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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

A&e, doctors or wait it out?

566 replies

autienotnoughty · 23/11/2024 19:53

Off and on back pain for past 15 years. More on in past two years. Symptoms include lower back pain, painful spasms , shooting pains in thighs. Being managed with physio, Pilates, walking and yoga.

Last six weeks pain has got significantly worse. I keep experiencing weakness in my legs, periods of not being able to stand/needing support to walk and get up.

Today my back has locked three times leaving me unable to walk, getting worse each time. I am now laid flat on my back, I can't sit up. Dh had to drag/walk me to the toilet. I can't walk. I can't turn over. I'm applying heat and cold.
I'm also feverish . I have shooting pains/tingling in my legs plus the back pain and spasms.

Do I go a&e?
Ring doctor Monday?
Ride it out?

OP posts:
New posts on this thread. Refresh page
autienotnoughty · 24/01/2025 02:41

justasking111 · 22/01/2025 18:11

Well my heat pad arrived today. It's giving me some relief 👍

@autienotnoughty how are you doing?

Edited

Better thank you . I saw the consultant last week. I was still on the same meds as prescribed in hospital which included aspirin not ibuprofen . He said to switch and I've had a big improvement. He could not understand why they didn't have me on ibuprofen.

I'm still building up my mobility but pain has reduced to a much more manageable level.

I now need to look at reducing the string pain killers so will see how it goes.

I feel like I've learnt a lot about how to manage my condition since my hospital stay which is making me feel more confident going forward.

The consultant explained it's a prolapsed disc plus arthritis in my lower back. When I was in hospital some of the physio were very dismissive of my pain level. The consultant was very clear that the disc bulging could cause the level of pain I was experiencing. Luckily the physio I'm seeing now is great.

OP posts:
justasking111 · 22/01/2025 18:11

Well my heat pad arrived today. It's giving me some relief 👍

@autienotnoughty how are you doing?

autienotnoughty · 04/01/2025 22:02

@SleepyRich thank you, I'll leave it until I see consultant

OP posts:
autienotnoughty · 04/01/2025 22:01

fivebyfivebuffy · 04/01/2025 19:39

Have you tried a tens machine?

Yes unfortunately it aggravated the muscles

OP posts:
autienotnoughty · 04/01/2025 22:00

Pussycat22 · 04/01/2025 19:33

There is a condition called Cauda Equina that can be very serious and debilitating. Please go to a and E.

Went to a&e 7 weeks ago not cauda equina

OP posts:
justasking111 · 04/01/2025 19:41

This thread is a few months old we've been through the hospital stay @Pussycat22

fivebyfivebuffy · 04/01/2025 19:39

Have you tried a tens machine?

Pussycat22 · 04/01/2025 19:33

There is a condition called Cauda Equina that can be very serious and debilitating. Please go to a and E.

UncertainWife · 04/01/2025 19:19

OP have you looked at the chronic pain threads re backs? There's a thread there where the OP has recently updated what they've done in the year following their back injury and how they've recovered.

SleepyRich · 04/01/2025 15:50

autienotnoughty · 04/01/2025 08:12

I'm not thinking now, I can't be touched at the moment. I'm currently on Tapentadol (similar to morphine) 8 paracetamol a day and 2 aspirin. I'm not sure why I'm not on ibuprofen but I'm reluctant to change anything as the tapentadol has some crappy side effects that seem to flair if I change anything .

It is working kind of, my pain fluctuates between a 2 and a 6. (With10 being the horrific agonising nerve pain that put me in hospital in the first place) I can move around with this pain and sit /bend etc. I need to lay down pretty regularly but I'm far better than I was. So I'm kind of hanging on until I see the consultant in two weeks. My GP ( I've dealt with 2 or 3 different ones) don't seem to have a clue unfortunately. They have been happy to give me meds until I see consultant.

You can't/shouldn't take ibuprofen and aspirin together, severe risk of bleeding/ulceration.

WinterBones · 04/01/2025 15:18

the issue with NHS physio over the years is they don't assess me, never have, they've just asked me what the problem is, (lower back pain) then focused on that, given me a load of exercises and sent me on my way. they did it right from the start aged 17.

The one physio 10 years ago did check my back by pressing and found my lumbar pain, which triggered the MRI i had that found the DDD. but did no further assessment of my movement. however, back then i had been complaining of hip pain, but they always said it was referred pain from my back.

I've tried over the years since to get the hip addressed because it hurts to lie on, locks, causes me sharp pain, refuses to weight bear after sitting for certain lengths of time in dining chairs, and they've followed the same routine as they did my back for 20 years.. x-ray showed nothing, so nothing wrong.

This guy is the first physio who spent time getting my full medical history, did a complete top to toe assessment of my joints and mobility range.. and spotted immediately that my 'nothing wrong with it' hip doesn't move like the rest, and i had to keep stopping him as it felt like it was going to lock/sub lux or something.. like if i don't move out of that position right now the pain will be unbearable.
He picked up that ALL my movement on that side is impinged.

autienotnoughty · 04/01/2025 15:06

That's interesting dh says I walk with my hips. I also feel like a lot of the movements I would do in Pilates came from hips rather than core if i didn’t really focus it.

OP posts:
UncertainWife · 04/01/2025 15:05

@WinterBones this sounds similar to what I'm dealing with. I hope you can find some relief soon.

WinterBones · 04/01/2025 14:01

@UncertainWife

i've been told when you have degen disk disease because the disks thin, the facet joints contact more, so you lose a certain amount of flexibility. Normally your body compensates by sharing the movement load when you walk to your hips

However, my hip has lost about 30% of its movement, so can't compensate for the rotational movement lost in my lower back, so instead its putting stress on my knee/ankle/foot down that side, but also pushing up into my mid/upper back.

So while my pain in my lower back and hip is from injury/degeneration..etc, the pain in my knee/ankle/foot and mid/upper back is compensation pain/movement stress.

UncertainWife · 04/01/2025 13:08

@WinterBones what a great outcome! He sounds an amazing physio. I've had so many physios / osteos / msk folk / NHS folk etc look at me over the years and never had this experience.

Do you mind me asking, what was the problem they found? I try to stay aware of all the various things that could cause problems in the body as I've been struggling for a few years. I now think all my back issues are caused by the joint space in my hip narrowing and making the leg on that side shorter, but I won't know til after a hip replacement whether it fixes the back stuff. So I keep my list of things I've seen on forums so I can ask physios to explore them in future if I can't find the cause of my problem/s.

WinterBones · 04/01/2025 10:25

autienotnoughty · 04/01/2025 08:14

I've had private physio in the past which hasn't made much difference. But maybe I need someone more specialist.

i think if you're going for general problems, and nothing different flags up its still only physio.

this guy found something everyone else has missed/overlooked, or dismissed as not a factor in my pain, but that i have been bringing up for the past 15 years as a problem... he confirmed there IS a problem and it will be having a massive impact on my current pain.

autienotnoughty · 04/01/2025 08:49

Jingle10thWay · 03/01/2025 19:57

Also highly recommend a good massage therapist they can work as light or as deep as needed and are a god send working in tandem with a physio, Get a L5 trained therapist try looking at www.theisrm.com/ for recommendations.

Thank you, nearest one is 35 minutes from me so not feasible at minute but maybe down the line

OP posts:
autienotnoughty · 04/01/2025 08:14

WinterBones · 03/01/2025 22:30

i gave up this last week, paid for a private physio appointment with a specialist sports physio.. in the space of an hour he worked out more of what is causing my chronic pain and mobility issues than the nhs have in 26 years.

I don't have much money, but i'm giving him chance to try and help me while i'm waiting on NHS referral to MSK.

Edited

I've had private physio in the past which hasn't made much difference. But maybe I need someone more specialist.

OP posts:
autienotnoughty · 04/01/2025 08:12

DazedAndConfused321 · 03/01/2025 22:57

Please, whatever you do, don't see an osteopath or chiropractor. The risk is too great. I'm sure they have helped many people with muscular injuries but something this fragile is not worth risking. Don't get sports massages right now, it might help further down the line but not now.

What medication are you on now? They should have you on NSAIDs and potentially something like amitriptyline or notriptyline to ease the nerve pain.

I'm not thinking now, I can't be touched at the moment. I'm currently on Tapentadol (similar to morphine) 8 paracetamol a day and 2 aspirin. I'm not sure why I'm not on ibuprofen but I'm reluctant to change anything as the tapentadol has some crappy side effects that seem to flair if I change anything .

It is working kind of, my pain fluctuates between a 2 and a 6. (With10 being the horrific agonising nerve pain that put me in hospital in the first place) I can move around with this pain and sit /bend etc. I need to lay down pretty regularly but I'm far better than I was. So I'm kind of hanging on until I see the consultant in two weeks. My GP ( I've dealt with 2 or 3 different ones) don't seem to have a clue unfortunately. They have been happy to give me meds until I see consultant.

OP posts:
DazedAndConfused321 · 03/01/2025 22:57

Please, whatever you do, don't see an osteopath or chiropractor. The risk is too great. I'm sure they have helped many people with muscular injuries but something this fragile is not worth risking. Don't get sports massages right now, it might help further down the line but not now.

What medication are you on now? They should have you on NSAIDs and potentially something like amitriptyline or notriptyline to ease the nerve pain.

WinterBones · 03/01/2025 22:30

i gave up this last week, paid for a private physio appointment with a specialist sports physio.. in the space of an hour he worked out more of what is causing my chronic pain and mobility issues than the nhs have in 26 years.

I don't have much money, but i'm giving him chance to try and help me while i'm waiting on NHS referral to MSK.

UncertainWife · 03/01/2025 22:23

Glad there's been some improvement but sorry to hear you're still struggling.

I relate to how you feel. I've been suffering various msk issues for a few years but it's all got worse in the last four months. The last month has been particularly bad, but I can now only walk for 20 mins max, drive for 10 mins max, can barely do any housework or anything normal. In my case I'm 80% sure it's because my hip needs to be replaced and is now causing my body to go wonky which is giving me lower and upper back issues.

The mental side is tough. I want my old life back so much. It's hard going into 2025 unable to make plans.

Some days (or hours!) I feel hopeful and some days less so. Today I'm feeling hopeful that I won't be like this forever, and I don't think you will be either.

I've found a lot of resources (books, online courses, practitioners etc) on improving back problems. When you're out of the more acute stage @ me on this thread and I can list the things I've heard of. Most are not relevant to me yet as my hip needs dealing with.

autienotnoughty · 03/01/2025 22:19

Thank you so much everyone I've had some brilliant advice on here. It really does help me feel less alone.

OP posts:
autienotnoughty · 03/01/2025 22:17

@Cyb3rg4l thank you. I will see how appointment with consultant goes and if I'm still feeling stranded I'll look into it,

OP posts:
Cyb3rg4l · 03/01/2025 22:15

autienotnoughty · 03/01/2025 19:53

@MyrtleStrumpet I requested pain clinic referral with gp but they said to ask the consultant when I see them in two weeks. Apparently there's a wait list too.

A private consultation with a pain specialist is not that expensive and massively speeds up the process. I was seen in under a week after 6 months waiting for the NHS. I think it was about £200 -look on BUPA for one near you. It’s worth bearing in mind that as horrible as the pain is right now, it is helpful in reminding you not to do too much too soon - it’s still very early days… patience in the face of frustration!

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