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AIBU?

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Baby with limited vision in one eye

109 replies

Sunflower1235 · 06/11/2024 09:10

Posting on here as a mother really struggling with post partum depression because of a diagnosis my son has received. We found out at 2 months that he has a coloboma of the optic nerve- basically his vision in his right eye is likely to be significantly reduced. We have been to Moorfields and seen consultants who have assured us that “his vision is normal with both eyes open” and that with vision in one eye you can lead a normal life. I’m really struggling to understand how- anyone out there with similar stories? Living with one eye that sees significantly less? Are you able to live normally? Drive? Play sports? His vision in the bad eye is not likely to be corrected by glasses patching etc so it’s an “it is what it is” situation. Would appreciate any insight from people really really struggling with this daily.

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spiderlight · 06/11/2024 11:23

My friend is totally blind in one eye. I've known her for over thirty years and I only found out about a year ago when she mentioned it in passing. She lives a totally normal, active life.

Sorry you've had to deal with this shock - it must be very hard.

Sunflower1235 · 06/11/2024 11:18

@Didimum wow that’s so interesting! Good on your sister that’s amazing especially as it effects both her eyes

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Sunflower1235 · 06/11/2024 11:15

@Gemstonebeach @Favour237 thanks both that’s super reassuring. I just want him to have a normal life and reach his full potential

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BarbaraHoward · 06/11/2024 11:15

Sunflower1235 · 06/11/2024 11:11

@BarbaraHoward thank you for that really reassuring! I guess it is the same as having a lazy eye that is never corrected so the brain just uses the strong one

That's exactly what DH has - who knew it was possible to have two lazy eyes?!

Ariela · 06/11/2024 11:14

I have a friend in her 70s lost use of an eye following a stroke. That caused her to lose confidence in going anywhere, which she worked on, and after a year she simply doesn't let it stop her doing anything she did before. Other than be careful with wearing sunglasses / hat in strong light, getting eyes checked at opticians regularly etc.
So I would say it doesn't have to restrict you at all. Your son has the advantage he won't know anything different so will not have the lack of confidence in going places.

Sunflower1235 · 06/11/2024 11:13

@Namaqua wow that’s so impressive! I’m here worried about if he’ll ever be able to read properly let alone fly a plane! @theeyeofdoe yes ur right I guess a lot of people deal with vision that is poorer in one eye and they just crack on!

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Sunflower1235 · 06/11/2024 11:11

@BarbaraHoward thank you for that really reassuring! I guess it is the same as having a lazy eye that is never corrected so the brain just uses the strong one

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Sunflower1235 · 06/11/2024 11:10

@AnnaMagnani thank yoh for sharing that. How did you deal with that as a mother? I’m really struggling and feel very guilty like it’s something I did. So glad to hear it hasn’t affected her- has she had to have surgery on the bad eye to straighten muscles etc?

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Sunflower1235 · 06/11/2024 11:09

@TigerRag thanks! Consultant has said that’s not the case because to be visually impaired it means you better eye cannot be corrected with spectacles so he wouldn’t qualify

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TigerRag · 06/11/2024 11:00

Sunflower1235 · 06/11/2024 10:39

@maudelovesharold thank you! The consultant has said it doesn’t qualify as a visual impairment because his other eye is normal and fine they’ve said the only thing he will need to do is some patching maybe and sports goggles for when he’s older

He can't register as partially sighted because he has one good eye. But he's classed as visually impaired in the sense that his visual impairment can't be corrected by glasses.

Didimum · 06/11/2024 11:00

When this happens from birth or in utero, the remaining functioning eye compensates for the one with limited vision. This also happens if both eyes have limited function. It's not so much to do with the physical parts of your eye, but how the brain processes visual information. Your own field of vision is not actually what your eyes are picking up – it's your brain filling a lot of blank space. If you could see what your eyes were actually seeing, it would be black stripes alternating with strips of visual information.

My sister was born with very limited functioning parts of both her eyes and particularly in one. She leads 100% a normal life. She is also now an optician.

GinToBegin · 06/11/2024 10:58

Sunflower1235 · 06/11/2024 10:41

@GinToBegin thank you! You’re right the brain is amazing at adapting. I need to have more faith he’ll be ok!

There are certainly things that are more difficult, I’m a good driver, but have always hated parking between cars in a car park - I always feel my weak eye struggles to gauge the gap. It’s not impossible, but I always park in the quiet end to make my life easier.

On the other hand, my depth perception is very good (though I was very slow to get the hang of catching a ball, and can no more play tennis than fly) and I can tell instantly whether an item is central (like a mirror on a wall) or off level.

Honestly, I’m sure he’ll find his way and work with what he’s got. Plus he’ll have you in his corner, never underestimate the power of that.

Gemstonebeach · 06/11/2024 10:54

Also I have never worn sports goggles to play netball/basketball.

Favour237 · 06/11/2024 10:50

My husband has very poor vision in one eye but can see totally normally - drives plays sports etc. It’s from an injury that happened as a child so his other eye and brain have adapted to totally compensate for the damage and it’s only if he shuts his good eye he can tell. Your child will have even better compensation with it being from birth.

Gemstonebeach · 06/11/2024 10:48

I have very limited vision in one eye. Like @Blasting my vision is completely dominated by my good eye, my brain only uses my bad eye if my good eye is covered. My life is almost completely normal and I am able to drive. However I can not play small ball sports like tennis and I have been scared of stairs with gaps in them since I was a small child (as a child I thought I would fall through the gaps due to depth perception). My eyes track together so no one can tell.

theeyeofdoe · 06/11/2024 10:47

i surprising number of people have poor vision in one eye and they do really well visually.

He will have less good depth perception and he’ll not be able to be an HGV driver or a policeman or a pilot for example. But yes, he’ll learn to drive and lead a completely normal life.

He does need to be slightly careful with the other eye though.

@maudelovesharold unfortunately it’s a feral developmental condition which causes the eye part of the neural tube to not close properly (which is what creates the gap). You’d need to replace the eyeball and possibly the optic tract too, in order to solve the issue.

Namaqua · 06/11/2024 10:46

My dad only had vision in one eye, it never stopped him in life. He flew in Lancaster planes in the second world war as a navigator and later trained as an architect. He drove, ran marathons and enjoyed hill walking. Having vision only in one eye never seemed to be a hindrance at all.

BarbaraHoward · 06/11/2024 10:46

My DH had such bad eyesight as a kid that they patched his bad eye, so he has very very limited vision in it. His brain essentially just uses his good eye.

Zero impact on his quality of life. Drives etc. Not an issue at all.

I'm sure your son will be absolutely fine. Smile

AnnaMagnani · 06/11/2024 10:44

My DM is blind in one eye from birth. You would never know.

She was rubbish at sports but TBH she was never interested so it wasn't a hardship to her.

The only time anyone notices is when she sees a new doctor and they get fascinated.

Sunflower1235 · 06/11/2024 10:43

@Katiesaidthat thabks so much that’s really reassuring/ does the eye look the same as the other eye? And for sure that would have been harder as he had to adapt to monocular vision!

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Sunflower1235 · 06/11/2024 10:41

@GinToBegin thank you! You’re right the brain is amazing at adapting. I need to have more faith he’ll be ok!

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Sunflower1235 · 06/11/2024 10:39

@maudelovesharold thank you! The consultant has said it doesn’t qualify as a visual impairment because his other eye is normal and fine they’ve said the only thing he will need to do is some patching maybe and sports goggles for when he’s older

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Threecraws · 06/11/2024 10:39

Sunflower1235 · 06/11/2024 10:36

@Threecraws thank yoh for sharing that. Glad to hear it hasn’t impacted too much of your life. The consultant also said people won’t be able to tell someone who has no vision in one eye- has that been the case for you as well?

My eye veers off to the side so it does look a bit different but most people don't realise that I'm blind in it until i tell them and they still forget and don't realise i don't always see them if they approach in that side.

Sunflower1235 · 06/11/2024 10:37

@Tubbyinthehottub thank you for replying ! Wow motor sports lol that’s really impressive has he had this since birth?

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Katiesaidthat · 06/11/2024 10:36

Sorry to hear this.
My uncle when very young, think teen, was involved in a motor accident and he lost all vision in one eye. It is worse in way, as he hadn´t grown up with this I think, and had to adapt. He is a lawyer and was a judo champion. It didn´t affect him in the sense that he didn´t achieve his potential. We all would forget he didn´t have vision in one eye, because said eye look totally normal.

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