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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

A&e, doctors or wait it out?

566 replies

autienotnoughty · 23/11/2024 19:53

Off and on back pain for past 15 years. More on in past two years. Symptoms include lower back pain, painful spasms , shooting pains in thighs. Being managed with physio, Pilates, walking and yoga.

Last six weeks pain has got significantly worse. I keep experiencing weakness in my legs, periods of not being able to stand/needing support to walk and get up.

Today my back has locked three times leaving me unable to walk, getting worse each time. I am now laid flat on my back, I can't sit up. Dh had to drag/walk me to the toilet. I can't walk. I can't turn over. I'm applying heat and cold.
I'm also feverish . I have shooting pains/tingling in my legs plus the back pain and spasms.

Do I go a&e?
Ring doctor Monday?
Ride it out?

OP posts:
beenwhereyouare · 24/11/2024 03:43

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The ignorant, mean-spirited attitudes of people amaze me. Think on that.

EdithBond · 24/11/2024 02:29

I’d push for further investigation, including an MRI if you haven’t had one.

No one should be diagnosing you on here. But I’ve had similar symptoms from a prolapsed disc in lower back, which was trapping the nerve and causing sciatica (pains in legs, feeling like my pelvis was falling apart and unable to walk). Osteopath sorted it years ago. I went in barely able to walk and came out of the first session with huge relief. Took a few more sessions to totally get rid of it. Had to pay as GP didn’t refer me. GP had advised painkillers and physio if it hadn’t cleared up in 6 weeks. I had a baby and couldn’t wait 6 weeks.

But it came back with horrendous pain a few years back (and I have a high pain threshold: home births). Had to crawl to the toilet. Only a few weeks’ wait for an MRI, which was fine. You just lie there and listen to music. Machine clanks a bit, but was fine. Then had to wait months for the muscular skeletal appointment, where they finally told me MRI showed two prolapsed discs. In the meantime I’d lost 2 stone (which had crept on during lockdowns and post menopause). The loss of my belly fat worked miracles. Have kept the weight off since and (fingers crossed) no probs since.

Suggest you push for it to be properly checked out. As yours could be a totally different cause.

GiveMeAbitOfSugar · 24/11/2024 02:28

I really hope you have called an ambulance and by now you are in hospital

You cant stand, they wont make you wait in the waiting room

CherryDrops89 · 24/11/2024 02:21

autienotnoughty · 23/11/2024 22:50

I physically can't walk or sit. Dh could probably get me to the car but I can't get in it . I'm hoping that either clinician will say ambulance or i will have a bit of movement tomorrow and be capable of getting in the car.

I have a onsuite, 3 foot from my bed. to get to the toilet dh had to help me roll to my side. Lower my legs to the floor while face planting on the bed. Then try to lift me under the arms while I brace myself against his legs.. At one point I screamed the pain was so bad. Once up I leant against his body, arms around his neck and I shuffled my feet as he dragged me. I couldn't sit on the toilet just kind of leant over it. Then we reversed it all. It took about 20 minutes and we were both exhausted/sweating be the end.

It really isn't a case of can't be arsed.

Not saying you can't be arsed, I'm saying don't wait for a clinician to phone to tell you to go to a&e. If you're like that call 999. They can do their own assessment on you when you explain. Just don't sit and wait for a clinician to call when they've already said a&e. I hope you've had some help by now

321user123 · 24/11/2024 02:07

autienotnoughty · 23/11/2024 22:56

Flowers im so sorry for your struggles.

I didn't know there was a time window.

When I'm laid still with a pillow under my knees it's bearable moving is horrific

I really hope you’ve called an ambulance by now 😥.

i also hope you’re ok

CatsandDogs22 · 24/11/2024 02:07

I cannot believe there are people on here claiming OP would be a drain on the NHS if they went to A&E or called an ambulance. Your country is broken. Seriously.

also I keep finding myself back here hoping for an update, I hope OP got some help.

Theunamedcat · 24/11/2024 01:33

MasterOfOne · 23/11/2024 22:10

So 111 has run you through a clinical triage process and advised A&E.... but you would rather not attend?

And then garner the opinion of a medical issue on a massive forum for their opinion.

This really is not the forum for asking medical advice. As you can see the huge range of responses and opinions.

No one here knows what is best for you... do you know who can help? Actual clinicians.

I have reported this post to mumsnet, I believe in the same way they do not allow posts for posters who are suicidal to stand and direct them to appropriate resources, the same should be done for posts like these!

They cannot sit or stand you need to do that unless your taken in via ambulance and your on a handy trolley

Report away but your being rather silly wanting to not aggravate symptoms is hardly a red flag

HappyTwo · 24/11/2024 01:26

After reading about cauda equina I would also call an ambulance. If you can afford it maybe there is a private ambulance you could call if worried about the wait

PlantDoctor · 24/11/2024 01:13

I really hope you have gone by ambulance to the hospital op. Good luck x

Isatis · 24/11/2024 01:06

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Have you not read OP's posts? She has been experiencing back pain for 15 years, but she has not been experiencing this pain for 15 years. She has only been experiencing her current pain for a few dys.

Isatis · 24/11/2024 01:02

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People who come up with this sort of proclamation are more than annoying, they're potentially dangerous. OP has clearly not had her current condition for 15 years, it has become very significantly worse. Something that presents as possible sudden onset Cauda Equina very definitely is an emergency.

Wibblywobblybobbly · 24/11/2024 00:49

If it comes to it lie down in the back of the car and one there your DH can ask for help to get you out. If you need to you can lie on the floor once there. But you absolutely need to be seen. It is time critical and if it is cauda equina the clock is ticking.

Holly184 · 24/11/2024 00:32

I really hope OP is on her way to hospital.

As previous posters have said ,she has deteriorated significantly and is describing red flag symptoms . At the very least she needs pain relief and properly assessed . Better safe than sorry in this situation .

hoping we get an update tomorrow that OPs pain is under control and the cause is something easily treated as opposed to anything more serious !

justasking111 · 24/11/2024 00:28

bringmelaughter · 24/11/2024 00:20

Read the OPs posts. 111 have triaged and advised ED (A&E). Advising otherwise is irresponsible.

Agreed

It's an emergency and not an abuse of the NHS. I do wish peeps would read threads carefully.

DidILeaveTheGasOn · 24/11/2024 00:26

I'm so sorry you're dealing with this. I've had back pain and more recently (last two years) leg and hip pain which has really curtailed my exercising, it's been horrible. We went on holiday recently and the bed was pretty unforgiving. I went from a 'normal' (for me) range of movement with associated background pain to having to crawl slowly to the toilet. I understand some of the pain you are in and how life-changing it can be in quite a narrow period of time.

Honestly I think not being able to sit without being in agony is what A&E is for. I know it isn't how it is utilised entirely now, but... the fact that you can't sit at all, let alone for hours, shows you need help, it shouldn't be a barrier to accessing that help. That's wrong. They wouldn't leave you in a waiting area in the middle of a heart attack (... I mean... I don't know... but we can hope) so being physically unable to sit should be a pretty significant indicator.

I hope you get medical treatment and some support for management afterwards. Pain is so intrusive. I used to walk 3-6 miles a day and in the past two years the pain I'm in has a chokehold on my life. I'm sort of allowing it to happen because I don't know what else to do. If it became an emergency at home that prevented me from getting to the bathroom, I hope i'd drag myself to A and E. God knows what they'd do with me, stick me in a loo and leave me there?

Really hope things work out well for you.

Isatis · 24/11/2024 00:24

Might you be able to get to hospital lying on the back seat of the car? I know it's not great but perhaps your husband could put up something like duvet and furniture cushions in the footwell to stop you rolling off? And then maybe you could lie on the floor in A&E, again if he took a camping mattress or blankets for you to lie on?

bringmelaughter · 24/11/2024 00:20

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Read the OPs posts. 111 have triaged and advised ED (A&E). Advising otherwise is irresponsible.

justasking111 · 24/11/2024 00:20

Forget 111 it's a 999. The paramedics can be very useful at this point. I'm sorry but it's not a wait and see situation. My friend was very lucky, she did learn to walk again. Due to that 999 call.

TwoBlueFish · 24/11/2024 00:20

I had sciatica and herniated discs for a few years. Pain eventually got so bad that I could barely move and couldn’t wee. I went to A&E in the back of a black cab lying on the floor. Got to A&E and laid on the floor there as well, there was no way I could have sat. I was seen pretty quickly, dosed up on lots of morphine and woke up the next morning on a ward after surgery. This was a few years ago and I know wait time have worsened.

PeriPeriMam · 24/11/2024 00:19

Sudden onset more severe back pain + weakness in both legs + possible inability to pass urine (rather than difficulty to physically get to the toilet, that's a different thing) + fever, definitely a&e. An actual fever alongside all of that, nope, get there some way

Flannelectomy · 24/11/2024 00:18

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Not being able to sit or walk IS an emergency. Is hate to think what some of you would class as an emergency if you think the OP is a time waster.

CatsandDogs22 · 24/11/2024 00:16

autienotnoughty · 23/11/2024 21:57

I'm so sorry was it cancer? Did he recover?

Yes it was and no he didn’t, it had metastasised to his bones, including his back. That’s why he couldn’t walk. He did live a few years longer though which they did not anticipate, he beat the predictions a few times but it eventually got him.

WinterBones · 24/11/2024 00:11

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from the op
"Last six weeks pain has got significantly worse. I keep experiencing weakness in my legs, periods of not being able to stand/needing support to walk and get up.
Today my back has locked three times leaving me unable to walk, getting worse each time. I am now laid flat on my back, I can't sit up. Dh had to drag/walk me to the toilet. I can't walk. I can't turn over. I'm applying heat and cold.
I'm also feverish . I have shooting pains/tingling in my legs plus the back pain and spasms."

Symptoms of cauda equina syndrome include12:

  • Lower back pain and/or leg pain (sciatica)
  • Leg weakness
  • Numbness or sensations (burning, prickling, tingling) in the backs of your legs, butt, hip, and inner thighs (paresthesia)
  • Urinary and/or fecal incontinence
  • Urinary retention
  • Pain radiating down one or both legs and/or severe low back pain
  • Numbness or weakness in both legs

I'm seeing several symptoms. Incontinence is not the only red flag.

https://www.bing.com/ck/a?!&&p=044df5fab82191d7211e497f17bdf7f872899768ed45378d009eeb1d5a243584JmltdHM9MTczMjMyMDAwMA&ptn=3&ver=2&hsh=4&fclid=0d2d3c9a-247c-6f5c-21f5-2efc25b76e98&psq=cauda+equina+symptoms&u=a1aHR0cHM6Ly9teS5jbGV2ZWxhbmRjbGluaWMub3JnL2hlYWx0aC9kaXNlYXNlcy8yMjEzMi1jYXVkYS1lcXVpbmEtc3luZHJvbWU&ntb=1

DaliaDay · 24/11/2024 00:11

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OP I am sat next to a doctor currently who has said yes, a&e, and that presenting there with severe, unmanageable pain on its own will never upset a&e staff if you're not sure what's causing it.

Icanthinkformyselfthanks · 24/11/2024 00:11

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