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GLP and autism

58 replies

Claire123ee · 20/11/2024 19:26

Hi fellow parents
I am a mum to a lovely 21 months old and would like some input on GLP and how it presents please . Needless to say , we have seen GPs and Hv and have gone nowhere .

What she can do

  1. follow my point and use all the gestures
  2. 100 plus words with two words string together
  3. She can identify things in books and family photos correctly
  4. She can answer simple questions but very sporadically and she always says yes .
  5. Follow simple commands like : stop , wait for mummy and no
  6. Answer positively to simple instructions: feed dolly or brush dolly’s teeth , pick up that you and bring it to mummy , bath time ( she runs to the bathroom)
  7. She pretends cook and brings us books to flick through/ read , bring dolly for a walk and pretend mix with a tea cup . She is very gentle with dolly and gives a Cuddle all the time .
  8. She is very affectionate and her tantrums never lasts more than a few seconds
  9. Sleeps through the night since she was 12 months .
  10. She brushes her own teeth and can point to all of her and our body parts

I am wondering if what I am about to list is cause for keeping an eye on .

  1. she started walking at 12 months on the dot and started tip toeing on and off since she was 15 months ( doesn’t do it with shoes ) . We have taken to an orthopaedic and he gave the all clear
  2. She can count to 10 and tries with her fingers as well .
  3. She is a bit of a picky eater but eats all vegetables, especially raw ones like carrots , celery and cucumber and loves fruits like bananas and apples but still pull faces when trying new food
  4. She is a bit of a nervous one but parallel plays with others kiddos and waive and engage by smiling and talking with people outside her family .
  5. My biggest concern and the point of this post is the echolalia : she tends to repeat the last word of what we say but I was told it is normal for toddlers .
  6. Scripting ? I don’t know if she is scripting . I will give you an example , sometimes she says “ what’s that’s? It is a quack , good girl ? Whilst holding a duck and pointing at it . Is this normal ?

I guess I’d like to know how GLP works in girls as I know it presents differently . Is it all done by memory for kids with GLP . I saw an instagram mum explaining how her GLP daughter was having many words and identifying things in books before she was two but none of it was her own language but It was learned from memory .

Any advice massively appreciated

OP posts:
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lovemetomybones · 29/11/2024 13:39

That's great news, I'm with you especially with family. My MIL constantly tells me he will grow out of it, even one point said I'm negatively labelling him! But autism is always and by minimising, pretending that these symptoms don't exist means he won't get the support he needs.

My child is globally delayed in cognition, social, communication, self help. He is developing in these areas at about half his age. Global delay was the easiest of his conditions to diagnose, basically behind significantly in two areas or more is global delay. The reason and whether he will catch up is much harder but because of his diagnosis we have been able to apply for an ECHP and had lots of support from other services such as portage.

My son also has suspected autism which is separate to his global delay ( he has it but on a waiting list for it to be confirmed- doctors have already said it's pretty much a done deal) they could be linked but not necessarily.

I think it's a case of changing your mindset towards family and friends- they are saying there's nothing wrong because they want to believe that your child is perfectly healthy rather than to be difficult (that's hard I know). As for diagnosis and support you are definitely heading in the right direction and remember developmental delays can change so much! Fingers crossed you get the help you need x

BrightYellowTrain · 29/11/2024 13:23

Sensory processing issues are not only related to autism.

Claire123ee · 29/11/2024 12:53

Lougle · 29/11/2024 12:46

I think that's not a bad move, if only to reassure you. By the time you get an appointment, she'll either have developed and grown out of the difficulties you see, or she'll have more areas of concern.

Precisely what’s my health visitor said . I just feel so incredibly alone as my family and partner think there’s nothing abnormal about it . I was a very sensitive child myself but back in the 90s it wasn’t a concern. X

OP posts:
Lougle · 29/11/2024 12:46

I think that's not a bad move, if only to reassure you. By the time you get an appointment, she'll either have developed and grown out of the difficulties you see, or she'll have more areas of concern.

Claire123ee · 29/11/2024 12:23

Hi all
Small update : my little one is about to turn 22 months and after a chat with the HV she has been referred to a developmental paediatrician . The reason being that socially she is very withdrawn. I am gonna give some examples: she is a very easy baby to raise except when in social situations where whilst waiting in line for the playgroup to open she has meltdowns with kicking which she never does when in calmer settings or alone . She also gets easily overwhelmed by being in coffee shops . She gets all rigid and shaky and can’t stay still whilst at home she is perfectly relaxed sitting with us , listening to stories etc . She doesn’t cover her eyes or hears so not bothered by the noise but she is too keenly aware of confined environments. Now when people outside interacts with her she says hello and looks at the them and smile so the HV and I agree that there is no clear picture here . I have looked into SPD but it is always connected with autism and the HV thinks she doesn’t meet the criteria ( she has no eating problems , no texture or noise issues ) She doesn’t have any rigid behaviours or hyper-fixations , nor is she bothered by other kids when in groups but she parallel plays , but socially she is clearly behind . I have heard of a book called the highly sensitive child . Anyone recommends it ?

OP posts:
Claire123ee · 24/11/2024 07:56

lovemetomybones · 23/11/2024 23:46

I was really triggered by this post and angry and I deleted it, but having time to reflect I think my anger was misplaced and dismissive. I was angry because you basically listed the features of a typical child and then tried to make links to conditions my child has. Now I initially thought, wow if my three year old could do what you listed I would be on cloud nine! So as a result I was quite dismissive of you in my first post.

But on reflection I think I was wrong and I'm sorry about that. You see I'm a parent of a globally delayed, autistic, gestalt communicator and that doesn't give me the right to make a judgement about any other child. But I can support. There is a great person called autisticdad on insta who sums up support and being part of a community that is caring because the decisions we make and our children are judged so much!

Unfortunately the system in my view is incredibly flawed and under funded, everything is a long wait, funding is a huge battle, then you get family and friends who I band 'everything will be ok' dismissing everything you have fought for as he will grow out of it, there's nothing wrong with him. Etc etc. which as well meaning as they try to be it's so dismissive of the worry, the battle for anything medical, the help you receive, the sleepless nights, the tears, the road of acceptance you need to go down.

You seem like a fantastic mum, you are observing your daughter's progress and you feel concerned about some aspects. Keep monitoring her and if you feel worried please do make a GP appointment. My health visitor put me in touch with a service called portage who have been wonderful, sign posted next steps and what I needed to do to get further help and guidance.

So I'm sorry I was dismissive, everything child is uniquely different, and therefore my experience of these conditions are not always the best way forward for everyone x keep doing what you are doing, you are doing a great job your child is lucky to have you x

Thank you so much for your words and really we all need to be kind with each others. My little one is quirky for sure and I guess what worries me the most is how the world is gonna treat her ( having said that we still love in a society that bullies kids who wear glasses 😞) and despite having always worked and earning what I believe to be good money between me and my husband I feel like I don’t have the means to give her the best support and it is breaking me .
anyway I will wait till her 2 year old check up and go from there .
I know the spectrum is wide and there are different presentations but I have been told that meeting the criteria is quite rigid . I am not even sure I want an official diagnosis. I feel a bit lost and hope

OP posts:
lovemetomybones · 23/11/2024 23:46

I was really triggered by this post and angry and I deleted it, but having time to reflect I think my anger was misplaced and dismissive. I was angry because you basically listed the features of a typical child and then tried to make links to conditions my child has. Now I initially thought, wow if my three year old could do what you listed I would be on cloud nine! So as a result I was quite dismissive of you in my first post.

But on reflection I think I was wrong and I'm sorry about that. You see I'm a parent of a globally delayed, autistic, gestalt communicator and that doesn't give me the right to make a judgement about any other child. But I can support. There is a great person called autisticdad on insta who sums up support and being part of a community that is caring because the decisions we make and our children are judged so much!

Unfortunately the system in my view is incredibly flawed and under funded, everything is a long wait, funding is a huge battle, then you get family and friends who I band 'everything will be ok' dismissing everything you have fought for as he will grow out of it, there's nothing wrong with him. Etc etc. which as well meaning as they try to be it's so dismissive of the worry, the battle for anything medical, the help you receive, the sleepless nights, the tears, the road of acceptance you need to go down.

You seem like a fantastic mum, you are observing your daughter's progress and you feel concerned about some aspects. Keep monitoring her and if you feel worried please do make a GP appointment. My health visitor put me in touch with a service called portage who have been wonderful, sign posted next steps and what I needed to do to get further help and guidance.

So I'm sorry I was dismissive, everything child is uniquely different, and therefore my experience of these conditions are not always the best way forward for everyone x keep doing what you are doing, you are doing a great job your child is lucky to have you x

Junobug · 23/11/2024 21:31

Your daughter may be autistic. She may be a gestalt learner. She may not. Either way, she is who she is and you can’t change it. Just keep parenting the child you have. Even if the HV and GP agreed, what are you hoping for? Because I can promise you that there is no real support or miracle that will change anything. I think your instinct will always tell you if there is something going on and you are obviously reading about it so just keep going as you are.

deademptyduck · 23/11/2024 20:33

My daughter only had 5 or 6 words at age 2. I didn't know this was an issue at the time. She was later diagnosed autistic. The speech levels etc you describe seem very normal.

Zooeyzo · 23/11/2024 20:29

Why are you worried about autism? My son is severely affected by autism but I didn't really think about it seriously until 2

CapaciousHandbag · 23/11/2024 20:25

Zanatdy · 23/11/2024 20:17

my children didn’t speak at all at that age, both applied / applying to Oxford University. They were close to 3 before they spoke in sentences. In my opinion your daughter sounds quite advanced / normal for her age. Don’t spoil the younger years worrying over nothing.

Gosh, they were advanced if they were applying for Oxford at 21 months…

(sorry! They sound great and you must be proud)

soupfiend · 23/11/2024 20:22

Just a minor gripe also about some posters on this thread, Aspergers is not a 'disused' term at all, it is the working diagnosis of many people, including family members of mine.

And as others have pointed out, there is plenty of concern about all ND being put under one category now, from professionals and clients alike

Sorry to digress OP

Zanatdy · 23/11/2024 20:17

my children didn’t speak at all at that age, both applied / applying to Oxford University. They were close to 3 before they spoke in sentences. In my opinion your daughter sounds quite advanced / normal for her age. Don’t spoil the younger years worrying over nothing.

lovemetomybones · 23/11/2024 20:14

Gestalt is a very new term for a type of language development and nothing to do with Asperger's. Gestalt language learners tend to focus on sound and chunk language as opposed to developing language by building up a word bank.

My three year old son is a gestalt learner. He babbles and adds English words at the end, he is three and has a vocabulary of about 20 words, new struggles to process new words but I think that is part of his global delay.

He is also autistic and can not do pretty much any of what you listed in your first post.

I really don't think that you have any thing to be concerned about. She has a large vocabulary so o wouldn't recommend seeing a speech and language therapist/ the wait times are huge (took six months to see mine) and an autism assessment is a two year wait in my local area.

I think because she is meeting expected milestones, social, communicative, has clear cognitive abilities and motor skills. I'd wait it out and see how she develops over the coming year.

AttachmentFTW · 23/11/2024 19:55

I mean this kindly, but I really think you might need to deal with your own anxieties rather than trying to find a problem in your child that doesn't sound like it exists.

I think you might need to step back from social media and try to enjoy the child you have. As others have said, she sounds very like other children her age.

SnoopysHoose · 23/11/2024 19:46

She also can’t make a choice between two options that i offer her
She isn't even 2!!
I'm sorry but you come across as wanting her to have a condition, she sounds just as she should be.
Stay off insta!

SpanThatWorld · 23/11/2024 19:41

Understanding "Where..?" is 1-2 years. Which doesn't mean she has to have mastered it by her 2nd birthday, just that most children will understand it some of the time at roughly that age.

Step away from the rabbit holes.

The internet often seems to suggest that most kids are neurodivergent. Most are fine. Even most ND kids are mostly fine. Don't look for trouble. She has years and years of development ahead of her and most kids will have some kind of wobble along the way.
But most of them will be fine.

Claire123ee · 23/11/2024 19:26

SpanThatWorld · 23/11/2024 19:08

Children repeat what adults say. They rehearse it because they're playing and practising language. Her language sounds functional and her development sounds like it's following a typical pathway.

Your post starts with telling us that you've consulted GP and HV and "have gone nowhere".

They've told you there is no cause for concern. They won't refer you because they have no concerns. This isn't nowhere. It's a good place to be.

Thanks for your message .. I think most of my anxiety comes from the fact that when we look at books for example and I ask “where is the train “? She never pointed and from there I started down this rabbit hole

OP posts:
SpanThatWorld · 23/11/2024 19:08

Children repeat what adults say. They rehearse it because they're playing and practising language. Her language sounds functional and her development sounds like it's following a typical pathway.

Your post starts with telling us that you've consulted GP and HV and "have gone nowhere".

They've told you there is no cause for concern. They won't refer you because they have no concerns. This isn't nowhere. It's a good place to be.

Claire123ee · 23/11/2024 18:55

SpanThatWorld · 23/11/2024 18:49

I have worked with children with complex needs for over 30 years.

Your child sounds fine.
All the professionals who have seen her say she is fine.

Yet you have clearly decided that there is something wrong that you need to worry about. Please listen to the professionals who have actually seen her rather than looking for validation from strangers on the Internet.

hi
thank you for your message .. I am sorry that I have come across as this type of person but I am a first time mum and have no idea how things like language should develop or following simple instructions is like at 21 months and what is the consistency.

OP posts:
SpanThatWorld · 23/11/2024 18:49

I have worked with children with complex needs for over 30 years.

Your child sounds fine.
All the professionals who have seen her say she is fine.

Yet you have clearly decided that there is something wrong that you need to worry about. Please listen to the professionals who have actually seen her rather than looking for validation from strangers on the Internet.

Claire123ee · 23/11/2024 07:39

3Ls · 22/11/2024 22:45

I am a SALT and passionate NLA (another term for GLP) practitioner.

Your child has some features but it's really early days. Plus its a difference in language acquisition not a disorder or problem. They may just work through the stages on their own with no problems and develop a full language system

Use rhyme rhythm and songs to help them learn and have a look at meaningful speech - on most social media platforms for more information. They even have an on demand parents course you can purchase which to be honest will tell you as much as.most therapists can as it's still relatively early days in my profession in the UK

Hi
yes I suspected she has some features but I have read that GLP is always linked to asd and it is never a natural acquisition of the language but then information is so confusing. A mom whose daughter is a GLP has told me that more of her single words at my DD’s age were from tv shows and cartoons and were learned in chunks . My dd’s words evolved over time . What features have you noticed please so I can make notes ?

OP posts:
Coffeeloverme · 22/11/2024 23:02

Relax and enjoy your child. Very few signs imo.

3Ls · 22/11/2024 22:45

I am a SALT and passionate NLA (another term for GLP) practitioner.

Your child has some features but it's really early days. Plus its a difference in language acquisition not a disorder or problem. They may just work through the stages on their own with no problems and develop a full language system

Use rhyme rhythm and songs to help them learn and have a look at meaningful speech - on most social media platforms for more information. They even have an on demand parents course you can purchase which to be honest will tell you as much as.most therapists can as it's still relatively early days in my profession in the UK

smithsinarazz · 22/11/2024 22:42

Just to say, my DS was nowhere near this stage at 21 months. He's 7 now and absolutely fine. Xx

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