progress year on year.

The demonising on here of autistic children and parents seeking diagnosis and support is appalling.

Edited

I don't think I'm demonising anyone, but have you really never had parents push back and refuse to support your school in ensuring consequences? Sure, the schools do it anyway because that's our job, but if the parents undermine the message at home then it's unhelpful to put it mildly. Also, some of the procedures put in place for everyone's safety are then criticised by the parents as being unfair, so then more time and effort is needed discussing things with them etc.

I guess I'm just exhausted and at the end of my patience with people who complain about every reasonable step taken by the school. Maybe I just need the Xmas break to recharge so I can be less grumpy about everything.

ChristmasGrump5 · 15/12/2024 12:42

Sugarcoldturkey · 15/12/2024 12:36

Yes, I would agree. A difficult home life, or neuro divergence, or anything at all should not be used as an excuse for bad behaviour. It can be a good reason for it that can hopefully help prevent repeats in the future, but it is not an excuse.

Anyone being bullied is unacceptable, no matter how difficult the bully's home life is. No aggression towards other kids is acceptable, no matter who is Nd or not.

I suppose I'm especially worked up at the moment because the Irish government has just come out with new guidelines to prevent the use of "seclusion" against vulnerable kids. Sounds great on the surface, but included in the definition of seclusion is "physically preventing a student from leaving through the use of a locked door, a blocked door or an exit held closed by a staff member."

So imagine a student has a meltdown, the other kids are scared and potentially in danger, I as the only adult present decide to get my class out into the corridor where they're safe and keep the kid having a meltdown safe inside the classroom (where I can see them through the glass) until another adult arrives who can help them.

Then the parents of the Nd child complain that I am unfairly punishing their child and going against the guidelines etc. But if I didn't separate the kids, then all the other parents would be complaining that their children are being stressed and exposed to aggression and potentially dangerous behaviour.

It's a horrible catch-22 situation and I'm exhausted just thinking about it.

Why are ND children in your school regularly having melt downs? Melt downs are due to needs not being met .

HRT · 15/12/2024 12:38

I agree the demonising on here of autistic kids and parents needing support is appalling. It is possibly political, too. I think autistic kids are the new benefit claimants and asylum seekers, seen as an easy target for demonisation and cuts.
I am beginning to develop the suspicion this site is overrun by shills, to be honest. Explains the anti- neurodiversity the OP feels she has seen on here.

Sugarcoldturkey · 15/12/2024 12:36

Jellycatspyjamas · 15/12/2024 12:22

The school is trying to juggle multiple conflicting needs. The parents are only focused on their own child - which I understand, that's their job, but they sometimes refuse to even consider that any other child has needs.

The other child’s needs aren’t my concern though - this is something repeatedly said to me when my ND daughter was being seriously bullied by NT kids in her class. I knew the other kids had their own vulnerabilities and while the school needs to balance those needs, I don’t and certainly not at my daughters expense.

I literally don’t care what needs another child has when my own daughter is vulnerable in her own right and being terrorised by other kids. And certainly not if it means kids actively bullying her are being given space to do so on the basis that they have a difficult home life. I don’t need the school to punish the other kids, I do need them to keep my daughter safe.

Yes, I would agree. A difficult home life, or neuro divergence, or anything at all should not be used as an excuse for bad behaviour. It can be a good reason for it that can hopefully help prevent repeats in the future, but it is not an excuse.

Anyone being bullied is unacceptable, no matter how difficult the bully's home life is. No aggression towards other kids is acceptable, no matter who is Nd or not.

I suppose I'm especially worked up at the moment because the Irish government has just come out with new guidelines to prevent the use of "seclusion" against vulnerable kids. Sounds great on the surface, but included in the definition of seclusion is "physically preventing a student from leaving through the use of a locked door, a blocked door or an exit held closed by a staff member."

So imagine a student has a meltdown, the other kids are scared and potentially in danger, I as the only adult present decide to get my class out into the corridor where they're safe and keep the kid having a meltdown safe inside the classroom (where I can see them through the glass) until another adult arrives who can help them.

Then the parents of the Nd child complain that I am unfairly punishing their child and going against the guidelines etc. But if I didn't separate the kids, then all the other parents would be complaining that their children are being stressed and exposed to aggression and potentially dangerous behaviour.

It's a horrible catch-22 situation and I'm exhausted just thinking about it.

ChristmasGrump5 · 15/12/2024 12:25

Sugarcoldturkey · 15/12/2024 11:15

I don't have a solution that would fix everything and work for everybody. What I firmly believe is that the parents who refuse to put in place any boundaries or consequences are definitely not helping (from your description it sounds like you're definitely not one of them, this is just a general rant aimed at some of the parents I've had to deal with over the years).

If nothing else, it is damaging for the other children in the class, especially girls imo. "Yes, Johnny hit you but he's not going to face any consequences because it's not his fault". So we're teaching children that it's ok to be hit in some circumstances and that they have to be "kind" and "understanding" in return.

Judging by the number of horrific dv posts on Mumsnet, I think we'd do better to teach kids to take an absolute 0 tolerance policy to violence. Someone hits you? Then they are not your friend, you do not have to play with them, and you are completely justified in ignoring them from now on.

Of course, there are many fantastic parents who do their best to acknowledge the needs of other's while advocating for their own child. I acknowledge it must be a terrible situation for them and there are no perfect answers. However, I will never stop being astonished by just how blinkered, short-term and delusional some parents can appear. It sometimes makes me want to stop teaching and get a job in a back office somewhere far away from entitled members of the public!

Edited

Oh come on, name me a school that doesn’t put consequences into place if children are physically attacked? How are they passing Ofsted safeguarding inspections?

If you are a teacher you must know that it’s perfectly possible to put in meaningful consequences and procedures so that it doesn’t happen again. All school should be doing that. If they’re not and have children repeatedly attacked by children ALL children are being let down. A child repeatedly attacking other children is not having his/her( yes girls can lash out) needs met.

It’s funny I work in a school with a high level of need and children getting hurt by other children is rare. When it happens for whatever reason consequences and procedures are put in place. Nearly all our children who have a tricky start make so much progress year on year.

The demonising on here of autistic children and parents seeking diagnosis and support is appalling.