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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Reaching out 🥲

335 replies

LoveAlways1 · 28/10/2024 18:46

Hi fellow mums.

This is hard to type. I don’t usually reach out, I have spent my life so far supporting myself and others. I’m usually the one people reach out to. However, I’m going to give this a go, so please be kind.

I have a 16 year old son. We are a small family, just me, his dad and I. We don’t have any family around to help and, despite him having many Godparents, none of them have made any effort at all to be in his life.

He is a clever, talented boy, and isn’t depressed. However, he only brushes his teeth occasionally (about once a week), rarely washes and refuses to cut his hair. It’s very long. I wouldn’t mind this if he looked after it. But he doesn’t.

We (all three of us) have always had a loving, harmonious, supportive relationship, in a peaceful environment (i.e. no trauma, arguments etc).

We love him and care about him very much and we have talked with him about the importance of looking after himself (what will happen if he doesn’t, what will happen if he does etc) many many times but to no avail.
We have tried everything (taking away privileges, rewards etc).

Nothing is working.

His teeth are yellow, his hair is dirty and usually unbrushed, he will probably start smelling soon (he has a bag full of everything I could think of that he might need - electric razor, electric toothbrush, vitamins, face cleanser, shower gel, flannel, sponge comb, brush etc). And we always keep communication open. We are there for him always.

He rarely goes outside and I’m certain he is going to be deficient in vitamin D and other vitamins and nutrients as he doesn’t eat fruits or vegetables. He won’t let us weigh him either. “No” is his favourite word.

When I talk with my partner (his dad) about it he says he has tried talking to him many times but isn’t going to worry about it now as it’s his choice. I get that, but try as I might, I just can’t stop worrying about it! we have one main job - to keep him healthy. I feel like we are failing and I just don’t know what to do.

Please can anyone offer some advice that they have found to have worked?

Thank you x

OP posts:
UsernameNameUser · 28/10/2024 20:52

LoveAlways1 · 28/10/2024 19:35

Thank you for your empathy, it is appreciated.

He is actually really in tune with his emotions and communicates well with us (which I know isn’t enough, but he is capable and able to express himself well). He is also brilliant on the phone! he does choose to talk in an American accent on the phone though. Not sure why but I don’t think that’s a problem…?

That’s a sign of autism, talking in an American accent when not American. Brother did it for years as a child.

LoveAlways1 · 28/10/2024 20:52

ThankThePhoenicians · 28/10/2024 20:28

Another one here advising you to have a look at PDA and some of the advice the PDA Society gives. Try it slowly and see if it makes any difference.

My son is 15, autistic and PDA. Showers are a constant battle as the whole process is just so overwhelming for him. We've found a way to manage at least weekly, and will just build up from there. With teeth brushing, reassure him you know it's hard for him. Don't minimise how he feels about it or you'll just get pushback. Try different flavour toothpastes (or even a no flavour one), different softer toothbrushes. Start very, very slowly and be super patient xxxx

And please reach out to your GP for some help for yourself at least.

And for those saying just tell him what to do - count your blessings you don't understand how ridiculously naive that is!

Thank you, so very very much. Your reply is kind and thoughtful. I truly appreciate that.

I hope you’re ok too - and your son. I’m sure he is with a mum like you xx

OP posts:
WearyAuldWumman · 28/10/2024 20:52

LoveAlways1 · 28/10/2024 20:01

The bullying went on over the course of 2 years. It wasn’t just our son being bullied either. We had what must of been in excess of 30 meetings with teachers over the 2 years. We spoke with our son constantly about it. He opened up to us about it. We believe he told us everything that went on. We took things higher on a number of occasions. We did everything we could. The school and the boys parents were not taking any appropriate action so we felt we had no choice but to remove him from the harm he was experiencing.

We have removed his access to the internet a number of times. Believe me - it made things a whole lot worse.

We only ever had healthy food and drinks in the house. He wouldn’t eat it. He started to lose weight.

Everything you have said, we have tried. We aren’t namby pamby parents. We are strict/firm when we need to be. Please understand, that your approach (which was also ours) doesn’t work for everyone.

There's no alternative school that you could try in the area?

FWIW I was bullied in secondary school for the first 2-3 yrs - had a miserable time of it. At no point did my parents realise that I was neurodivergent, partly because I still managed to keep up with my schoolwork.

In my years of experience as a secondary school teacher, I've seen several neurodivergent children who exhibited some of the behaviours that you're describing - hiding behind long hair is quite common, for example.

UsernameNameUser · 28/10/2024 20:49

OP, just read that your poor DS was sexually assaulted. That could be a huge component here. Children of sexual assault have been known to not look after their hygiene, even intentionally soil themselves, to keep abusers away. Even if there is no active threat, it feels safer to them to continue to be unhygienic.

UsernameNameUser · 28/10/2024 20:48

I hate when people immediately jump to autism - but your son sounds exactly like my brother. He showers probably 3-4 times a MONTH, brushes his teeth probably twice a week. Doesn’t cut his nails, his hair, facial hair, etc unless he has to leave the house (which only happens about 5 times a year). Constantly dirty and smelly, has to be reminded he is dirty and smelly, and essentially marched into the bathroom to clean himself. He’s 34, and our mother still has to set out his toiletries & clean clothes, change his sheets, etc. He either genuinely doesn’t notice or doesn’t care anymore.

He has always had issues with water. He says it makes him feel vulnerable, and that the noise of the shower is too loud - however also feels vulnerable sitting in a bath. Doesn’t care what he looks like so doesn’t look after his hair, teeth, etc.

I’m hoping your DS doesn’t end up like my brother tbh - but maybe you can take this as a sign that maybe he needs to be assessed. There might be supports available for you to help nip this in the bud

Secradonugh · 28/10/2024 20:47

itsmeagainagain · 28/10/2024 20:44

turn the wifi off - for goodness sake why don't you know what he is doing online!

And that would help him brush his teeth?

Secradonugh · 28/10/2024 20:46

WearyAuldWumman · 28/10/2024 20:44

Unless I've missed it, you've not answered questions as to why you've chosen to homeschool your son. This would go a long way in helping others to help you.

You missed it. The school didn't deal with sexual assault correctly from a bully.

DrBlackbird · 28/10/2024 20:46

WearyAuldWumman · 28/10/2024 20:44

Unless I've missed it, you've not answered questions as to why you've chosen to homeschool your son. This would go a long way in helping others to help you.

She’s already answered this. Several times.

itsmeagainagain · 28/10/2024 20:44

turn the wifi off - for goodness sake why don't you know what he is doing online!

WearyAuldWumman · 28/10/2024 20:44

LoveAlways1 · 28/10/2024 19:18

Ok. I appreciate you taking the time to reply, but I feel I’m having to repeat myself here. A lot. I thought by reaching out I’d receive kind caring support, instead I feel like I’m being judged and a bit attacked actually. Which is a shame because as I said in my original post, I’ve never reached out before. I guess I was right not to. Thanks. I think.

Unless I've missed it, you've not answered questions as to why you've chosen to homeschool your son. This would go a long way in helping others to help you.

DrBlackbird · 28/10/2024 20:43

LoveAlways1 · 28/10/2024 19:21

Thank you Swanbeauty. Finally, a kind reply.

I've learnt a lot about Autism. I am a very aware person and am constantly learning. Especially when it comes to my son. My nephew is Autistic and I have known many Autistic children in my life. However, he doesn’t show signs of Autism. I’m not an expert, and after your message I am thinking how I’d like to have him assessed. But HOW when I already know he will say no?

In some ways you don’t have to get him formally assessed. However, reading more widely could be useful for you in understanding his behaviour and gaining some suggestions for how to approach him. Remember it’s a spectrum so some people are more obvious and others considerably less so.

A friend’s son was exactly like this and very gradually over time he’s improved massively in terms of looking after his personal hygiene so don’t give up hope.

Secradonugh · 28/10/2024 20:42

Please don't force him to see a dr at home. His safe space is the house, he is comfortable there, as he sings, laughs etc... the first thing I think it might be worth saying is that he is a teenage boy
Teenagers = trying to not listen to the nagging parents, finding their own way and obstinate, pushing boundaries.
Teen boys = smelly, repressed.
In the long run he is likely to come out of this, especially when his eye is turned. It isn't nice to see your child not care for themselves, but try to think about it from their viewpoint, they already feel quite worthless and being nagged about it just is not helpful. Then restricting what they are allowed to have (internet) will just make him feel even worse because in his eyes he's being punished for how he wants to be today. To him it shows a lack of respect to him, his body and his choice.
I'd suggest reading isbn 9781406346930. Blame My Brain: the Amazing Teenage Brain Revealed.
It may help you communicate about his behavior and why he has low self esteem.

WearyAuldWumman · 28/10/2024 20:42

LoveAlways1 · 28/10/2024 18:57

Thank you SapphireOpal and HalloweenHaribo, I’m actually sobbing a little right now. I can’t believe I’ve managed to reach out and people have actually listened and answered! Maybe I am doing the right thing by doing this.

SapphireOpal - I’ve not thought about that - I’ll look it up and learn about it. Thank you.

HalloweenHaribo - he started being like this around the time we began homeschooling him. Around 12 years old. He talks every day to his online friends (both on the ctually phone and typing etc) and he very rarely leaves the house or sees anyone other than us.
Embarrassingly, we have no idea who his friends are or what they’re like. When he started talking with people online and 0n the phone we had a chat with him and explained the importance of knowing who it was he was talking with and explained the dangers. We insisted that we know who they are but he shut down pretty quickly. He actually said “I’m not telling you becuase you want to know”. So we did what we thought to be the right thing and explained that we need to ensure he is safe and unless he was willing to maintain openness with us about his online activity and who he was communicating with we would need to take away his access to the internet/phone etc. But when we did that he became isolated.

This started when you began homeschooling him? Why are you homeschooling him?

It sounds as though he's extremely depressed. Have you taken him to your GP?

Thelnebriati · 28/10/2024 20:42

My question is have you spoken to your GP, explained the problem and asked what help is available?
Would you consider family therapy?

cocoromo · 28/10/2024 20:41

I teach autistic teens and this behaviour seems similar to what I see in some of my students.
It a processing/ and or sensory issues. I would suggest looking into this

librathroughandthrough · 28/10/2024 20:41

The speaking in an American accent is perhaps an indication of ASD?

Glitterbomb123 · 28/10/2024 20:39

LoveAlways1 · 28/10/2024 20:26

Thank you, but please know that the decision to take him out of school was a big one that wasn’t made overnight and one that we took very seriously. One of the major reasons was that yes, he was bullied by one child. Over the course of 2 years. During which time we tried everything we could to resolve the issue. To no avail. PLEASE don’t judge and assume to know the facts.

Sorry, I've read some of your other replies I don't want to sounds judgy, but I'm only commenting by the information given which is obviously fairly limited in comparison to your last 5 years lol.

If I was in your position I would try and speak to professionals, if your son doesn't want to you can! I do think though, why would he bother cleaning his teeth etc if he has nowhere to go and no one to see? That's the main issue isn't it? You say you go on holidays, are these holidays in hotels with lots of other people? How is his hygiene when he is around more people?

Moonlightdust · 28/10/2024 20:38

Ok so my 14 year old struggles with both teeth brushing and showering. He is ADHD/ASD (with PDA traits) and also has SPD which means he has sensory issues. No amount of punishing/rewarding would work for my son so we’ve had to go low demand. We’ve tried many types of toothbrushes and flavoured toothpastes. He usually doesn’t go more than 2 or 3 days without brushing teeth and a week before showering but has not long come out of a burnout (leaving the house was another problem) so I don’t want to push him too hard, but he knows to wear deodorant daily and when it gets to point I can smell him, I tell him lightheartedly “You do really quite stink!” he will then usually go shower.

LoveAlways1 · 28/10/2024 20:38

Anewuser · 28/10/2024 20:25

As others have said, it would appear there’s some sort of neurodivergence.

I initially thought PDA or ODD. I’ve worked with a girl who was remarkably similar.

It sounds like he’s finding excuses not to wash or clean his teeth?

If it’s as simple as not liking the taste/foam of toothpaste then try something like ‘Oranurse’ toothpaste.

If he doesn’t go out, he’s not going to find a reason to wash. He won’t see the point.

You say he’s shown a little interest in colleges, maybe you can use that as a reason to get him out?

I'm not sure I’d worry too much about getting a diagnosis for him. It will take years and there are no resources anyway.

Good luck.

Thank you - I’ve just read your reply to my partner. It’s struck a chord. It’s simple really - I believe that what you’ve said is right - as a teenage boy it’s easy for him to see no point in brushing teeth/washing etc because no one is going to see him other than us! his focus is socialising online and on the phone. Neither of which require being seen.
So we are going to focus more on getting him out (we’ve tried a lot but we need to find a different way, somehow).

Thank you. You’ve made a positive difference to us 🌹

OP posts:
Lifelover16 · 28/10/2024 20:32

If he’s not eating, do you think he’d enjoy cooking with you and eating it together? You could progress to taking it in turns cooking your main meal for each other, and maybe shopping for ingredients? Maybe choose some toothpaste/toiletries that he likes and will use at the same time?

Looking at a college prospectus seems a good idea too.

sorry you are going through this, it must be very difficult.

MissUltraViolet · 28/10/2024 20:31

He sounds very lonely and isolated.

The problem is all of his issues are linked and without getting him to address one of them, you're stuck. He needs real life friends, it would have such a big impact on his hygiene issues, confidence, self-esteem.

Have you tried any baby steps? getting him to pop to the shop for bread? taking him for some dinner? offering to take him shopping for a nice designer hoodie/trendy trainers? offer a treat (going to buy a new video game etc). What about getting someone to the house to cut his hair? or buying some clippers so DH could give him a cut?

Does he talk about his future? what he wants to do? any chance of getting him to look at some college courses for any subjects he'd be really into? anything gaming related etc?

For what it's worth I think you should ignore your partner and you are right to be worried. Don't give up.

LoveAlways1 · 28/10/2024 20:29

Beastiesandthebeauty · 28/10/2024 19:23

I have been tempted many times to homeschool my asd teen, she's like this also. HOWEVER you know your son better then any of us so if you think he is not autistic there has to be something going on with him as by nature if nt at that age he should be wanting to mix. What are his passions ?

Singing. Music. Gaming. Cats.

OP posts:
Kurtcobainscardigan · 28/10/2024 20:29

Hi there OP, sorry that things are tough for your son currently. Just wondering if he is able to give you a reason as to why he struggles to maintain his personal hygiene?

I think it might be an idea to speak with his GP on his behalf. You can explain that he won't speak with them but you are worried about him. They may be able to visit him at home, or may signpost you to other services that could help. Some of your son's behaviours could suggest autism, but could also be indicators of poor mental health or other conditions. Your GP will be able to explain the process for neurodiversity assessment if you feel its needed.

I would also suggest contacting your local Early Help services to access support. You may be able to access parenting support which could offer strategies and techniques to encourage him to take better care of his personal hygiene.

ohdaisydaisy · 28/10/2024 20:28

Firstly, you're doing a great job. I've been in your situation and it is so hard. You sound a fantastic mum and don't let anyone tell you otherwise.

Secondly, your post screams ASD at me. My son is not typical ASD and is great at communicating. My daughter is not typical ASD and is very in tune with emotions, is very emphatic and caring. Both have a great sense of humour, both make eye contact, both like socialising. But ... both have an ASD diagnosis.

On one earlier post you said no early signs, but with my two they weren't diagnosed until 13/14. It wasn't until age 12/13 and they started becoming unhappy at school that we looked into ND possibilities.

Your son's behaviour sounds very typical of ASD. My brother had ASD and would rarely wash. Never cleaned his teeth (he had black stumps where they rotted away). He had no idea that it was inappropriate to wear dirty clothes or to go out with food stuck in his beard. He was an absolute genius academically, just didn't understand the need for hygiene.

Everyone with autism presents differently which makes it so hard to go through an online checklist and say "yes/no". It's so much more nuanced. Also, ASD runs in families and you did say your nephew has autism.

Please do some research. Lots of research. If you do this and think he's autistic then he probably is. A diagnosis isn't always important. If you think it's autism you can start tailoring the support you give him.

Good luck.

ThankThePhoenicians · 28/10/2024 20:28

Another one here advising you to have a look at PDA and some of the advice the PDA Society gives. Try it slowly and see if it makes any difference.

My son is 15, autistic and PDA. Showers are a constant battle as the whole process is just so overwhelming for him. We've found a way to manage at least weekly, and will just build up from there. With teeth brushing, reassure him you know it's hard for him. Don't minimise how he feels about it or you'll just get pushback. Try different flavour toothpastes (or even a no flavour one), different softer toothbrushes. Start very, very slowly and be super patient xxxx

And please reach out to your GP for some help for yourself at least.

And for those saying just tell him what to do - count your blessings you don't understand how ridiculously naive that is!