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Need a hand hold -Part 3

993 replies

Imbluedalale · 16/11/2024 20:16

Episode 15 Hello GIF by SpongeBob SquarePants

Hi spoonies , welcome to new thread , thank you so so much for supporting me .

OP posts:
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Imbluedalale · 20/11/2024 18:38

By the way …
How many mugs do my mum and dad think I need? 😂😂
Do they think I have guests? I’ve just counted and Aswell as my mum tree I’ve got 21 cups as there’s more in a box in the room! 🤣🤣🤣xx

OP posts:
Imbluedalale · 20/11/2024 18:28

ChoccieCornflake · 20/11/2024 17:59

Big hugs to all the SEN kids and parents of SEN kids on here. It's crazy how the system really has no back up plan if the standard education model doesn't work for someone.

Edited

Ditto!
Also for all the mums on here having a hard time and struggling I have something for you . Have a listen because you’re all amazing ….

OP posts:
Imbluedalale · 20/11/2024 18:26

ChoccieCornflake · 20/11/2024 17:57

Dear lord your ex is a piece of work isn't he! The school sound a bit slack too, but ex is definitely the number one twat in this situation! On the upside, at least this is all costing your ex money (40 quid a day to your son wasn't it?!), and your son is making a mint out of it! Plus, more to the point, you're not letting ex see it's annoyed you, which is probably really pissing him off. Awesome!!

No perfume yet today - I totally forgot! I shall try harder tomorrow!🙂

As to my dangerous cutlery drawer - it's definitely something to be amused by! Going in there is well dangerous if you're not careful! My parents bought me a vegetable spiralizer, which should be illegal given how spiky it is! That's what puts me off sorting the rest of the drawer to be honest - I don't want to rile up the spiralizer and have it go after me! 😀

Hi @ChoccieCornflake , how are you today?
Yes he really is , but not going to let him see that he’s affecting me . But he is a first class arse bandit!
Yeah he’s paying son £40 a day so x10 that’ll be £400 so more fool him. I wonder what hmrc will think of him working cash in hand and bringing back 30k each winter and not paying tax or national insurance?
I’m looking forward to your next perfume update , mp or M&S havnt got back to me yet re a free years supply??
What the hell is a vegetable spiralizer?😂xx

OP posts:
Imbluedalale · 20/11/2024 18:19

Munchyseeds2 · 20/11/2024 17:48

Hello@Imbluedalale Oh bless you Laura, your throat has been rumbling on for a while now, I'm another who thinks you might need to get something for it
I hope you have had a lovely, restful day just pottering and getting things as you want them
I'm glad that you finally got to talk to someone at the school.. remember, play the long game lovely

Whats the plan for the rest of the week?
It has been cold here today but lovely blue sky, my car doors were frozen shut this morning 😂 that was fun!

Hi to every else, my heart goes out to everyone battling to get the best for the DCs, provision for anyone who doesn't fit the norm just doesn't seem to be there anymore and it's so sad and frustrating😣

Hi @Munchyseeds2 , how’s your day been (apart from the frozen car doors 😂)
I spoke to my cancer nurse today as she rang me re an appointment and I told her that my that’s playing up and she said to see how it goes over next week and if still hurting she will arrange an mri to check my lymph nodes so hopefully it will get better soon. It is more prominent when I lay down for some reason?
I’ve managed to get a few things done despite feeling unwell, I’ve disinfected all my kitchen and cleaned a cupboard out and other little bits. I got a second hand kitchen table and chairs which just needs a lick of paint but o really like it . My mum got me some lovely thick seat cushions for the chairs too.
Tomorrow I have my cooker coming so I’m looking forward to cooking a joint , I might do a gammon joint so I can make a few meals with it. Might have it with new potatoes and peas tomorrow , then a sandwich another day and pea and ham soup .
Friday my support worker is coming to see me and sat my mum and dad coming again to put up lights and curtains for patio doors . Can’t do a lot until flooring is down as it’s £10 an item to remove something as I’ll be here on my own so going to put most of it up after it’s been done xx

OP posts:
Imbluedalale · 20/11/2024 18:13

Nottogetapenny · 20/11/2024 17:16

No wonder you are angry! I’m angry for you. You did so well, telling your son’s school the whole situation. Hopefully they can put in place your wishes and keep you informed.
Thank goodness you have got away from that chauvinistic, bastard of a husband! He should have no right’s his behaviour doesn’t deserve any.
Sorry you aren’t feel well, a sore throat is horrible, honey and lemon is good for a sore throat!
🥄🏠🌺😘

Hi @Nottogetapenny , how are you today?
I am angry but until I get a court order there’s not a lot I can do, makes me feel like such a shit parent tbh. My mum and dad are fuming with it all but the safeguarding officer I spoke to well she was lovely and she really understood the situation. I did end up getting upset on the phone but she was so lovely and kind and said I’ve done the bravest thing getting away. My mum said I should start using what I have against him with the police etc but I really don’t want to get him into trouble , how sad does that make me?And also I don’t want to play his game because I’m still afraid of him and what he will do.
I’ve got some honey and lemon I’m just having some now whilst I’m sorting out my craft box xx

Need a hand hold -Part 3
OP posts:
ChoccieCornflake · 20/11/2024 17:59

Big hugs to all the SEN kids and parents of SEN kids on here. It's crazy how the system really has no back up plan if the standard education model doesn't work for someone.

ChoccieCornflake · 20/11/2024 17:57

Dear lord your ex is a piece of work isn't he! The school sound a bit slack too, but ex is definitely the number one twat in this situation! On the upside, at least this is all costing your ex money (40 quid a day to your son wasn't it?!), and your son is making a mint out of it! Plus, more to the point, you're not letting ex see it's annoyed you, which is probably really pissing him off. Awesome!!

No perfume yet today - I totally forgot! I shall try harder tomorrow!🙂

As to my dangerous cutlery drawer - it's definitely something to be amused by! Going in there is well dangerous if you're not careful! My parents bought me a vegetable spiralizer, which should be illegal given how spiky it is! That's what puts me off sorting the rest of the drawer to be honest - I don't want to rile up the spiralizer and have it go after me! 😀

Munchyseeds2 · 20/11/2024 17:48

Hello@Imbluedalale Oh bless you Laura, your throat has been rumbling on for a while now, I'm another who thinks you might need to get something for it
I hope you have had a lovely, restful day just pottering and getting things as you want them
I'm glad that you finally got to talk to someone at the school.. remember, play the long game lovely

Whats the plan for the rest of the week?
It has been cold here today but lovely blue sky, my car doors were frozen shut this morning 😂 that was fun!

Hi to every else, my heart goes out to everyone battling to get the best for the DCs, provision for anyone who doesn't fit the norm just doesn't seem to be there anymore and it's so sad and frustrating😣

Nottogetapenny · 20/11/2024 17:16

No wonder you are angry! I’m angry for you. You did so well, telling your son’s school the whole situation. Hopefully they can put in place your wishes and keep you informed.
Thank goodness you have got away from that chauvinistic, bastard of a husband! He should have no right’s his behaviour doesn’t deserve any.
Sorry you aren’t feel well, a sore throat is horrible, honey and lemon is good for a sore throat!
🥄🏠🌺😘

Imbluedalale · 20/11/2024 17:07

Trying to put the pissed offiness to back of my mind . Sorted out a cupboard and made a bauble jar xx

Need a hand hold -Part 3
Need a hand hold -Part 3
OP posts:
Imbluedalale · 20/11/2024 16:32

Apolloneuro · 20/11/2024 16:22

Ah Laura. Useful update. I don’t think you had told us that. I see what’s happened. He’s a stinker isn’t he.

Never mind, my love. You’ve tried your best and marked his card with the school.

Have you registered with a GP, so you can get your throat checked? Xx

Hi @Apolloneuro , I never thought to mention that as it wasn’t ever the life we lived regarding travelling and it definitely never affected the children in any way as they lived a normal life especially with their education. There was a few occasions where ex said to let them have day off school and I said absolutely not but other than that and the males being chauvinistic pigs it was just normal every day life. Well obviously not normal in what ex did but normal living if that makes sense.
What makes me so angry about it is that they can add ‘traveller rights’ to son’s profile but can’t remove them without a court order . That doesn’t make sense to me all at . And no I haven’t registered yet it’s on my wish list I will try and do that tomorrow xx

OP posts:
Apolloneuro · 20/11/2024 16:26

I’m ever so bossy aren’t I? It’s only because I’m old enough to be your mum (and I am a little bossy person, truth be told 😃😳😂). It comes from a place of caring xx

Apolloneuro · 20/11/2024 16:22

Ah Laura. Useful update. I don’t think you had told us that. I see what’s happened. He’s a stinker isn’t he.

Never mind, my love. You’ve tried your best and marked his card with the school.

Have you registered with a GP, so you can get your throat checked? Xx

TealPoet · 20/11/2024 16:18

nornironlady · 20/11/2024 11:08

@TealPoet I too placed a high value on education until I realised it's designed to be easy to manage for teachers although I know it's not. It's not about the individual and one style of learning doesn't fit all. My son doesn't sit at a table or upright on anything so the school set up is torture. He makes noises to self soothe so traditional environments aren't suitable. They haven't got the system he needs. Play therapy was amazing but there's huge waiting lists. If he would engage I'd do anything but he won't respond to me as a teacher. Next step is home assessment with an educational psychologist so I will see what else they suggest. He should have been offered this over a year ago but the person who did initial assessment went off sick and he was forgotten. Same old story.

You have to fight so hard! Obviously you’re doing an amazing job for him 💕

Just to clarify, by ‘education’ I meant learning itself, not the school system in any way! I think there are many, many far better forms for a lot of kids

Imbluedalale · 20/11/2024 16:09

Hi guys , I hope you’re all ok.
Just thought I’d say hi to you all and give you an update as I’m not feeling too well with my throat.
First of all I’ve just been reading all the posts since I was last online and we have some absolutely amazing mamma bears on here. If anybody hasn’t told you today , your amazing and I’m in awe of you all.
Ive managed to get a little bit of admin stuff done. Not as much as I wanted but I feel quite rotten with my throat but I’ve ticked a few things off my wish list.
Received my first parcel today and wondered ‘what’s this’? Omg @nornironlady Has sent me the most beautiful gifts for my home I was in tears , they are beautiful and a lovely tin of luxury cookies which I will not be eating in my sleep I want to remember every bite . Thank you so so much @nornironlady , that is so kind. ❤️
I have spoken to the school too and they put me through to the safeguarding manager and we had a long talk. She was absolutely lovely and very understanding. I’m not sure if you was aware but my ex is a traveller hence we lived in a mobile home on his families land , I’m not btw! I met him when he was a professional sport player. Even though we lived in a mobile home that’s the only difference we had. Ex never travelled , had full time job and children all lived like non travellers and went to school and further education. Probably only difference I noticed was that the women are expected to do everything and the males were the kings. If dads hungry you make him something straight away , if dads poorly you nurse him back to health , if dad wants a cup of tea no matter what your doing you make him one . So I struggled a lot with that especially when I was working too. Anyway what an absolute bastard my ex is ! He has used the traveller law for my youngest to take him out of school that’s why the school have had to agree it . She said that we both have number one priority on the school admin so either one of us can make decisions on behalf of youngest without consent from other . But that’s now going to change as I’ve asked to be informed of every decision. They haven’t actually read the email yet as apparently they use a third party to read the emails and they havnt been informed of it yet. So I updated her with everything and everything that has gone on . I told her that I’m not a traveler which they know and that we have never used ‘traveller rights’ for any of our children , ever ! She said that some things that were agreed when ex had meeting hadn’t been followed through as ex was meant to give them dates and timeframes but he hasn’t bothered ringing them since the meeting and they thought it was for a few days not 10. Anyway there’s nothing I can do about this time apart from son being able to do all his work online whilst he’s there which I really hope he does . Only way I can get ‘traveller rights’ removed from youngest school
profile is by getting a court order so another headache to sort out . What an absolute twatty move he’s done there I’m so angry with him xx

OP posts:
Apolloneuro · 20/11/2024 14:27

One of the worst things this country has done in education is to shut so many of the schools for children with SEN.

Mainstream schools are brilliant for some children, fine for most and horrific for a few.

nornironlady · 20/11/2024 11:08

@TealPoet I too placed a high value on education until I realised it's designed to be easy to manage for teachers although I know it's not. It's not about the individual and one style of learning doesn't fit all. My son doesn't sit at a table or upright on anything so the school set up is torture. He makes noises to self soothe so traditional environments aren't suitable. They haven't got the system he needs. Play therapy was amazing but there's huge waiting lists. If he would engage I'd do anything but he won't respond to me as a teacher. Next step is home assessment with an educational psychologist so I will see what else they suggest. He should have been offered this over a year ago but the person who did initial assessment went off sick and he was forgotten. Same old story.

RaspberryBeretxx · 20/11/2024 11:03

nornironlady · 20/11/2024 10:35

@RaspberryBeretxx My son was in and out of school the past few years. Last year the teacher wasn't at all aware of ND and things went from bad to worse. He's been out pretty much all of this year with the odd few half days in school. He is like a totally different child out of school, a child I never got to know until this year. Much calmer and happier. Home schooling isn't an option because home is his safe place. He would tear up the homework books until I told school we wouldn't be doing work at home as it got too volatile. I do feel so stuck now as we've run out of options as he won't engage with any talk of school. While school have been supportive there has to be an end point where we've tried everything. If the system doesn't change then these kids won't thrive, I want to push that back on the authority. He won't be able to move to high school if he can't manage primary. It's good to get that out sometimes! Grim reading as it is.

Ah, that's really hard. I get the home schooling being not an option just now. There's always something like Inter High or similar for high school so it's all online and you're not the one forcing it, if he was OK with taking that responsibility on. I know that's expensive though (relatively). Hope school can find a solution for you all. There's also unschooling (at home) - I've been on a few home ed FB groups for a few work related reasons and was always so interested to read about people who just totally followed the child's lead and allowed/helped them to research/investigate whatever interested them. It sounds like he really needs to just feel safe now though and that you're taking the right approach. Sending a hug!

TealPoet · 20/11/2024 10:57

nornironlady · 20/11/2024 10:35

@RaspberryBeretxx My son was in and out of school the past few years. Last year the teacher wasn't at all aware of ND and things went from bad to worse. He's been out pretty much all of this year with the odd few half days in school. He is like a totally different child out of school, a child I never got to know until this year. Much calmer and happier. Home schooling isn't an option because home is his safe place. He would tear up the homework books until I told school we wouldn't be doing work at home as it got too volatile. I do feel so stuck now as we've run out of options as he won't engage with any talk of school. While school have been supportive there has to be an end point where we've tried everything. If the system doesn't change then these kids won't thrive, I want to push that back on the authority. He won't be able to move to high school if he can't manage primary. It's good to get that out sometimes! Grim reading as it is.

Poor boy! Would online schooling and going to a library to do it work for him maybe? I’m a huge proponent of the importance of education but I think traditional schools are now failing many kids, often not through their own fault. I’m not sure the value of what he’d learn there is worth the stress to be honest. He’d probably do better just exploring his own interests at home…

nornironlady · 20/11/2024 10:35

@RaspberryBeretxx My son was in and out of school the past few years. Last year the teacher wasn't at all aware of ND and things went from bad to worse. He's been out pretty much all of this year with the odd few half days in school. He is like a totally different child out of school, a child I never got to know until this year. Much calmer and happier. Home schooling isn't an option because home is his safe place. He would tear up the homework books until I told school we wouldn't be doing work at home as it got too volatile. I do feel so stuck now as we've run out of options as he won't engage with any talk of school. While school have been supportive there has to be an end point where we've tried everything. If the system doesn't change then these kids won't thrive, I want to push that back on the authority. He won't be able to move to high school if he can't manage primary. It's good to get that out sometimes! Grim reading as it is.

RaspberryBeretxx · 20/11/2024 10:29

Apolloneuro · 20/11/2024 10:25

Big hugs @nornironlady and @RaspberryBeretxx rant any time you like.

Ah, thank you. I'm sure you've seen it all from the other side as a teacher (as well as parenting your DC). It must give you an interesting perspective.

RaspberryBeretxx · 20/11/2024 10:27

nornironlady · 20/11/2024 10:23

@RaspberryBeretxx Rant away, I do plenty of it! I totally know what you mean though, the more pressure you put on them, the more you increase their anxieties. My son has very negative, violent behaviours which we've worked so hard to curtail. He will lift and throw whatever is in his path so we have learned to make sure nothing is in his path. He made it to his bedroom yesterday before he found a gaming disc he could come back and throw at me. I had to hide my smile as a year ago he might have lashed out at me physically so progress is progress. As you can tell, my bar is low 😂

Ah, definitely progress is progress! And a gaming disc is at least a small object 😀. You're an amazing mum and doing what's best for your son - have his anxieties decreased a little since being at home? I find it so hard not to get really frustrated with mine but sometimes it's just important to drop the rope really I think. I also think it's easy to look at others homes and assume it's all meals round the table, board games and no screen time and that isn't necessarily the case.

Apolloneuro · 20/11/2024 10:25

Big hugs @nornironlady and @RaspberryBeretxx rant any time you like.

nornironlady · 20/11/2024 10:23

@RaspberryBeretxx Rant away, I do plenty of it! I totally know what you mean though, the more pressure you put on them, the more you increase their anxieties. My son has very negative, violent behaviours which we've worked so hard to curtail. He will lift and throw whatever is in his path so we have learned to make sure nothing is in his path. He made it to his bedroom yesterday before he found a gaming disc he could come back and throw at me. I had to hide my smile as a year ago he might have lashed out at me physically so progress is progress. As you can tell, my bar is low 😂

RaspberryBeretxx · 20/11/2024 10:18

Imbluedalale · 20/11/2024 05:35

Good morning @RaspberryBeretxx , how are you this morning?
Im so pleased to have a day at home today to potter about and enjoy it all and do a few bits and bobs . My son isn’t in Liverpool yet but he’s definitely going as my daughter told me about the meeting ex had at school and that ex is picking son up to take him to Liverpool, I’m hoping I can speak with the school today and ask to speak to the principal and attendance officer.
Thank you for the hugs 🤗 , I really hope I see my children soon too, my daughter said she’s coming to see me this week so I’m looking forward to that.
The snowman looks brill! I bet your daughter was in her element bless her.
Sending big hugs back and to all the other spoonies. Happy middle of the week day xx

Morning everyone :).

Good luck with the school today Laura. I've got everything crossed for you. I wonder if because he hasn't actually missed any school yet, their procedures haven't quite kicked in. Even so, the threat of him not attending and your well thought out email should definitely definitely have already got a response from them. But I do hope they'll be much more onto it once he is actually not in school when he should be. Amazing advice as ever from @Apolloneuro 👏. I think keep playing the long game - evidence is building up that his approach to parenting is actively harmful for your son.

Sorry to hear your throat is bad again Flowers. Hope you have a lovely relaxed day today.

That's great news that you're going to see your daughter this week, that'll be so lovely for her to see her new home! And although I know you don't want to put her in the middle, she might have info on your son and school.

Thank you all on the snowman! It wasn't a very impressive one (my boss said it looked like a snow penguin 😂)but DD enjoyed it.

@nornironlady so sorry your DC hasn't been in for a few weeks due to anxiety due to ND. That must be so tough for both of you.

My DS is still getting lunch detentions and behaviour points and just being frustrating. Of course, he's a delight for his Dad 🙄. It's hard as he takes punishments a bit like an endurance test - they don't really seem to help at all. He can be so sweet and lots of positives. I just don't know what to do for the best- the more I ask him to do something, the less (or slower) he does it. Sorry that was a bit of a rant and I know it's probably just tween behaviour and nothing compared to what some of you are going through.

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