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How would you fix the NHS?

969 replies

PinkFruitbat · 21/10/2024 07:37

The Government is asking for ideas on how to fix the NHS.

https://change.nhs.uk/en-GB/

What would you do to fix it?

https://change.nhs.uk/en-GB

OP posts:
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16
ruethewhirl · 22/10/2024 14:44

what I disagree with is the fact that my father gets rushed through as a priority with a long standing benign illness. It's also the fact he had a coughing fit while in hospital and so got referred for all tests. They even wanted to do bone marrow biopsies "to be sure" when they had already ruled things out! It's ridiculous.

🤷‍♀️

Lononin · 22/10/2024 14:43

I’d focus on prevention also, I do think making these weight loss medications available to overweight people on the NHS is a bad idea. Along side it you’d have to tackle the food industry and put a stop to food deserts in deprived areas, places where it’s easier to buy a bag of chips than an apple.

Im sure there is much more but yes prevention is key.

itwasnevermine · 22/10/2024 14:42

@ruethewhirl what I disagree with is the fact that my father gets rushed through as a priority with a long standing benign illness. It's also the fact he had a coughing fit while in hospital and so got referred for all tests. They even wanted to do bone marrow biopsies "to be sure" when they had already ruled things out! It's ridiculous.

@taxguru it's maddening. Yes it's nice for my dad to get a health MOT but surely the better thing to do would be to encourage him to go private for that sort of thing.

taxguru · 22/10/2024 14:40

itwasnevermine · 22/10/2024 14:35

@ruethewhirl a man with bad diarrhoea and therefore dehydrated doesn't need a CT scan of his chest because he has a cough does he? He's had this cough for years. Every so often it'll get a little worse, because he is getting older. They will always rush the scans and X-rays and it's always the same. All clear.

Resources should be focussed towards working people first and foremost. Make clinic times longer and on the weekends, because that's when people can attend.

Fully agree. There needs to be better priority. The "precautionary" tests such as your chest CT scan example should be at the bottom of the queue, and other tests prioritised, for both working people and those with potentially more serious or more likelihood of something serious, and for things that can actually be fixed. We need a better kind of "triage" for tests etc rather than a first come first served waiting lists. Yes, I know there's fast track for really urgent things like suspected cancer, but there needs to be other levels of urgency/importance too.

ruethewhirl · 22/10/2024 14:39

itwasnevermine · 22/10/2024 14:35

@ruethewhirl a man with bad diarrhoea and therefore dehydrated doesn't need a CT scan of his chest because he has a cough does he? He's had this cough for years. Every so often it'll get a little worse, because he is getting older. They will always rush the scans and X-rays and it's always the same. All clear.

Resources should be focussed towards working people first and foremost. Make clinic times longer and on the weekends, because that's when people can attend.

I agree with your last sentence, but that's about it. And although I can see attending for a CT scan with diarrhoea isn't really workable, if I've understood your posts correctly, they're trying to make sure the cough isn't anything more sinister. If that's the case, I'm surprised you'd be complaining that they're being thorough. Not everything experienced by the elderly can be written off as 'getting older'.

SmileyHappyPeopleInTheSun · 22/10/2024 14:38

I think they need to take a systems approach.

It's staggering number of friends and family who had test - x-rays/blood work etc done - so paid for by NHS - and to assumed someone looked at them and adjusted treatment only to find no-one had. In some case it went of for years - meaning money wasted on inappropriate treatments and original problem now cost more to fix.

Also not booking people in when equipment or people aren't there - happened to brother got there equipment was at another location he'd taken day off work losing money and was shrugged at get to other end of county with no car and no money. Another example my house bound father - Mum had to arrange hospital transport - got up early got there half the people they were supposed to see were on a department training day.

Stopping sending appointment by second class post that turn up after appointment times then blaming patient and sometimes discharging from service- half the NHS service use text and e-mail - rest should as well.

Actually making it easier to cancel appointments - it can take hours of time trying to get through - and if the reason the appoints been canceled is hospitalisation or death it adds to distress.

Not giving care in hospital - so basic thing like getting existing prescribed meds given - or even pain relief - yet can wake up for blood pressure readings that just get noted. Often feel no one is in charge and communication with patients and family is lacking.

TBH though social care the big issue causing flow in hospital to back up - and that need money and a plan.

itwasnevermine · 22/10/2024 14:35

@ruethewhirl a man with bad diarrhoea and therefore dehydrated doesn't need a CT scan of his chest because he has a cough does he? He's had this cough for years. Every so often it'll get a little worse, because he is getting older. They will always rush the scans and X-rays and it's always the same. All clear.

Resources should be focussed towards working people first and foremost. Make clinic times longer and on the weekends, because that's when people can attend.

ruethewhirl · 22/10/2024 14:34

JenniferBooth · 22/10/2024 14:27

I had to cancel an appointment that i had last week because my dad died
and they were trying to spring a surprise hysteroscopy without anasthetic on me Read the hysteroscopy threads on here Saving money coming above patients right to a pain free/low pain procedure.
I phoned and was seventeenth in the queue so e mailed.

That's terrible. I can't believe what's been happening with these hysteroscopies. Sorry for your loss.

ruethewhirl · 22/10/2024 14:33

itwasnevermine · 22/10/2024 14:04

@ruethewhirl so they probably just got the standard NHS care these days.

My elderly dad had a stomach bug and he's been given every test going to "make sure he's fit and healthy". Every single test has come back clear, most were a waste of time! Shit like that should stop

I don't agree. Surely it would have been better to know if he had something that needed dealing with?

And my parents have only had 'standard' NHS care if 'standard' involves heavy hints, on multiple occasions, that they should opt to do nothing in the case of serious illness, even down to not bothering with diagnostics in the first place. I somehow don't think people in the prime of life are being given that advice.

JenniferBooth · 22/10/2024 14:27

Windchimesandsong · 22/10/2024 09:35

With missed appointments (and the suggestion of charging for them).

I strongly suspect the only way people who do turn up are all fitted in is due to missed appointments. I've waited over 40 minutes for GP appointments. I know of people who've waited several hours for hospital appointments. Too many patients are crammed into one day - and I suspect the healthcare providers rely on some not turning up.

Obviously also as others have pointed out, they make it difficult sometimes to actually get through to someone to cancel/reschedule. And if manage to speak to someone, messages aren't always passed on.

Separately it's often the most vulnerable people who miss appointments without being able to let the doctor know they can't make it. People with mental health struggles, domestic violence victims, homeless people, for example. How appalling to consider charging them (money many don't have) for being in terrible life circumstance. Obviously instead they need better access to good support services, decent housing, and proper help.

I had to cancel an appointment that i had last week because my dad died
and they were trying to spring a surprise hysteroscopy without anasthetic on me Read the hysteroscopy threads on here Saving money coming above patients right to a pain free/low pain procedure.
I phoned and was seventeenth in the queue so e mailed.

lljkk · 22/10/2024 14:15

massive investment in social care. the NHS could function quite well if not for all the bed blocking

Fizbosshoes · 22/10/2024 14:07

I was booked in for a minor surgical procedure last year, when I got there I had a short discussion with the Dr and they advised doing something different (more minor) and it has worked as it should. I had a follow up apt after 6 weeks, and thry said there would be a 6 month follow up. Which I got a letter for.

I took the day off work, drove 40 min to the hospital, waited about 1 hr 20 after the appointment time, only to go in and the Dr said she didn't know why I was there, and apologised profusely for wasting my time. She explained that if I had had the original procedure, then I'd need a 6 month follow up but as I had had a more minor procedure, I didn't. She said the booking in for the original procedure would have triggered a letter, but when that was changed, the letter was not cancelled.

I felt bad that I'd taken a space someone who actually needed it could have had but also a bit miffed I'd wasted a morning on a pointless appointment.

A lot of people who work within the NHS are getting defensive about it, I'm not criticising the Dr, I felt bad for wasting her time....but there are so many examples of things not working.

As patients we're constantly told how much missed appointments cost the NHS (there's never any breakdown how many of those are due to admin errors or inefficiency rather than patients fault, but easier to pretend it's definitely all due to lazy or disorganised patients) ...on a different thread about waiting ages for GP or hospital appointments it was an almost an expectation that the patient had an infinite amount of time to wait

itwasnevermine · 22/10/2024 14:04

@ruethewhirl so they probably just got the standard NHS care these days.

My elderly dad had a stomach bug and he's been given every test going to "make sure he's fit and healthy". Every single test has come back clear, most were a waste of time! Shit like that should stop

ruethewhirl · 22/10/2024 14:02

itwasnevermine · 22/10/2024 14:01

@ruethewhirl that's rubbish. The elderly get far better treatment than anyone else.

I think that depends who you ask. Certainly wasn't/isn't the case for either of my parents.

itwasnevermine · 22/10/2024 14:01

@ruethewhirl that's rubbish. The elderly get far better treatment than anyone else.

ruethewhirl · 22/10/2024 13:57

Kendodd · 22/10/2024 08:36

I actually think there will be a tipping point soon (globally) were we have to start prioritising the working population over the elderly for healthcare. In that, we have to get the working population back on their feet, to do all the work, because there just aren't enough of them. Example, a care worker needs a knee operation, so do one of her clients. Do you just stick her at the back of the queue, behind all the elderly she cares for, leaving nobody, to provide the care the elderly need or do you stick her at the front of the queue, get her back on her feet, and back to work. This is going to come up across all industries because of changing demographics and a top heavy society.

Going by my experiences with elderly DM, the elderly are already being 'discouraged' from seeking treatment. It wouldn't surprise me if that soon tipped over into outright refusal to treat.

ruethewhirl · 22/10/2024 13:52

sunflowersngunpowdr · 21/10/2024 17:20

It cannot be fixed. Scrap it and start from scratch is the only way.

How would you see that working in practice?

CoffeeCantata · 22/10/2024 13:46

It's that kind of administrative stupidity that causes the inefficiency and wasted time for all, not to mention the blatant disregard for patients when they're messed around like that. Someone should have been held to account for it. The idiot appointments clerk who should have know the transplant coordinator doesn't work that day. The admins/consultant secretary who should have checked and seen that there was no file/test results for the consultatation. And the receptionist who didn't give a shiny shit about us waiting there and showed no interest whatsoever that we were still there after morning session had finished!

Definitely. I feel very uneasy when sent to wait in a hospital department because I've had both the following scenarios happen more than once:

Option A: appointment at 10 am (I know everyone gets the same time) so when it gets to 10 45, I go up to reception and politely enquire...only to be barked at and told be patient. I am patient! Very.

Option B: having been scolded for the above on previous occasions, I sit and wait and wait. Finally go up to reception only to be publicly scolded for having sat there for an hour and a half when I should have come and told them I hadn't been seen yet. You can't win!

Also, a friend of mine found a lump in her breast and was sent to the hospital breast clinic. She sat and sat for well over an hour only to be then told by the consultant 'Oh - it's a bit late, isn't it? Please come back in 2 weeks". Understandably she burst into tears - she'd already had 3 weeks of sleepless nights worrying and was absolutely desperate to be seen and checked. These people have no empathy - did they ever have any, or has it been lost somewhere along the way?

taxguru · 22/10/2024 13:45

CoffeeCantata · 22/10/2024 13:36

GP surgeries are by far the most efficient part of the health service, we have to be as our salary comes from running a business that actually produces a profit.

@Flixon This is certainly my experience. We feel very lucky with our GP surgery - they've been brilliant for over 30 years.

Clearly depends on the individual surgery. That's the problem really. No consistency.

Considering they're all run under the same rules/guidelines and financed by the taxpayer via the Dept of Health/other quangoes, there should at least be consistency. Should be more like a franchise, such as McDonalds, where you have consistency and there's little difference which "branch" you use.

I know GP surgeries are mostly independent private businesses, but so are most franchises. Even Specsavers are mostly franchises and provide consistency, "open" records available between different branches even though they're not owned by the same owners, etc., so one branch can see the history of eye tests, prescriptions and spectacles done in another branch. Even some motor dealerships have common access to some data, such as service history of a car bought and serviced by a different dealership franchise hundreds of miles away.

Alexandra2001 · 22/10/2024 13:42

CoffeeCantata · 22/10/2024 13:36

GP surgeries are by far the most efficient part of the health service, we have to be as our salary comes from running a business that actually produces a profit.

@Flixon This is certainly my experience. We feel very lucky with our GP surgery - they've been brilliant for over 30 years.

I had a swollen elbow, went to GP without an appointment, was seen straight away, given antibiotics and told to come back the following day, i did, told to go to AE, GP phoned ahead, i waited an hour and was on a ward, with IV antibiotics, within 90mins.

Spent 2 days there, faultless, which is more can be said for some of the entitled patients i had to put up with.... the staff have the patience of the saints.

The GP was fully aware of the dangers of Sepsis, as was the Hospital.

CoffeeCantata · 22/10/2024 13:36

GP surgeries are by far the most efficient part of the health service, we have to be as our salary comes from running a business that actually produces a profit.

@Flixon This is certainly my experience. We feel very lucky with our GP surgery - they've been brilliant for over 30 years.

sashh · 22/10/2024 13:29

TigerRag · 21/10/2024 20:00

Maybe we should allow people to buy more paracetamol at a time

Maybe if shops had been more responsible we still would.

One hospital I worked in had a shop, as many do, they were asked not to sell boxes of paracetamol. The thinking was if you have a headache you could buy a pack of 2 or 4 but no the shop refused.

People would literally leave A and E after an overdose and walk up to the shop and take another packet.

ChardonnaysBeastlyCat · 22/10/2024 12:52

taxguru · 22/10/2024 12:21

I think OH has PALS on speed-dial on his phone. He's had cancer for six years, and now on permanent chemotherapy, but it's all a shambles. He turns up for appointments only to find they've not got the drugs to issue him. Or he gets an appointment letter for drug collection the day before his appointment letter for the blood test - he knows they won't issue the drugs without the blood test results, but the admin bods keep doing it, so he has to phone to rearrange one or other. He's on a 4 weekly cycle, but sometimes the appointments come through for 3 or 5 weeks. It's all an absolute shambles. And that's life saving cancer treatment! His first PALS complaint was during the covid lockdowns when they cancelled his chemo infusion on the morning it was due to start and then forgot about him, week after week, month after month, he kept phoning to ask when the chemo would be started again, they just fobbed him off and glibly said someone would call back, but they never did! It was six months before it got restarted and because of the delay, they had to do all the tests again as the "approval" had lapsed, so another MRI, another CT scan, another skeletal x-ray, another bone marrow sample etc. Bonkers!

So sorry to hear all this.

It’s a waste of time and resources for you and for the service. Add to that the danger to the patient’s health and the loss of trust in the heath system.

Yet no one’s bothered and they keep carrying on like this.

Alexandra2001 · 22/10/2024 12:39

taxguru · 22/10/2024 11:34

Happens far too often. When my OH was first diagnosed with cancer, we were referred from our local hospital to a specialist hospital some 90 minutes drive away. It was to discuss a stem cell transplant and was with the consultant/specialist and the transplant co-ordinator. Appointment time 9.30.

We were there in good time, having left home at 7am to allow for the traffic. Waiting room absolutely jam packed. Not good when everyone there was a cancer patient, and most would have suppressed immunity! Soon became obvious everyone had the same 9.30 appointment time.

We sat there and watched a slow succession of patients being called through. Fewer and fewer of us were left. OH went to reception every hour or so to ask about the delay etc just to be fobbed off saying they'll get to him when they're ready. Got to lunchtime and very few left in the waiting room. Then the receptionist closed the window and went off, presumably for her lunch. By about 1.30, we were the last, and all the HCA's calling people through also disappeared! Marie celeste in there, there was no one but us. OH and I decided to walk down the corridor to the consulting rooms, and we just knocked and entered one of the rooms. It was a doctor having her lunch. Not the person we wanted to see, but we asked her where everyone had gone and why we were being ignored! She was actually pleasant enough and went to the consultant's room to see if he was still there. He was having his lunch too! Hadn't any idea why we were there, didn't have a file, but he did find a single page A4 referral letter in a tray, but it had no details other than a brief introduction. He said the transplant co-ordinator never works on that day! So basically, a completely wasted day - he couldn't "consult" us as he had no records, and we couldn't even have the meeting with the transplant co-ordinator!

It's that kind of administrative stupidity that causes the inefficiency and wasted time for all, not to mention the blatant disregard for patients when they're messed around like that. Someone should have been held to account for it. The idiot appointments clerk who should have know the transplant coordinator doesn't work that day. The admins/consultant secretary who should have checked and seen that there was no file/test results for the consultatation. And the receptionist who didn't give a shiny shit about us waiting there and showed no interest whatsoever that we were still there after morning session had finished!

This is bizarre.... why would they do this? i mean why on earth do they want 20 or 30 people all turning up at the same time??

You should forget PALS and contact their CEO.... for an explanation.

I have been taking both in laws into Hospital for many years now, for various reasons which i wont go into, i have also been to quite a few outpatient clinics myself too.

Never have i seen what you describe, well not since the 80s, when one appointment time was common practice.

Our Trust is one of the worst performing trusts in the country.

Yours sounds like it might be even worse!!

taxguru · 22/10/2024 12:33

Jaxhog · 22/10/2024 12:28

Break it up into manageable portions. At the moment it's an impenetrable mess of unclear and incomplete processes and paperwork. Far too much time is spent on this and not enough time on actual healthcare. It will be extremely painful, but much better than where it's headed - oblivion.

I think that was the idea with the fragmentation into loads of separate trusts, i.e. different trusts for different groups of hospitals, primary care trusts, ambulance trusts, etc. But it seems to have caused huge amounts of admin and management and lots of internal bickering/fighting about which trust is responsible, i.e. in my OH's case, the hospital argue with the GP who should be doing blood tests and prescriptions for things like iron deficiencies which are usually the GP domain, but in his case caused by the cancer, so the GP argues they should be done by the hospital trust as part of the cancer treatment. Not helpful for the patient when the GP refuses to issue a prescription saying ask the oncologist, but the oncologist refuses and says ask the GP - they won't communicate directly with eachother to thrash it out so OH ends up piggy in the middle - not helped when he can never actually speak to the GP nor oncologist due to gatekeeping receptionists blocking him!