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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be convinced I’m going to have a child with autism

159 replies

EalingLucy · 04/11/2024 16:21

Sorry if this offends, i really don’t mean it to.

Im pregnant, at 40. I have adhd and DH has probably adhd / autism. He has a lot of Autism in his family, some quite severe with neices not being able to go to school etc.

we wanted this child but now it’s a possibility I am so scared the child will be profoundly autistic like his family members. I just can’t see how I would cope, and even though it sounds mean, I just don’t want to live like that - they are now adults and unable to live independent lives, it’s hugely worrying and stifling. I don’t think the pandemic helped. All they do is play video games and they have no interest in human interaction at all.

being ND myself I get easily overwhelmed and worried about things and I know I wouldn’t cope well.

on top of this the enormity of motherhood has me very anxious too, what if I miss my life? I like my life! And my alone time - a lot of it.

on the other hand I love children and have felt for a while that I won’t feel fulfilled without one. Like life is sort of pointless even tho I do enjoy mine. Having the closeness of being a mum looks lovely. All these thoughts have disappeared with my anxieties tho and I am just filled with dread and fear.

I am honestly considering a termination because of this anxiety and being convinced I will have an autistic child.

am I being silly?
how do others cope with these worries?
are there any specific kinds of counsellors I should see? It seems generic counsellors can’t help.

im at a loss of what to do.

yabu - you are worrying too much
yanbu - you are right to be worried

OP posts:
flipdiddle81 · 04/11/2024 17:24

you really don’t want to elaborate on your husband’s view on having a baby given his many years of serious mental health struggles

EalingLucy · 04/11/2024 17:24

Commonsense22 · 04/11/2024 17:23

OP, the pregnancy hormones play all kinds of tricks on you.
They make you worry a lot. Just take one day at a time and enjoy your beautiful baby when thry arrive.

Thank you :)

OP posts:
Commonsense22 · 04/11/2024 17:23

EalingLucy · 04/11/2024 16:27

So do I tbh! Most of my best friends and fave people are nd.

im just worried about if it’s really severe like his family.

tho tbh I don’t think the parents did them any favours - they don’t seem to have tried to help them be sociable at all and they themselves seem to never want to leave the house or take any risks (even down to not wanting their daughter to go to university ) which has made the children worse.

OP, the pregnancy hormones play all kinds of tricks on you.
They make you worry a lot. Just take one day at a time and enjoy your beautiful baby when thry arrive.

EalingLucy · 04/11/2024 17:23

Nina1013 · 04/11/2024 17:20

Yes, it’s very likely that your child will be neurodivergent.

No, you will not have any idea how that will appear in terms of severity, etc.

There are far more people who are neurodivergent living pretty ordinary lives, maybe a bit ‘quirky’, than there are non verbal autistic people who will never live independently for example.

However, we have neurodivergence in our family and knowing what I now know and having parented a child with various diagnoses to adulthood, I would never have another child under any circumstances, because of my first two sentences.

Nobody can tell you what to do, especially those who have never experienced parenting a child with additional needs. There are Facebook groups you could join which would give you a flavour of what life may look like. I know I couldn’t cope with the worst it could be, so I wouldn’t have another child.

Thank you, it’s good to have this perspective too.

I think it’s important to be clear headed about these things and making the choice to not have another because of the risk is totally fair.

I guess I just struggle with what my actual risk is - I’ve got several neices and nephews on my side of the family who are not autistic and leading very happy healthy lives so it’s not a clear picture.

OP posts:
EalingLucy · 04/11/2024 17:20

Mrsttcno1 · 04/11/2024 17:17

Only you can decide how you feel OP. And it’s all very circumstantial and up to chance as you see from posters here, for some it makes marriage stronger, for some it destroys marriage, for some it’s just a small added factor to life with that child, for others it’s a child who can never be independent and needs daily help forever. There’s no crystal ball, it’s a very personal decision.

Yes. I guess this is my key challenge - handling the uncertainty.

I’ve gone from being super worried I will never conceive in my mid30s to super worried I have conceived and it is the wrong choice.

I know this is anxiety but it’s very hard to see out of it atm.

OP posts:
Nina1013 · 04/11/2024 17:20

Yes, it’s very likely that your child will be neurodivergent.

No, you will not have any idea how that will appear in terms of severity, etc.

There are far more people who are neurodivergent living pretty ordinary lives, maybe a bit ‘quirky’, than there are non verbal autistic people who will never live independently for example.

However, we have neurodivergence in our family and knowing what I now know and having parented a child with various diagnoses to adulthood, I would never have another child under any circumstances, because of my first two sentences.

Nobody can tell you what to do, especially those who have never experienced parenting a child with additional needs. There are Facebook groups you could join which would give you a flavour of what life may look like. I know I couldn’t cope with the worst it could be, so I wouldn’t have another child.

EalingLucy · 04/11/2024 17:19

Tdcp · 04/11/2024 16:38

I have autism and adhd, we suspect dp does. We also suspect our 10 year has autism. This affects her in sensory ways such as noise in particular and some touch, she struggles in social settings but she is also extremely bright and has a real passion for animals and animal facts. She is genuinely the most loving and caring soul I've ever met. I understand the worry, I worry about this myself as we are expecting currently however, autism doesn't always mean the severity of your nieces. Ultimately it is up to you what you decide to do however, this is something you need to be absolutely sure you can live with should you terminate, you don't want the lingering doubt of feeling like you have made a mistake (coming from experience)

See this sounds lovely, and doable.

OP posts:
Itdidgetabitmuch · 04/11/2024 17:18

EalingLucy · 04/11/2024 17:12

How did it work out?

As far as I know both mine are NT, but they are very young still. One of the things I’ve come to realise though is my ‘job’ is to be what they need and if they are disabled in any way (I am a bit worried ds has some mild learning difficulties tbh) then I just have to support that. The biggest challenge is comparison.

Mrsttcno1 · 04/11/2024 17:17

Only you can decide how you feel OP. And it’s all very circumstantial and up to chance as you see from posters here, for some it makes marriage stronger, for some it destroys marriage, for some it’s just a small added factor to life with that child, for others it’s a child who can never be independent and needs daily help forever. There’s no crystal ball, it’s a very personal decision.

EalingLucy · 04/11/2024 17:16

TinyBlueHoe · 04/11/2024 17:14

To be honest though all parents feel that!

Seeing it through my eyes, I wouldn't want a child that struggled so much, who would? (she has had to fight and fight for help) but I think when they're yours, you love them and would do anything for them.

So yes, it might be really hard, but you won't mind! And equally it might not be as difficult as you think.

My friends mind tho. I think that’s what scares me. They’ve been badly affected by it.

my sister in law and her partner handle it better I think. But they are so on the spectrum themselves I think it suits them to have children who also don’t like change etc.

OP posts:
InterIgnis · 04/11/2024 17:16

It’s a legitimate worry to have. Only you can decide whether to go ahead with the pregnancy or not. Even if planned, you’re not wrong if you change your mind now it’s out of the realm of the purely theoretical.

EalingLucy · 04/11/2024 17:15

Itdidgetabitmuch · 04/11/2024 17:14

I think a lot of posters don’t understand how antenatal depression can be a real thing. In my pregnancy i fixated on not wanting a boy which I feel awful about now but those feelings were very real and at the time very scary.

The whole point of feelings is that’s what they are - you feel a certain way and they don’t always respond to logic. And attempts to make people feel bad for feeling them are futile as mostly the person already feels bad but they still feel the feelings.

Yes, this!!

OP posts:
EalingLucy · 04/11/2024 17:14

IVFmumoftwo · 04/11/2024 17:13

Isn't it a risk that any child could have a disability when you are pregnant? They could have a disability as a result of birth. You just have to cross your fingers really and hope for the best. I get quite cross at the "Autism is a super power" brigade as for a fair few people it significantly affects everyday life but many others have normal lives. My husband is definitely on the spectrum but has a job and family. My nephew on the other hand is unlikely to completely independent.

Yes, any birth is a risk 100% which is why I feel my pregnant hormones may be doing a number on me.

were you worried about autism if you tried for a baby?

OP posts:
Itdidgetabitmuch · 04/11/2024 17:14

I think a lot of posters don’t understand how antenatal depression can be a real thing. In my pregnancy i fixated on not wanting a boy which I feel awful about now but those feelings were very real and at the time very scary.

The whole point of feelings is that’s what they are - you feel a certain way and they don’t always respond to logic. And attempts to make people feel bad for feeling them are futile as mostly the person already feels bad but they still feel the feelings.

TinyBlueHoe · 04/11/2024 17:14

EalingLucy · 04/11/2024 17:11

Yes my friends have this worry. I would really struggle with that.

To be honest though all parents feel that!

Seeing it through my eyes, I wouldn't want a child that struggled so much, who would? (she has had to fight and fight for help) but I think when they're yours, you love them and would do anything for them.

So yes, it might be really hard, but you won't mind! And equally it might not be as difficult as you think.

EalingLucy · 04/11/2024 17:13

Cheshireicecream · 04/11/2024 16:53

I found the opposite tbh. Having DC with additional needs wrecked my marriage. Most of my friends with disabled children are divorced/separated. I think it's a far more common scenario.

Or trapped in marriages where neither feel they can leave as life would be so hard solo parenting. I know one couple in this situation.

OP posts:
IVFmumoftwo · 04/11/2024 17:13

Isn't it a risk that any child could have a disability when you are pregnant? They could have a disability as a result of birth. You just have to cross your fingers really and hope for the best. I get quite cross at the "Autism is a super power" brigade as for a fair few people it significantly affects everyday life but many others have normal lives. My husband is definitely on the spectrum but has a job and family. My nephew on the other hand is unlikely to completely independent.

EalingLucy · 04/11/2024 17:12

Itdidgetabitmuch · 04/11/2024 16:54

Honestly I was terrified of having a child with autism, and it was a roll the dice situation. So YANBU.

How did it work out?

OP posts:
EalingLucy · 04/11/2024 17:11

TinyBlueHoe · 04/11/2024 17:08

My friend was in the same position, she decided to continue with the pregnancy.

Her son does have autism which she expected, he is quite affected and goes to a special school. I don't think he'll ever be able to live independently but she's really glad she had him, he is her world!

She worries about who will look after him when she's gone, though.

Yes my friends have this worry. I would really struggle with that.

OP posts:
EalingLucy · 04/11/2024 17:10

x2boys · 04/11/2024 16:54

Me too and I love him more than life itself but these threads are frustrsting as they rarely acknowledge how disabling autism can be for some people.

Edited

Yes. This. I have two sets of friends who are shadows of their former selves because life is just so utterly hard for them. They can’t leave the house, go on holiday, invite people round, will have to look after their children forever (one is non verbal and unable to be in school, the other not so bad but still has severely affected my friends mental health)

OP posts:
flipdiddle81 · 04/11/2024 17:09

EalingLucy · 04/11/2024 17:08

It’s something I definitely felt ready for before falling pregnant, so I suspect this anxiety is somewhat hormonal.

I’ve also been super fixated on having a miscarriage, go figure!

yes you did

but your husband given how you describe his struggles?

EalingLucy · 04/11/2024 17:08

MammaKel · 04/11/2024 16:38

I have a child with a genetic condition and ASD - he's easier than my non autistic child (although I have my suspicions).

Every child whether they have ND or not are different, some are hard, some are chill and everything in-between.

Your life will absolutely change, alone time becomes more challenging especially in the earlier years.

If having a child isn't something you think you can cope with then a termination might be the right choice for you because once they're here, that's it, you have to just get on with it.

That being said, I wouldn't change anything about my life and I was very similar to you.

It’s something I definitely felt ready for before falling pregnant, so I suspect this anxiety is somewhat hormonal.

I’ve also been super fixated on having a miscarriage, go figure!

OP posts:
TinyBlueHoe · 04/11/2024 17:08

My friend was in the same position, she decided to continue with the pregnancy.

Her son does have autism which she expected, he is quite affected and goes to a special school. I don't think he'll ever be able to live independently but she's really glad she had him, he is her world!

She worries about who will look after him when she's gone, though.

EalingLucy · 04/11/2024 17:06

ThatsNotMyTeen · 04/11/2024 16:34

Oh dear, bless you!

pregnancy wobbles are normal and yes you may miss elements of your old life but you can get a lot of it back as they get bigger.

and you may have a child with autism - tbh I never considered that I might, but guess what I do. We’ve had some struggles with him I’m not going to lie but he’s in mainstream school
and quite independent and doing well. I certainly don’t wish I’d never had him.

I am sure you’ll be OK

Thank you.

OP posts:
flipdiddle81 · 04/11/2024 17:06

has your husband always been keen for a child OP given how you describe his extreme struggles with his mental health over many years