To think that parents cannot leave money to severely disabled offspring free of IHT

This seems the exact scenario that would be helped by a trust and a lifetime interest in a property.

Tax planning is key. And this is exactly what I say about the farmers/IHT issue. They have generations to work out the tax planning just as other family businesses have to. They just don’t want to do it.

I don't think it's farmer hate as much as wanting what the farmers are getting to be extended to specific vulnerable groups.

Very few people will fall into her particular situation so on the face of it would it be such a hardship. However there'll be people, as we speak, who will be looking for loopholes.

You can pay into a pension for a child without it effecting their benefits (I think). Check with HMRC. If you had started when DC was born and continued I read you could have amassed a big pot by the time they are 50.

Sorry but I think everyone should pay the same. Imagine the nightmare if there all sorts of different schemes for different personal circumstances. The only fair way is everyone paying the same, and with 1 million you are not hard up and he won’t be either.

What a difficult situation, I sumpathise. Rather than focusing on IHT changes, I would want to see disabled people like your aon better provided for by the benefits system.

outside of the UK, benefits are seen as more of a social insurance that anyone can use in time of need, without stigma. I think that’s a healthier way for society as well as affected families, but with the right wing media we have in the UK, it’s hard to even have that conversation.

Op. I haven't read every answer as they are mostly depressing but we are in a similar situation. My husband is a lawyer so we have a proper will setting up a trust for our 19 year old son. However we are having similar worries. We have the added problem that we had DS late and he is an only child. We have no one to be a trustee or even a will executor who is younger than ds and lives in this country. The one younger relative in her 20s who is close to ds and lives in the UK has a gambling problem and not suitable as someone to manage finances. I really worry what will happen to ds when we both die. He is likely to be in his 40s or 50s ( we are both 60s)

Getting independent advice ( which we have tried several times) feels like a waste of time with lots of "well you can do this but .....( Inset other tax you are liable for) "

As you say, only the mega rich can take advantage of most tax breaks in a way that doesn't leave them unable to afford to live now

I wish you luck and a gentle reminder that this place is probably not the place to vent about financial worries. I've been on here for 20 years and it can be a supportive place sometimes as long as money and politics are not discussed.

You are being totally unreasonable to link your situation to this tax position with farmers.
Both are important . It‘s not a race to the bottom .

I really sympathise with your situation and the farmers’ situation. Governments often seem to be better at making people’s lives worse rather than improving them.

This.
It’s what all the wealthy folk do, and it’s one of the things the farmers could do to remediate their current predicament.

Wow I'm not sure why you think slamming farmers is helping your cause. You clearly know nothing about farmers. They are the ones feeding your family. Their assets which means land, machinery etc is worth millions, they don't actually have that in the bank. Unlike you.
You need to make arrangements for your son.
You've lost any sympathy by your hatred for that which you cannot understand. Go educate yourself.

Well yeah, we'd all like our children to have the 'finer things' in life but he doesn't have any more entitlement to that than anyone else does just because he's disabled. Quit whining and see an actual financial advisor. The fact you've mentioned the inland revenue suggests you're stuck in the past in more ways than one...

Farming impacts everyone because we need to produce as much of our own food as possible for food security reasons. Most family farms don’t have the cash sitting there to pay the IHT and most of them don’t generate enough income to pay it over 10 years either.

The more and more you post, the less sympathy I have for you.

This is easily avoided if you set up a trust with your disabled son as beneficiary and your other children (and yourself until you die) as trustees. You then move all your assets into the trust with the trust deed specifically saying what those assets can be used for (ie the care of your son).

Speak to a lawyer. Easily done. No need to fret.

Exactly - that’s literally what I’m saying. It needs to be in trust. Is it already set up and is your will specific about it going in there?

Apologies for that link. Just google disabled adult trust england and you will find a number of examples.

As the parent of a disabled adult you can set up a disabled adult trust outside IHT. I am surprised how many in your situation are unaware of this.

www.affinitytrust.org/support-us/our-wills-and-trust-service/?msclkid=24cabd09b0bb11b59adcda498268c78e&utm_source=bing&utm_medium=cpc&utm_campaign=Disabled%20Persons%20Trust%20-%20Search&utm_term=trusts%20for%20vulnerable%20beneficiaries&utm_content=Search%20-%20Caring%20for%20adults%20with%20%20learning%20disabilities

I’m not the one who started with the comparisons you were. I would never just start making any comparisons for parents with disabled children. So if you want to make compassions - you need to listen to the comparisons.

so - they are going to tax the farmers. Do you think this will have any impact on your situation? If they sold all the farms in the country, do you think the govt would give you more? Is that what you want?

My parents are doing this. (I said to do it) Their house will be left to my sister and disabled brother. My brother lives in their house which is inaccessible for me

It wouldn’t be added to benefits. He would get none as he has more than 16k in savings. You need to speak to a financial advisor about putting it into a trust. If you are able to, it would be worthwhile putting some in now so that it won’t be subject to IHT (more than 7 years before you pass)

https://www.gov.uk/trusts-taxes/trusts-for-vulnerable-people

but this might be hard to understand without a working knowledge of trust taxation. If you google IHT disabled persons trust the AI summary it returns is pretty accurate.

But basically creating a disabled persons trust doesn’t create an IHT charge like a normal trust would.

There is no CGT if you put cash into any trust, and ironically there is no CGT if you put any asset into a normal trust - but there is CGT if you put an asset stood at a gain into a disabled persons trusts, so generally better to put cash in and buy assets in the trust if need be.

Most disabled people don't have rich parents so the state should be providing an acceptable level of care to all (but obviously it won't be luxurious)

Can your child's siblings help care for your him after you've gone in terms of keep an eye on him , buy him nicer clothes for birthday, Christmas, maybe pay for a holiday for him occasionally?

Pass the money 7 years before you die and no IHT

It's your choice and privilege to be able to leave money to his siblings too, I don't see why you expect to be iht exempt on order to leave your able bodied children loads of money, when the majority are not getting anything like this advantage

To be honest most poor people did not cause their poverty - clearly you think they do and that's affecting your stance on this. The rich (of which you are one) must contribute more to improve care for all disabled people.