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Wondering if I'm always unpopular because I'm autistic?

138 replies

remembranceday212 · 14/11/2024 17:21

A couple of people said they thought I was autistic recently which was a total shocker.

Having looked into it a bit it does kind of make sense. I'm not going to pursue a diagnosis because frankly it's no one else's business.

I've done well at school, Uni and work, so it hasn't held me back as such.

But the bit I'm not coping with is just not fitting in with any group, and not 'getting it'.

I just never get what people are talking about in groups- and need things explained to me really clearly before I get it. By which point the conversation has died or completely moved on.

Just feeling sorry for myself really. Just feel really lonely, and would love to be included. I come across as really friendly, but after a short while people move away from me.

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Cakeandusername · 19/11/2024 22:41

remembranceday212 · 18/11/2024 14:39

Ahh I actually am a scout and guide leader- and for some reason DP really doesn't like it.

I think he thinks it marks me out as odd.

But I actually quite like doing activities etc.

Not odd at all! I’m not ND but lots of fellow leaders are. I’ve joined Trefoil guild and we socialise a lot, again very welcoming and diverse.

FlatStanley50 · 19/11/2024 20:19

Jellycats4life · 19/11/2024 18:31

I think sometimes we can struggle to identify our sensory issues because we’ve unconsciously woven things into our lives to help us deal with them.

I mean I’d be tempted to say I don’t have any issues with food (especially compared with my children who are classic beige eaters in a way that I never was) but then I realise I very very rarely eat any fruit because the texture can be icky and the flavour is unpredictable. And I used to make my mum sieve the lumps out of pineapple yoghurt so that I could eat it 😂

I used to make my mum sieve chicken soup! I only realised I was probably autistic once my DD was diagnosed. I too hate the primary school gate.

PyreneanAubrie · 19/11/2024 20:15

tillydern · 19/11/2024 20:05

Self diagnosis is widely accepted in autistic circles. The vast majority of those who self diagnose do so after enormous amounts of research.

I suppose I'm self-diagnosed or self-assessed. Or at least I have put together a picture based on things that were said by parents, teachers and my peers. I've had a "probably" from a GP and a MH therapist. I think based on my sensory issues alone it is highly probable that I am autistic but it would not be accepted as official.

tillydern · 19/11/2024 20:05

GertrudePerkinsPaperyThing · 15/11/2024 09:36

I would consider getting on the waiting list for a diagnosis - even if it’s long you’ll get there in the end.

I don’t think it’s helpful to self diagnose. The value of a diagnosis is you can understand yourself and why you act in a particular way. If you haven’t actually had that diagnosis, you can’t do that.

Self diagnosis is widely accepted in autistic circles. The vast majority of those who self diagnose do so after enormous amounts of research.

Berga · 19/11/2024 19:51

PyreneanAubrie · 15/11/2024 07:42

See I wouldn't question that. I'd get there just before 6....

I'd probably get there for 5.30 and then hang around awkwardly around the corner before heading in about five to....

Ladyof2024 · 19/11/2024 19:21

It could have been me who wrote the first post on this thread. I've never understood why women don't like me. I'm kind, I'm interesting, I'm funny, I'm entertaining, I'm caring, I'm generous, I'm loyal, I'm reliable, I'm honest, and yet I literally have no friends.

I've had friends in the past who dropped me and I've had many many false starts as in I start a friendship with someone and it just doesn't go the distance: after one or two meetings they just dropped me or they pretend that they are constantly busy and cannot meet me, until I eventually get the message and stop bothering them.

Newusername3kidss · 19/11/2024 19:12

There’s a school mum who is very involved in school but very few people actually like spending time with her and avoid having conversations with her as she’s just not very good at picking up cues / letting other people speak. She will go on and on and on with a story that is really dull. You could literally be yawning and she wouldn’t stop talking. So… if she asks me about my holiday for instance I’ll be polite and answer with a quick summary of the holiday but I won’t ask her anything back as it’s just painful listening to her stories. Another friend mentioned to me that she thinks that this mum might be autistic. I don’t know why but hadn’t crossed my mind before but now it has I’m a bit more tolerant of her. Do you think your stories are interesting /funny / relevant when you tell them?

Jellycats4life · 19/11/2024 18:31

PyreneanAubrie · 19/11/2024 11:37

Surely that would be very unusual not to have sensitivities?

I scored as borderline on the online tests and the ones my GP & GMMH did, but I have light, sound, smell, taste and touch issues.

I think sometimes we can struggle to identify our sensory issues because we’ve unconsciously woven things into our lives to help us deal with them.

I mean I’d be tempted to say I don’t have any issues with food (especially compared with my children who are classic beige eaters in a way that I never was) but then I realise I very very rarely eat any fruit because the texture can be icky and the flavour is unpredictable. And I used to make my mum sieve the lumps out of pineapple yoghurt so that I could eat it 😂

PyreneanAubrie · 19/11/2024 11:37

remembranceday212 · 19/11/2024 11:34

Is there a main autism/adhd online test I can do?

I don't have any sensitivity issues to food texture light or sounds.

But I'm incredibly disorganised and generally cannot cope with life and laundry.

Feeling awful this week, as my personality is really chatty, but I've just been mute all week and it's really taking its toll on me- I feel like I'm having a breakdown and just want to sob and cry.

There's no one I can talk to irl, as my partner already thinks it's autism, and I don't want to reveal my vulnerabilities to him- I'm still trying to pretend I'm normal.

And my mum is 1000 times more weird than me- so will send me off in the wrong direction

Surely that would be very unusual not to have sensitivities?

I scored as borderline on the online tests and the ones my GP & GMMH did, but I have light, sound, smell, taste and touch issues.

BertieBotts · 19/11/2024 11:37

Look up ASRS which is an ADHD screener dir i adults. You only need to fill in the first section which is about 6 questions to get a score. The other questions are to let your doctor know what the difficulties you're having are, and can come in useful to see which areas to target or as a sort of comparison later after you've put strategies in place.

remembranceday212 · 19/11/2024 11:34

Is there a main autism/adhd online test I can do?

I don't have any sensitivity issues to food texture light or sounds.

But I'm incredibly disorganised and generally cannot cope with life and laundry.

Feeling awful this week, as my personality is really chatty, but I've just been mute all week and it's really taking its toll on me- I feel like I'm having a breakdown and just want to sob and cry.

There's no one I can talk to irl, as my partner already thinks it's autism, and I don't want to reveal my vulnerabilities to him- I'm still trying to pretend I'm normal.

And my mum is 1000 times more weird than me- so will send me off in the wrong direction

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0psiedasiy · 18/11/2024 19:34

@FixingStuff @remembranceday212 I also found the school gate hard (I later realised several ‘friends’ used me for childcare- after they went to secondary school I never heard from the mums again)

remembranceday212 · 18/11/2024 17:06

Yes @FixingStuff I found the primary school gate absolutely awful!!

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Bangwam1 · 18/11/2024 17:04

remembranceday212 · 14/11/2024 17:21

A couple of people said they thought I was autistic recently which was a total shocker.

Having looked into it a bit it does kind of make sense. I'm not going to pursue a diagnosis because frankly it's no one else's business.

I've done well at school, Uni and work, so it hasn't held me back as such.

But the bit I'm not coping with is just not fitting in with any group, and not 'getting it'.

I just never get what people are talking about in groups- and need things explained to me really clearly before I get it. By which point the conversation has died or completely moved on.

Just feeling sorry for myself really. Just feel really lonely, and would love to be included. I come across as really friendly, but after a short while people move away from me.

I understand what you’re saying completely. I’ve often thought it was my bluntness or inability to enjoy (or at least fake enjoy) small talk. To some people, your differences will be loved.

Find your people, they’re out there. These are not your people.

FixingStuff · 18/11/2024 16:59

This is a really helpful thread. I am the same. The primary school gate was especially challenging for me.

Euphonious · 18/11/2024 16:53

Sorry, unintentional strike-through.

Euphonious · 18/11/2024 16:52

remembranceday212 · 18/11/2024 16:46

@Euphonious ah yes, you're probably right - still hurts though 😔

I don't mean it harshly. Realistically, though, if you want to engage in some workplace chitchat, you need to learn the 'rules', which does mean masking to an extent. Though my godson put a lot of intellectual effort into figuring out the rules in his teens, and has had a far better and more sociable time at university than anyone, including him, expected, as a result. His mum and I would role play with him and perform body language for 'I'm interested tell me more' or 'I'm bored you've been talking too long' etc.

Obviously, it's up to you whether you feel this is worth it.

remembranceday212 · 18/11/2024 16:46

@Euphonious ah yes, you're probably right - still hurts though 😔

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Euphonious · 18/11/2024 16:44

remembranceday212 · 18/11/2024 16:34

Hi @Euphonious, yes I have been forcing myself on these people by volunteering info about my kids or holidays etc, after they've spoken about theirs etc. it's just that after that length of time, no one has ever asked me a follow up question or enquired in any way about my life.

They will answer my questions about them, but then move away and end of convo.

But you said quite a lot at the start of the thread about your difficulties in holding conversations, how you either want to understand every little thing that's being said by having it explained to you before you can let the conversation move on, or you come back with a 'mirroring story' in possibly inappropriate circumstances, or you sit mute -- I assume this may also make you difficult to have a conversation with, potentially?

I'm not necessarily going to risk asking a follow-up question of who struggles conversationally in case it elicits, as in the case of one autistic family member, a 15-minute monologue about whatever it was, from a person who is unable to read boredom/discomfort cues. My autistic godson, whom I adore, used to struggle with figurative language, and would get very uneasy if anyone used a metaphor he didn't understand, and would ask to have it explained.

In both cases, these were people I was very fond of and prepared to engage with, but the situation you're describing is in your workplace, not with people you're close to. If someone is also trying to get on with work, it's difficult to balance that with engaging with someone who's conversationally difficult.

remembranceday212 · 18/11/2024 16:34

Hi @Euphonious, yes I have been forcing myself on these people by volunteering info about my kids or holidays etc, after they've spoken about theirs etc. it's just that after that length of time, no one has ever asked me a follow up question or enquired in any way about my life.

They will answer my questions about them, but then move away and end of convo.

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remembranceday212 · 18/11/2024 16:31

Thanks @HollyKnight, saying the reason they haven't asked is because they don't care makes so much sense! And strangely makes me feel better.

It's like that episode in sex and the city where they say'He's just not that into you' and Miranda feels happy about actually knowing the truth!

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Euphonious · 18/11/2024 16:27

remembranceday212 · 18/11/2024 14:42

@HollyKnight so basically I've been in my job for 1.5 years and no one has asked me once about my children, partner, holiday, or anything. Despite talking at length all day to each other about those topics.

It's making me quite angry, and dejected, because it is actually very rude. And I don't have any more strategies up my sleeve than being completely silent the entire time!

But no one needs to invite you to volunteer information about your children, partner or holiday! It would be perfectly normal to join in a general conversation without a formal invitation to speak.

HollyKnight · 18/11/2024 16:24

remembranceday212 · 18/11/2024 14:42

@HollyKnight so basically I've been in my job for 1.5 years and no one has asked me once about my children, partner, holiday, or anything. Despite talking at length all day to each other about those topics.

It's making me quite angry, and dejected, because it is actually very rude. And I don't have any more strategies up my sleeve than being completely silent the entire time!

It's because they don't care but they don't have the manners to pretend they care. It is said that ND people lack social skills and social awareness, but those things aren't exclusive to ND people. A lot of NT lack them too. Either they genuinely think they are that interesting to talk to, or they just haven't been taught that it is rude to only talk about yourself all day.

There isn't much you can do about other people's deficiencies. Just be proud of yourself that despite having a social communication disability you still have better manners than supposedly "normal" people.

remembranceday212 · 18/11/2024 14:42

@HollyKnight so basically I've been in my job for 1.5 years and no one has asked me once about my children, partner, holiday, or anything. Despite talking at length all day to each other about those topics.

It's making me quite angry, and dejected, because it is actually very rude. And I don't have any more strategies up my sleeve than being completely silent the entire time!

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remembranceday212 · 18/11/2024 14:39

Cakeandusername · 17/11/2024 16:59

I’d look at socialising with different people. Eg volunteering with scouts or guides has lots of adult volunteers I’d suspect are on spectrum. It can come with an adult only social life too - guide leaders have 18-30 inspire or trefoil guild. Perhaps more rigid structure helps too.

Ahh I actually am a scout and guide leader- and for some reason DP really doesn't like it.

I think he thinks it marks me out as odd.

But I actually quite like doing activities etc.

OP posts:
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