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Elderly relative won't wear hearing aids. Stopping visits until he does?

265 replies

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 11:22

Morning all,

This might sound harsh but it's driving me up the bloody bend.
My grandad is elderly, 82. He's frail now and has just given up his license. Between me and my mum we have a rota for all lifts needed, I have him round for dinner once a week and so does she. The load is shared between me, my mum and aunt. My nanny sadly passed away a few years back so we try and keep grandad busy as he can get lonely. He lives 5 doors up from my mum and I know she carries a huge load of this and she struggles so I really try and help out as much as I can between having young DC, working full time as a single parent etc. grandad grates on mum sometimes as he won't even bother opening his mail he will just trundle round to mums while she's WFH and give her the envelopes. She's on a bit of a journey with asserting boundaries with this, as he's quite bone idle as it is and my nanny did everything for him so there's aspects that probably won't change now.

Anyway more to the point, he is profoundly deaf. But he never wears his bloody hearing aids! His excuse is 'his ears are blocked so what's the point' and 'he can hear perfectly well without them..' well the only reason he can hear is because we are shouting at him. The TV is on 3/4s of the max volume. It's bloody exhausting. I'm autistic and struggle with loud noises at the best of times. He doesn't know I'm autistic as he doesn't believe in any of that and said 'it's no different to when I take DD to soft play with loud noises'.

Anyway, I personally think it's rude and so antisocial to go to peoples houses, be fed and looked after and expect everyone to shout at him. Just put the bloody hearing aids in!

I've now said to grandad that he cannot come round or ask for help unless he's wearing his hearing aids. This hasn't gone down well with him, of course. I'm conscious with mum now getting even more of the load as I've put that boundary in place. I have suggested that she also has the same boundary she maybe it'll make him realise. She is thinking about doing the same thing.

AIBU? I think it's rude to come into someone else's home and expect everyone to shout when there's an easy fix. Shouting at someone and having to repeat yourself for 2-3 hours I find utterly exhausting, I come away feeling really overwhelmed and honestly can't wait to drop him back. I know that's probably due to my ND but I just can't do it anymore.

He won't wear them because he 'doesn't need them.' We've asked if they hurt or are too loud and he said they're fine.

AIBU? What else can we do? Thank you!

OP posts:
PiggyPigalle · 03/12/2024 13:46

You need to speak normally, if not a little quieter than normal. Have the television on at normal volume. Stop making concessions for him and he will realise he needs to wear his hearing aid.

Nannyfannybanny · 03/12/2024 13:43

It's exhausting straining to hear as well. I'm 74, suddenly went deaf with COVID September 2023, went to my GP,was told 3 months wait for audiology appointment. I bought amplifiers online, about as big as my little finger nail. I can just about manage an hour,they really hurt. If you touch your hair,they go up a level, loudness doesn't always work it's pitch. Then I got wireless headphones for the TV, you have to get up the app on the TV,then I have to wait for dialogue, because the title music of say a film is really loud. Then the volume has to be adjusted on the TV. I have to wear glasses for distance,so have to wear them for TV, with the headphones over top,it hurts.I use subtitles if available,they aren't foolproof either. Guess what, I had my audiology 3 months appointment last week, over a year, now I have to wait for the tinnitus clinic appointment, and then for hearing aids. My family get annoyed with me. My late father would be in his 90s now, and he never made so much as a cup of tea in his life. That was normal in the 30s and 40s. Men didn't set foot in the kitchen. I sympathise in some ways, when my DM died,df remarried, she died,I remarried,had a baby at 41, worked ft nights nursing ironically, only child, ended up looking after him terminally ill, after working a 12.5 night shift, and he lived 40 miles away.

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 13:43

Havalona · 03/12/2024 13:17

I'm just shy of 70% loss on LHS and 40% on the RHS. The minute I couldn't communicate with others and do my job well due to hearing loss (which was quite gradual really) I got the aids.

Sure enough, if aids won't work to improve the hearing then the RNID guide is useful. But if the hearing aids WILL help, there is no excuse.

I am a bit OTT about people refusing to use them. I do not make any special allowances generally speaking for the stubborn.

Dementia is a big result of the zone out that comes from not using aids in relation to certain forms of deafness. I think that's quite scary too.

I don't know the dementia risk. My mum probably does though but I'll definitely bring that up to grandad for sure. Thank you!

OP posts:
Havalona · 03/12/2024 13:42

If you wear them with pride you are supremely unhelpful and ridiculous.
If you refuse to wear them you are stubborn.

No win for those who don't fit into the full hearing category! And I can hear the derisory tone on the page even though I'm bloody deaf!

Aids can be adjusted, the dome can often be too big (the bit that goes in the ear canal). The mike can be too heavy (back of the ear). The feedback might need to be adjusted (the whistling sound).

Most of them can be fixed to suit. Provided you go back to audiology of course.

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 13:42

AmandaHoldensLips · 03/12/2024 13:17

What a nightmare.

Old people like your grandfather are living under the illusion of being "independent" when in fact they are anything but. You and your mum are being run ragged by a stubborn old sod who thinks that a woman's place is to facilitate his life.

Well fuck that.

Your burnout warning lights are flashing, and that is not something you can ignore. I'm guessing your mum is feeling the same.

You absolutely must bear in mind that both you and your mum have choices in this set-up. If your GF is determined to sit in his own filth and refuse any outside assistance then that is his choice, and he must be told so.

Decide what you are prepared to do - e.g. one dinner a week, one visit a week. (or less - totally up to you). Tell him and stick to it.

If his self-neglect becomes really bad, then call in adult social services.

Ask yourself (and your mum) this: how much of your life and happiness are you prepared to let him destroy? why is his wellbeing more important than yours? who cares when the carer is burnt out and on their knees? him? does he care about the impact he's having on you?

You and your mum can say NO - I'M NOT DOING THIS ANY MORE.

Neither of you are responsible for facilitating his life. You have lives of your own.

(And it sounds to me like the hearing aids are the tip of the iceberg...)

Oh this made me cry. Thank you. Yes the burnout warnings are flashing red beacons.

I'm trying to take as much pressure off mum as she has been my rock through my cancer and treatment. She made sure I had a clean bed to go home to, that my DDs routine wasn't changed at all, she did so incredibly much and I sort of feel like me taking the reigns is a little bit of a debt to her I can pay back if that makes sense. I don't think anyone could ever prepare her for nearly losing me (I was in a coma for 15 days after cancer surgery) and she never left my side.
She's now run ragged with grandad and I just feel I have to keep helping her.

My lovely mum is amazing but I have realised from this thread that we both desperately need a break.

I'm going to book us a spa weekend for Christmas and come up with a good plan with her at the Spa I think. It's time to get outside care in, for sure. And I won't be told on this thread that I'm awful or I should be ashamed of myself for asking for a pair of fucking hearing aids be worn.

Thank you for your post it really means a lot.

OP posts:
LikeWhoUsesTypewritersAnyway · 03/12/2024 13:36

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 13:35

Ashamed of myself?

Are you alright??

You have nothing to be ashamed of @TheTreeLightsAreFuckingMeOffNow You're just frustrated and tired and angry and weary. And it's not surprising. Hope it all works out. Flowers

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 13:35

Soontobe60 · 03/12/2024 13:05

You’re right, you’re being bloody awful!

Please elaborate.

OP posts:
IsawwhatIsaw · 03/12/2024 13:35

I had a friend who’d refuse to wear hearing aids. She told me they’d make her deafness worse , then that her hearing was fine and she didn’t need hearing aids.
it got to the stage where I’d have to write things down when I visited.
And then she couldn’t hear the phone or doorbell if I rang or went round, so I was unable to talk to her. She wouldn’t give me a door key.
I tried notes through the door, but I’ve now decided to step back.
I did get social services involved because I was worried she was so vulnerable, but she won’t give them a key..

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 13:35

RoseAylingEllisFanClub · 03/12/2024 13:04

OP - you should be ashamed of yourself for being so disabilist. I’ve seen it before - people with disabilities of their own having no empathy or common sense with others who have a different disability.

As my user name implies, I have a lifetime’s worth of lived experience with being deaf and managed my own late father’s declining hearing and helped him adjust to his hearing aids. Which I did successfully without hectoring, badgering, shouting or holding boundaries! So here’s some sensible advice should you choose to take it:

Hearing aids are uncomfortable and take a lot of getting used to, both in their physical feel and the sound you experience through them - it’s not the same as your own physical hearing, so it’s hard to adjust and can often be a disappointing sound, even if it delivers results. They don’t restore hearing or give you back the hearing you’ve lost, they compensate by amplifying everything. It won’t be “like it used to be”.

That means the sounds you want to hear, like speech, are amplified, but so are the background sounds people with normal hearing can filter out. It takes mental effort to understand in that cacophony and is discouraging.

If he feels his ears are blocked, they’re probably not properly calibrated, leading to muffled sound. They may need reprogramming. This can be a matter of trial and error. Old people may not be able to articulate what the problem is, but these are common issues that discourage use of HAs - as well as feelings of pride and shame, and should be explored until he can put his finger on what it actually is.

Use these clues to find out what the issue with the aid is and see if you can get him further forward.

Don’t shout at him any more: this is RNID advice. It distorts your voice, distorts your lip patterns and strips your facial expression of appropriate context - you’ll look angry even when you’re not.

Face him so he can see your lips and expression. Don’t stand against the light - he won’t be able to see you. Stand with the light on your face instead. He’ll be searching your face and lips for clues even if he isn’t formally lipreading.

Use gesture - it’s not learning formal sign language but a PP described gesture like pointing to a keyhole as sign language. In reality that is natural appropriate gesture that adds context and aids understanding. It really helps.

If he doesn’t understand, don’t repeat things in the same words, try a different way of saying the same thing, eg substitute jacket for coat. Introduce the topic first so he can latch on - eg ‘for dinner - what would you like?’

Subs on the telly all the way - and are they big enough for him to see?

Go to the RNID website for more tips.

Ashamed of myself?

Are you alright??

OP posts:
Dweetfidilove · 03/12/2024 13:35

That's a bit harsh. I don't use earbuds or such, because they just hurt my ears.
With his ears blocked, presumably they're very uncomfortable for him.

Turn the tv down when you go, and tell him you can't stand the noise so he can bear the inconvenience while you visit.

Lallydallydune · 03/12/2024 13:34

LikeWhoUsesTypewritersAnyway · 03/12/2024 13:30

As I said, it's always the women who are expected to be the carers isn't it?! Hmm

Yes we need to stand up to the system!

My mum had a fall and went into a nursing home for respite. At the time i lived three hours away from her. I travelled to see her about five times.

My brother lived thirty minutes away from her.

My aunty rang me and shouted at me that I wasn't doing enough for my mother. She made me feel so awful. Like I was a piece of sh#t

She would never even think of ringing my brother and telling him to do anything. Because he's a precious man and I'm a lowly woman.

I did strongly stand up to my aunt on that occasion as I could envision my mum getting older and my aunt constantly shouting at me for years that I'm not doing enough for her. I strongly stood up to my aunt so I don't think she'll do it again.

I said to my aunt "I'm working full time, I don't live near my mother, I can't magically be with her in her house when she comes out of the nursing home, she needs to get a carer".

Alltheunreadbooks · 03/12/2024 13:34

OP I think you are getting lot of stick from posters who have no idea what it is like to have responsibility for a selfish, lazy elderly person.

I got to the point that you are at with my parent; no conversation due to not wearing hearing aids, and people thinking they had dementia as they pretended to hear and understand things that they hadn't.

My parent won't do anything for themselves and is incredibly self centred and self absorbed. They actually liked the idea of carers as it was people to wash the pots and make tea. I had to arrange every single aspect of that.

All my love and respect has disappeared, it is now a chore dealing with them. Instead of lovely memories and being happy to help them in their old age, I'm left with resentment and frustration. The difference between can't and won't with an elderly person really affects your relationship with them.

LikeWhoUsesTypewritersAnyway · 03/12/2024 13:32

@madaboutpurple · Today 11:27

The problem is some people seem ashamed to use a hearing aid. I think you are being harsh on your Grandad to be truthful.

@Havalona · Today 13:05

Have to jump in here without reading any further! I am in my 60s now, and have gradually lost most of my hearing over the years due to meningitis and now older age lol. I absolutely love my hearing aids and wear them with pride. I wear my hair up and they are fully visible and I don't give a shit. My life has been transformed since needing to use them about 6 or so years ago.

How supremely unhelpful. 🙄 Bully for you if you absolutely LOVE wearing your hearing aids, and 'wear them with pride', shoving your hair out of the way so everyone can see them!

What a ridiculous comment really! Hmm

People are different, and some people feel embarrassed to wear them, and some people struggle to wear them for physical reasons. They find them uncomfortable and itchy and unpleasant, and struggle with the levels of noise and sounds. And as has been said by a few posters, they actually hurt some peoples ears! They are a wonderful creation, but they don't work for everyone!

GoldenLegend · 03/12/2024 13:32

Octavia64 · 03/12/2024 11:34

This is very common with elderly people.

My grandma was like this and then my dad.

I have a theory that they are so ashamed of being ill or less than perfect it's better to pretend they are well than accept help.

You putting boundaries in is unlikely to make him change.

It's up to you how you feel about that.

I can tell you that you're wrong. The problem is that hearing aids don't give you back perfect hearing, you still can't follow group conversations or hear what people are saying if there's no background noise. You still have to lipread a lot. And the biggest bugger of all, you have to learn to use them and it takes time and concentration. What's more, with presbyacusis (age-related hearing loss) the first thing that goes is the high frequencies so it DOES sound as though people are mumbling.

Try to be a little more sympathetic. Everyone who lives long enough is likely to experience some degree of hearing loss. I've been deaf since my teens and I am now seeing my peers start to suffer from hearing loss. For once I'm a bit ahead of the game because it's not new to me as it is to them. I still try to be sympathetic though. People take good hearing for granted and it's difficult when it's taken away from you.

Patienceinshortsupply · 03/12/2024 13:32

I used to work in a nursing home and once had to attend a hospital clinic with a resident to get hearing aids fitted. The audiologist explained that it doesn't just amplify the sounds you want to hear, it amplifies all of them and after years of deafness, there is a huge sensory overload when you put them in. When I tried wearing one, I lasted about 30 seconds as it was unbearable!

He needs to wear them little and often so he gets used to them. Gentle encouraging should help and I would also look at getting his ears syringed.

Illegally18 · 03/12/2024 13:31

Lallydallydune · 03/12/2024 13:25

My mum says she won't use her hearing aids as they really hurt her ears.

Maybe they need to design better ones.

I think mine never tried hers on.

LikeWhoUsesTypewritersAnyway · 03/12/2024 13:30

Lallydallydune · 03/12/2024 13:24

There's been a lot of threads on here recently where women are writing that they are absolutely exhausted looking after male relatives. One woman wrote yesterday that she was looking after her brother.

To the women that do this, you don't HAVE to do it. You are also not helping other women, by doing it.
You are keeping the old fashioned system going that says that women need to care for all men , to the point of ruining their own lives.

Say no. Let him get a carer.

As I said, it's always the women who are expected to be the carers isn't it?! Hmm

Saz12 · 03/12/2024 13:29

Hearing aids take a while to learn to get used to, particularly if you start when hearing loss is quite advanced or when you're suffering cognitive decline. Most people can't successfully wear them "occasionally", it's quite all-or-nothing. But is it that HE is overwhelming you, and the hearing aid issue isn't all that's the problem.

Because this can't go on - you have way too much to deal with, and his hearing is only a part of it.

The childlike dependence is likely anxiety as he realises he's not what he once was.

He wont accept a carer. OK, but could you organise a "cleaner" for him who will be there when shopping is delivered, will make his lunch, do the washing, etc?

Or, have you looked into assisted living? Somewhere that does communal meals but not care. What situation are the friends he meets for lunch in? Do they have carers or family who mind them?

TarantinoIsAMisogynist · 03/12/2024 13:29

Lallydallydune · 03/12/2024 13:24

There's been a lot of threads on here recently where women are writing that they are absolutely exhausted looking after male relatives. One woman wrote yesterday that she was looking after her brother.

To the women that do this, you don't HAVE to do it. You are also not helping other women, by doing it.
You are keeping the old fashioned system going that says that women need to care for all men , to the point of ruining their own lives.

Say no. Let him get a carer.

Yes - I'm shocked at the pasting the OP is getting. She is doing so much, and has such a lot on her plate (including chemo).

Yes, it is important to make allowances and help where you can, but you have to put your own life jacket on first! The OP and her mother are going to burn out and get ill at this rate.

He needs to accept carers, and if that means social services involvement, then that is what is needed. It is not reasonable for women to be expected to grind themselves into the ground providing care and to always put their own needs last.

TheOliveFinch · 03/12/2024 13:28

I don’t think you are being at all unreasonable, we had this with my dad who also denied he was deaf and used to accuse us of mumbling all the time. No matter how much you love and help them they should also show willing and not make everyone else’s life difficult by being so stubborn and refusing to help themself.

AmandaHoldensLips · 03/12/2024 13:27

Lallydallydune · 03/12/2024 13:24

There's been a lot of threads on here recently where women are writing that they are absolutely exhausted looking after male relatives. One woman wrote yesterday that she was looking after her brother.

To the women that do this, you don't HAVE to do it. You are also not helping other women, by doing it.
You are keeping the old fashioned system going that says that women need to care for all men , to the point of ruining their own lives.

Say no. Let him get a carer.

^^ This. In spades.

Lallydallydune · 03/12/2024 13:25

Illegally18 · 03/12/2024 13:23

I do so feel your pain. My mum wouldn't use her hearing aids (though the situation wasn't half as bad as yours) and this meant that when her grandchildren came to visit her, she couldn't hear what they were saying. So they spoke to me. I mean, why? She'd had to wait a long time to have them, wouldn't she want them to communicate with her?

My mum says she won't use her hearing aids as they really hurt her ears.

Maybe they need to design better ones.

Lallydallydune · 03/12/2024 13:24

There's been a lot of threads on here recently where women are writing that they are absolutely exhausted looking after male relatives. One woman wrote yesterday that she was looking after her brother.

To the women that do this, you don't HAVE to do it. You are also not helping other women, by doing it.
You are keeping the old fashioned system going that says that women need to care for all men , to the point of ruining their own lives.

Say no. Let him get a carer.

Illegally18 · 03/12/2024 13:23

TheTreeLightsAreFuckingMeOffNow · 03/12/2024 11:41

If we stop shouting, he pretends he can hear and will input random words and sentences into the conversation. It doesn't really get us anywhere.

Maybe I am harsh. But I'll take that, as if you're refusing any outside help from any organisation and expecting your family to pick up all the pieces, the least you can do is be polite and wear his hearing aids.

I do so feel your pain. My mum wouldn't use her hearing aids (though the situation wasn't half as bad as yours) and this meant that when her grandchildren came to visit her, she couldn't hear what they were saying. So they spoke to me. I mean, why? She'd had to wait a long time to have them, wouldn't she want them to communicate with her?

C152 · 03/12/2024 13:20

In general, yes, I do think you're being a bit harsh regarding his choice not to wear hearing aids, as you don't know what it's like to wear them. There could be several reasons he doesn't want to wear them, like they're painful or uncomfortable. If you're seeing him in his own home, I'd say it's inappropriate to tell him he has to wear his hearing aids if he doesn't want to.

But it's also fair to say what you're willing to do/not do in your own home, so if he's visiting you, I can understand you wanting him to wear them. Although rather than try to insist, I would do what @Jostuki suggested first.