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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be convinced I’m going to have a child with autism

159 replies

EalingLucy · 04/11/2024 16:21

Sorry if this offends, i really don’t mean it to.

Im pregnant, at 40. I have adhd and DH has probably adhd / autism. He has a lot of Autism in his family, some quite severe with neices not being able to go to school etc.

we wanted this child but now it’s a possibility I am so scared the child will be profoundly autistic like his family members. I just can’t see how I would cope, and even though it sounds mean, I just don’t want to live like that - they are now adults and unable to live independent lives, it’s hugely worrying and stifling. I don’t think the pandemic helped. All they do is play video games and they have no interest in human interaction at all.

being ND myself I get easily overwhelmed and worried about things and I know I wouldn’t cope well.

on top of this the enormity of motherhood has me very anxious too, what if I miss my life? I like my life! And my alone time - a lot of it.

on the other hand I love children and have felt for a while that I won’t feel fulfilled without one. Like life is sort of pointless even tho I do enjoy mine. Having the closeness of being a mum looks lovely. All these thoughts have disappeared with my anxieties tho and I am just filled with dread and fear.

I am honestly considering a termination because of this anxiety and being convinced I will have an autistic child.

am I being silly?
how do others cope with these worries?
are there any specific kinds of counsellors I should see? It seems generic counsellors can’t help.

im at a loss of what to do.

yabu - you are worrying too much
yanbu - you are right to be worried

OP posts:
flipdiddle81 · 04/11/2024 19:07

EalingLucy · 04/11/2024 19:05

Have you never heard of anxiety?

You enjoyed that little dig though, didn’t you. Hope you’re really basking in the glow.

i have

but you are now scorning people “lol” for having a view that less than an hour ago, you were “convinced” about

TinyBlueHoe · 04/11/2024 19:07

EalingLucy · 04/11/2024 18:58

Yes very true. I am talking about being worried about the truly disabling kind.

loving the blanket statements of ‘your child will definitely have autism. You should terminate it’ lol.

funny how this person knows more than any doctor or genetic counsellor could.

honestly, mumsnet seems to attract some absolutely horrible people.

glad and grateful to those tho that shared their experiences and tried to be balanced in perspective.

thank you.

...but you've said you are convinced the baby will be autistic, and you've considered a termination - why are you angry that some agree with you?

EalingLucy · 04/11/2024 19:05

flipdiddle81 · 04/11/2024 19:00

loving the blanket statements of ‘your child will definitely have autism. You should terminate it’ lol.
funny how this person knows more than any doctor or genetic counsellor could.

says the OP “convinced” her child will be autistic

Have you never heard of anxiety?

You enjoyed that little dig though, didn’t you. Hope you’re really basking in the glow.

OP posts:
flipdiddle81 · 04/11/2024 19:00

loving the blanket statements of ‘your child will definitely have autism. You should terminate it’ lol.
funny how this person knows more than any doctor or genetic counsellor could.

says the OP “convinced” her child will be autistic

EalingLucy · 04/11/2024 18:58

Soukmyfalafel · 04/11/2024 18:46

Thanks for mentioning this. I think this is really important.

Yes very true. I am talking about being worried about the truly disabling kind.

loving the blanket statements of ‘your child will definitely have autism. You should terminate it’ lol.

funny how this person knows more than any doctor or genetic counsellor could.

honestly, mumsnet seems to attract some absolutely horrible people.

glad and grateful to those tho that shared their experiences and tried to be balanced in perspective.

thank you.

OP posts:
Soukmyfalafel · 04/11/2024 18:46

Coffeeloverme · 04/11/2024 18:03

It’s good that quite a few posts emphasis how severely disabling and devastating for the family autism can be. So much talk of neurodiversity being a “superpower”! I have a friend with a non verbal child who has started saying that her child has ‘the real McCoy” autism. This may be provocative but understandable when people who can manage professional jobs, family commitments etc are now saying they have the same disability (or even saying it’s not a disability). I think the day that medicine/ science can measure the degree of autism can’t come soon enough.

Thanks for mentioning this. I think this is really important.

Coffeeloverme · 04/11/2024 18:38

Jessie1259 · 04/11/2024 18:31

That will never happen as it's well known as a spiky profile. What would be the use of measuring the exact degree anyway? There was previously Classic autism and Aspergers syndrome and those even got rid of that basic differentiations - and they were down to IQ and not a measurement of 'autisticness'.

It’s a pity Asperger’s syndrome wasn’t replaced by a similar meaning name. The term was stopped because of Hans Asperger’s Nazi connections. Classic autism never included many of the current ND population but sadly I think you’re right that autism will never be accurately measured. Sadly, because the severity of some people’s autism will be underplayed.

Jessie1259 · 04/11/2024 18:31

Coffeeloverme · 04/11/2024 18:03

It’s good that quite a few posts emphasis how severely disabling and devastating for the family autism can be. So much talk of neurodiversity being a “superpower”! I have a friend with a non verbal child who has started saying that her child has ‘the real McCoy” autism. This may be provocative but understandable when people who can manage professional jobs, family commitments etc are now saying they have the same disability (or even saying it’s not a disability). I think the day that medicine/ science can measure the degree of autism can’t come soon enough.

That will never happen as it's well known as a spiky profile. What would be the use of measuring the exact degree anyway? There was previously Classic autism and Aspergers syndrome and those even got rid of that basic differentiations - and they were down to IQ and not a measurement of 'autisticness'.

Nettleskeins · 04/11/2024 18:23

I think AutumnalBaker is the bad fairy at the Christening. Unbelievable.

I'll never forget a particularly unpleasant practitioner at CAHMS when I went with ds2 aged 7, who said to me in a patronising tone, of course you should never have had three children, you couldn't MANAGE. Ds2 being a twin this was particularly unhelpful advice...
I think that was the day I decided I was an excellent mother and it was the advice givers that were mostly shit

AutumnalBaker · 04/11/2024 18:18

Coffeeloverme · 04/11/2024 18:03

It’s good that quite a few posts emphasis how severely disabling and devastating for the family autism can be. So much talk of neurodiversity being a “superpower”! I have a friend with a non verbal child who has started saying that her child has ‘the real McCoy” autism. This may be provocative but understandable when people who can manage professional jobs, family commitments etc are now saying they have the same disability (or even saying it’s not a disability). I think the day that medicine/ science can measure the degree of autism can’t come soon enough.

I agree. We need more vocabulary to differentiate the levels of autism severity. Getting rid of the term “Asperger’s” feel like a mistake in hindsight.

AutumnalBaker · 04/11/2024 18:15

It is likely your child will be autistic.

Putthekettleon73 · 04/11/2024 18:11

Coffeeloverme · 04/11/2024 18:03

It’s good that quite a few posts emphasis how severely disabling and devastating for the family autism can be. So much talk of neurodiversity being a “superpower”! I have a friend with a non verbal child who has started saying that her child has ‘the real McCoy” autism. This may be provocative but understandable when people who can manage professional jobs, family commitments etc are now saying they have the same disability (or even saying it’s not a disability). I think the day that medicine/ science can measure the degree of autism can’t come soon enough.

Yes, you are absolutely right. My life is totally different to that of parents whose children are locked away with their autism and and that level of worry and stress and anguish is a world apart from mine.

TinyBlueHoe · 04/11/2024 18:04

EalingLucy · 04/11/2024 17:37

Oh wow, this is such an interesting perspective. I have found NT boyfriends both exhausting and boring with their constant need to socialise and talk! So perhaps having a ND child would be better!

This is a very strange reply

Coffeeloverme · 04/11/2024 18:03

It’s good that quite a few posts emphasis how severely disabling and devastating for the family autism can be. So much talk of neurodiversity being a “superpower”! I have a friend with a non verbal child who has started saying that her child has ‘the real McCoy” autism. This may be provocative but understandable when people who can manage professional jobs, family commitments etc are now saying they have the same disability (or even saying it’s not a disability). I think the day that medicine/ science can measure the degree of autism can’t come soon enough.

Soukmyfalafel · 04/11/2024 18:03

People do take it personally OP, but it's not the child you're worrying about, it is the impact and lack of support you read about everywhere. They shouldn't, it is reasonable to worry.

Soukmyfalafel · 04/11/2024 18:00

I will add that I am on the waiting list for an ASd assessment. I have struggled in life, but have always been employed, had partners, got a good degree and managed pretty well considering the demands on my life. I have just felt like a perpetual weirdo and struggle with social cues and understanding speech and have probably underachieved.

I have one cousin with a job who has struggled to get a girlfriend, and another that has worked and had a girlfriend, but a few years back struggled a lot to the point people didnt think this was possible. It's different for everyone.

EalingLucy · 04/11/2024 17:58

Zanatdy · 04/11/2024 17:56

My friend has an autistic DD age 6, non verbal. She is a single parent with no help. As in none. Only her childminder where she lives. DD’s father walked away. I am an ex colleague and I do feel for her so have an hours phone call every week to listen to her off load and I give her advice, and i’ve helped her with the ECHP. She does confide in me that it was a big mistake having another child at her age (she was late 30’s and her other DC were older). Her life is really difficult. She is hoping to move, closer to support network but she is NC with most of her family so its mainly friends she would be moving closer to, and back to where she grew up

Probably not what you want to hear but wanted to offer a realistic experience. We can all say it be ok, but we have no idea. There’s a real case your child could be autistic yes, but there’s a big spectrum. Friends DD is on the more severe end, non verbal, not toilet trained at 6.

Poor lady.

all experiences welcome. It’s good to know my worries aren’t necessarily all anxiety.

OP posts:
EalingLucy · 04/11/2024 17:57

Soukmyfalafel · 04/11/2024 17:53

I have a profoundly autistic child. Quite alot of the time I wish I didn't, but I don't think I would change it. He's gorgeous and adorable.

It has been a very turbulent time and I've been close to a breakdown quite a lot of the time, but we have both tried to continue full time and this doesn't work well for most families with nd children, let alone when one that is severely disabled. We are only just getting to the point where we are getting our head around his diagnosis and coming to terms with what is in front of us, and getting school/support in place as navigating such a shit system is a battle. It does get easier after this, but I won't lie, it wasn't what I was expecting in life, so it has been hard and exhausting.

I think you are seeing this as a certainty though. Having a child with severe autism is rare. Your child may not be autistic at all. My son is generally cheerful and quite a joy to be around a lot of the time. It isn't all bad. It is all tiring though!

Even NT children can be difficult too. It is always worth remembering that. It is probably easier with an NT child, but not necessarily easy.

Edited

Thank you, and sorry to hear it’s such a battle getting help. I’m glad you’re enjoying it nonetheless. I think my anxiety is creating this sense of uncertainty. I went on here for comfort and perspective but sadly feel a lot of people have taken offence or enjoy attacking which is quite odd. Appreciate those who can lend honest perspective and informed experiences.

OP posts:
Zanatdy · 04/11/2024 17:56

My friend has an autistic DD age 6, non verbal. She is a single parent with no help. As in none. Only her childminder where she lives. DD’s father walked away. I am an ex colleague and I do feel for her so have an hours phone call every week to listen to her off load and I give her advice, and i’ve helped her with the ECHP. She does confide in me that it was a big mistake having another child at her age (she was late 30’s and her other DC were older). Her life is really difficult. She is hoping to move, closer to support network but she is NC with most of her family so its mainly friends she would be moving closer to, and back to where she grew up

Probably not what you want to hear but wanted to offer a realistic experience. We can all say it be ok, but we have no idea. There’s a real case your child could be autistic yes, but there’s a big spectrum. Friends DD is on the more severe end, non verbal, not toilet trained at 6.

Soukmyfalafel · 04/11/2024 17:53

I have a profoundly autistic child. Quite alot of the time I wish I didn't, but I don't think I would change it. He's gorgeous and adorable.

It has been a very turbulent time and I've been close to a breakdown quite a lot of the time, but we have both tried to continue full time and this doesn't work well for most families with nd children, let alone when one that is severely disabled. We are only just getting to the point where we are getting our head around his diagnosis and coming to terms with what is in front of us, and getting school/support in place as navigating such a shit system is a battle. It does get easier after this, but I won't lie, it wasn't what I was expecting in life, so it has been hard and exhausting.

I think you are seeing this as a certainty though. Having a child with severe autism is rare. Your child may not be autistic at all. My son is generally cheerful and quite a joy to be around a lot of the time. It isn't all bad. It is all tiring though!

Even NT children can be difficult too. It is always worth remembering that. It is probably easier with an NT child, but not necessarily easy.

Pomegranatecarnage · 04/11/2024 17:51

This is a very difficult situation and I do sympathize. It’s likely that your child may have some level of neurodivergence, but it’s not possible to know until after they’re born-possibly till they’re 18 months. They could have a manageable level of adhd or autism which allows them to work, form relationships and lead a good life, or they could be profoundly disabled. In your position I probably wouldn’t have got pregnant as I know I’d struggle in my 40’s to cope with a very disabled child. However, if you terminate you may regret that too. I’d suggest counselling.
Edited to add-my Aunt married and had four kids with a man who had bipolar disorder. 3 out of 4 inherited it and suffer awful mental health which means they can’t work. However, she has no regrets.

AutumnalBaker · 04/11/2024 17:50

How far along are you OP? If you’re still in the first trimester, I think it’d be wise to terminate.

Putthekettleon73 · 04/11/2024 17:49

OP your concern is rational and it's normal to worry.
I have an autistic son and two NT kids. I'm NT. My husband is autistic. My husband has a good job and we have a happy marriage and family. My son has just moved to a wonderful specialist school aged 11 as mainstream wasn't working.
But he loves life, loves learning and knows far more than us about some subjects. He's funny and quirky and full of joy. We've had tougher times as he has found regulating his emotions hard but it's got so much easier as he's got older.
I have learned so much about the ND world and I'm still learning. My eldest often gravitates towards ND kids, and me ND adults. I probably always did.
Your worries are valid but just remember that your child won't just be a child, they will be made by you and your husband and you will love them so much.
We all want our children to thrive and not struggle in life. I've fought more for my middle autistic child to remove some struggles for him than the other two but honestly he loves life and experiences as much joy and passion as my other two. And I don't worry more about him than the other two! Worrying is part of being a mum.

Nettleskeins · 04/11/2024 17:48

This is all a bit ridiculous imho. It's a baby you are having not a Five Year Plan. Let alone a Twenty Year Plan.
Who knows what will happen in even a year? Famine Flood and Pestilence or cuddling on the sofa. Or both, at once

EalingLucy · 04/11/2024 17:46

Nettleskeins · 04/11/2024 17:44

I think it is incredibly unfair to accuse OP of narcissistic mother syndrome before she has even given birth
It reminds me of those who used to tell unmarried mothers they were selfish unless they gave up babies for adoption.
Everyone wants a close mother or father child relationship and everyone surely has hopes and dreams of parenthood, that isn't narcissistic...it's just broody/biology

Yes exactly. I’m not obliged to provide a full laundry list of reasons to want to be a mother to ensure I’m ticking all boxes for ‘non-narcissist’

OP posts: