Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be convinced I’m going to have a child with autism

159 replies

EalingLucy · 04/11/2024 16:21

Sorry if this offends, i really don’t mean it to.

Im pregnant, at 40. I have adhd and DH has probably adhd / autism. He has a lot of Autism in his family, some quite severe with neices not being able to go to school etc.

we wanted this child but now it’s a possibility I am so scared the child will be profoundly autistic like his family members. I just can’t see how I would cope, and even though it sounds mean, I just don’t want to live like that - they are now adults and unable to live independent lives, it’s hugely worrying and stifling. I don’t think the pandemic helped. All they do is play video games and they have no interest in human interaction at all.

being ND myself I get easily overwhelmed and worried about things and I know I wouldn’t cope well.

on top of this the enormity of motherhood has me very anxious too, what if I miss my life? I like my life! And my alone time - a lot of it.

on the other hand I love children and have felt for a while that I won’t feel fulfilled without one. Like life is sort of pointless even tho I do enjoy mine. Having the closeness of being a mum looks lovely. All these thoughts have disappeared with my anxieties tho and I am just filled with dread and fear.

I am honestly considering a termination because of this anxiety and being convinced I will have an autistic child.

am I being silly?
how do others cope with these worries?
are there any specific kinds of counsellors I should see? It seems generic counsellors can’t help.

im at a loss of what to do.

yabu - you are worrying too much
yanbu - you are right to be worried

OP posts:
EalingLucy · 04/11/2024 17:05

Itdidgetabitmuch · 04/11/2024 16:55

I think there is a need

accusing someone of ‘waiting till 40’ deserved a ‘shut up.’

Yea this @Devilsmommy. you should think more carefully before trying to make someone in a really horrible situation feel even more shit.

I felt fine with the prospect hence trying - tho as it hadn’t happened for so long I assumed it wouldn’t and was looking into adoption.

Pregnancy hormones are not helping, and I feel different now to before we fell pregnant.

I think I have been triggered by seeing DH’s neices yesterday and being reminded of how difficult things are for them. We are all so concerned for them and it’s horribly worrying.

OP posts:
EalingLucy · 04/11/2024 17:02

Falalalalah · 04/11/2024 17:00

But surely this gave you even more time to think through the implications, both for you as a parent to any kind of child, and of your likelihood of bearing a child with autism?

Nobody can reassure you that you will cope with motherhood, or that you will give birth to a child you can cope with. There's no test.

Do the reasons that you wanted a child in the first place, and spent eight years trying to conceive, stack up against your fears? I was 40 when I had DS and my father is autistic, plus my best friend is married to an autistic man (only diagnosed in his 40s when his two sons were) and the mother of two autistic sons. I thought about the risk before TTC, and decided I would be able to cope with what came.

This was my attitude before conceiving - I knew the risks and felt DH and I were well placed to manage them.

but now it’s actually happening I’m terrified - pregnancy hormones not helping I’m sure, I have an extreme reaction to hormones at the best of times.

hence asking for reassurance here but of course the usual suspects start the nasty pile-ons!

OP posts:
EalingLucy · 04/11/2024 17:00

caylamm · 04/11/2024 16:45

I feel like everyone is going to pile on here but I see if that you're just being honest and seeking support, so please ignore some of these replies!

Becoming a mother is hard enough and many people are loaded with all of these same worries about missing their life etc. For some this is extreme and their mental health takes a real nose dive during pregnancy. Antenatal depression and anxiety are real and deserve support. It sounds like you're suffering from both. You can't see the positives anymore despite this being a previously much wanted child. And you're completely overwhelmed with anxiety.

I think the chances of you having a child with such severe autism that they can't enjoy any part of their life is slim. People with autism can, and do, live very happy & meaningful lives. I'm so sorry your DH has found things hard. But that isn't always the case.
I think when you meet your child you will just absolutely adore them, no matter what, and you will be ready to be there for them and support them, no matter what. If they do have autism, they will have the perfect parent who understand being ND and therefore know how to provide real support. Maybe that way they would find it less hard.
Parenting is hard always, so I'm not trivialising that. But if you have wanted to be a mother then I think you should go for it. However, I think you should be referred for support for anxiety ASAP.
If you refer to pregnancy decision making team then you get your discuss your worries with a psychologist and maybe that would benefit you? They can help you decide how you want to proceed? Then hopefully if you go ahead with pregnancy you could get a referral to health psychology asap? Or your local IAPT service? I think you need to talk all of this through with a professional asap.

I think posting on here will sadly only mess with your head more and make you feel ashamed to share your worries!
I really wish you the best of luck whatever you decide

Thank you. This is very sage and accurate advice. I am already being piled on by the usual ppl who just like to be nasty, I will ignore! But you’re right, professional counselling is the way. I’ve already self referred to iapt and spoken to my employee assistance line. Have also asked a fertility counsellor to let me know availability for private sessions.

I have PMDD so I get very stressed with hormonal changes. I think this might be behind my anxiety as I was feeling fine a week ago when I found out!

OP posts:
Falalalalah · 04/11/2024 17:00

EalingLucy · 04/11/2024 16:49

Oh shut up. Of course I thought it though. ‘Waited for 40’ - how about started trying 8 years ago and had given up thinking it wouldn’t happen?

But surely this gave you even more time to think through the implications, both for you as a parent to any kind of child, and of your likelihood of bearing a child with autism?

Nobody can reassure you that you will cope with motherhood, or that you will give birth to a child you can cope with. There's no test.

Do the reasons that you wanted a child in the first place, and spent eight years trying to conceive, stack up against your fears? I was 40 when I had DS and my father is autistic, plus my best friend is married to an autistic man (only diagnosed in his 40s when his two sons were) and the mother of two autistic sons. I thought about the risk before TTC, and decided I would be able to cope with what came.

Itdidgetabitmuch · 04/11/2024 16:55

I think there is a need

accusing someone of ‘waiting till 40’ deserved a ‘shut up.’

Devilsmommy · 04/11/2024 16:54

EalingLucy · 04/11/2024 16:49

Oh shut up. Of course I thought it though. ‘Waited for 40’ - how about started trying 8 years ago and had given up thinking it wouldn’t happen?

No need for the aggressive shut up. If you really did think it through then you wouldn't all of a sudden be wondering if your child would be ND with that family background or questioning to get a termination. I'm sorry you tried for so long and it only just worked out but maybe you need to have a real talk with your DH about whether he's also ready for a child who could quite possibly be autistic too. I wish you all the best as I know it's a shit situation to be in

Itdidgetabitmuch · 04/11/2024 16:54

Honestly I was terrified of having a child with autism, and it was a roll the dice situation. So YANBU.

x2boys · 04/11/2024 16:54

bryceQ · 04/11/2024 16:44

I have a severely autistic child. It's hard work and our life has changed beyond measure but not once have I ever wished he hadn't been born. He is a joy and my beloved son despite how hard it is. The love I feel for him is the strongest feeling in my life. It's made DH and I's relationship really strong and we are happy despite the daily struggles.

Me too and I love him more than life itself but these threads are frustrsting as they rarely acknowledge how disabling autism can be for some people.

Cheshireicecream · 04/11/2024 16:53

bryceQ · 04/11/2024 16:44

I have a severely autistic child. It's hard work and our life has changed beyond measure but not once have I ever wished he hadn't been born. He is a joy and my beloved son despite how hard it is. The love I feel for him is the strongest feeling in my life. It's made DH and I's relationship really strong and we are happy despite the daily struggles.

I found the opposite tbh. Having DC with additional needs wrecked my marriage. Most of my friends with disabled children are divorced/separated. I think it's a far more common scenario.

flipdiddle81 · 04/11/2024 16:52

how far along are you op?

is your partner given how you describe him - someone you’re happy with to be the father of your child?

Dotto · 04/11/2024 16:52

Your body, your choice. Of course you can terminate for any (or no) reason whatsoever.

swiftieswoop · 04/11/2024 16:52

I'm in a reasonably comparable situation to you but not pregnant, I wouldn't want to risk it for the reasons you mention but also because I find life hard as it is just trying to look after myself and that's with lots of free time (outside work) and coping mechanisms. I couldn't even deal with a baby crying because I'm very sensitive to noise, having one crying at random times for at least 5 years seems like my own personal torture. But to a lot of people they'd laugh it off and say "nah it's fine, everyone copes!" That's everyone else though, not me.

You are absolutely going to miss your life and getting used to the idea of throwing it all away will help you if you start preparing for it now so it's less of a shock.

flipdiddle81 · 04/11/2024 16:50

EalingLucy · 04/11/2024 16:49

Oh shut up. Of course I thought it though. ‘Waited for 40’ - how about started trying 8 years ago and had given up thinking it wouldn’t happen?

This is something a little… scary about you oP

You have told a few people on mumsnet threads to “shut up” when they have disagreed with you or asked a question you don’t like

Falalalalah · 04/11/2024 16:50

EalingLucy · 04/11/2024 16:34

Did it turn out okay?

I am keen to hear stories where people’s worries haven’t come to fruition.

I don’t think reading all the threads about how hard it can be raising an nd child on mumsnet has helped - you obviously only see the worst sides.

but I also have friends who have been pretty broken by it and admitted if they can go back they wouldn’t have had them. Which scares the life out of me

And when you choose to have a child, that is the dice you roll. Some people regret having children, yes.

EalingLucy · 04/11/2024 16:49

Devilsmommy · 04/11/2024 16:37

Exactly, and you've also waited til you're 40 which makes the risk of something being wrong even worse. Not that I'm saying ASD is wrong btw. I don't think you thought this through at all.

Oh shut up. Of course I thought it though. ‘Waited for 40’ - how about started trying 8 years ago and had given up thinking it wouldn’t happen?

OP posts:
Bigcat25 · 04/11/2024 16:49

It sounds like those in question had parenting issues that don't have to apply to your children. And just bc someone likes video games doesn't mean their life isn't worthwhile. If your child is nd they likely won't experience the late diagnosis that some in your family had.

Newterm · 04/11/2024 16:48

Does your husband feel happy about the pregnancy? Does he understand you may have a child who is ND? Is he fully committed to parenting a child no matter what?

Anicecumberlandsausage · 04/11/2024 16:48

My job attracts people with ND and it's such a huge spectrum which means I, as a non-ND person, must exercise patience sometimes. But generally I find it no problem. Sometimes the retention of information is patchy, and conversations are a bit chaotic, and there's the occasional obsession with something...but having a diversity of thought processes is actually a good thing for problem solving. I am actually not too suited to my job, my head is away with the fairies, often, so I value colleagues with the ability to focus hard and be extra logical.

OP I wouldn't worry too much. Being ND is more prevalent than you think. My DD said recently she suspected her dDad has ADHD and I see it now. Odd I didn't notice it when I was married to him. My nephew also has traits.

Ella31 · 04/11/2024 16:47

YouLookLikeYoureHotToGo · 04/11/2024 16:39

Parenting has its challenges whatever your child's needs are.
Any NT coupling might have a child with significant needs, whatever the cause.......it's a roll of the dice.
A child can have an unexpected, life changing accident.

To be a parent is to love and to worry.

You will love your child more than you can possibly imagine.

Your life is about to change so drastically in a million different ways, some hard, some breathtakingly beautiful.

Your child will have their own experiences, their own journey, their own ups and downs. You will love them whatever form that takes for them.

For context one of my DC is autistic.

Was just going to write this. No serious medical history behind me or dh, expecting identical twins, perfect scans and boom....first beautiful boy is born sleeping at birth. My second angel died in my arms 3 days later. You never know what life will throw. I wouldn't change having them for a moment though. Becoming their mam was the best thing I've ever done.

You aren't wrong to worry, OP, but the reality is, it's a roll of a dice really.

Nettleskeins · 04/11/2024 16:46

One way to frame it is that it's because you will MAKE a GOOD and thoughtful parent that you have anxieties and doubts now. Nature is preparing you for your job as a parent by giving your brain new areas of enquiry. Later on in pregnancy progesterone kicks in and you will possibly feel very much calmer.
Every stage evolution prepares us for the future, you are hardwired ATM to be thinking of how to make your offsprings life better a d safer which is why you feel doubts and anxieties . To meet those needs

Singleandproud · 04/11/2024 16:45

People don't tend to post on a forum about things that aren't challenging, they post for help.

Me posting about how my autistic daughter is highly gifted, has friends, was always chosen for the public speaking roles at primary, as Mary in the Nativity etc. that's she's predicted all 9s in her GCSEs, that she spoke early and was signing in sentences long before others her age were talking, that she potty trained herself by deciding she wasn't wearing nappies anymore at 2. That she never, ever shows any challenging behaviour, not even as a toddler she never tantrummed, loves rules and does anything you ask her.

That doesn't help a person struggling with their own child who has autism impacting them in a significantly different way, who is incontinent, non-verbal and aggressive.

So just because you don't read positive stories it doesn't mean they aren't out there. My DD still has her struggles around noise, and exhaustion and the busy school environment, food and visiting new places but it isn't insurmountable

caylamm · 04/11/2024 16:45

I feel like everyone is going to pile on here but I see if that you're just being honest and seeking support, so please ignore some of these replies!

Becoming a mother is hard enough and many people are loaded with all of these same worries about missing their life etc. For some this is extreme and their mental health takes a real nose dive during pregnancy. Antenatal depression and anxiety are real and deserve support. It sounds like you're suffering from both. You can't see the positives anymore despite this being a previously much wanted child. And you're completely overwhelmed with anxiety.

I think the chances of you having a child with such severe autism that they can't enjoy any part of their life is slim. People with autism can, and do, live very happy & meaningful lives. I'm so sorry your DH has found things hard. But that isn't always the case.
I think when you meet your child you will just absolutely adore them, no matter what, and you will be ready to be there for them and support them, no matter what. If they do have autism, they will have the perfect parent who understand being ND and therefore know how to provide real support. Maybe that way they would find it less hard.
Parenting is hard always, so I'm not trivialising that. But if you have wanted to be a mother then I think you should go for it. However, I think you should be referred for support for anxiety ASAP.
If you refer to pregnancy decision making team then you get your discuss your worries with a psychologist and maybe that would benefit you? They can help you decide how you want to proceed? Then hopefully if you go ahead with pregnancy you could get a referral to health psychology asap? Or your local IAPT service? I think you need to talk all of this through with a professional asap.

I think posting on here will sadly only mess with your head more and make you feel ashamed to share your worries!
I really wish you the best of luck whatever you decide

bryceQ · 04/11/2024 16:44

I have a severely autistic child. It's hard work and our life has changed beyond measure but not once have I ever wished he hadn't been born. He is a joy and my beloved son despite how hard it is. The love I feel for him is the strongest feeling in my life. It's made DH and I's relationship really strong and we are happy despite the daily struggles.

TwattyMcFuckFace · 04/11/2024 16:43

EalingLucy · 04/11/2024 16:28

Yes, it doesn’t seem logical does it, and it isnt.

I suspect pregnant hormones are not helping.

no need to scoff, if you’re here to make snide remarks then maybe go and find something productive to do?

So anyone whose opinion you dislike is going to be accused of 'scoffing'?

Ok, as long as we know.

flipdiddle81 · 04/11/2024 16:40

what is your mental health like Op?