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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Would you make space for a family with a disabled child on a train?

155 replies

UnbeatenMum · 04/11/2024 14:01

AIBU to think that most people would see a disability pushchair with a child who is around 6-7 and realise the child is disabled? So if they don't make space for you on a train it's not because they haven't realised? We travelled on several trains during half term and our experience was quite mixed. Ended up with his pushchair half blocking the aisle on two occasions because no one moved for us (in the wheelchair section, all non-wheelchair users or their suitcases or baggage taking up the space). My son was fine but I had to sit on the floor and then get him off the train without help because the rest of the family had walked up the train to find seats. AIBU or would I have had a better experience if he had a wheelchair? I should say a couple of people did offer us a seat but overall it wasn't great.

OP posts:
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SprigatitoYouAndIKnow · 05/11/2024 19:33

In my experience, people go to extraction lengths to either stare for far too long, or avoid any possibility of eye contact. Probably worried that disability might be contagious. On a train people are already engaged in avoiding everyone else, so I doubt many would notice

Start practicing your best head teacher voice and get loud, stern but polite. Direct people what is needed,so they don't just sit and wait for someone else. I may have been known to accidentally catch the ankles of teenagers crowding round the bus stop if they don't pay attention to my warnings.

MyrtlethePurpleTurtle · 05/11/2024 18:31

GardenersDelight · 05/11/2024 12:47

If you don't feel you can ask I'd make obvious comments to your son
" oh dear they obviously don't realise this is a wheelchair and we need the space saved for us! "
Very passive aggressive but it's what I do when out with the young man I care for as we use a giant buggy rather than old style wheelchair and despite the fact he's now 18 people really don't notice the size half the time

If I hadn't noticed you/your charge and you asked me to move for the wheelchair, I would do so in a heartbeat. But if I heard you making snidely passive aggressive comments like you've suggested, I would blank you. Sorry

MyrtlethePurpleTurtle · 05/11/2024 18:26

UnbeatenMum · 04/11/2024 17:57

No because I thought it was obvious that he was disabled and we needed the wheelchair space. I accept that not everyone would realise and I need to be more assertive in future.

Yes, you need to be more assertive. When I was on crutches, I travelled only by bus (tube or train would have been too challenging). And typically there were people sitting in the disabled seats. Sometimes they saw me and moved, sometimes they didn't (see me). In which latter case, without apology, I would simply say that I needed the seat. And when they moved - which invariably they did - I then said thank you. But I never apologised beforehand for existing on crutches or prefacing with a 'oh I'm terribly sorry - but oh would you mind...'

TheSoapyFrog · 05/11/2024 18:24

Personally I've found people are more helpful now my son uses a wheelchair than when he was in his disability pushchair. I remember trying to get on the bus with the pushchair and the driver commenting that my son was too old to be in a pushchair.

When he's in the wheelchair, people couldn't be more helpful. The vast majority of the the people who didn't need to be in the disabled section of the train moved willingly. Those that didn't were moved on by the guard/conductor.

MyrtlethePurpleTurtle · 05/11/2024 18:06

WiddlinDiddlin · 04/11/2024 16:28

Honestly... yes people probably didn't realise it was a wheelchair rather than a pushchair.

But switching to a wheelchair you're unlikely to get much more joy, other people on the whole couldn't give a fuck as they were there first, and your presence is going to inconvenience them.

That is even if they look up from their 'traveller trance' and notice you exist.

It's also not really appropriate to fill the whole accessible space with non-disabled family so if you go for a chair that can't be folded, rather than fold chair, sit in normal seating, you are going to have to split the family up to travel on trains. There really isn't a way around that as the accessible spaces do not take into account the concept of disabled people having friends (particularly, disabled friends!) or family!

I've had people rest their bike against my wheelchair (so it constantly bumped and joggled me), occupy the flap down seat so I had to sit in the aisle (they were shifted by the ticket collector)...

And then there was the day that, as I got on the train, someone dumped a couple of large bags in the wheelchair area. I said 'Excuse me, I need to get into that spot' and got a very unpleasant sneery response:

'Well I was here first... what are YOU going to do about it'.. as he strode off down the train.

I shouted that I'd move them, and he just muttered 'yeah right' as he vanished.

So I did. Was quite a simple matter of hauling them from in front of me, and then out the door back onto the platform.

Long story short, he wasn't very amused at finding his stuff still in X when he reached Y. Fortunately for me, the other people in the carriage were on my side and a member of staff had turned up just at the right moment, or I think I was going to get thumped.

To be fair, I probably would have thumped you

Holly619 · 05/11/2024 17:31

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HollySomoco · 05/11/2024 17:00

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Floralnomad · 05/11/2024 16:42

I’d move bags etc to make the wheelchair space available but I wouldn’t have given up my seat - on the face of it I don’t look disabled but I cannot stand upright for very long due to my illness .

Flumoxed · 05/11/2024 16:35

I would move to make space for the person in the wheelchair/buggy, but if you already had space, are you saying that you wanted everyone to move to make space for you and your other family members too? If so, yabu as there may have been people with hidden disabilities sitting in the spaces because they needed them just as much as your son did, and more than you or other family members did. As nice as it would be to all sit together, it is unreasonable to expect others to give up their seats to facilitate that.

DieStrassensindimmernass · 05/11/2024 16:27

HootyMcBooby · 05/11/2024 13:05

We recently got the train from Southern England to Edinburgh, and it was so overcrowded that even the little junctions between each carriage were full of people standing up, many for the whole journey, including a lady who was clearly disabled and using a walker frame. NOBODY gave their seat up for her.
We were standing next to her the entire trip, the conductor had to ask people to move their bags to allow others to sit down (!!) and every time a space became available, someone else would run over to it and sit there.
I was absolutely appalled. Some people even had their extremely young kids taking up seats when they could have easily sat on a parents knee.
No idea why the train was so overbooked, people couldn't even get to the loo as the isles were full and so many people standing in the spaces outside the toilets made it impossible to use them.
Horrendous journey, and depressing to see the selfishness of many people.

How can you tell if a child could actually sit on their parent's knee or not? I had excruciating back pain when DS was young and there's no way he could have sat on my knee. I looked young and healthy though.

ElaborateCushion · 05/11/2024 15:47

Jk987 · 04/11/2024 16:53

You could have helped the woman! It's 2024, why your husband?

Agreed - I'd have stepped in first. I helped a lady with her buggy recently at a London tube station. So many people were just ploughing past her as she was stranded at the bottom of the stairs with a buggy and her own mother who had a walking stick.

The grandmother made no bones about thanking me loudly and chastising everyone else that had gone past without offering to help! 😂

WinterCoatsHelp · 05/11/2024 14:41

OP it sucks, but you need to tell people to move their stuff. I'm a wheelchair user and if people have left luggage in the wheelchair space they often don't even notice me. You have to call down the train "please can the people this suitcase belongs to move it out of the wheelchair space, we need to use it". It will probably help to get a "treat as wheelchair" sticker or tag though to avoid arguments with people who don't know any better. Booking assistance through the Passenger Assistance app is also useful, because staff will often tell people to move things for you. And you can roll up the ramp, which is easier than lifting the buggy on then helping your DS on.

TigerRag · 05/11/2024 14:39

babasaclover · 05/11/2024 14:36

@TigerRag not heard it before. Why is it awful, I took it as not disabled from doing something but just able to do things differently?

It minimised the struggles we have

There are so many things I can't do as a disabled person. I can't do things differently - there's physically no way to do them safely.

Disabled isn't a dirty word

WinterCoatsHelp · 05/11/2024 14:38

babasaclover · 05/11/2024 14:36

@TigerRag not heard it before. Why is it awful, I took it as not disabled from doing something but just able to do things differently?

Cos we are disabled, and there's nothing wrong with that. The idea that we can do everything just differently is daft

babasaclover · 05/11/2024 14:36

@TigerRag not heard it before. Why is it awful, I took it as not disabled from doing something but just able to do things differently?

TigerRag · 05/11/2024 14:32

babasaclover · 05/11/2024 13:57

I was recently in Italy and I don't know if it was because of poor translation but instead of saying disabled people on a sign for the toilets they said 'differently abled' and I absolutely love that

Differently abled is used over here. It's absolutely awful

babasaclover · 05/11/2024 13:57

I was recently in Italy and I don't know if it was because of poor translation but instead of saying disabled people on a sign for the toilets they said 'differently abled' and I absolutely love that

TickingAlongNicely · 05/11/2024 13:09

@HootyMcBooby a previous train was probably cancelled. They can become horrendous when that happens.

HootyMcBooby · 05/11/2024 13:05

We recently got the train from Southern England to Edinburgh, and it was so overcrowded that even the little junctions between each carriage were full of people standing up, many for the whole journey, including a lady who was clearly disabled and using a walker frame. NOBODY gave their seat up for her.
We were standing next to her the entire trip, the conductor had to ask people to move their bags to allow others to sit down (!!) and every time a space became available, someone else would run over to it and sit there.
I was absolutely appalled. Some people even had their extremely young kids taking up seats when they could have easily sat on a parents knee.
No idea why the train was so overbooked, people couldn't even get to the loo as the isles were full and so many people standing in the spaces outside the toilets made it impossible to use them.
Horrendous journey, and depressing to see the selfishness of many people.

GardenersDelight · 05/11/2024 12:47

If you don't feel you can ask I'd make obvious comments to your son
" oh dear they obviously don't realise this is a wheelchair and we need the space saved for us! "
Very passive aggressive but it's what I do when out with the young man I care for as we use a giant buggy rather than old style wheelchair and despite the fact he's now 18 people really don't notice the size half the time

UnbeatenMum · 05/11/2024 12:41

Mumandcarer80 · 05/11/2024 12:28

I used to find the excuse me this is the designated wheelchair space. There are plenty of other seats available so if you don't mind used to work.

Thanks - I do need some set phrases like this for next time.

OP posts:
Lovemycat2023 · 05/11/2024 12:41

TigerRag · 04/11/2024 16:04

I've had seats "reserved" for me when using assistance. Except they haven't actually been reserved - they're still showing as available when you look on the screen above the seat

When we used passenger assistance I booked the trains, tickets and reserved seats. We then phoned the company and told them all the details and they did the passenger assistance bit. We left extra time as we had to get across London but it worked on all four trains at the four different stations.

Mumandcarer80 · 05/11/2024 12:28

UnbeatenMum · 04/11/2024 17:07

Sure, but there were lots of seats in other carriages that we couldn't get to but someone able bodied could have, I wasn't thinking anyone should stand for me. But that would have been above and beyond, not expected. I do have a lanyard for my daughter but we didn't have it with us, I will definitely bring it next time and get one for my son as well.

I used to find the excuse me this is the designated wheelchair space. There are plenty of other seats available so if you don't mind used to work.

Mumandcarer80 · 05/11/2024 12:14

TeenLifeMum · 04/11/2024 16:42

This is going to sound harsh, but why do you deserve a seat over someone else? Your ds was seated in his chair. You’re criticising others but they didn’t watch him struggling to stand and ignore, they just didn’t move for his able bodied carer. You have no idea what’s going on in their lives but you’re willing to judge them and assume they’re selfish. Dd3 has a disability but I wouldn’t assume I’d get treated differently because of it in terms of seating.

people not helping you off with the pushchair surprises me as I’ve witnessed multiple parents being helped on and off trains. That sucks. I carried a lady’s pushchair up a flight of steps at the underground recently and have seen many people (usually men) do the same, so I’m sorry that didn’t happen for you.

But there is designated seating for wheelchairs. You know those tables with only 2 seats on one side of the table. But they usually get taken by mums with prams. Or the space for wheelchairs gets cluttered up with luggage. Those pull down seats as well people sit on them when there are plenty of other seats available. They are so that a wheelchair user and carer can both sit together and not feel like there in the way and an object to step over.

Overthebow · 04/11/2024 19:02

I probably wouldn’t have realized it was a wheelchair pram as I’ve never knowingly seen one before. There’s many sizes and shapes of prams so unless very obvious I wouldn’t know and also on a train most people zone out reading a book or listening to music so aren’t necessarily aware of whose getting in or off anyway. If someone asks then of course I’d move for them. You need to actually make it clear what you need.