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AIBU?

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Hysteroscopy

85 replies

HotTopicsWithImogen · 06/11/2024 20:46

AIBU to think the NHS should offer realistic pain relief for this?

I am currently going through Benenden to get my hysterectomy because after 18 months the NHS is still failing to sort it. Had an appointment with a private consultant and first evaluative step is hysteroscopy.

Now I had this done on the NHS previously and it was barbaric. When I left the room my knees buckled. Staff were obviously all geared up for this to happen because there was a handy wee trolley there, just for all of us ladies leaving that room to lie down on when we collapsed.

So when the private consultant said I needed hysteroscopy, I asked if I could have some decent pain relief. And she said it would be small general anaesthetic as a matter of course. They wouldn't expect anyone to have this without it. If I didn't want it that's fine, but recommendation is to have it.

This is a different world! But why doesn't our health service do this? If you have a procedure with effects so horrendous that women routinely buckle after having it, why would you just persist with the same method? Why is women's pain baked in as an expectation?

OP posts:
HotTopicsWithImogen · 06/11/2024 22:58

Maybe there are some people who find any kind of biopsy painless and I guess that's fascinating but we'd never know because for every other comparable procedure you have to opt out of anaesthesia, not opt in.

OP posts:
StacieBenson · 06/11/2024 22:57

I had one done privately - I wanted to try and tough it out but my consultant very strongly advised me to have a GA. I'm not sure he would have carried out the procedure without it.

DramaAlpaca · 06/11/2024 22:54

ISeriouslyDoubtIt · 06/11/2024 22:39

Not all women find them painful. I've had 2 both with biopsies taken, the first with no pain relief at all, the second I took 2 ibuprofen. They were uncomfortable but not painful, I drove home afterwards. I would not have wanted general anaesthetic.

Same here. Two ibuprofen beforehand and I honestly found it fine, not even uncomfortable if I'm honest. My gynaecologist did a hysteroscopy, biopsy, polyp removal and put in a Mirena at the same time, and I barely felt it.

It's fascinating how different women react to this procedure, but of course pain relief should be offered as a choice. My gynaecologist gave me a choice of GA or going without, saying that he thought because I'd had three babies vaginally I should be fine, but if I'd wanted a GA I could've had one, no question. This is in Ireland.

InsaneInTheMamBrain · 06/11/2024 22:42

I was really pleased to see the aforementioned campaign after reading this recent article https://www.bbc.co.uk/news/articles/c7498yvvjvgo.amp

There should be a choice of pain relief offered. The guidelines need changing.

woman stands in front of bushes

Like ripping my insides - fears hysteroscopy guidelines not enough - BBC News

Women who experienced traumatic pain from hysteroscopies reveal fears new clinical guidelines may not help.

https://www.bbc.co.uk/news/articles/c7498yvvjvgo.amp

HotTopicsWithImogen · 06/11/2024 22:41

@Intotheoud but if you are on the two week pathway surely they have to make anaesthesia available for you within two weeks?

This is crazy.

I'm so sorry.

OP posts:
Losingmymind432 · 06/11/2024 22:39

I had a hysteroscopy recently, was absolutely terrified to be honest, had read all the horror stories etc, in the end I found it to absolutely fine it was very much like a smear. Did suffer cramps a week or so afterwards but no different to my usual period cramps (which are horrendous anyway)
Also had a friend who had one before me and found it fine too, we only had painkillers beforehand.

I appreciate everyone will have a different experience and I count myself lucky I didn't find it that unpleasant!

ISeriouslyDoubtIt · 06/11/2024 22:39

Not all women find them painful. I've had 2 both with biopsies taken, the first with no pain relief at all, the second I took 2 ibuprofen. They were uncomfortable but not painful, I drove home afterwards. I would not have wanted general anaesthetic.

Oldfatandfrumpy · 06/11/2024 22:37

Oh and I only had the co codamol because it was in my bag, I was offered absolutely nothing by them

Oldfatandfrumpy · 06/11/2024 22:35

I've had two. I have a high pain threshold (thanks to years of endo and adenomyosis) and took two 30/500 co codamol in advance of one, yet still squealed throughout. The other one was private and fine with a general

The NHS is frankly barbaric when it comes to women's healthcare

ThelmaDinkley · 06/11/2024 22:33

I should have had one last week but I refused. I’m not going to be prodded about with jtst paracetamol. Asked GP for diazepam but was refused. Think it’s appalling that adequate pain relief is t offered to all and seems to vary by hospital.

Intotheoud · 06/11/2024 22:17

Thank you for starting this thread. Am currently on the fast track pathway. Discussed concerns about the endometrial biopsy with the referring GP as smears are really hard as my cervix is in a difficult position and hard to find, even by specialist staff, have become more painful post-menopause. I turned up expecting a hysteroscopy, but they attempted the biopsy without the camera. However clinician A couldn't find my cervix. They summoned clinician B who found it but couldn't force their way into my cervix, even with one of them pressing on my stomach, whilst the other pushed. They abandoned the procedure. I have now been summoned back for a hysteroscopy. I phoned to try and arrange sedation, but was told this was not available. I asked about a GA but was told to keep the original appointment. I said I was concerned this was just adding to the lead time. It's not a great position to be in.

HotTopicsWithImogen · 06/11/2024 22:02

@ExtraOnions I think I must be living in a parallel universe. Mine was presented as being like a smear. It was nothing like a smear! Why was my experience so different?

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MissHalloween · 06/11/2024 22:01

I’ve had four, all with a general, three privately and one on the NHS.

ExtraOnions · 06/11/2024 21:58

I had one … the consultant offered me the choice of having it done there and then in out-patients, or, having it done under a general. There was no pressure from him, and I decided in the anaesthetic.

As it was, I ended up with a spinal and sedation. Didn’t feel a thing.

Pigeonqueen · 06/11/2024 21:57

I had a hystoscopy with a spinal anaesthetic in the NHS. Absolutely refused to have it done without that or a general (complex health issues, ptsd from birth trauma etc). They were - thankfully - very understanding and booked me in with no issue. But I do feel it should be routinely offered; without women having to ask for it.

Threesacrow · 06/11/2024 21:50

I had a local anaesthetic for an NHS hysteroscopy, and removal of a polyp. The gynaecologist and nurse were lovely. There was strong cramping, quite painful but not unbearable, and I did find that using relaxation techniques helped me. Afterwards I went to a recovery lounge and had tea and biscuits. All the staff were professional and kind. I would always choose local anaesthetic over a general, the recovery is so much quicker. I didn't feel violated, the team were all female and the surgery was necessary.

JenniferBooth · 06/11/2024 21:47

@HotTopicsWithImogen Its the reason i wont have one even though they want me to. Even with GA some women have experienced permanent damage including incontinence and damage to sexual function.
Womens anatomy is not studied enough by the medical profession

HotTopicsWithImogen · 06/11/2024 21:38

@JenniferBooth thank you so much for sharing that link! I will definitely add my voice to it. I'm so glad that someone is campaigning on this. I felt like I'd done something wrong, even though I knew they had the trolley set up ready as it was expected I would collapse. It was only when I had my private medical consultation today that I started to think hang on, what happened to me before wasn't right.

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ChickenDeChick · 06/11/2024 21:27

I agree. I had one with a local but I had done my research and knew there was a possibility it would be bad before I went in. I got through it but only with the support of the amazing nursing staff. I was extremely close to asking them to stop on more than one occasion and had to be taken to lie down to recover afterwards as I couldn't stop shaking.

A friend of mine had no idea what it involved and she found the whole experience traumatic.

Mummyratbag · 06/11/2024 21:20

Co-codamol an hour before and a local in cervix, not pleasant, but no pain. I don't know if I was just lucky or the local was adequate.

Giggorata · 06/11/2024 21:18

Breathe through the pain is bullshit and I am glad there is a campaign now.
After experiencing just a brief and painful investigation, after which I had dreadful cramps, I insisted on having my hysteroscopy and biopsy with a spinal.
i hope all women do that now, it is unbelievably misogynistic to prod about inside us without pain relief.

RedOnyx · 06/11/2024 21:13

I had one without anaesthetic - just ibuprofen an hour before. They had to stop part way through because I almost passed out and reschedule with anaesthetic. And I don't even live in the UK!! I recently had another one and as soon as the subject was mentioned I said with anaesthetic please!

GiveMeAbitOfSugar · 06/11/2024 21:11

Yer i had this with biopsies taken and it was horrendous and the doctor was very unsympathetic and clearly was annoyed with me for not being able to ‘ breath through the pain’

HotTopicsWithImogen · 06/11/2024 21:09

@TheDuck2018 shocked is about right. I couldn't quite believe what they were doing to me, with paracetamol only.

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Duckinglunacy · 06/11/2024 21:09

I honestly found my local anaesthetic hysteroscopy totally fine. I walked home from the hospital after (about 5km). I had a similar procedure under GA and felt groggy for days after. General is not the best for everyone.