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To say eating gluten free food sucks

207 replies

Stickseas0n · 25/10/2024 18:20

It's been a month since I was diagnosed and I'm so miserable as I'm so hungry.
Not to mention how expensive it is for much smaller portions.
I've gained so much weight in the month, my iron is low as shit, I'm struggling at work because as soon as I eat any foods I'm on the toilet.
I'm just so fed up Sad

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Cumberlandgap · 27/10/2024 09:12

the coffee and walnut cake is delicious. Could honestly eat the whole thing in one go.

Copperas · 27/10/2024 05:48

OP, sorry you are having such a rubbish time. No wonder you are feeling low.
My go to treat is M&S gf ginger snaps - really really good biscuits. Their coffee and walnut cake is excellent too.
I hope things get easier for you soon.

PickAChew · 26/10/2024 23:05

If you can't face going dairy free, try lactofree milk, yoghurt etc. It's still dairy but easier to digest. I can tolerate enough of it to have some of the milk in my morning coffee.

Phineyj · 26/10/2024 20:58

I'm sorry you're feeling so rubbish, OP.

Food issues suck big time. Not like you can avoid eating.

Hopefully this is a low point and things will gradually improve.

NerdWhoEatsMedlar · 26/10/2024 20:35

It would be a good idea to keep a food diary before you go to the dietician.
First appointments are often a bit general and then you get told to keep an in and out food diary and come back in a month.
Food in with full ingredients or what brand it is and timings and drinks. Also include food out (toilet) and symptoms.

I think you'd probably cry if you had to go dairy free as well.

Is the doctor treating your thyroid?

noctilucentcloud · 26/10/2024 20:02

OP I have limited energy too. When I cook I tend to make enough for 3-4 meals. I can then have it for two nights (& only have to cook rice, pasta etc) and put some in the freezer. If I'm then tired / feeling ill I can take something out the freezer and have a dinner with v little effort. (Although I live on my own, if I was cooking for a family I'd find it harder to do this as you'd eat it in one sitting)

I think don't try to change loads of things at once. You're getting used to being gf, let that settle for a while and then maybe look at new recipes etc. Anyone would struggle completely changing every aspect of your diet. I hope you start to feel better soon.

DeanElderberry · 26/10/2024 19:18

Wheat is an issue with Hashimoto's disease which is a thyroid thing. I know it is horrible to have to adjust your diet particularly if you have no clear diagnosis but once that is sorted you will probably feel better than you have for years - I hope so anyway.

Sleepychicken · 26/10/2024 18:49

Did your curry have dairy in? You might need to try cutting lactose too, it’s so hard and you will feel deprived but honestly when you feel better nothing is worth eating that makes you feel like that so it does get easier to stick with it! What else have you eaten today? I’m Sending virtual hugs!!! I wish could send Peppermint tea and Imodium!!

Stickseas0n · 26/10/2024 18:46

Sleepychicken · 26/10/2024 18:20

What’s your regular supermarket?

Asda and Tesco are both very good, my Morrisons is hit or miss but they did have gf pizza bases at the pizza counter today so I have pepperoni pizza and garlic bread while everyone has takeaway pizza! 😅

there’s lots of cuppa soups, tinned soups, ready meals and rice pots (I can’t get away with rice noodle pots, they always turn slimy!)

like a pp said go to your regular supermarket and look at everything you normally buy, check the labels and look for alternatives. Often own brand stuff is gluten free.

my skin was terrible too, I understand how your feeling. It took about 4 weeks for me to feel better and my skin to clear up.

you need to try and eat regular meals, your gut is healing and if your going hungry then eating it won’t be working properly.

have you been referred to a dietician?

Usually Asda or Tesco, Morrisons is quite out of the way too
I was referred through GP but that was over a month ago so not sure what happened there
Made a very basic gf curry, no cross contamination at all but I've been stuck on the toilet for the past hour. I was diagnosed with a thyroid problem at the same time so I don't actually know what is causing the issue anymore.
Was given antidepressants at the same time but have had the good sense not to start them yet as I can't pinpoint what is making me feel so rubbish and sick

OP posts:
feelingrobbed · 26/10/2024 18:37

Highly recommend Becky excells books

Moier · 26/10/2024 18:22

NerdWhoEatsMedlar · 25/10/2024 18:25

The bread is generally shit.

The speciality free-from stuff is often horrible and expensive.

But there is hope
You can do roast dinner - minus the yorkies
Curry, rice and dal
Fish and chips - use tempura batter
Sausage mash and peas
etc

What are you really missing?

My sister makes the most amazing gluten free Yorkshire puddings..
I can't tell the difference.
She bakes gluten free cakes/ pastries / cookies.
Batter for fish etc.

Sleepychicken · 26/10/2024 18:20

Stickseas0n · 26/10/2024 14:07

I went to Sainsbury's today, my nearest one is an hour away and was disappointed but I found these and omg they are so nice!! I wish I got more now 😂

What’s your regular supermarket?

Asda and Tesco are both very good, my Morrisons is hit or miss but they did have gf pizza bases at the pizza counter today so I have pepperoni pizza and garlic bread while everyone has takeaway pizza! 😅

there’s lots of cuppa soups, tinned soups, ready meals and rice pots (I can’t get away with rice noodle pots, they always turn slimy!)

like a pp said go to your regular supermarket and look at everything you normally buy, check the labels and look for alternatives. Often own brand stuff is gluten free.

my skin was terrible too, I understand how your feeling. It took about 4 weeks for me to feel better and my skin to clear up.

you need to try and eat regular meals, your gut is healing and if your going hungry then eating it won’t be working properly.

have you been referred to a dietician?

triballeader · 26/10/2024 17:17

DataPup · 26/10/2024 16:50

They advise that their gluten free pizza is not suitable for coeliacs

Correct, they use flour in the kitchens. it stays airborne and can easily cross contaminate GF pizza bases that are almost always bought in ready made. They may be suitable for those intolerant to gluten but certainly not for coeliacs and those with a significant allergy to gluten. Its always wise to check if a takeaway is recommended by the local coeliac society.

DataPup · 26/10/2024 16:50

Feelinglow27 · 25/10/2024 21:21

Someone might have mentioned already but I shared a GF papa John's pizza the other day - by far the best crust for takeaway pizza!

They advise that their gluten free pizza is not suitable for coeliacs

DeanElderberry · 26/10/2024 15:41

That was/is true for me - Obviously rice and potatoes and natural non-gluten things like buckwheat and gram flour are fine, but psyllium and also that gum that is in a lot of sweet stuff can be catastrophic.

OP, if standing in the kitchen during food prep is too much, have you space for a folding stool? Also what kitchen kit do you have - a microwave is great as a quick way of cooking potatoes for mash, or of pre-cooking potatoes to finish off in the oven. Also for stewed apples - cut them up and put them in the dish you're going to eat them out of, zap for 3-5 minutes. Great for breakfast and very good for re-balancing your gut.

triballeader · 26/10/2024 15:12

One thing to be aware of, DH found this out the hard way, psyllium husk is not digestible for everyone. For some it can be very unpleasant. Some GF foods contain a lot some far less. If you are drawn to GF biscuits, breads and similar consider if you might have simply overloaded an already unhappy gut with too much of a new food or if you might be sensitive to the stuff. It is not added to none GF food so it can be a shock to the system when you have to crash straight into a GF diet. It can have a laxative effect and cause bloating and related gut fun if you are sensitive to it.

NerdWhoEatsMedlar · 26/10/2024 15:00

Which shop is easiest to get to for you?

Lunch - soup and noodles, from tesco
CupaSoup and rice noodles

Did the doctor give you some iron tablets?
Do you take a multi-vit?

Greenary · 26/10/2024 14:37

So the low iron is going to make you feel rubbish. Giving up gluten is going to help you long term to build up your iron again. You're not there yet, but you are closer than you were pre-diagnosis.

Like @NailsHairNipsHeels and others have mentioned the milk could be part of the problem at the moment.

You will feel better when you have sorted some lunches. A lot of Covent Garden soups and I think tinned soups are non-gluten-containing although do check. I'm on a big HM leek and potato soup kick at the moment. Before that it was jacket potatoes, scrambled egg burritos with cheese and BBQ sauce,

SenatorBiggs · 26/10/2024 14:20

Tesco have gluten free pot noodles, also you can get really thing rice noodles that basically just need hot water and you can add whatever to it, I have a one with just stock and peas sometimes. There’s defs gluten free cup a soups.
have some time in a supermarket and really mooch the aisle, when I first got diagnosed I went late at night and spent hours looking at the back of labels for alternatives and it really gives you confidence to know there are options.

for getting used to veg are you open to them blended into pasta sauces etc? I also had very low iron at the beginning of this year a combination of iron supplements and really trying to pack leafy green veg into as much as I could helped bring it up, it really makes a difference when your levels are back up to normal.

get the free gf trial boxes and see what breads etc you like.

Windsorlady · 26/10/2024 14:10

Chicken stir fry ..chicken casserole homemade ..just get glutten free stock cubes ..my sis makes her own glutten free cakes ..banannas ..etc

Stickseas0n · 26/10/2024 14:07

I went to Sainsbury's today, my nearest one is an hour away and was disappointed but I found these and omg they are so nice!! I wish I got more now 😂

To say eating gluten free food sucks
OP posts:
bringonyourwreckingball · 26/10/2024 14:05

Heck sausages are gluten free

Stickseas0n · 26/10/2024 14:02

🤯🤯🤯
I do have a cuppa now and again, and love nothing more than a cold glass of milk.

OP posts:
NailsHairNipsHeels · 26/10/2024 13:57

@Stickseas0n do you eat a lot of dairy?
Try to avoid that for a few weeks or limit your intake that can cause massive bloating and issues and dairy intolerance goes hand in hand

Floralnomad · 26/10/2024 13:53

Tesco do a couple of gf pot lunch type things and have a look at Zenb as they do as well .Bol also do some pot lunches that are gf , you just need to read labels in the supermarket, after a while it becomes second nature .