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Assisted dying bill (TW assisted suicide discussion)

310 replies

Onand · 24/11/2024 13:30

I appreciate this is a divisive subject and a sensitive topic for many. Please avoid this thread if you find any discussion of suicide, death, trauma, terminal illness, cancer and faith triggering.

I’m curious to know how others are feeling about this subject, from what I can see there isn’t a lot of discussion, is this a MNHQ decision or an indifference from posters?

My opinion and views on this potential landmark decision are based on my horrifying experience of watching and waiting for my mum to pass from end stage cancer several years ago.

For over four years she fought advanced cancer, she took every treatment and trial offered to her. She endured major abdominal surgery, many blood transfusions, multiple rounds of chemo, lost her hair several times, her bones started to crumble causing excruciating back pain, severe abdominal swelling, double nephrostomy as her kidneys failed, multiple lesions on her brain that caused debilitating headaches and personality changes, her teeth and bones were decaying due to a calcium disorder, various hospital stays for infections, the list goes on.

Truly the most hideous nightmare cancer ‘journey’ anyone could ever imagine, it always felt like one step forward and two backwards and yet she carried on without much fuss or sign of fear to protect the family and herself from the true horrors of suffering.

She never wanted to die and so she never gave up or gave in- that was until the last few weeks of her life when she had no choice. The immense damage and toll cancer had done to her physical body was too much to survive any longer so the last infection she had took her consciousness and so began the final horrifying curveball that cancer has up its evil sleeve, this one is for the loved ones though, because now you have to wait and watch for the end to come. Anyone who has endured this knows exactly what I am talking about, a horror that truly brings home the meaning of hell of earth.

If the assisted dying bill was around whilst my mum was alive I know she would have never entertained an early death whilst she was still in control and able to fight, but I do know that her love for the family would have also meant she would never have wanted us to endure that final two weeks of watching and waiting for her body to shut down if it could have been avoided and she was able to specify what was to happen at the end. There was no possibility of her ever getting better or a miraculous recovery, death was very inevitable and a certainty but we still had to sit and watch, doing oral care and leaving the room as they checked for bed sores and did secretion suction. The only thing I could do to protect and help her was the make sure she was undoubtedly unaware of what was happening as she feared death and leaving us behind- the thought of her being remotely aware meant we were constantly asking the nurses for more and more sedation.

If this bill gives patients the choice to avoid the hideously evil ending of a terminal illness and the following ptsd that impacts the loved ones left behind then it is an opportunity I strongly agree with. Watching a loved one die an agonising death is soul destroying and something I hope no one has to ever endure if said loved one could choose to avoid.

How do others feel?

OP posts:
Questionary · 27/11/2024 22:13

Patienceinshortsupply · 27/11/2024 21:25

I've tried to avoid the discussion in truth, because having watched my Dad die a horrific (and I genuinely mean horrific) death from liver cancer, I think that those who haven't seen someone die this way hasn't got a fucking clue. He had a great palliative team, but the reality is that when your organs start failing especially the liver, you can be injected with all sorts but it does nothing. Palliative care is like sticking a plaster over a broken leg.

The hand wringing about safeguarding and poor little old ladies being bullied into it is frankly ignorant and insulting to those with terminal illnesses. Everyone with a vote on this needs to spend a day in a hospice and see the reality of a cancer death before making their opinion.

And yet palliative care doctors- the ones who see the most ‘deaths in a hospice’ that you suggest all should be exposed to - are the medical group most against the bill.

That’s not because they fear their jobs or they have a God complex about what palliative care can achieve. More that they see the vulnerabilities of people making choices. And the absolute grey areas of prognosis and consent.

SugarandSpiceandAllThingsNaice · 27/11/2024 21:41

Patienceinshortsupply · 27/11/2024 21:25

I've tried to avoid the discussion in truth, because having watched my Dad die a horrific (and I genuinely mean horrific) death from liver cancer, I think that those who haven't seen someone die this way hasn't got a fucking clue. He had a great palliative team, but the reality is that when your organs start failing especially the liver, you can be injected with all sorts but it does nothing. Palliative care is like sticking a plaster over a broken leg.

The hand wringing about safeguarding and poor little old ladies being bullied into it is frankly ignorant and insulting to those with terminal illnesses. Everyone with a vote on this needs to spend a day in a hospice and see the reality of a cancer death before making their opinion.

I have watched three close relatives die, one of which was breast cancer. It was not the most painful or hardest to support or longest lingering death of the three btw.

So should I say you are “ignorant” and you need to see deaths that are worse than a cancer death before having an opinion?

Please try to understand that those of us with a different opinion from you may have also experienced observing traumatic deaths instead of presuming that anyone who disagrees “hasn’t got a fucking clue” .

Even parents who have watched their children slowly die for years are against this bill.

“The hand wringing about safeguarding and poor little old ladies being bullied into it is frankly ignorant and insulting to those with terminal illnesses.”

This comment of yours is misogynistic, ageist and utterly callous.

SugarandSpiceandAllThingsNaice · 27/11/2024 21:30

After 4 months they went to a hospice knowing it was time.
On day 5 of being there the doctors offered test for cancer.
Why ?
No doubt chemo would be next - the family said 'no'

I would expect the test was so they could properly determine cause of death. The discovery of cancer doesn’t automatically result in treatment.

Patienceinshortsupply · 27/11/2024 21:25

I've tried to avoid the discussion in truth, because having watched my Dad die a horrific (and I genuinely mean horrific) death from liver cancer, I think that those who haven't seen someone die this way hasn't got a fucking clue. He had a great palliative team, but the reality is that when your organs start failing especially the liver, you can be injected with all sorts but it does nothing. Palliative care is like sticking a plaster over a broken leg.

The hand wringing about safeguarding and poor little old ladies being bullied into it is frankly ignorant and insulting to those with terminal illnesses. Everyone with a vote on this needs to spend a day in a hospice and see the reality of a cancer death before making their opinion.

SugarandSpiceandAllThingsNaice · 27/11/2024 21:21

I feel that as medical advancements have helped us live longer lives we’re of the thinking that reaching mid 80s is a good run regardless of the state you’re in.

So Logan’s Run style maximum age of 85 and then they go to a facility and are euthanised because they’ve had a “good run regardless of the state” of their health? Awareness? Wish to live?

As pp have said, your thinking reflects alot of the slippery slope concerns.

SugarandSpiceandAllThingsNaice · 27/11/2024 21:15

Stillplodding · 25/11/2024 14:22

But isn’t this a bit like the idea of coercive abortion?

It absolutely shouldn’t happen, there are safeguards to prevent it (two drs signatures etc). But I’m almost certain it does occur, people eg partner or family putting pressure on a woman to abort against her wishes.

However, that doesn’t mean we ban abortions for everyone, the vast majority who are not being coerced and have weighed up the options and are making the best decision for them in the situation they find themselves in?

The stakes are much higher, if you are coerced into an abortion, your life goes on. If you are coerced into death, your life is over.

Some would say the consequence of coercion is therefore too high to legalise assisted dying.

SugarandSpiceandAllThingsNaice · 27/11/2024 21:02

FlameGrilledSquirrel · 25/11/2024 11:46

Probably not hoards as you say but we do have to look at the outliers on this one because it will happen.

And when we had the death penalty, we weren’t executing hordes of innocent people who were victims of a false conviction for murder. We still abolished it because of the handful, the teeny tiny minority of executions were of innocent mostly men.

Assisted dying is likely to result in mostly women being coerced into death. I suppose that’s less important though.

SugarandSpiceandAllThingsNaice · 27/11/2024 20:47

Tundeira · 25/11/2024 10:15

Infection causes pain. They treat the infection to make the patient more comfortable.

Yeah, exactly. Sepsis is one of the most painful and agonising ways to die. Imagine having terminal cancer AND sepsis from an untreated infection?

Lovelysummerdays · 27/11/2024 10:07

ScrollingLeaves · 26/11/2024 12:41

The thing is that I myself would like to be euthanised if I get dementia. I wish there could be an advance directive.

Me too. I’m going to get an advanced directive that says no care apart from pain relief if I lose capacity I think but genuinely I’d rather be euthanised.

Puzzledandpissedoff · 26/11/2024 14:36

Where is the line drawn?

When the patient is deemed a potential murder victim in the eyes of the medical professional who is overseeing the death if they suspect coercion or pressure or the patient doesn’t meet the criteria of having an incurable diagnosis where death isn’t reasonably expected within 6 months

Rightly or wrongly it doesn't work like that, @Onand, since medical professionals quite reasonably point out that they're not legal personnel

I suppose there could be some process for reporting back to the "judge" who'd signed off the procedure in the first place, but even if time was allowed for this it could be almost impossible to prove coercion once the person was dead

user942557 · 26/11/2024 14:26

They probably won’t detect it every time

@Onand And that is why it shouldn't be passed.

snarkygal · 26/11/2024 13:03

My friend in australia's parent was admitted to a hospice with advanced cancer. In there, he learnt from one of the other patients that euthanasia was now a legal option. He requested it immediately to end his suffering - he was wracked with a horrible cough and could barely eat or swallow anymore. There was a two weeks grace period where lots of paperwork needed to be signed. Two middle aged nurses arrived from Sydney with the lethal injections, asked him to confirm it was his wishes, he understood what was happening, etc. His family including my friend were all in the room. He said his goodbyes to everyone and then just peacefully passed away. The nurses were very kind and matter of fact, helped the family with the paperwork, and were back on a plane to Sydney later that day. My friend said it was such a peaceful end, and they were all so grateful.

TammyJones · 26/11/2024 12:44

@Gloriia

Sadly an aged, dependent population are part of life and of course dementia sufferers are not included in this bill however your comments highlight how people understandably judge the quality of other people's lives.

We can't just euthanise those with dementia as care homes are expensive and their QOL is poor. What we can do is educate staff and family members not to advocate aggressive medical management of those with debilitating cognitive issues.

I wouldn't want a 90yr old loved one with dementia transferred to a hospital with an acute illness and resuscitated yet it happens all the time. That is what needs changing.

THIS
A elderly lady I know suddenly took a turn for the worse 4 months before she died.
Respite and carers were implemented.
She not been very well previously but had managed
She had heart problems and lung/ breathing problems, kidney problems.
Anyone of which would fail at any time.
After 4 months they went to a hospice knowing it was time.
On day 5 of being there the doctors offered test for cancer.
Why ?
No doubt chemo would be next - the family said 'no'
A respect form had been signed by patient months earlier any way.
She died on day 10
Why put them through all that?
It would not have Helped.
She was 80 odd.
She'd suffered enough.

ScrollingLeaves · 26/11/2024 12:41

Gloriia · 26/11/2024 08:27

Sadly an aged, dependent population are part of life and of course dementia sufferers are not included in this bill however your comments highlight how people understandably judge the quality of other people's lives.

We can't just euthanise those with dementia as care homes are expensive and their QOL is poor. What we can do is educate staff and family members not to advocate aggressive medical management of those with debilitating cognitive issues.

I wouldn't want a 90yr old loved one with dementia transferred to a hospital with an acute illness and resuscitated yet it happens all the time. That is what needs changing.

Edited

The thing is that I myself would like to be euthanised if I get dementia. I wish there could be an advance directive.

ThisAquaCrow · 26/11/2024 12:20

Onand · 26/11/2024 11:38

They probably won’t detect it every time but then again…How do they always detect murderers? How do they always detect coercion in power of attorney cases? How do they always detect human trafficking victims? How do they always detect housing benefit fraud? How do they always detect benefits fraud? How do they always detect whether someone is being coerced into having an abortion against their will? How do they always detect whether a child is being abused at home?

Yes many do get caught but some do slip through the net and it’s a sad reality of society today. Of course there will be those who try to abuse this system but in truth I’d like to hope there aren’t that many people out there wanting to murder a loved one for financial gain or because they’re a burden. It would be difficult to commit an anonymous crime and isn’t available to just any old, disabled or sick person.

We’re not giving enough credit to the staff who will be overseeing this incredibly sensitive and poignant area, much like the staff at Macmillan or hospice bereavement teams, there are people who dedicate their careers to making sure people are respected and treated with compassion and dignity. Anyone with such a significant responsibility is going to make sure they do their due diligence to the best of their ability and will need to be in agreement with more than just one staff member.

I doubt there’s many terminally ill patients with great mental health if they’re given less than 6 months to live. I only support this bill for those with 6 months or less left to live as a consequence of a progressive or terminal illness.

Who are these staff? Recruited from where? Or do you expect that Macmillan or hospice bereavement teams will be playing a part in this process?

Onand · 26/11/2024 11:38

user942557 · 26/11/2024 02:37

@Onand How will they always detect it?

And you don't support it for mental health illnesses?

They probably won’t detect it every time but then again…How do they always detect murderers? How do they always detect coercion in power of attorney cases? How do they always detect human trafficking victims? How do they always detect housing benefit fraud? How do they always detect benefits fraud? How do they always detect whether someone is being coerced into having an abortion against their will? How do they always detect whether a child is being abused at home?

Yes many do get caught but some do slip through the net and it’s a sad reality of society today. Of course there will be those who try to abuse this system but in truth I’d like to hope there aren’t that many people out there wanting to murder a loved one for financial gain or because they’re a burden. It would be difficult to commit an anonymous crime and isn’t available to just any old, disabled or sick person.

We’re not giving enough credit to the staff who will be overseeing this incredibly sensitive and poignant area, much like the staff at Macmillan or hospice bereavement teams, there are people who dedicate their careers to making sure people are respected and treated with compassion and dignity. Anyone with such a significant responsibility is going to make sure they do their due diligence to the best of their ability and will need to be in agreement with more than just one staff member.

I doubt there’s many terminally ill patients with great mental health if they’re given less than 6 months to live. I only support this bill for those with 6 months or less left to live as a consequence of a progressive or terminal illness.

OP posts:
Gtfto2024 · 26/11/2024 11:04

What happens to the doctor who facilitated the lethal dose if they subsequently find out that there was coercion? Finding they were unwittingly party to murder, rather than a mercy killing, could take a hell of a toll on their mental health. Given the piss poor state of our mental health services, how many subsequent suicides are acceptable as collateral damage?

Veterinary medicine has a high suicide rate amongst vets, are we going to allow the same for the medical profession?

Prrambulate · 26/11/2024 09:24

Words · 25/11/2024 12:18

I am totally in favour of it.

Why would you not want to spare yourself and your family experiencing / witnessing a potentially agonising and traumatic death? Such an experience is a terrible burden, so I think wishing to spare family and yourself that is totally rational.

It's also rational to wish that the cost of a final six months' of suffering be instead added to a family inheritance, or gifted to the dogs' home.

I honestly don't see how coercion would work in practice either. I think that is a red herring and totally overstated.

I worry that the debate is dominated by those with religious beliefs. This is an ethical issue, not a religious one.

We treat our animals with greater respect and dignity.

Is it also the case that’s it’s also irrational to NOT want to spare yourself and your family that?

Is it by implication unreasonable to NOT be thinking of the inheritance benefits of that cost?

If there is money involved and financial benefits and gains them there is risk of coercion.

Gloriia · 26/11/2024 08:27

CrazyAndSagittarius · 25/11/2024 21:40

My Nan was recently in a care home. It cost thousands of pounds every month and every person that was in there seemed like they were just being kept alive until they weren't. The vast majority had zero quality of life. The whole thing was incredibly depressing and it seemed completely pointless and cruel. I was shocked at how depressing it was and hadn't expected that at all. This was a "nice" care home as well. Some of the others my mum viewed were significantly worse. The staff were caring and the place was clean etc but it didn't matter, it still felt like we were just keeping people slive with no quality of life for nothing. When I first visited I said two things to my husband, never put me in a care home, if i have deteriorated that much that I need FT care, just take me out, you have my permission. The other thing I said, was my god you wouldn't treat an animal like that. If I went to the vet and said I wanted to keep my pet alive when it had dementia, or couldn't eat, or wash itself, or walk, or engage properly with anyone, they would tell me off for being cruel and they'd be right. Why we feel life is always sacrosanct in humans when they is little to no quality of life or that person has gone due to dementia, I have absolutely no idea. Its not about a "good death", its about not prolonging life when for all intents and purposes that person is gone already.

Sadly an aged, dependent population are part of life and of course dementia sufferers are not included in this bill however your comments highlight how people understandably judge the quality of other people's lives.

We can't just euthanise those with dementia as care homes are expensive and their QOL is poor. What we can do is educate staff and family members not to advocate aggressive medical management of those with debilitating cognitive issues.

I wouldn't want a 90yr old loved one with dementia transferred to a hospital with an acute illness and resuscitated yet it happens all the time. That is what needs changing.

aliciagardner · 26/11/2024 07:34

Kim Leadbeater (the MP bringing the bill to parliament) was the guest on ‘Leading’ podcast yesterday. I found it really interesting and found her to be impressive:

user942557 · 26/11/2024 06:38

@ThisAquaCrow I was under CAHMS aged 4, anti depressants aged 10 followed by Quetiapine a couple of years later. Very suicidal. I can just see me falling into that loophole at that age, it would be cheaper than a month's worth of my prescriptions and nothing is more worthy than money(!)

ThisAquaCrow · 26/11/2024 05:50

user942557 · 26/11/2024 05:30

@ThisAquaCrow I totally agree.

And what if someone is being coerced and the doctor doesn't detect it? That's one case too many. But what would be the fallout? Would you prosecute a doctor forced to kill people?

Won’t ever happen. And even if it does, does it really matter? A few dozen or hundred’s of elderly or disabled dead people being coerced isn’t that big a deal surely? Have you SEEN how much a care home costs these days?

user942557 · 26/11/2024 05:30

@ThisAquaCrow I totally agree.

And what if someone is being coerced and the doctor doesn't detect it? That's one case too many. But what would be the fallout? Would you prosecute a doctor forced to kill people?

ThisAquaCrow · 26/11/2024 05:07

user942557 · 26/11/2024 02:37

@Onand How will they always detect it?

And you don't support it for mental health illnesses?

There’s no way that mental health issues would EVER be used as a criteria……

That’s inconceivable in a civilised society where mental health services are prioritised, funded and accessible to all. EXACTLY the situation we have in the UK….🙄

user942557 · 26/11/2024 02:37

@Onand How will they always detect it?

And you don't support it for mental health illnesses?