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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be convinced I’m going to have a child with autism

159 replies

EalingLucy · 04/11/2024 16:21

Sorry if this offends, i really don’t mean it to.

Im pregnant, at 40. I have adhd and DH has probably adhd / autism. He has a lot of Autism in his family, some quite severe with neices not being able to go to school etc.

we wanted this child but now it’s a possibility I am so scared the child will be profoundly autistic like his family members. I just can’t see how I would cope, and even though it sounds mean, I just don’t want to live like that - they are now adults and unable to live independent lives, it’s hugely worrying and stifling. I don’t think the pandemic helped. All they do is play video games and they have no interest in human interaction at all.

being ND myself I get easily overwhelmed and worried about things and I know I wouldn’t cope well.

on top of this the enormity of motherhood has me very anxious too, what if I miss my life? I like my life! And my alone time - a lot of it.

on the other hand I love children and have felt for a while that I won’t feel fulfilled without one. Like life is sort of pointless even tho I do enjoy mine. Having the closeness of being a mum looks lovely. All these thoughts have disappeared with my anxieties tho and I am just filled with dread and fear.

I am honestly considering a termination because of this anxiety and being convinced I will have an autistic child.

am I being silly?
how do others cope with these worries?
are there any specific kinds of counsellors I should see? It seems generic counsellors can’t help.

im at a loss of what to do.

yabu - you are worrying too much
yanbu - you are right to be worried

OP posts:
Itdidgetabitmuch · 04/11/2024 17:45

flipdiddle81 · 04/11/2024 17:42

you said his twenties and thirties were very difficult

is that not two decades?

My twenties and thirties were difficult too. They are for many people.

Nettleskeins · 04/11/2024 17:44

I think it is incredibly unfair to accuse OP of narcissistic mother syndrome before she has even given birth
It reminds me of those who used to tell unmarried mothers they were selfish unless they gave up babies for adoption.
Everyone wants a close mother or father child relationship and everyone surely has hopes and dreams of parenthood, that isn't narcissistic...it's just broody/biology

flipdiddle81 · 04/11/2024 17:42

EalingLucy · 04/11/2024 17:31

Lol ok love, keep putting words in my mouth!

it wasn’t ‘decades’ - and I’ve answered your question, and had already stated he really wants a child!

you said his twenties and thirties were very difficult

is that not two decades?

EalingLucy · 04/11/2024 17:41

Nina1013 · 04/11/2024 17:37

Honestly absolutely nobody can tell you.

However, you are pregnant and I think that’s the big difference - you obviously knew the possibilities and went ahead anyway. Whereas I would (and do) take every step available to make sure I would never fall pregnant again.

Just don’t kid yourself that you can ‘parent it out’. I read what you said about your husband’s nieces. I would bet my house that they parented the way they did out of necessity not because they were lazy or permissive. You need to understand that you can’t ’do better’ or ‘fix’ this like it’s a problem. Thinking like that is setting yourself up for potentially a lot of frustration. You need to accept that you can deal with whatever comes your way - and believe that.

However, marriages break up, careers end, etc over parenting ND children. If they can’t cope or are expelled or suspended etc - are you prepared to be a stay at home carer? These are all genuine possibilities, as you’ll see the various boards and Facebook groups.

I have done better than most in as much as I was able to leave a career job that I loved, but still use my qualification at a flexible and less demanding level so I have continued to work - but I have not been able to fulfil my career potential or even get close to it.

That being said though - ten years ago nobody even really realised the link and that it passes in families - if you didn’t know, would you just be happy that you’re pregnant? Because, if it changes anything at all, a large part of me wishes I had decided to have another baby BEFORE I knew, and I am sure I wouldn’t have regretted it. It’s very different looking in hindsight or weighing things up clinically as you are doing here vs just happily enjoying a pregnancy and not trying to imagine what might be..

Yes that’s a very interesting point. It would certainly be easier if I didn’t know about the risks!

yes we have discussed if the child needed full time care, it would likely be my dh as I earn a lot more. Harder if the marriage breaks up tho!

I should chat more with him about this.

his nephew was expelled sadly and has been at home for years now. His sister has had to adapt a lot, it looks very hard.

OP posts:
IWouldRatherBeOnHoliday · 04/11/2024 17:38

I have to be honest and say it makes me really sad to hear that your main reason for having a child is that you don't want to miss out and you want the closeness of a mother-child relationship.

This seems to me to be the start of being a narcissistic mother, so I think you may need to step back and reevaluate.

The reality is that your child could have any sort of health problem - they could have a genetic disorder, they could be injured during birth or catch an illness/be injured during childhood, all with potential long term consequences.

When we choose to have children, we have to choose to step into the unknown and commit to loving the child and caring for them come what may. If you can't commit to that, then I don't think you should have tried for a baby.

I'm not trying to be unkind here and I am sorry that these thoughts are causing you distress. I hope you can discuss this with your midwife and seek some support.

Nina1013 · 04/11/2024 17:38

Mrsttcno1 · 04/11/2024 17:17

Only you can decide how you feel OP. And it’s all very circumstantial and up to chance as you see from posters here, for some it makes marriage stronger, for some it destroys marriage, for some it’s just a small added factor to life with that child, for others it’s a child who can never be independent and needs daily help forever. There’s no crystal ball, it’s a very personal decision.

This is very very true.

EalingLucy · 04/11/2024 17:37

KittensSchmittens · 04/11/2024 17:35

I'm ND and have one child with ND and one without. Tbh I find my ND child much easier to relate to. My NT child baffles me a lot of the time. He tires me out with his constant socialising 😂 As an ND person your child being NT might be the bigger challenge. You just can't predict these things. However what I didn't fully understand before having children is was how much you just adore the child you have. I love both of mine equally and fiercely.

Oh wow, this is such an interesting perspective. I have found NT boyfriends both exhausting and boring with their constant need to socialise and talk! So perhaps having a ND child would be better!

OP posts:
Nina1013 · 04/11/2024 17:37

EalingLucy · 04/11/2024 17:23

Thank you, it’s good to have this perspective too.

I think it’s important to be clear headed about these things and making the choice to not have another because of the risk is totally fair.

I guess I just struggle with what my actual risk is - I’ve got several neices and nephews on my side of the family who are not autistic and leading very happy healthy lives so it’s not a clear picture.

Honestly absolutely nobody can tell you.

However, you are pregnant and I think that’s the big difference - you obviously knew the possibilities and went ahead anyway. Whereas I would (and do) take every step available to make sure I would never fall pregnant again.

Just don’t kid yourself that you can ‘parent it out’. I read what you said about your husband’s nieces. I would bet my house that they parented the way they did out of necessity not because they were lazy or permissive. You need to understand that you can’t ’do better’ or ‘fix’ this like it’s a problem. Thinking like that is setting yourself up for potentially a lot of frustration. You need to accept that you can deal with whatever comes your way - and believe that.

However, marriages break up, careers end, etc over parenting ND children. If they can’t cope or are expelled or suspended etc - are you prepared to be a stay at home carer? These are all genuine possibilities, as you’ll see the various boards and Facebook groups.

I have done better than most in as much as I was able to leave a career job that I loved, but still use my qualification at a flexible and less demanding level so I have continued to work - but I have not been able to fulfil my career potential or even get close to it.

That being said though - ten years ago nobody even really realised the link and that it passes in families - if you didn’t know, would you just be happy that you’re pregnant? Because, if it changes anything at all, a large part of me wishes I had decided to have another baby BEFORE I knew, and I am sure I wouldn’t have regretted it. It’s very different looking in hindsight or weighing things up clinically as you are doing here vs just happily enjoying a pregnancy and not trying to imagine what might be..

TwattyMcFuckFace · 04/11/2024 17:37

I have adhd and DH has probably adhd / autism.

Has your DH not had a diagnosis?

EalingLucy · 04/11/2024 17:36

MammaKel · 04/11/2024 17:34

Sorry to post again op but my DH has the same genetic condition my son has and is waiting for a ASD/ADHD assessment and he's the best, most wonderful father I could have given my children and he has struggled with his mental health in the past.

Thank you.

I think mental health issues can make people more empathetic and wise. My DH is those things, along with patient and kind.

I’m glad yours is a wonderful father too.

OP posts:
EalingLucy · 04/11/2024 17:35

ricestardust · 04/11/2024 17:32

Logically, as there is a strong family history and both parents are ND, then your baby will be ND too. The first few years will be a huge loss of alone time; very young kids are clingy and need your physical help with everything. It will pass faster than it feels at the time. That happens with any baby/toddler, NT or ND.

Severe anything is a gene mutation and cannot be predicted; it's a roll of the dice that could affect anyone, not just you. The more realistic likelihood is simply that your child will have "normal" ADHD or ASD or a common comorbidity and will otherwise be totally healthy.

So, yea, you're being "silly". I cope with logic (and forgetting stuff; I have ADHD too). Idk about therapy, but I'd guess any counsellor who specialises in anxiety. YANBU but you are borrowing too much fear. The most likely outcome is a child who is a bit like you and a bit like your DH but otherwise lovely and healthy and with as good a chance at a good future as the next kid. Idk if it's the hormones or the unknown but I totally get not being able to believe everything will be okay until the healthy baby actually arrives. It's okay to be scared and anxious. Just don't let it take over completely. Best wishes with the rest of your pregnancy. x

This is a great response, thank you.

loved this and could definitely cope with it:

‘The most likely outcome is a child who is a bit like you and a bit like your DH but otherwise lovely and healthy and with as good a chance at a good future as the next kid. ’

and it is probably more likely than imagining parenting my neices, who has two parents who are a lot more ND than me and my DH

OP posts:
KittensSchmittens · 04/11/2024 17:35

I'm ND and have one child with ND and one without. Tbh I find my ND child much easier to relate to. My NT child baffles me a lot of the time. He tires me out with his constant socialising 😂 As an ND person your child being NT might be the bigger challenge. You just can't predict these things. However what I didn't fully understand before having children is was how much you just adore the child you have. I love both of mine equally and fiercely.

MammaKel · 04/11/2024 17:34

Sorry to post again op but my DH has the same genetic condition my son has and is waiting for a ASD/ADHD assessment and he's the best, most wonderful father I could have given my children and he has struggled with his mental health in the past.

EalingLucy · 04/11/2024 17:33

Ponderingwindow · 04/11/2024 17:26

Any pregnancy could result in a child with a profound disability and the need for lifelong care. there is no reason to worry about ASD in particular. It is just one of any number of conditions every parent must be prepared to take on.

Just have to add the standard spiel. There are plenty of us who are very happy being autistic and would not want to be neurotypical. We have successful careers and happy lives. Sure, we may be unusual, but that doesn’t mean there is anything wrong with us.

i wasn’t saying there is anything wrong with autistic people - of course there are many happy ones. I think I am probably one tbh and have had a very successful life if you were to list achievements etc. My DH hasn’t had a conventionally successful life but is the loveliest person I know.

it’s just the scenario with DH’s neices I worry about, which is pretty dire and extreme.

OP posts:
Itdidgetabitmuch · 04/11/2024 17:32

flipdiddle81 · 04/11/2024 17:30

indeed they can

whether they should whilst they are still suffering from said mental health issues is another matter entirely

Start your own thread to discuss this and stop badgering a pregnant woman who is struggling already.

EalingLucy · 04/11/2024 17:32

flipdiddle81 · 04/11/2024 17:30

indeed they can

whether they should whilst they are still suffering from said mental health issues is another matter entirely

So now you’re telling me my dh doesn’t have a right to a child? Wow. He doesn’t even suffer anymore?! You’re very, very strange and I’d like it if you could leave this thread as you’re not adding anything constructive. He would be the most wonderful father.

OP posts:
ricestardust · 04/11/2024 17:32

Logically, as there is a strong family history and both parents are ND, then your baby will be ND too. The first few years will be a huge loss of alone time; very young kids are clingy and need your physical help with everything. It will pass faster than it feels at the time. That happens with any baby/toddler, NT or ND.

Severe anything is a gene mutation and cannot be predicted; it's a roll of the dice that could affect anyone, not just you. The more realistic likelihood is simply that your child will have "normal" ADHD or ASD or a common comorbidity and will otherwise be totally healthy.

So, yea, you're being "silly". I cope with logic (and forgetting stuff; I have ADHD too). Idk about therapy, but I'd guess any counsellor who specialises in anxiety. YANBU but you are borrowing too much fear. The most likely outcome is a child who is a bit like you and a bit like your DH but otherwise lovely and healthy and with as good a chance at a good future as the next kid. Idk if it's the hormones or the unknown but I totally get not being able to believe everything will be okay until the healthy baby actually arrives. It's okay to be scared and anxious. Just don't let it take over completely. Best wishes with the rest of your pregnancy. x

EalingLucy · 04/11/2024 17:31

flipdiddle81 · 04/11/2024 17:29

read how the op describes her husband and his decades of mental health difficulties

this isn’t a man who wants a baby

Lol ok love, keep putting words in my mouth!

it wasn’t ‘decades’ - and I’ve answered your question, and had already stated he really wants a child!

OP posts:
flipdiddle81 · 04/11/2024 17:30

Itdidgetabitmuch · 04/11/2024 17:29

And people with mental health problems are allowed to become parents. FFS Hmm

indeed they can

whether they should whilst they are still suffering from said mental health issues is another matter entirely

flipdiddle81 · 04/11/2024 17:29

Itdidgetabitmuch · 04/11/2024 17:28

What is this? Are you hinting at something? Maybe I’m a bit on the spectrum myself but I’ve no idea what you’re on about.

read how the op describes her husband and his decades of mental health difficulties

this isn’t a man who wants a baby

Itdidgetabitmuch · 04/11/2024 17:29

And people with mental health problems are allowed to become parents. FFS Hmm

Itdidgetabitmuch · 04/11/2024 17:28

flipdiddle81 · 04/11/2024 17:24

you really don’t want to elaborate on your husband’s view on having a baby given his many years of serious mental health struggles

What is this? Are you hinting at something? Maybe I’m a bit on the spectrum myself but I’ve no idea what you’re on about.

EalingLucy · 04/11/2024 17:28

flipdiddle81 · 04/11/2024 17:24

you really don’t want to elaborate on your husband’s view on having a baby given his many years of serious mental health struggles

No, I’m not avoiding the question - I just can’t read most of your posts properly tbh as they were worded strangely.

he’s very keen - obviously. I said we both were. He feels a fair few of his challenges were environmental and that the world is different today. He’s also learnt important coping strategies, as have I over the years.

OP posts:
EalingLucy · 04/11/2024 17:26

Itdidgetabitmuch · 04/11/2024 17:18

As far as I know both mine are NT, but they are very young still. One of the things I’ve come to realise though is my ‘job’ is to be what they need and if they are disabled in any way (I am a bit worried ds has some mild learning difficulties tbh) then I just have to support that. The biggest challenge is comparison.

Yea that’s a great way to see it.

I can see comparison being hard if your child doesn’t hit milestones or isn’t able to live an independent life.

I was academically gifted as a child so I will have to be careful not to expect the same from my child. I don’t think I will care tho- I just want them to be happy and lead some semblance of a life they like.

OP posts:
Ponderingwindow · 04/11/2024 17:26

Any pregnancy could result in a child with a profound disability and the need for lifelong care. there is no reason to worry about ASD in particular. It is just one of any number of conditions every parent must be prepared to take on.

Just have to add the standard spiel. There are plenty of us who are very happy being autistic and would not want to be neurotypical. We have successful careers and happy lives. Sure, we may be unusual, but that doesn’t mean there is anything wrong with us.