Page 33 | Need a hand hold part 2

Imbluedalale · 2024-11-02T21:41:55+00:00

Hi it’s Laura , Just wanted to add a new thread as I think my other thread is getting full xx

Munchyseeds2 · 04/11/2024 20:51

Number 1 and a new build!!!
That is the BEST news 💯❤xxx

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Imbluedalale · 04/11/2024 20:49

spoonfulofmustard · 04/11/2024 20:47

that's amazing news!

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It is isn’t it xx

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Imbluedalale · 04/11/2024 20:48

Munchyseeds2 · 04/11/2024 20:42

The Steroids will definitely stop you sleeping, as well as making the mind race!
But they must have been needed xx

I’ve been on them a while @Munchyseeds2 , I started on them when I got colitis and then I got nerve damage so they continued them to help fight the damage the treatment had done xx

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spoonfulofmustard · 04/11/2024 20:47

Imbluedalale · 04/11/2024 20:45

So I’ve got some news ….
I wasn’t sure whether to share it as I don’t want to get my hopes up but I wanted to share with all of you supporting me and the power you all had last week with getting me to stay here .
Ive just checked my bids on housing from last week and it tells you how many people have bid (hundreds) and what your ‘shortlist possibility’ is. Well I’m number 1 on my first preference and number 2 on the other 2. Obviously they need to check my application and verify my details but I’m number 1! Which means that they have given me 1st priority out of everybody that has applied. It’s a 3 bedroom new build with a garden on a new estate . They could still decide to give it to somebody else but I’m the closest I’ve ever been on the priority list!xx

that's amazing news!

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Imbluedalale · 04/11/2024 20:45

So I’ve got some news ….
I wasn’t sure whether to share it as I don’t want to get my hopes up but I wanted to share with all of you supporting me and the power you all had last week with getting me to stay here .
Ive just checked my bids on housing from last week and it tells you how many people have bid (hundreds) and what your ‘shortlist possibility’ is. Well I’m number 1 on my first preference and number 2 on the other 2. Obviously they need to check my application and verify my details but I’m number 1! Which means that they have given me 1st priority out of everybody that has applied. It’s a 3 bedroom new build with a garden on a new estate . They could still decide to give it to somebody else but I’m the closest I’ve ever been on the priority list!xx

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Munchyseeds2 · 04/11/2024 20:42

The Steroids will definitely stop you sleeping, as well as making the mind race!
But they must have been needed xx

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Imbluedalale · 04/11/2024 20:16

AdmittowearingCrocs · 04/11/2024 20:09

I know exactly what you mean by the moon face Laura, my dad used to have steroid injections a couple of times a week as his Asthma was so bad. It’s what kept him alive at the time and he had the moon face.
Hopefully reducing yours will improve your sleep.

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It’s not a nice side affect at all is it @AdmittowearingCrocs ? When I was in hospital they was giving me the highest dose through an IV. Well my appetite went through the roof!I was going through packets of biscuits and asking the nurses for sandwiches at 2am lol 😂. I’m sure the lady in the bed next to me thought ‘my that girl can eat’!xx

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Imbluedalale · 04/11/2024 20:10

TealPoet · 04/11/2024 20:04

I love the principle of kintsugi - that something you have to work to fix becomes MORE valuable. I think it’s a great principle in other areas (don’t get me started or I’ll bore you to tears 😂).

I’m really glad you can at least reduce some medications Laura - they do such awful things to your body, as much as they’re often essential for a time. ❤️

Thank you @TealPoet ❤️
Im glad about the medications too , I will be glad once I’m off steroids for good. Oh and when I got weighed today I have lost 8lbs since I last got weighed a month ago . I wouldn’t recommend this as a diet though! Xx

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AdmittowearingCrocs · 04/11/2024 20:09

Imbluedalale · 04/11/2024 19:55

Awww thank you ☺️
I do care about you and I was worried yesterday. I’m so pleased you have stronger medication. Oh I did have partially good news today , I can start weaning off my steroids more , before I was taking 15 a day and now I’m down to 6 aslong as my blood test from today comes back ok and my cortisol levels are ok. Hopefully soon my ‘moon face’ will go xx

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I know exactly what you mean by the moon face Laura, my dad used to have steroid injections a couple of times a week as his Asthma was so bad. It’s what kept him alive at the time and he had the moon face.
Hopefully reducing yours will improve your sleep.

TealPoet · 04/11/2024 20:04

I love the principle of kintsugi - that something you have to work to fix becomes MORE valuable. I think it’s a great principle in other areas (don’t get me started or I’ll bore you to tears 😂).

I’m really glad you can at least reduce some medications Laura - they do such awful things to your body, as much as they’re often essential for a time. ❤️

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Imbluedalale · 04/11/2024 19:59

Apolloneuro · 04/11/2024 19:56

Oh that’s good news. I wonder if the steroids have been stopping you sleeping.

I have never thought of that @Apolloneuro . I was thinking it was my anti depressants as I read that sertraline does affect your sleep and I’m on the highest dose . I don’t want to keep taking sleeping tablets so I’m not going to ask for anymore I don’t want to become reliant on them xx

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Imbluedalale · 04/11/2024 19:58

spoonfulofmustard · 04/11/2024 19:51

you'll have to set up a po box for us all to send you spoons! I'm sorry to hear you more health worries, but don't give up xx we're all still here cheering on xx

Awww thank you @spoonfulofmustard that’s so lovely. Thank you for supporting me . There’s a lot of people worse off than me, going there today and every time I go really humbles you. Cancer is a horrible disease and what it does to people xx

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Apolloneuro · 04/11/2024 19:56

Oh that’s good news. I wonder if the steroids have been stopping you sleeping.

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Imbluedalale · 04/11/2024 19:55

Apolloneuro · 04/11/2024 19:49

That is so nice Laura and what a beautiful person you are to care about me when you’re going through so much.

We see how special you are, darling.

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Awww thank you ☺️
I do care about you and I was worried yesterday. I’m so pleased you have stronger medication. Oh I did have partially good news today , I can start weaning off my steroids more , before I was taking 15 a day and now I’m down to 6 aslong as my blood test from today comes back ok and my cortisol levels are ok. Hopefully soon my ‘moon face’ will go xx

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spoonfulofmustard · 04/11/2024 19:51

you'll have to set up a po box for us all to send you spoons! I'm sorry to hear you more health worries, but don't give up xx we're all still here cheering on xx

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Imbluedalale · 04/11/2024 19:50

Playgroundincident · 04/11/2024 19:40

Has anyone seen the Japanese Art of Kintsugi. The basically repair broken pots with gold to highlight the cracks but make it more beautiful. The philosophy being that nothing is beyond repair, thins can be given new life and even with cracks everything can just be made more beautiful. Our priest at church did a whole sermon on it on Sunday. Thought is very applicable to human life.

That’s lovely @Playgroundincident . I actually read a book that explained that recently. It was a fiction book called ‘a thousand broken pieces’ which was a follow on from another book I read. And the girl in it went to a grief workshop and the lady gave them all a bowl and told them to smash it and after she then said pick up all the pieces and glue them together. Everybody thought it was pointless but she explained that once it was glued together it was still a bowl it just had more character now and that things can always be fixed xx

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Apolloneuro · 04/11/2024 19:49

Imbluedalale · 04/11/2024 19:45

Hi @Apolloneuro Ive been thinking about you today whilst I was sat waiting for my appointment. I hope you are feeling better than yesterday and I hope the penicillin start to work very soon xx

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That is so nice Laura and what a beautiful person you are to care about me when you’re going through so much.

We see how special you are, darling.

spoonfulofmustard · 04/11/2024 19:49

Imbluedalale · 04/11/2024 19:46

😂😂😂😂I would love that! I actually keep picturing my spoon tree and the more I picture it the more I’m determined to have one xx

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❤

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Imbluedalale · 04/11/2024 19:46

spoonfulofmustard · 04/11/2024 19:35

if you are hopefully in a home by then you'll be inundated with spoons 🤣 x

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😂😂😂😂I would love that! I actually keep picturing my spoon tree and the more I picture it the more I’m determined to have one xx

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Imbluedalale · 04/11/2024 19:45

Apolloneuro · 04/11/2024 19:16

Also hope you're not waiting too long for earlier appointment.

Thanks for asking Crocs. Yes I’ve got the strong, penicillin, kill everything in its path tablets now. Xxx

Hi @Apolloneuro Ive been thinking about you today whilst I was sat waiting for my appointment. I hope you are feeling better than yesterday and I hope the penicillin start to work very soon xx

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Imbluedalale · 04/11/2024 19:44

AdmittowearingCrocs · 04/11/2024 19:05

Hi Laura, sorry to hear your appointment wasn’t as positive as you hoped. You have had so much going on, it’s no wonder you haven’t noticed changes. Let’s hope your new appointment comes through quickly.
So sad you didn’t get to go to Tesco today too as you were so looking forward to getting some healthy food and other bits.
Hopefully your MH team will be able to visit soon to take you. Sending big hugs 🤗

@Apolloneuro hope you managed to get the correct antibiotics and you start feeling better soon 💐

Hello @AdmittowearingCrocs , I hope you are ok? I’ve got to check my left leg every day until my appointment comes through and if I notice any more changes between now and then I’ve got to contact my oncologist straight away. It is worrying tbh but I’m hoping all will be ok.
I was really looking forward to going to tesco today but at least I have something to look forward to for another day .
Thank you very much for the hugs xx

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Imbluedalale · 04/11/2024 19:40

Munchyseeds2 · 04/11/2024 19:03

Oh bless you ...what a day. Can totally see how you got a bit confused, thank goodness the driver was on the ball and you got to where you needed to be!!

Try not to worry (easy for me to say I know)
Hope for a good sleep tonight and look forward to getting to the shops soon xxx

Hi @Munchyseeds2 How are you today?
I honestly don’t know how I got the two muddled up , I got both appointments come thorough within the space of a few days so that may be why. I’m trying not to worry but it seems like history is repeating itself if that make sense. Hopefully when they do a biopsy it will all come back clear xx

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Playgroundincident · 04/11/2024 19:40

Has anyone seen the Japanese Art of Kintsugi. The basically repair broken pots with gold to highlight the cracks but make it more beautiful. The philosophy being that nothing is beyond repair, thins can be given new life and even with cracks everything can just be made more beautiful. Our priest at church did a whole sermon on it on Sunday. Thought is very applicable to human life.

Kintsugi - Wikipedia

https://en.m.wikipedia.org/wiki/Kintsugi

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Imbluedalale · 04/11/2024 19:35

spoonfulofmustard · 04/11/2024 18:59

sorry to hear about your long day but happy you got a good nap in! Just keep going one day at a time, we've got you x

Thank you @spoonfulofmustard , it’s really humbling going to Weston Park hospital . There’s many people more poorly than me , makes your heart break really xx

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spoonfulofmustard · 04/11/2024 19:35

Imbluedalale · 04/11/2024 19:31

Hi @Playgroundincident . I hope you are ok?
You’re very right about the baubles , I was quite upset about it yesterday but I’m actually over it now . I need to pick my battles and have decided that is not a battle worth fighting. I may not have many baubles this year if I have a home by then but next year I’m going to go all out and save so I can go and get whatever baubles I fancy xx

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if you are hopefully in a home by then you'll be inundated with spoons 🤣 x