Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to not understand MNers against neurodiversity

484 replies

UkiUki · 12/12/2024 13:30

Inspired by another thread on here today but it’s an ongoing trend.

I’ve noticed that most, if not all of the time, when a poster suggests that a behaviour may be caused by ND, other posters jump on them and seem enraged that ‘everything is explained away with neurodiversity these days’.

There has been a lot of progress in understanding these conditions which has naturally contributed to an increase in people getting diagnosed. It is especially increasing in females as, per most medical issues, the parameters for diagnoses were created around male behaviour.

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described is that my heart goes out to those who could flourish with a little extra understanding of how their brains work, especially children. I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

I feel a lot of irritation and sometimes outright anger from some posters, and the suggestion that people are using ND as an excuse somehow.

Aibu to not understand where this annoyance comes from?

OP posts:
Thread gallery
8
UkiUki · 12/12/2024 15:28

KitsyWitsy · 12/12/2024 15:19

I'm not against it as such. My own children are autistic but I just feel like recently there's an excuse for everything. It's ok for people to be rude or whatever because they're 'neurodiverse' or even worse, 'neurospicy'. At uni, people use it as an excuse for not doing well, when they simply didn't put the work in. So for me; it's excuse fatigue!

I personally hate the term ‘neurospicy’. I think I understand why people use it but for me it’s glamourising it. I can see where it has inspired positive things about me, but I don’t see ND itself as something I would wish to be if I had a choice. It doesn’t make me ‘spicy’ it just makes things more difficult than I wish they were.

OP posts:
Superworm24 · 12/12/2024 15:27

I get sick of it being used as an excuse. Any thread where the behaviour is selfish then youll see depression and ND used as an excuse. Sometimes people aren't ND they are just arseholes.

And even if the person is ND they still have to be accountable for their actions. I see posts all the time along the lines of I don't see why I/my child/anyone should have to mask their behaviour. It's such a selfish way of looking at things. I am accommodating and sympathetic, and I do understand some of the difficulties and issues around being ND. But everyone else in the world also has issues, wants and needs.

For an example someone will post about children screaming and running around in a coffee shop and it ruining the experience. The replies will be "maybe they are ND, just imagine how difficult it is for the parents." And yes that maybe true but if you've decided to treat yourself to a coffee, which is ridiculously expensive, you have every right not to want to deal with someone else's children.

Another post that regularly comes up which i have a personal experience of is garden use. We had a neighbour a few years ago whose child would constantly scream in the garden from 7am until 8pm. It made wfh during lockdown incredibly difficult as all of our rooms except the kitchen and bathroom faced towards their garden. We couldn't have windows open or sit in the garden due to the constant noise. Was the child ND? Quite possibly and I have sympathy for the parents. But at the same time I should be able to enjoy my own home and garden.

Ultimately there just needs to be balance. Everyone has to share spaces and work together.

Hoppinggreen · 12/12/2024 15:26

I sat in an Exclusion panel at a local school last Monday.
There was a 15 year old boy there known to be a gang member and absolutely terrorises the school.
His parents refuse to admit he ever does anything wrong but when presented with clear evidence they claimed he was "hyper active" so couldn't help it.
Thats the sort of shit that causes people to dismiss ND

Jellycatspyjamas · 12/12/2024 15:26

I am yet to see a post like that where the poster hasn’t considered and/or ruled out neurodiversity.

I often see the poster being asked if they considered neurodiversity, they say they have but there aren’t any other characteristics other than X and being told to look again because that one trait might mean they’ve overlooked other traits - almost berated into exploring a diagnosis that they themselves are clear doesn’t fit them.

I’m not against diagnosis where it might make a difference but labelling everyone with a quirk is unhelpful.

CreationNat1on · 12/12/2024 15:25

OP it's great that you are learning coping skills, self acceptance and self empathy, but please don't think you need to save the world from ND self loathing or selfharm.

"Captain Save the DAYS" often do more harm than good. You are not equipped to nurse other people through their realisation of ND.

Because of your diagnosis and your personal experiences, it is impossible for you to be impartial. Despite your best intentions, your subjective interpretations will be filtered through your hyper focus on ND.

Your boundaries and judgment are formed by your life experience, you will see ND everywhere, because you are so hyper focused on it yourself. You will lack perspective and balance when forming judgments on those around you.

Your kindly meant suggestions may be harmful to others.

Lavenderblossoms · 12/12/2024 15:23

I get enraged when they suggest shitty and abusive behaviour or someone simply being an arsehole is attributed to being ND and I will call people out on that.

It's very unfair when people reel it out like it's fact when it's someone's opinion.

I'm more likely to hurt myself more than anyone and it really truly upsets me that people think being ADHD is an excuse for things or that it's overdiagnosed or that you are simply abusive with these traits.

It has to stop. Posting things as facts when they are not is downright harmful.

I don't mean symptoms and traits that can be helped like in the workplace or social Etc.

UkiUki · 12/12/2024 15:23

slightlydistrac · 12/12/2024 15:14

It isn't the potential of the ND trait that is the negative at all.

It is when people read a thread from someone saying that their relative is displaying arsehole behaviour, and a poster pops along and says 'Have you counsidered they might be autistic?'. It implies that being an arsehole = autism.

There are many other posts on threads in a similar vein - someone says their MIL is being very unreasonable (could she have dementia?), their SIL or colleague is being very unpleasant (perhaps it's the menopause), their dc has turned into Kevin the Teenager (is it PDA?).

That does make sense explained like that. I guess was seeing it a bit different, as in I don’t always see it as arsehole behaviour where other people might. So if people suggest a child who is constantly losing valuables is ungrateful and careless, I wouldn’t see me saying, “have you considered ND?” as implying ND people are ungrateful and careless. I’d see it as me saying “maybe they aren’t actually ungrateful or careless, maybe there is something else going on.”

OP posts:
BananaNirvana · 12/12/2024 15:22

Almost all of my female friends have recently self diagnosed with ADHD - I do think it’s a problem. I work with SEN kids and I worry the frivolous use of the label is leading to people taking it less seriously in CYP, which is a huge concern cos we’ve worked so fucking hard to get it taken seriously in the first place!

”Oh sorry I’m late, it’s my ADHD!” from friends being tossed around is not helpful in the slightest. It’s become the new “I’m a little bit OCD” 😬

DyddEira · 12/12/2024 15:21

UkiUki · 12/12/2024 15:09

So, I totally agree with you that your DD should be your priority but surely diagnosing ND early, in theory, should lessen/prevent these situations.

For example, I would often fidget and tic at school and because I felt weird and was often told off, I learnt to scribble on a blank bit of paper to help me focus. One teacher then began to berate me for this and screamed at me and told me I was being distruptive. On one occasion I was made to stand up in the middle of the classroom so I couldn’t touch my pencil and on other occasions I was kicked out of class. My schoolwork struggled as I became very anxious about attending that lesson and I honestly believed the teacher that I was being disruptive by scribbling. Surely allowing me to use my coping mechanism was less disruptive than me constantly getting out of my seat, kicking my chair legs and repeatedly clearing my throat, not to mention the teacher’s behaviour. ND wasn’t an excuse but it was an explanation. In my opinion, the way it was handled caused more of a problem than the condition itself.

I agree early diagnosis is important, but I think in recent years there has become a tendency to excuse and minimise negative behaviour that impact on others and berate people raising concerns about these negative behaviours. Rather than the focus of early diagnosis as an opportunity to build effective life skills and adaptations into "normal" society, which whilst it may be exhausting masking, life does require some degree of conformity and adherence to social norms and rules.

Your teacher was a bully.

lionloaf · 12/12/2024 15:20

UkiUki · 12/12/2024 15:18

They hadn’t considered or ruled out ND. Not every parent has.

You’ve misunderstood me - you mentioned MN posts where people say “child does X, Y, Z” and I said I’m yet to see a post of that nature where the OP hasn’t considered if not ruled out neurodiversity.

fitzwilliamdarcy · 12/12/2024 15:20

Bookgrrrl · 12/12/2024 14:07

The problem is that the widening scope of diagnosis means that the differences between NT people and people with autism are getting less and less, as this research shows:

https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2747847

(The authors also looked at schizophrenia and found a very different effect, so it’s not just about increased awareness.)

As one of these researchers said, if it continues there will soon come a point where there is no difference between some NT people and some with an autism diagnosis:

https://www.sciencedaily.com/releases/2019/08/190821111816.htm

This then trivialises the diagnosis. Recent use of ‘mental health’ in relation to just about everything has done the same to depression. As someone who has suffered from severe depression for several decades, I have found it increasingly frustrating seeing the illness trivialised over the past 10 years by people pathologising every unhappiness. Feeling down because you hate your job, broke up with someone or even just had a bad day isn’t a mental health issue, it’s a normal reaction to life not always being a bed of roses. I can have a really crappy time in life and my MH be fine, and vice versa.

Removing stigma and making sure people can access help when they need it is important, but so is ensuring that diagnoses aren’t rendered meaningless by over-inflating their scope or over-using medical terms in everyday life.

I agree with all of this.

There are schools where teachers are reporting that nearly half of the kids are either diagnosed ND or under assessment. That suggests that if the trend continues, it'll be more unusual to be NT than ND, and the labels should then in theory have to switch over (because it will be 'typical' to be neurodiverse).

I don't think the widened scope and therefore the massive increase in people seeking diagnosis and support helps those with the most severe symptoms and/or the highest level of impact on daily life. If the diagnosis rates are going to keep increasing then funding will surely have to be targeted.

(Yes, in an ideal world there'd be enough money for all but there isn't).

Agree with you on mental health, too. I was diagnosed with severe co-morbid MH conditions in my teens and have worked for decades whilst essentially hiding everything I was going through. I now know people who are so open about their mental health (which is great), but they don't work, and they claim that everyone who holds down a job either doesn't have any MH conditions or if they do, they're very mild. That really winds me up.

KitsyWitsy · 12/12/2024 15:19

I'm not against it as such. My own children are autistic but I just feel like recently there's an excuse for everything. It's ok for people to be rude or whatever because they're 'neurodiverse' or even worse, 'neurospicy'. At uni, people use it as an excuse for not doing well, when they simply didn't put the work in. So for me; it's excuse fatigue!

UkiUki · 12/12/2024 15:18

lionloaf · 12/12/2024 15:12

Hadn’t what, OP?

I think we disagree on this because you think a diagnosis is positive (and I’m glad it was for you!) and therefore helpful and I think a diagnosis that doesn’t come from a professional is rude, unnecessary and likely to feel like a criticism/personal attack on the recipient as neurodiversity is part of who a person is.

They hadn’t considered or ruled out ND. Not every parent has.

OP posts:
UkiUki · 12/12/2024 15:17

hazelnutvanillalatte · 12/12/2024 15:03

If someone came on asking about certain physical or other symptoms, people would definitely suggest potential causes.

POVs like yours are infuriating for people like me who were diagnosed too late and suffered for years hating ourselves and being called useless, lazy, etc because 'no labels, she just needs to get her act together' etc.

So what if it's not, then it's not, but if it might be, or the symptoms resonate and the poster is in distress, why not say.

I only sought diagnosis after reading a thread on here about adult female ADHD. My sister has autism, never formally diagnosed, and my mother has ADHD, which was diagnosed in her sixties - again, all because of unhelpful attitudes like yours. These are brilliant women who have had their potential and self esteem decimated due to others blaming and judging and not understanding. I would never risk someone going through life like that when I could say 'This is sounds like it could be a symptom of... have you considered..?'

Thank you so much. You have worded this much better than I could but is exactly what I’m trying to get across.

OP posts:
UkiUki · 12/12/2024 15:16

Jellycatspyjamas · 12/12/2024 15:02

Maybe my way of seeing it is wrong but if someone might be depressed or might not, surely it’s better to say it and be wrong than not say it and it get worse.

I guess for me ND isn’t a better or worse thing, it is what it is but suggesting neurodiversity when other things are in the mix means the other things don’t get looked at. There’s huge overlap in ADHD/ASD presentations and developmental trauma - which needs a different approach. All too often the ND gets hooked on and the impact of trauma disregarded - because who wants to think their child is deeply traumatised.

I also think assessment has limited benefit for an adult who understands their own behaviour and can identify strategies to support. Assessment changes nothing about how someone functions day to day, they still need to find ways to function day to day and still need to find a degree of self acceptance. Might diagnosis help with that, maybe, but given lengthy waits I can’t help think it’s better to get on with doing what you know works than waiting for a diagnosis that doesn’t change things.

In my experience which is of course different to others’, I feel a bit of a fraud reading books or looking at studies regarding ND coping strategies without a diagnosis. Also, I feel like the main thing it affects is my opinion of myself. The slow move from seeing it as something I can control and am choosing not to because of character failings, to it being a real and tangible difference in how my brain works, is helping me to not be so horrible to myself.

OP posts:
slightlydistrac · 12/12/2024 15:14

UkiUki · 12/12/2024 14:06

I agree with some people just having these behaviours but we can’t know that’s the case or not from a short story on here. My confusion is why it’s seen as a negative to mention it could be a ND trait.

It isn't the potential of the ND trait that is the negative at all.

It is when people read a thread from someone saying that their relative is displaying arsehole behaviour, and a poster pops along and says 'Have you counsidered they might be autistic?'. It implies that being an arsehole = autism.

There are many other posts on threads in a similar vein - someone says their MIL is being very unreasonable (could she have dementia?), their SIL or colleague is being very unpleasant (perhaps it's the menopause), their dc has turned into Kevin the Teenager (is it PDA?).

lionloaf · 12/12/2024 15:12

UkiUki · 12/12/2024 15:10

My parents hadn’t

Hadn’t what, OP?

I think we disagree on this because you think a diagnosis is positive (and I’m glad it was for you!) and therefore helpful and I think a diagnosis that doesn’t come from a professional is rude, unnecessary and likely to feel like a criticism/personal attack on the recipient as neurodiversity is part of who a person is.

UkiUki · 12/12/2024 15:11

AshCrapp · 12/12/2024 15:00

A lot of the time the suggestions are outright offensive to neurodivergent people. It doesn't help anyone to conflate misbehaviour with neurodivergence.

It’s not always misbehaviour though.

OP posts:
UkiUki · 12/12/2024 15:10

lionloaf · 12/12/2024 14:59

I am yet to see a post like that where the poster hasn’t considered and/or ruled out neurodiversity.

Either way, I think posting “maybe you could try A to deal with X” is far more helpful than “maybe your child has something wrong with their brain because I do”, which is rude, invasive, overstepping and inappropriate!

You are a complex individual, as is the child, and you cannot extrapolate your diagnosis to them, someone you have never met, based on a few traits!

My parents hadn’t

OP posts:
UkiUki · 12/12/2024 15:09

DyddEira · 12/12/2024 14:58

I think the problem with neurodiversity is that behaviour affects not just the individual displaying it, but those around them, be that within an intimate relationship or in a classroom setting, and when those behaviour traits are negative they can cause lasting damage.

A new kid started in DD class who clearly has some fairly significant ND and accompanying behavioural issues. Unfortunately his behaviour has had a negative and lasting impact on several of his classmates, impacting their education and mental health. But I have definitely notice a degree of dismissiveness from some with ND used as an excuse. Frankly my priority is my DD safety and education, his ND is not my problem.

So, I totally agree with you that your DD should be your priority but surely diagnosing ND early, in theory, should lessen/prevent these situations.

For example, I would often fidget and tic at school and because I felt weird and was often told off, I learnt to scribble on a blank bit of paper to help me focus. One teacher then began to berate me for this and screamed at me and told me I was being distruptive. On one occasion I was made to stand up in the middle of the classroom so I couldn’t touch my pencil and on other occasions I was kicked out of class. My schoolwork struggled as I became very anxious about attending that lesson and I honestly believed the teacher that I was being disruptive by scribbling. Surely allowing me to use my coping mechanism was less disruptive than me constantly getting out of my seat, kicking my chair legs and repeatedly clearing my throat, not to mention the teacher’s behaviour. ND wasn’t an excuse but it was an explanation. In my opinion, the way it was handled caused more of a problem than the condition itself.

OP posts:
lionloaf · 12/12/2024 15:05

hazelnutvanillalatte · 12/12/2024 15:03

If someone came on asking about certain physical or other symptoms, people would definitely suggest potential causes.

POVs like yours are infuriating for people like me who were diagnosed too late and suffered for years hating ourselves and being called useless, lazy, etc because 'no labels, she just needs to get her act together' etc.

So what if it's not, then it's not, but if it might be, or the symptoms resonate and the poster is in distress, why not say.

I only sought diagnosis after reading a thread on here about adult female ADHD. My sister has autism, never formally diagnosed, and my mother has ADHD, which was diagnosed in her sixties - again, all because of unhelpful attitudes like yours. These are brilliant women who have had their potential and self esteem decimated due to others blaming and judging and not understanding. I would never risk someone going through life like that when I could say 'This is sounds like it could be a symptom of... have you considered..?'

Again, just because you wanted a diagnosis, and found it a positive and helpful experience, doesn’t mean everyone else does.

There are plenty of resources available for you to research and look into it without strangers telling you there is something “wrong” with you!

Jifmicroliquid · 12/12/2024 15:05

CatContortionist · 12/12/2024 14:53

This is a false narrative though. I am late diagnosed and it certainly has not helped me not to know or receive help growing up. School was hell and I was unable to finish uni. As a result a career I might enjoy was out of reach. Job after job ended in burned out failure. Not getting help early on didn’t help me toughen up and succeed at all. Am I good at masking? Sure. That ability helped me get into terrible relationships where I masked and pretzeled myself into oblivion. Only since finding out I am Autistic have I begun to gain self-acceptance, self-awareness, coping strategies, and so on. Early diagnosis is critical for many ND individuals to have a chance at succeeding in life.

That’s why somewhere in between probably would be best. An awareness of the ND condition, but also ways to help that person succeed in the world with their differences. Because, let’s face it, the world is not set up for people like us.

I stand by the fact that I believe schools are failing ND kids by not giving them the realities of what life will be like when they leave. They hold their hands through school and then chuck that kid out at 18 and expect them to be able to function in a world geared very much for NT people.

hazelnutvanillalatte · 12/12/2024 15:03

lionloaf · 12/12/2024 13:55

It isn’t helpful. Lots of people have lots of traits that can also be observed in neurodiverse people - it doesn’t mean everyone with those traits is neurodiverse. Also, not everyone wants a diagnosis. If they did, they would be contacting a professional. You wouldn’t diagnose other health conditions in others at random based on symptoms, as it could be any number of things, so why do it for neuro conditions? With other health conditions, you would clearly recognise that it is inappropriate and overstepping. Same applies here.

If someone came on asking about certain physical or other symptoms, people would definitely suggest potential causes.

POVs like yours are infuriating for people like me who were diagnosed too late and suffered for years hating ourselves and being called useless, lazy, etc because 'no labels, she just needs to get her act together' etc.

So what if it's not, then it's not, but if it might be, or the symptoms resonate and the poster is in distress, why not say.

I only sought diagnosis after reading a thread on here about adult female ADHD. My sister has autism, never formally diagnosed, and my mother has ADHD, which was diagnosed in her sixties - again, all because of unhelpful attitudes like yours. These are brilliant women who have had their potential and self esteem decimated due to others blaming and judging and not understanding. I would never risk someone going through life like that when I could say 'This is sounds like it could be a symptom of... have you considered..?'

Jellycatspyjamas · 12/12/2024 15:02

Maybe my way of seeing it is wrong but if someone might be depressed or might not, surely it’s better to say it and be wrong than not say it and it get worse.

I guess for me ND isn’t a better or worse thing, it is what it is but suggesting neurodiversity when other things are in the mix means the other things don’t get looked at. There’s huge overlap in ADHD/ASD presentations and developmental trauma - which needs a different approach. All too often the ND gets hooked on and the impact of trauma disregarded - because who wants to think their child is deeply traumatised.

I also think assessment has limited benefit for an adult who understands their own behaviour and can identify strategies to support. Assessment changes nothing about how someone functions day to day, they still need to find ways to function day to day and still need to find a degree of self acceptance. Might diagnosis help with that, maybe, but given lengthy waits I can’t help think it’s better to get on with doing what you know works than waiting for a diagnosis that doesn’t change things.

nam3c4ang3 · 12/12/2024 15:01

I don't know - im in two minds, i have friends who see their children as XYZ - and when i say, oh when did you get the diagnoses are the school being helpful etc - they say they read something online and diagnosed that way. I also know of one child whose mum was convinced he had something and saw no less than FIVE dr's to confirm - all of them said he was normal and fine, she still says he has something to excuse his (frankly) mean and shitty behaviour - he will go right up to other kids and whack or hit them and his mum will say, oh hes diagnosed XYZ etc so he cant help himself - that child will get away with murder one day and his mum will say its because he has XYZ.