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AIBU?

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Lost in health misery

29 replies

Wantachangefor2024 · 09/11/2024 15:43

So the year is almost out and I’ve lost three and a half stone since June doing the fast 800. I am feeling better for it. But I wonder if anyone could help me with piecing my health together to help me know which direction i should go in to seek help.

I went from a girl who did cross country running and horse riding at school to suddenly being out of breath and fatigued terribly at 17. I’m now mid 30’s. I went to my gp at 17 who said my heart rate was too high and I needed to get it looked at. Very. Very stupidly. I was too embarrassed to have the ecg and get undressed. So just plodded along with poor health.

In the following years,

  • ive had a mouth tumour. Tested positive for coeliac antibodies three times. But never positive on an endoscopy. Can eat gluten and have no stomach issues.
  • Had spinal surgery. A nerve decompression. Covered in stretch marks. Noted as hypermobile.
  • Had bouts of dizziness where my heart raced and I’d shake and get migraines. I was admitted to hospital after finally going to a&e and my heart rate was 185. It was found that I have inappropriate sinus tachycardia and put on ivabradine. The ivabradine has cured my migraines but I still get breathless and fatigued. At the time I was needing spinal surgery as the cardiologist didn’t want to discharge me until my symptoms had become manageable. I promised I would come back after my surgery but I needed a discharge to be put onto the waitlist for my back. My gp would never rerefer me back as they said I had found out the issue with my heart.

I’ve overcome a lot. But I have just been on a four day trip to wales with my mum and aunties. Who are 70 and they had more energy than me. I have terrible fatigue and sometimes breathlessness. I thought by losing weight it’d really help but it’s obvious there is something more that is ailing me. It’s not a case of I’m a little bit tired. I’m a so seriously fatigued I struggle to do basic tasks and function. I’m prepared to pay for private help but don’t know what direction to go in. Any advice or help I’d greatly appreciate.

OP posts:
Wantachangefor2024 · 09/11/2024 16:43

Josette77 · 09/11/2024 16:41

Also did you ever have an ECG? You need one ASAP.

Yes I had one and diagnosed with inappropriate sinus tachycardia. Fast heart rate for no reason. Thanks re celiac. I’ll look more into it. I just thought I had a few weird things that they must be related in some way.

OP posts:
Josette77 · 09/11/2024 16:41

Also did you ever have an ECG? You need one ASAP.

Josette77 · 09/11/2024 16:40

I'm celiac. I don't get stomach issues, I get dizzy, swollen joints, last time I even passed out and now I carry an epi pen.

I would stop eating all gluten for at least 6 months.

Wantachangefor2024 · 09/11/2024 16:36

Bump.

OP posts: