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Assisted dying bill (TW assisted suicide discussion)

310 replies

Onand · 24/11/2024 13:30

I appreciate this is a divisive subject and a sensitive topic for many. Please avoid this thread if you find any discussion of suicide, death, trauma, terminal illness, cancer and faith triggering.

I’m curious to know how others are feeling about this subject, from what I can see there isn’t a lot of discussion, is this a MNHQ decision or an indifference from posters?

My opinion and views on this potential landmark decision are based on my horrifying experience of watching and waiting for my mum to pass from end stage cancer several years ago.

For over four years she fought advanced cancer, she took every treatment and trial offered to her. She endured major abdominal surgery, many blood transfusions, multiple rounds of chemo, lost her hair several times, her bones started to crumble causing excruciating back pain, severe abdominal swelling, double nephrostomy as her kidneys failed, multiple lesions on her brain that caused debilitating headaches and personality changes, her teeth and bones were decaying due to a calcium disorder, various hospital stays for infections, the list goes on.

Truly the most hideous nightmare cancer ‘journey’ anyone could ever imagine, it always felt like one step forward and two backwards and yet she carried on without much fuss or sign of fear to protect the family and herself from the true horrors of suffering.

She never wanted to die and so she never gave up or gave in- that was until the last few weeks of her life when she had no choice. The immense damage and toll cancer had done to her physical body was too much to survive any longer so the last infection she had took her consciousness and so began the final horrifying curveball that cancer has up its evil sleeve, this one is for the loved ones though, because now you have to wait and watch for the end to come. Anyone who has endured this knows exactly what I am talking about, a horror that truly brings home the meaning of hell of earth.

If the assisted dying bill was around whilst my mum was alive I know she would have never entertained an early death whilst she was still in control and able to fight, but I do know that her love for the family would have also meant she would never have wanted us to endure that final two weeks of watching and waiting for her body to shut down if it could have been avoided and she was able to specify what was to happen at the end. There was no possibility of her ever getting better or a miraculous recovery, death was very inevitable and a certainty but we still had to sit and watch, doing oral care and leaving the room as they checked for bed sores and did secretion suction. The only thing I could do to protect and help her was the make sure she was undoubtedly unaware of what was happening as she feared death and leaving us behind- the thought of her being remotely aware meant we were constantly asking the nurses for more and more sedation.

If this bill gives patients the choice to avoid the hideously evil ending of a terminal illness and the following ptsd that impacts the loved ones left behind then it is an opportunity I strongly agree with. Watching a loved one die an agonising death is soul destroying and something I hope no one has to ever endure if said loved one could choose to avoid.

How do others feel?

OP posts:
Ineffable23 · 24/11/2024 20:45

For those saying that you have the right to commit suicide - the difficulty is doing that safely, reliably and painlessly in a way that doesn't cause trauma to your family.

That isn't easy to achieve - it's made deliberately difficult to achieve so that people can't make that decision on a bad day, or a bad week and then not live to regret it.

So how do we make suicide accessible to those who want to commit suicide without making it accessible to those who are suffering from depression but who, as a society, we generally believe will and should have the opportunity to recover, rather than being able to make that decision at a rash moment?

NotOneOfTheInCrowd · 24/11/2024 20:37

For people making the comparison between humans and animals, there is no comparison.

Yes, we have the ability to have an animal put to sleep in the case of suffering or long-term illness.

But people also routinely have animals put to sleep if they e.g. can’t afford a treatment for a condition. My cat has recently cost me £4000 for a treatment which is relatively new and therefore expensive. But the vet said most people still choose to put the animal to sleep because they can’t afford it.

If a dog bites we are advised to have it put to sleep.

People take their dogs to have them put to sleep if they no longer want them.

And this one of the reasons why the veterinary profession has one of the highest suicide rates.

This law is being proposed precisely so that in future it will make it easier to kill off the elderly, the disabled, the mentally ill, the homeless, where shall we draw the line at who we can kill?

Because let’s be honest, if the law goes through as it is strictly being proposed, there are very few people who will actually be eligible vs those who feel they should be. And so it’s only a matter of time until there is a further amendment, with cries of “you wouldn’t let a cancer sufferer go through this, so why someone with <insert illness>”

pinotgrigeeeeo · 24/11/2024 19:16

I feel exactly the same as you, for the reasons you've stated.

I'm so sorry about your mum.

I've felt this way for many years. I have had many cats and dogs euthanised over the years and have always felt it's so wrong that the same dignity isn't afforded to humans.

Gloriia · 24/11/2024 18:21

I absolutely oppose it. People will feel guilty and under pressure to end the suffering for their relatives' sakes if not their own.

Good quality end of life care is what is needed. We probably all have experience of losing loved ones which is not pleasant but excellent pain relief and hospice care should be the focus from Government not this.

Also, tbh most people have access to massive amounts of opiates in the final few months anyway.

Anotherillnes · 24/11/2024 18:14

Very conflicted.
From here and other sources I hear about the incredible pain and suffering endured in the final stages of life. Also for those knowing that it is the last few months.
If there are doctors and judges who agree who am I to say no. Why should two people suffering experience different end because one is rich and can afford Dignitas?

However I don’t trust any government to invest in palliative care so there is a genuine choice.

The time between the doctors and court and the death seems to be designed to be short which means an advance directive would not work. To avoid the suffering you would have to be assisted in the early stages of the 6 months. There might be a postcode lottery of doctor and court time leading to suffering of the paperwork

If I wanted this for myself it would probably be in the case of dementia and the law would not help. If I write something up now when I have full capacity and hope that then law changes how does someone decide when is the “right” time?

I have also got a physical disability so in the case of cancer when the law should help I might not be able to physically take the drug if only my right side was working (it doesn’t work properly so likely they would have used every part of my good left side to treat.) Yet it would be a slippery slope to help me with the last bit of inserting the syringe or pushing the button.

I have depression - does that mean I will automatically not have capacity in relation to a decision about death due to my cancer? Lots of people develop depression due to cancer or other illnesses that would otherwise qualify- what happens then?

whosaidtha · 24/11/2024 17:30

I am totally against this.

There will be coercion. 100%. Whether that is money grabbing relatives, relatives thinking they are doing the right thing - ie they would want an assisted death so granny must want one too and convince them or people not wanting to be a burden, don't want to waste inheritance. Also drs offering it makes it sound like it is recommended, people trust drs. There will be coercion.

I also think it's a slippery slope. Today it's people with terminal illness who choose this. Tomorrow the nhs has no money so people with terminal illnesses are forced down this path because it's much cheaper than other palliative care options.

NotOneOfTheInCrowd · 24/11/2024 17:22

i am against it because it is the slippery slope to eugenics.

There was another thread about this recently, and posters were saying thing like “baby steps”, and “by the time my time comes the law will have been amended to allow for/or extended.” So it is blatantly obvious that even the public who approve want this to be the start of a slippery slope.

People talk about dementia, about how it will be a way out for those people, when actually it won’t. Because you have to have capacity, which someone with dementia doesn’t have. But people won’t let it drop there. They will want it to be like countries like Belgium and the Netherlands where patients with dementia are physically restrained in order to kill them due to an advance directive. And that, IMO, is murder. If a woman consents to sex one night, then goes out and gets drunk, and the man she is with has sex with her even if she says no, we confirm that he raped her, because she didn’t have the capacity to consent at the time. Therefore someone who consents to be euthanised at a particular point doesn’t have the capacity to consent when the time comes, and as such, holding them down to perform the act is murder. IMO.

Everyone has the right to commit suicide if they want to end their life. At best the law can be changed in order to absolve relatives who travel abroad with someone to end their lives. But that’s as far as it should go.

Nottodaygoaway · 24/11/2024 17:07

@Errors I agree. Cancer runs ragged through my family and I've seen too many relatives have rubbish, drawn out deaths. Older people hate being a burden, and my relatives would cry and tell their caregivers "For heaven sake, end it now", but of course they couldn't. If my relatives said, I want to be let go, and they could do that with repercussions, I think they might have seriously considered it.

Choice is the word here. You should be able to choose to end it early, or choose not to.

The key here is how much room for coercion might there be. That's the thing that worries me. And I don't want to our country to end up like Canada.

But the basic principle of allowing two doctors to agree that assisted dying is a reasonable choice for a terminally ill person, I am in favour of.

Sadly, I don't think there's been enough debate about this Bill in this country, and I think it will not pass, like all other attempts before it.

Whatevershallidowithmylife · 24/11/2024 17:01

Girliefriendlikespuppies · 24/11/2024 13:48

I'm completely against it.

I'm a nurse abs the repercussions if this passes terrify me tbh.

It is possible to have a good death without the need for suicide/assisted dying.

Given how difficult it is to ascertain if a patient has full mental capacity now I have no idea how they can fully safeguard this for society's most vulnerable people.

Coercion, guilt and pressure undoubtedly will be used to make people feel they have to die.

A nurse you say? So all these people living in pain and agony for months if not years waiting on the inevitable are invisible to you? So please tell me, a 52 year old given 12 months or so to live after 2 years of chemo/radio/immuno and all the side effects that go with it including double nephrostomys due to kidney problem caused by ‘treatment’, not to mention the hip fracture they aren’t going to do anything with because pretty much it’s a waste of their time and money how good my death is going to be? Not to mention why it is anyone else’s decision rather than mine? The pain I’m in mentally and physically just waiting to die is almost unbearable. It’s so bad I’ve already signed a DNR in the event that a welcomed heart attack might happen. My choice!

Errors · 24/11/2024 16:43

I support it. I think people should be given the choice. Just because some people have experiences of family members wanting to live to the very end (which I completely understand) doesn’t mean that everyone will feel that way. It will be a choice not a full blown conclusion. If the patient wants to stay around until the very end, those wishes must be respected. But if they don’t want to suffer any longer, or controversially if they don’t want to be a burden on their families then they should have the right to choose.

Tundeira · 24/11/2024 16:23

Perhaps we need a wider conversation about death and dying. It's not really something that we experience often anymore, it's not talked about or is discussed in euphemisms such as 'passing on'. Maybe we need to feel more comfortable and less afraid of it.

I agree but I don’t think the answer is to sanitise it, which is what assisted dying is about. Maybe we need to get more comfortable and be less afraid of the reality of death.

Puzzledandpissedoff · 24/11/2024 16:21

I dont want to see any coercion, I do think the safeguards need to be carefully drafted

I'd agree with this, @anyolddinosaur, if it wasn't for the fact that what's laid down in bills and "safeguarding" and what happens in practice are too often very different things

Add to that financial pressures and a lack of accountability among those who'd instantly seek to wash their hands of any problems and there's a potential storm in the making, no matter how persuasive the initial principle

NoTouch · 24/11/2024 16:13

I agree with assisted dying when the person is medically eligible, makes the choice and can administer whatever is needed independently. I think my dad would have chosen this in the end stages of his COPD.

But, I also worry about it the wellbeing of anyone whose job it would be to "kill" a person who cannot administer themselves.

It is such a difficult topic.

unsync · 24/11/2024 15:58

EOL and palliative care needs to be addressed, the provision is patchy and poor in my experience. Even if it were gold standard though, it doesn't get away from the fact that pain killers do not remove all pain in serious illnesses.

I don't know what the answer is. Definitely improved care is needed. I'm not sure if there an incentive for Pharma companies to find better pain relief.

I've watched two family members die, one in a coma on a morphine pump and the other just on oramorph. I try not to think about it tbh as it still upsets me nearly ten years on. It's not about the ones that get left behind though is it? I can say though, that it's not how I would want to die.

My remaining parent has a life limiting illness, they've talked to me about smothering them with a pillow and the one that died, wanted me to give them a morphine OD (I wouldn't and I didn’t). That's not right either is it? Someone should feel they have to ask their child to do this as there is no alternative.

I also had a family friend go to Dignitas when their Parkinson's became too much for them.

Perhaps we need a wider conversation about death and dying. It's not really something that we experience often anymore, it's not talked about or is discussed in euphemisms such as 'passing on'. Maybe we need to feel more comfortable and less afraid of it.

everybodystalking · 24/11/2024 15:48

there are issues in Oregon, it's easier to talk about Canada in some ways but oregon have had issues with

  1. doctor shopping....if you look hard enough someone will sign you up
  2. people with depressionand psychiatric disability eg Michael Freeland.
  3. economic pressure and coercion (especially acute if private healthcare in USA taken into account) eg Linda Fleming/Thos Middleton
  4. implicating others (eg disabled person unable to take meds himself so his relative administered) Patrick Matheny
  5. legal erosion and changes in expected levels of conduct (Melcher, Avery and others). 6 ) medical complications/inefficacy taking lethal drugs by mouth is often ineffective in causing a quick and simple death. eg David Pruitt
  6. Jeanette Hall of Oregon was diagnosed with cancer in 2000 and told she had six months to a year to live. She knew about the assisted suicide law, and asked her doctor about it, because she didn’t want to suffer. Her doctor encouraged her not to give up, and she decided to fight the disease. She underwent chemotherapy and radiation. Eleven years later, she wrote, “I am so happy to be alive! If my doctor had believed in assisted suicide, I would be dead. … Assisted suicide should not be legal.Unfortunately, not all doctors are like Jeanette Hall’s.
anyolddinosaur · 24/11/2024 15:44

This has been discussed extensively on mumsnet previously and the opponents will try to talk it to death. Yes I can see why they think like that but no safeguards would ever satisfy them. It's a cruel point of view that wants to see people suffer.

Most people (73% according to yougov) support it and apparently it's higher in those who have watched a parent die recently.

I've watched a number of people die in situations where a vet would put an animal to sleep without hesitation.

I dont want to see any coercion, I do think the safeguards need to be carefully drafted. I'm eternally grateful to the doctor who asked if we wanted one cancer sufferer (who was by then incapable of expressing a view themself) to have adequate pain relief even if it would shorten their life. Nowadays some busybody opposed to assisted dying would kick up a stink and he would be more reluctant to ask.

Tundeira · 24/11/2024 15:40

When we say that needing help for personal care and to perform bodily functions is undignified, what does that say about how we regard disabled people who need this help? I think the concept of ‘dignity’ needs to be rethought in the U.K. I think British concepts of privacy, propriety, the stiff upper lip don’t help.

Onand · 24/11/2024 15:26

PencilsInSpace · 24/11/2024 14:40

The current bill would allow terminally ill people with full mental capacity, who are not expected to live more than six months, to take their own life with medical assistance.

So it would not have helped your mother if she was unconscious at the end and would not have contemplated taking her own life before this point.

Are you advocating for a different bill altogether that would allow family to make the decision and a doctor to directly end a person's life?

This is something that bothers me generally about these discussions - people says things like, 'of course there would be safeguards' and then start talking about, e.g. dementia in the same breath.

My last post was in response to this point. Quote fail sorry!

OP posts:
Onand · 24/11/2024 15:24

My second post states how I think had she been offered the choice beforehand of avoiding the agonising, dehumanising utter abomination that was the last few months and weeks of ‘life’ I believe she may have been of the opinion that death on her terms and not when the cancer decided or when her heart finally stopped was a far better alternative.

I’m sure many of those suffering with incurable terminal diseases that rip from them every shred of their dignity and control would seriously consider it as a viable option rather than waiting to see what fate has in store for them.

Rather than being taboo or shameful it may offer an undeniably tragic- yet nonetheless brave and fearless semblance of hope in those most hopeless of circumstances.

Lets also not forget the avoidance or trauma for the loved ones who stay until the end and then have to live with the recurring nightmares and visions of what happens in those situations.

OP posts:
Tundeira · 24/11/2024 15:15

*Stickytreacle · Today 14:53

I absolutely support the bill, and I resent the fact that objectors are denying my human right of choice.

No one is stopping you or anyone else from committing suicide. You can argue that if you want to die, anyone who helps you, like a relative or friend, should not be subject to criminal prosecution but where do you get the idea that it is a human right (or should be) for you to demand that a medical professional kills you at your request?

Medical professionals are not robots who do whatever the patient wants. They have a certain ethos, a defined area of practice and this bill seeks to fundamentally change that. So the views of clinicians is very relevant.

I would personally leave the medical and nursing professions out of this completely and create an entirely new profession of Licenced Death Practitioners, regulated by the Health Professionals Council. Unfortunately this
won’t happen.

Lovelysummerdays · 24/11/2024 15:11

AuntyEntropy · 24/11/2024 14:48

Citation needed.

Canadian law has been expanded to a degree that I personally don't agree with, but as I understand it the US and Australian states which introduced assisted dying for people with a terminal illness have not extended that to other people, even where the legislation has been in place for over a decade.

For example it’s been 1997 for the state of Oregon it’s still limited to PAS for people with a terminal illness who have less than six months to live. Maybe that slope isn’t quite so slippery?

Lovelysummerdays · 24/11/2024 14:58

It’s pretty polarising, I personally am in favour. I’m not keen on a long drawn out end but would respect the choices of those who want to hang on till the die naturally. I have Dutch family I think they are more pragmatic about death. Even with the family people make different decisions, my great aunt lasted well into her 90s and she died naturally. She did suffer a lot with pain/ various illnesses for last decade. Her sister opted for PAS when diagnosed with lung cancer in her 70s. It wasn’t awful we had lots of last moments and reminiscing then when she was ready the doctor came to the house with the drugs / instructions then left.

AuntyEntropy · 24/11/2024 14:54

VickyEadieofThigh · 24/11/2024 14:49

Agree. My mother was told "Weeks, not months" and lived a further 9 months. She fought to live with every breath she took.

My biggest fears about this bill are realised in looking at other countries like Canada and Holland, where lobbying has systematically brought in other 'categories' of people.

It's pointless to say "There will be strict safeguards" because once the bill is passed, amendments can be tabled at any time - which is precisely what has happened in this countries cited. Holland now allows assisted suicide for perfectly health 75 year olds who "feel their lives are complete". It takes a nanosecond to work out who might encourage that category.

Amendments can't be "tabled" to legislation which has already been passed. That's not how it works at all.

Stickytreacle · 24/11/2024 14:53

I absolutely support the bill, and I resent the fact that objectors are denying my human right of choice. Of course strong safeguards need to be in place, but should I make the decision to prevent suffering for myself I don't expect another's religious beliefs to prevent me from self administering a lethal dose. It's all well and good saying we need better palliative care, which we do, but palliative can often be unsuccessful at relieving pain and suffering.

VickyEadieofThigh · 24/11/2024 14:49

ThePure · 24/11/2024 14:23

All the people comparing it to pets there's the issue that a cat or dog lacks capacity to make its own decisions and you decide for it so this is not really analogous to someone with capacity who has cancer choosing to die and much more akin to ending the life of someone with eg Alzheimer's who lacks capacity to decide for themselves which is not covered by this bill.

This is why I really don't think it will be very long until people start to push for it to apply to those lacking capacity or for some advance directive mechanism otherwise I don't see how it can assist anyone dying of dementia who will lack capacity way before they have 6 months left.

Most people with terminal cancer are in fact very keen to live for as long as possible. I can't see that many people asking to be euthanised in that circumstance. My mum died young of metastatic cancer. She was desperate to survive and be with her family as long as she could and her death was as OK as I think death can be. She was in a hospice where she did not suffer unduly although obviously seeing my
Mum dying was still horrible. Death is always horrible you cannot take that away entirely.

Also Drs notoriously cannot tell how long someone has left. My mum was given 6 months to 2 years at least 6 years before she died and 5 of those were really good years that she would not have wanted to miss out on.

I am a Dr and I will conscientiously object if I am asked to have any involvement in this. I did not go into medicine to kill people. I am all for letting nature take its course and not 'striving officiously' to keep people alive, which happens all too often, but I do not want to be responsible for ending anyone's life.

Agree. My mother was told "Weeks, not months" and lived a further 9 months. She fought to live with every breath she took.

My biggest fears about this bill are realised in looking at other countries like Canada and Holland, where lobbying has systematically brought in other 'categories' of people.

It's pointless to say "There will be strict safeguards" because once the bill is passed, amendments can be tabled at any time - which is precisely what has happened in this countries cited. Holland now allows assisted suicide for perfectly health 75 year olds who "feel their lives are complete". It takes a nanosecond to work out who might encourage that category.