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AIBU?

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to not understand MNers against neurodiversity

484 replies

UkiUki · 12/12/2024 13:30

Inspired by another thread on here today but it’s an ongoing trend.

I’ve noticed that most, if not all of the time, when a poster suggests that a behaviour may be caused by ND, other posters jump on them and seem enraged that ‘everything is explained away with neurodiversity these days’.

There has been a lot of progress in understanding these conditions which has naturally contributed to an increase in people getting diagnosed. It is especially increasing in females as, per most medical issues, the parameters for diagnoses were created around male behaviour.

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described is that my heart goes out to those who could flourish with a little extra understanding of how their brains work, especially children. I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

I feel a lot of irritation and sometimes outright anger from some posters, and the suggestion that people are using ND as an excuse somehow.

Aibu to not understand where this annoyance comes from?

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8
x2boys · 12/12/2024 14:09

UkiUki · 12/12/2024 14:06

I agree with some people just having these behaviours but we can’t know that’s the case or not from a short story on here. My confusion is why it’s seen as a negative to mention it could be a ND trait.

Because in the absence of any other information how is it helpful to suggest that someone who is unmotivated and apparently lazy ND?
They might be or they might be depressed or maybe they are just bone idle ?

ohdelay · 12/12/2024 14:09

What is the point though? Unless the subject is a child no one cares if neurodiversity causes the behaviours they have a problem with. They don't like the behaviour and will act accordingly. Adults are pretty much on their own in this world unless someone is paid to care.

Bookgrrrl · 12/12/2024 14:07

UkiUki · 12/12/2024 13:46

Yep, and I don’t see what is bad in lots more people getting diagnosed. A generation where lots less slip through the cracks sounds great to me

The problem is that the widening scope of diagnosis means that the differences between NT people and people with autism are getting less and less, as this research shows:

https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2747847

(The authors also looked at schizophrenia and found a very different effect, so it’s not just about increased awareness.)

As one of these researchers said, if it continues there will soon come a point where there is no difference between some NT people and some with an autism diagnosis:

https://www.sciencedaily.com/releases/2019/08/190821111816.htm

This then trivialises the diagnosis. Recent use of ‘mental health’ in relation to just about everything has done the same to depression. As someone who has suffered from severe depression for several decades, I have found it increasingly frustrating seeing the illness trivialised over the past 10 years by people pathologising every unhappiness. Feeling down because you hate your job, broke up with someone or even just had a bad day isn’t a mental health issue, it’s a normal reaction to life not always being a bed of roses. I can have a really crappy time in life and my MH be fine, and vice versa.

Removing stigma and making sure people can access help when they need it is important, but so is ensuring that diagnoses aren’t rendered meaningless by over-inflating their scope or over-using medical terms in everyday life.

UkiUki · 12/12/2024 14:06

x2boys · 12/12/2024 13:58

I think people do understand and many people have a diagnosis themselves and or a child with a diagnosis
However posters are quick to suggest ND over any behaviour that deviates from the norm
Not everyone is ND some people can just be lazy etc.

I agree with some people just having these behaviours but we can’t know that’s the case or not from a short story on here. My confusion is why it’s seen as a negative to mention it could be a ND trait.

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x2boys · 12/12/2024 14:05

As the saying goes if you have met one person with autism you have met one person with autism ,
I appreciate that you may have hard a time getting and understanding your diagnosis but that doesn't mean you csn diagnosis others it's such a broad spectrum.

UkiUki · 12/12/2024 14:04

Jifmicroliquid · 12/12/2024 13:57

Autism in my school days was only recognised if it was very severe. Those of us who functioned pretty normally but with some difficulties were just a bit ‘weird’. I can think back to a few kids that were probably autistic. Interestingly, none were badly behaved. I get a bit frustrated at the insinuation from people on here that bad behaviour must be autism. Sometimes kids can just push the boundaries.

Most of the autistic people I know are actually very ‘well behaved’ in the typical sense. I also know a couple of ND children who are badly behaved as well as being ND.

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UkiUki · 12/12/2024 14:02

lionloaf · 12/12/2024 13:55

It isn’t helpful. Lots of people have lots of traits that can also be observed in neurodiverse people - it doesn’t mean everyone with those traits is neurodiverse. Also, not everyone wants a diagnosis. If they did, they would be contacting a professional. You wouldn’t diagnose other health conditions in others at random based on symptoms, as it could be any number of things, so why do it for neuro conditions? With other health conditions, you would clearly recognise that it is inappropriate and overstepping. Same applies here.

I don’t agree. There was a thread a few weeks ago where a poster described some physical symptoms and another poster had similar before and it turned out to be something serious. It’s like everyone who gets constant migraines doesn’t have a brain tumor but it could be a symptom. It doesn’t hurt anyone to ask the question if it doesn’t turn out to be the case but it could hurt if the question isn’t asked and it does.

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TigerRag · 12/12/2024 14:02

UkiUki · 12/12/2024 14:00

But what if it is something diagnosable? Does it hurt you for someone else to seek a diagnosis?

It's more the lack of understanding. I used to have a friend who claimed he was Autistic because he was good at maths. I know people with Autism who are average at maths and better at arts based subjects

Maestoso · 12/12/2024 14:01

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described

You're going through a 'long and stressful diagnosis" and think that recognising certain traits equips you with the ability to suggest ND? If only the doctors were so clever, you'd not be doing that "long and stressful diagnosis".

UkiUki · 12/12/2024 14:00

TigerRag · 12/12/2024 13:54

Because it minimises some of the struggles we have. No one's lazy or is a bit anxious about things, they all have to look for a diagnosis.

But what if it is something diagnosable? Does it hurt you for someone else to seek a diagnosis?

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x2boys · 12/12/2024 13:58

UkiUki · 12/12/2024 13:30

Inspired by another thread on here today but it’s an ongoing trend.

I’ve noticed that most, if not all of the time, when a poster suggests that a behaviour may be caused by ND, other posters jump on them and seem enraged that ‘everything is explained away with neurodiversity these days’.

There has been a lot of progress in understanding these conditions which has naturally contributed to an increase in people getting diagnosed. It is especially increasing in females as, per most medical issues, the parameters for diagnoses were created around male behaviour.

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described is that my heart goes out to those who could flourish with a little extra understanding of how their brains work, especially children. I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

I feel a lot of irritation and sometimes outright anger from some posters, and the suggestion that people are using ND as an excuse somehow.

Aibu to not understand where this annoyance comes from?

I think people do understand and many people have a diagnosis themselves and or a child with a diagnosis
However posters are quick to suggest ND over any behaviour that deviates from the norm
Not everyone is ND some people can just be lazy etc.

UkiUki · 12/12/2024 13:57

macap · 12/12/2024 13:46

It’s disgusting. People don’t second guess other diagnosis but things like ASD/ADHD are fair game and MN does little about it.

My DD has just been diagnosed with ADHD. It has a severe impact on her life, she really struggles. To think people think she’s just naughty is infuriating. She is the kindest most attentive little girl. She just struggles.

I try not to listen but it does get to you.

I also feel people that make these uneducated posts have little to no qualifications/experience regarding the diagnostic criteria/process. So I try to ignore it because I’d rather speak to the actual professionals.

I’m sorry you’ve been through that. It’s one of the reasons I’ll be keeping my diagnosis mainly to myself and only telling immediate family and a couple of very close friends who’ve helped me through the process. I get scared people will think I’m telling them as some sort of an excuse or not believe me.

Hopefully your DD can get the help she needs.

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Jifmicroliquid · 12/12/2024 13:57

UkiUki · 12/12/2024 13:52

I partially agree but I think that the ND label is helpful if that’s what you actually are. I wouldn’t have wanted the world to bend to me as I think challenge can help people thrive. But I could’ve done without the shame and guilt thrust upon me by teachers and medical professionals. I only have limited experience with how schools are now, but I do have a young ND family member in secondary school now and she was treated terribly for the first couple of years. Now a couple of very minor pieces of support have been put in place for her she is coming on in leaps and bounds.

Autism in my school days was only recognised if it was very severe. Those of us who functioned pretty normally but with some difficulties were just a bit ‘weird’. I can think back to a few kids that were probably autistic. Interestingly, none were badly behaved. I get a bit frustrated at the insinuation from people on here that bad behaviour must be autism. Sometimes kids can just push the boundaries.

lionloaf · 12/12/2024 13:55

It isn’t helpful. Lots of people have lots of traits that can also be observed in neurodiverse people - it doesn’t mean everyone with those traits is neurodiverse. Also, not everyone wants a diagnosis. If they did, they would be contacting a professional. You wouldn’t diagnose other health conditions in others at random based on symptoms, as it could be any number of things, so why do it for neuro conditions? With other health conditions, you would clearly recognise that it is inappropriate and overstepping. Same applies here.

TigerRag · 12/12/2024 13:54

Because it minimises some of the struggles we have. No one's lazy or is a bit anxious about things, they all have to look for a diagnosis.

macap · 12/12/2024 13:54

Devilsmommy · 12/12/2024 13:51

@macap I hope you don't think I was saying that your DD was naughty. I believe in ASD/ADHD diagnosis. What I meant was that some kids aren't diagnosed and their behaviour is just that, naughty behaviour.

No don’t worry it wasn’t aimed at you, just a general feeling I’ve got when I’ve read people’s comments about it. Either bad behaviour or inadequate parenting when neither are true.

UkiUki · 12/12/2024 13:54

Devilsmommy · 12/12/2024 13:44

This is going to sound harsh but sometimes a kid or an adult is just being an arsehole. No ND, No MH issues they're just being a twat. As a pp said It just gets tedious when something quite normal gets said and all of a sudden the possibility of ND diagnosis is thrown in🤷

I think it’s because some people late diagnosed with ND recognise little signs. Unless someone is excusing their own or their child’s poor behaviour, then I don’t understand what the motivation behaving suggesting ND could be other than really believing it and thinking the person might benefit from understanding.

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UkiUki · 12/12/2024 13:52

Jifmicroliquid · 12/12/2024 13:43

I am autistic, but I do believe people are too quick to jump to the ND ‘label’.
I was diagnosed late and I am relieved that was the case. I learnt to adapt to society as I had no choice. As a result I am a fully functioning member of society who nobody would suspect was autistic. Given too much help or leeway, I don’t think I’d be the capable and independent person I am today.
That’s what frustrates me I suppose, the notion that the world is going to bend for ND people. It doesn’t. And that’s why we need to prepare ND people for living in it, and that often means tough love and pushing people out of their comfort zone.
Schools are doing ND kids a huge disservice by not setting them up for the real world. Yes it’s harder for us, but that’s just the way it is.

I partially agree but I think that the ND label is helpful if that’s what you actually are. I wouldn’t have wanted the world to bend to me as I think challenge can help people thrive. But I could’ve done without the shame and guilt thrust upon me by teachers and medical professionals. I only have limited experience with how schools are now, but I do have a young ND family member in secondary school now and she was treated terribly for the first couple of years. Now a couple of very minor pieces of support have been put in place for her she is coming on in leaps and bounds.

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Devilsmommy · 12/12/2024 13:51

@macap I hope you don't think I was saying that your DD was naughty. I believe in ASD/ADHD diagnosis. What I meant was that some kids aren't diagnosed and their behaviour is just that, naughty behaviour.

404ErrorCode · 12/12/2024 13:49

It seems like any bad behaviour or trait gets labelled as ND.

I can see that being a bit offensive to those with autism. It bothers me sometimes as a parent of a ND child, as there is enough stigma and ignorance as it is.

UkiUki · 12/12/2024 13:48

adulthoodisajoke · 12/12/2024 13:43

youre self aware and im sure you apologise when youre late and now you know about time blindness are able to put measures in place to help yourself?
and harmony in relationships is great

I definitely apologise as I hate it so much. It’s just one trait that I find easy to explain to people but I have a lot of ND behaviour that I’m now able to recognise and put measures in place for. I use the energy I used to use to beat myself up to try to put coping methods in place.

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macap · 12/12/2024 13:46

It’s disgusting. People don’t second guess other diagnosis but things like ASD/ADHD are fair game and MN does little about it.

My DD has just been diagnosed with ADHD. It has a severe impact on her life, she really struggles. To think people think she’s just naughty is infuriating. She is the kindest most attentive little girl. She just struggles.

I try not to listen but it does get to you.

I also feel people that make these uneducated posts have little to no qualifications/experience regarding the diagnostic criteria/process. So I try to ignore it because I’d rather speak to the actual professionals.

UkiUki · 12/12/2024 13:46

Locutus2000 · 12/12/2024 13:37

I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

Preach, sister. Many GenXers are in the same boat, myself included. So painful to think what might have been, after watching niblings who have thankfully had support in their early and teen years.

Yep, and I don’t see what is bad in lots more people getting diagnosed. A generation where lots less slip through the cracks sounds great to me

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Devilsmommy · 12/12/2024 13:44

This is going to sound harsh but sometimes a kid or an adult is just being an arsehole. No ND, No MH issues they're just being a twat. As a pp said It just gets tedious when something quite normal gets said and all of a sudden the possibility of ND diagnosis is thrown in🤷

UkiUki · 12/12/2024 13:44

Scutterbug · 12/12/2024 13:36

I’m diagnosed autistic. I do get a little frustrated that often people jump to neurodiversity for issues with their children etc when many people have little quirks or work better with routines and the like but are not ND.
However, we are getting much better at recognising ND and that’s so important. Better to be assessed and for it to be rejected than not assessed at all.

Yes, I agree completely with the better to be assessed and be told no than to not be assessed.

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