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HELP: How do I get my adult kids to talk about if I get dementia?

77 replies

Sheri99 · 14/11/2024 01:45

I've raised four - two men, two women. They are 31, 37, 39, 48 now. They have lives of their own; I divorced their father after 29 years and I remarried three years later.

My new DH of ten years and I are both about to turn 70. We have been married 10 years. We have a trust set up for property, but we need input from all the kids as to what they envision if either of us needs help managing the other should either of us get dementia.

We do not presently live near either child, they all live in different states here in the US and are managing their own lives and families well.

I don't want to impose, but I feel a need to get some idea of if they want to be involved as I age. I don't think my DH has the ability to manage my medical needs should I be stricken with dementia or a stroke. And I strongly do not want institutional care: ever, but I do not want to burden anyone.

My DH is retired and has long term care available should he become unable for me to manage, so if he does need dementia care in a facility or at home, and I am unable to handle him, I have a plan for him.

I on the other hand have no such benefit for long term care should I become debilitated in later life and want to figure out a plan, so I can relax about it and all the kids know what the game plan is for dear Mom. I don't want to wait until a disaster strikes, or I begin to go downhill.

Both my DHs parents had different types of dementia. His father had Alzheimer type, died at 86, his mother had lack of brain blood flow type dementia and died at 92 in a nursing home, long term care facility.

I don't want to be put into a nursing facility. I have brought the subject up to eldest DD but she rolled her eyes and rather blew me off.

If I were your parent how should I approach you to discuss and create and aging care plan (if needed)?

I am, as I said, 70 next year, very healthy, exercise daily, don't drink or smoke, weigh what I weighed at 16, was into sports (track and field) in high school. My Dad lived to 82 (drank and smoked), and his parents lived to 98 and 99. My mother began smoking at 16, died of COPD/emphysema at age 72 due to her smoking; otherwise she was healthy and at a good weight when she died.

How do I approach my grown kids, they all live in different states and we, all of us, never get together all at once. I do not want to be kept alive if I have dementia; no heroic measures.

Help/suggestions? Am I being unreasonable to want their input to help me plan this issue?

OP posts:
Octavia64 · 14/11/2024 04:18

I don't quite understand what you want.

(Disclaimer I am in the U.K. and I imagine the systems are somewhat different).

You say you don't want institutional care/a nursing home at any point.

In which case either your DH cares for you, one or more of your kids cares for you or you pay hideous amounts of money for 24/7 carers.

You say you don't want/your DH can't care for you, so either you pay lots of money or you want one of your kids to say they will move near you with their families and give up their job to look after you.

If you are trying to get one (or more) of your kids to say they will care for you for free if you get ill then yes they probably will blow you off.

In the U.K. it would normally be expected that the husband does it. Why can't/won't your DH?

Zapx · 14/11/2024 03:34

Hi I’m kind of going through a little bit of this as my Dad has just been diagnosed with early onset Alzheimer’s.

One thing that stood out from your post was “I don’t want to be put into a nursing facility”. What do you want? What about if you need care at some point? In your situation I think I’d recommend writing a living will.

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