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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

A&e, doctors or wait it out?

566 replies

autienotnoughty · 23/11/2024 19:53

Off and on back pain for past 15 years. More on in past two years. Symptoms include lower back pain, painful spasms , shooting pains in thighs. Being managed with physio, Pilates, walking and yoga.

Last six weeks pain has got significantly worse. I keep experiencing weakness in my legs, periods of not being able to stand/needing support to walk and get up.

Today my back has locked three times leaving me unable to walk, getting worse each time. I am now laid flat on my back, I can't sit up. Dh had to drag/walk me to the toilet. I can't walk. I can't turn over. I'm applying heat and cold.
I'm also feverish . I have shooting pains/tingling in my legs plus the back pain and spasms.

Do I go a&e?
Ring doctor Monday?
Ride it out?

OP posts:
fivebyfivebuffy · 28/11/2024 13:09

Definitely agree with the trauma
Even simple things like sneezing - I was petrified and bracing myself against a wall every time I

It does improve, I'm back lifting weights etc and didn't think I would walk properly again let alone exercise

whathaveiforgotten · 28/11/2024 11:24

I just wanted to say OP that I completely understand the trauma side of this that I think you've tried to explain.

Once you have experienced a certain level of pain that you never have before and never realised you could experience, you feel in shock and then subsequently in disbelief and terror that it might happen again.

I was in a terrible accident and the pain of it meant I was literally begging for someone to kill me to put me out of my misery and at the time I really meant it. I still can't understand how I didn't pass out.

It took me a long time for the trauma of that to soften and fade slightly and for a long time at the smallest pain I would have panic attacks that it would reach that level again.

I just wanted you to know that someone completely understands that feeling.

OhBeAFineGuyKissMe · 28/11/2024 07:02

autienotnoughty · 28/11/2024 06:21

Had a scare last night my back seized again but not as bad. Feel less confident getting up today.

Recovery is always a few steps forward and then a few days back.

Weenurse · 28/11/2024 06:25

Small gains are important

autienotnoughty · 28/11/2024 06:21

Had a scare last night my back seized again but not as bad. Feel less confident getting up today.

OP posts:
autienotnoughty · 27/11/2024 20:45

Thank you Ive focused more on movement than sitting today and it's been a less painful day. Looking like I'll be in a few more days but feeling more in control and less vulnerable. Thank you everyone for your support and advice it has genuinely helped me so much . Flowers

OP posts:
Normallynumb · 27/11/2024 17:52

Well done. You're making great progress.

SharpieMark · 27/11/2024 17:34

autienotnoughty · 27/11/2024 01:25

Found yesterday hard , I was struggling with sitting up. So in the morning I was grading raising the bed a bit at a time. And moving my legs where possible. On three different occasions a nurse or care staff would start lifting the bed causing me to scream out. They didn't even pre warn me I was made to feel like I was over reacting.

Then the physio came and said I need to get up. I was struggling (a combination of fear, pain and exhaustion) he snapped at me and said there was a 100 year old man upstairs waiting who was managing better than me. He then told me to hurry I as he had to go. I(it did take maybe ten minutes)

Once I was up he said he didn't have time to get me walking so I stepped on to a trolley and he wheeled me to a chair I sat. Itwas agony, shooting pains in back and legs. I asked how long I should sit like this. He said two hours I said I am not capable of sitting for that long on any day and my back will seize. I was told I just have to accept the pain. I was literally dripping in sweat when a nurse noticed she said it's just because you're anxious. I said no it's because of the pain.

While physio was getting ready to leave I ask how sitting in significant pain would help and he just said some people have lower pain threshold's!

This completely contradicts what the ortho consultant said the day before. He literally said it might be a day or two before I'm up and that might be sitting on the end of the for five minutes at first.

At the time I was trying to sit I had oxeycotin, ibuprofen and tapantadol in my system. And I was still in complete agony.

I will never understand why staff like this choose to work in the caring industry. And I say that as a hospital consultant.

autienotnoughty · 27/11/2024 17:02

Normallynumb · 27/11/2024 16:16

I'm so sorry the physio treated you so dismissively.
He is also wrong! He's treating you like you've had a hip replacement not suffering herniated discs.
I would actually ask him to read what the consultant has said on your notes.
Hopefully you'll get a more understanding one tomorrow
My DS has done gentle exercises found online for years( 2 herniated discs) so please don't worry about the unkind physio
Best wishes to you

I'm on the hip replacement ward so that makes a lot of sense. I'm getting up little and often and doing a few steps rather than trying to sit.

OP posts:
Normallynumb · 27/11/2024 16:16

I'm so sorry the physio treated you so dismissively.
He is also wrong! He's treating you like you've had a hip replacement not suffering herniated discs.
I would actually ask him to read what the consultant has said on your notes.
Hopefully you'll get a more understanding one tomorrow
My DS has done gentle exercises found online for years( 2 herniated discs) so please don't worry about the unkind physio
Best wishes to you

HollaHolla · 27/11/2024 16:10

autienotnoughty · 26/11/2024 04:55

I've had chronic back pain for 15 years. I've had back spasms before too. Like a fleeting agonising pain that was over in a few seconds. Awful and debilitating but bare able

This was my entire back seizing up with a pain like a red hot poker the whole way through my lower back. I can't undo it and all I can move are my arms which are jerking and my head which is screaming. It lasts minutes until I get moved into a position that stops it. But I can't move my self (unless I fall)

I'm not in that pain now but I guess I need to try not to associate the pain with that outcome

I don't know what will happen now how I will walk, drive, work look after my child. I wonder have access at home to the drugs I have here and I can't take them long term.

Honestly, you get on with it, because you have to.
I have a drug cocktail, which helps a bit - takes it from a 9 to a 6/7 on the pain scale, and keep moving. I went to an automatic car, so I can drive with my non-shit leg (my left has limited feeling in my foot - it never came back), and I'm really fucking careful. My Neurosurgeon says he's not going back in, unless it's catastrophic, so it's within my best interests.
Oh, and if you do need surgical interventions - go for a Neurosurgeon, and not an Orthopedic one.

HollaHolla · 27/11/2024 16:07

autienotnoughty · 25/11/2024 18:14

It's a last resort. Best option is rest, meds, physio, Pilates

Yep, I'd say avoid surgery if you can.
I've had 4 over the past 9 years - 3 microdiscectomies for herniated discs, and one spinal fusion when it developed into Cauda Equina. It's shitty.
You need to be religious with your Physio/Pilates, and keep your core as strong as possible. It might not do the trick, but it's going to be a hell of a lot better than not doing it.
Take care (and take all of the drugs)

CatMummyOf3 · 27/11/2024 15:07

autienotnoughty · 27/11/2024 14:33

I'm glad it's not just me. I'm being made to feel like I'm being difficult

It's not you, and you're not being difficult. The physio person seems to have little to no understanding of back pain/injury.
You should move around as much as your pain level will allow, but also rest (lie down), using either cold packs or hot water bottles, whichever works best for you. Take the recommended pain meds as prescribed.
Just sitting in a chair is the worst thing to do!

I'm not a medical expert, but I've 15 years experience of back problems, and have probably been seen by every type of specialist over that time. As PPs have said, ask for your consultant.

PragmaticIsh · 27/11/2024 15:03

OP, look up 'nerve flossing' in relation to disc herniation. They're very small and gentle movements that you can do laying down, that keep the nerves in your spine and down your leg from getting stuck. When you have a herniated disc all the disc jelly is pressing on the nerve bundle and stops it gliding as it should.

Nerve flossing should never hurt, if it does then stop or reduce the movement. I wish I'd known sooner that these existed.

autienotnoughty · 27/11/2024 14:33

I'm glad it's not just me. I'm being made to feel like I'm being difficult

OP posts:
justasking111 · 27/11/2024 14:06

autienotnoughty · 27/11/2024 11:15

Hospital are making me sit it's agony. My they say my back will stiffen with out it and worse in long run

Refuse until you've seen the consultant again and spoken to him . This is when you should have the consultant secretary phone number and spoken directly. Get your partner to do this if you're feeling too rough

PragmaticIsh · 27/11/2024 12:07

Sitting is absolutely the worst thing for disc herniation! I've had four herniations, two were extremely painful and two were screaming-in-blinding-agony level. I tried physio, then injections and eventually gave in and had the microdiscectomy surgery. I still need to do pilates and physio to keep my core strong but no further herniations, so far. I'd ask the ortho consult what the plan is for injections or surgery, and if you'll be see in outpatients for a review later.

Topjoe19 · 27/11/2024 11:51

Not sure how sitting will stop stiffness in your back? It would be better to do a few steps every half hour/hour then lie back down, rather than sit. You've been treated awfully, so sorry OP. I was made worse by an NHS physio pushing so hard on my back 😢 I went to a private one in the end (although she used to be an NHS senior physio)

fivebyfivebuffy · 27/11/2024 11:43

I don't get why they're making you sit, it's the worst thing for disc issues
I was told keep moving gently and stand or lie - even after my op I was limited to 30 mins sitting

Babyboomtastic · 27/11/2024 11:30

autienotnoughty · 27/11/2024 11:15

Hospital are making me sit it's agony. My they say my back will stiffen with out it and worse in long run

If the physio/nurses are going against what the consultant says you need to push back on this until you can get confirmation from your consultant.

autienotnoughty · 27/11/2024 11:15

Weenurse · 27/11/2024 10:55

I have had this twice this year. Both occasions responded well to steroid injections, gentle stretching exercises and walking. Sitting was not an option for a few weeks, either lying or standing were the only positions I could manage.
Steroids can take a few weeks to kick in and give disturbed sleep and funny dreams initially. Decent pain killers required in between.
I am back at work now full time after my last injection end of October and I am diligent with my stretches morning and night.
Ice packs may also help reduce the inflammation.
Good luck

Hospital are making me sit it's agony. My they say my back will stiffen with out it and worse in long run

OP posts:
Weenurse · 27/11/2024 10:55

I have had this twice this year. Both occasions responded well to steroid injections, gentle stretching exercises and walking. Sitting was not an option for a few weeks, either lying or standing were the only positions I could manage.
Steroids can take a few weeks to kick in and give disturbed sleep and funny dreams initially. Decent pain killers required in between.
I am back at work now full time after my last injection end of October and I am diligent with my stretches morning and night.
Ice packs may also help reduce the inflammation.
Good luck

Herewegoagain84 · 27/11/2024 10:35

autienotnoughty · 26/11/2024 11:09

I'm feeling calmer this morning pain relief is helping.

Looking at steroids injections has any one tried them?

Yes I’ve had them - they worked wonders but are not hugely long lived (though they lasted me at least 6 months).

CatMummyOf3 · 27/11/2024 10:17

autienotnoughty · 27/11/2024 08:39

@CatMummyOf3 how long did the injection last ? Did you get it on NHS or private?

Unfortunately they didn't work for me. I was told beforehand that was a possibility but I tried anything and everything, hoping for relief.
They were done on the NHS, and the staff were really lovely, very supportive (I'm not great with needles!)

slapmyarseandcallmemary · 27/11/2024 08:50

Complain about the physio. That's absolutely atrocious and could do further damage to your back. Comparing patients is a pointless and ridiculous task. No 2 patients are the same. So unprofessional and clearly ill informed.