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DH pancreatic lesion with symptoms

189 replies

Ebabllisstggoffor · 24/11/2024 02:16

So we’re half way to our U.K. holiday break. This morning an appointment came through for my DH to see a consultant surgeon. This is an urgent appointment on the back of a recent MRI. It’s on Tuesday morning. He says he’s going to call them on Monday to rearrange it. My gut reaction is to head home and keep the appointment but he’s having none of it. He wants his holiday. I’m currently wide awake worrying about all this. What if he rings on Monday and can’t get a quick appointment? Should I try and persuade him that we should head home. What would be reasonable. I’m so very worried about him.

OP posts:
Ebabllisstggoffor · 25/11/2024 11:46

He phoned, it was all a bit vague. They had to email someone to ask about a telephone appointment. We’re currently driving home so he can attend tomorrow. I’m a bit cross with him, as he should have listened to me in the first place. Stubborn and pig headed have been mentioned but not in a nasty way. He knows full well he should have listened to me.

I’ll update tomorrow. Thanks for all the support.

OP posts:
olympicsrock · 25/11/2024 07:30

Phone them and ask to do as a telephone appointment. They will say yes . I am a consultant surgeon. They will also book a F2F when he gets back

ChristmasGrinch24 · 25/11/2024 07:27

He needs to go. The outlook for pancreatic cancer is dire. The sooner you start treatment the better the outcome.

Hopefully it's not cancer, all the best to you and your husband op.

Temporarynameforthisone · 25/11/2024 07:18

Thinking of you this morning OP and hoping for a positive resolution for your DH’s appointment. And a positive outcome.

monkfruitmartini · 25/11/2024 03:44

Being shouted at in all caps does not make a poster feel good either.

I didn't say your symptom was related to pancreatic cancer. I made the point that whatever it was that put you on that pathway was unlike the OP's husband's situation. Not sure why you are so incensed by that fact.

Heartbreakanddamage · 25/11/2024 02:09

monkfruitmartini · 24/11/2024 22:55

Whatever your symptom was, I am pretty sure it was not a lesion on the pancreas. Here's hoping the MRI showed it more clearly, and it is actually a cyst, but your situation is not at all the same as the OP's husband's.

WHERE DOES IT SAY IN MY MESSAGE THAT MY SYMPTOMS WERE ASSOCIATED WITH PANCREATIC CANCER???????

In fact it clearly says IT WAS NOT RELATED TO IT.

I was simply stating the fact that the majority of urgent referrals turn out ok and not to be cancer.

What on earth is wrong with trying to give the OP some hope and positive thoughts, after reading the responses about death, funerals and choice of music at funerals.

Why does everyone on here always have to make the poster feel as shit as possible?

connie26 · 24/11/2024 23:01

Sorry OP. You must be worried sick. Is it far to go the hospital on Tuesday? Maybe you could go back on hol afterwards?

monkfruitmartini · 24/11/2024 22:55

Heartbreakanddamage · 24/11/2024 22:34

@Ebabllisstggoffor

I am thinking of you. Seriously shocked by some of the comments on here.

I myself was put on a two week urgent referral cancer pathway. I was absolutely petrified.

I won’t say what it was due to outing (it wasn’t pancreatic) but it was something I’d noticed for a long time and ignored. I only casually mentioned it to my Gp when there for another matter. She was visibly taken aback and what followed was beyond scary. First I was told I’d got an appointment for ten days time and the next thing it was brought forward to three days time. I actually thought I was dying.

Within three minutes of my appointment, three days later, I was told it was 100% perfectly ok, totally non-cancerous. It was one of the most terrifying things ever!!! The shock of it being ok was immense and I kept questioning “Are you sure?”

I can’t remember the statistics, but a huge percentage of urgent referrals are NOT CANCER. So whilst it could be it is more likely not to be. Yes they will race him through at top speed, but that is more to do with the location of the lesion than it being cancer. Anything pancreatic is always rushed through extra fast.

Try to stay positive until you know more xx

Whatever your symptom was, I am pretty sure it was not a lesion on the pancreas. Here's hoping the MRI showed it more clearly, and it is actually a cyst, but your situation is not at all the same as the OP's husband's.

Pomegranatecarnage · 24/11/2024 22:48

My partner missed his appointment to be told he had PC. He went a week later. He had the surgery, but still died almost three years later. It had got into one lymph node. I hope it’s not pancreatic cancer.

Motherrr · 24/11/2024 22:42

Try to persuade him to attend the appointment. You won't be able to relax and enjoy it now for worrying

If its an urgent appointment with a consultant it's worth attending. He might not be able to get another one soon...

Heartbreakanddamage · 24/11/2024 22:34

@Ebabllisstggoffor

I am thinking of you. Seriously shocked by some of the comments on here.

I myself was put on a two week urgent referral cancer pathway. I was absolutely petrified.

I won’t say what it was due to outing (it wasn’t pancreatic) but it was something I’d noticed for a long time and ignored. I only casually mentioned it to my Gp when there for another matter. She was visibly taken aback and what followed was beyond scary. First I was told I’d got an appointment for ten days time and the next thing it was brought forward to three days time. I actually thought I was dying.

Within three minutes of my appointment, three days later, I was told it was 100% perfectly ok, totally non-cancerous. It was one of the most terrifying things ever!!! The shock of it being ok was immense and I kept questioning “Are you sure?”

I can’t remember the statistics, but a huge percentage of urgent referrals are NOT CANCER. So whilst it could be it is more likely not to be. Yes they will race him through at top speed, but that is more to do with the location of the lesion than it being cancer. Anything pancreatic is always rushed through extra fast.

Try to stay positive until you know more xx

vivainsomnia · 24/11/2024 18:53

It's very likely that he has googled and read the dire statistics about this cancer. Surgery is the best determinant of survival chances. Without it (usually because the growth has attached itself to blood supplies), the outcome is poor, but with surgery, it's much higher.

Also, nothing says it is definitely cancer. There are other disorders that affect the pancreas. The rapidity at which things have moved doesn't systematically means the worse.

This is a hard thread to read. I hope you are ok OP. Your OH is not the only one going through a difficult time. Sending positive vibes to both of you.

Scirocco · 24/11/2024 17:40

If it's a pancreatic lesion and the hospital are moving this quickly to get him seen, I really think he should attend - if he phones on Monday they might be able to tell him if a telephone appointment is an option, but if it isn't then he really needs to attend. Days can be the difference between operable and inoperable for some diagnoses.

SweetSakura · 24/11/2024 17:38

Ebabllisstggoffor · 24/11/2024 16:58

Thanks to every one of you for your replies. It’s made me see that I’m not going mad and over reacting.

He is definitely calling tomorrow to ask for a telephone appointment. I’ve made him promise if that’s not possible and there’s a wait for another appointment, we will head home. Thanks again.

This seems like a really sensible compromise

Spacecowboys · 24/11/2024 17:34

I think it’s fine to call up on Monday. They may well be able to offer him a telephone appt or an alternative appt within a few days. Even if it is worst case scenario, he’s not going to be going straight from an appt to discuss results into an operating theatre.

Ebabllisstggoffor · 24/11/2024 17:30

notatinydancer · 24/11/2024 17:23

I know about pancreatic cancer but funeral songs are an awful thing to suggest.

It’s a good job I have a black sense of humour. 😂

OP posts:
poetryandwine · 24/11/2024 17:29

sharpclawedkitten · 24/11/2024 17:25

Isn't it the case that such lesions can be benign or pre-cancerous - so actually it might not be cancer (yet)? I think the pp talking about wills and funerals was jumping the gun a bit! No need for such scaremongering.

Yes it is!

sharpclawedkitten · 24/11/2024 17:25

Isn't it the case that such lesions can be benign or pre-cancerous - so actually it might not be cancer (yet)? I think the pp talking about wills and funerals was jumping the gun a bit! No need for such scaremongering.

notatinydancer · 24/11/2024 17:23

isthewashingdryyet · 24/11/2024 10:31

Pancreatic cancer moves really fast, so if the hospital team are moving fast, then it is for a reason.
Every day counts for this kind of cancer

And get on to talking about POA, Wills, funeral song choices.

I lost a very dear aunt in just a few weeks to this horrible cancer, she moved fast cos that was what was advised

I know about pancreatic cancer but funeral songs are an awful thing to suggest.

kateluvscats · 24/11/2024 17:04

Ebabllisstggoffor · 24/11/2024 09:41

Thanks everyone for your really helpful replies. I’ve spoken to him again this morning, he’s adamant he’s having his holiday. He says a few days won’t matter. Ultimately it’s up to him, I’ve tried my best with him.

Keep the date of the appointment and have a telephone consultation

Ebabllisstggoffor · 24/11/2024 16:58

Thanks to every one of you for your replies. It’s made me see that I’m not going mad and over reacting.

He is definitely calling tomorrow to ask for a telephone appointment. I’ve made him promise if that’s not possible and there’s a wait for another appointment, we will head home. Thanks again.

OP posts:
Destiny123 · 24/11/2024 14:43

monkfruitmartini · 24/11/2024 12:22

Surely there is a realistic likelihood of the consultant surgeon who has scheduled this urgent appointment wanting to admit him for surgery then and there? Can't do that over the telephone or while on holiday.

Pretty much so unlikely it's negative figures. All pancreatic surgery is done in specialist centres and need specialist post op icu beds (which are scarce at present), pts need multiple preop scans and multidisciplinary team discussions to debate if its operable. Then they need anaesthetic review to see if we think they're fit enough to survive surgery and recovery etc

ginasevern · 24/11/2024 12:47

Dillydollydingdong · 24/11/2024 03:17

He's a grown-up and you're not his mother. Let him make decisions about his own body. He may well need the holiday if he's got difficult times ahead.

And if he dies or becomes incapacitated whose life changing problem will that ultimately be then? To say nothing of loving and worrying about her DH. It's not unusual for spouses to actually do that you know.

Bristolnewcomer · 24/11/2024 12:35

In this situation I would tell him that I’m heading home Monday either way as I want him to live. If he makes the reckless decision to stay on holiday he can do so alone.

poetryandwine · 24/11/2024 12:29

Actually OP FWIW I agree the rapid response is a sign of seriousness but based on DH’s experience it isn’t necessarily a doomsday scenario. It could be that there is something worth fighting for.

This is especially true is the scan picked up only the one lesion. A key issue with the aggressive type of pancreatic cancer is that it frequently spreads before it is caught. If you’re going to have a pancreatic lesion, the fact that no others have been mentioned is something to cling to.