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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think his behaviour at the zoo was OTT?

240 replies

Rizzo8 · 14/10/2024 23:55

My partner and I are on holiday and decided to go to a local zoo. I thought we'd spend some time there then have the rest of the day together to do something else. He is high functioning autistic and acts accordingly at times, so that point matters.

Turns out the zoo is huge and endless. We finally finished walking round the first side after 4 hours!! Around this time I had an Endo flare up and started feeling unwell. I was done and ready to go but partner got annoyed saying the zoo was expensive (it was) and he wanted to make sure he saw everything! He said it was important to him!

That its the same if he goes to a museum, he needs to see everything but has never acted like this. And as this can't trump me feeling ill so in the end he relented. He was nice and comforting eventually, but not before pouting about having to leave. I couldn't believe how childish this was.

AIBU? It really had me thinking twice about things.

OP posts:
BogRollBOGOF · 15/10/2024 11:01

I find with DS that if there's a risk of plan A being unpredictable, having plans B and C can help him adjust more easily.
Warning/ countdown times can help with transitions too.

I haven't had endo, but I did have unpredictable, debilitating period pain in my youth. Curl up on whatever scuzzy floor I happened to be on and wait for someone to find me because I couldn't move pain. Not pop a paracetamol and head off home on my own league.
I can see how there is a clash of autitstic rigidity of planning and medical need here.

Is it possible to have a background contingency plan where if an episode occurs, you give him as much warning as you can, there's maybe an intermediate stage such as resting at an avaliable place like a bench/ cafe for a fixed "adjustment time" such as 10 mins and that gives him some chance to adapt to the change of plan if you have to abort mission?

It is easier having these discussions away from the moment.

He's not going to find the unpredictability of endo attacks easy, but ultimately he did catch up and adjust in the end.

We've had issues with DS1's autism and DS2's asthma attacks. On a bad day we've been close to calling 999 while DS1 is chuntering on about DS2 faking it and ruining his day. It does not help an already difficult situation when autistic rigidity clashes with serious medical unpredictability.

Rizzo8 · 15/10/2024 11:00

@Mirabai this isn't accurate at all

I tried to push through for as long as I could and longer than felt good to me, so that he wasn't disappointed. Maybe 'relented' was the wrong word. He realized I couldn't carry on because I was clearly exhausted and uncomfortable.

OP posts:
Mirabai · 15/10/2024 10:56

Rizzo8 · 15/10/2024 10:47

He insisted we leave together.

I think I should suggest I'll be ok if he wants to complete the day by himself. I suspect the point is he wants to do it as a shared activity.

As a side note, the zoo was an additional activity we went to do after another main activity in the morning because it was closeby. I therefore didn't realise leaving after 4 hours would be an issue. Now I know it is.

I don’t buy it. Your OP said clearly he wanted to stay and it was important to him. But as this desire “can’t trump me feeling ill” in the end he “relented”.

As posters have criticised you for spoiling his fun you‘re now claiming he insisted on leaving with you.

Clearly not at the start. If he did eventually it was only because you went on about being ill until he “relented”.

Rizzo8 · 15/10/2024 10:51

DoreenonTill8 · 15/10/2024 10:49

Can you both accept and see that you each have this likely guilt/need?

I think we probably need to have a conversation about it. I hope so.

OP posts:
DoreenonTill8 · 15/10/2024 10:49

Rizzo8 · 15/10/2024 10:48

@Summerlilly exactly. As a person with this chronic condition, I carry around guilt about not being 'normal' and also felt guilt for not being able to complete the visit.

Can you both accept and see that you each have this likely guilt/need?

Ormally · 15/10/2024 10:49

Ophy83 · 15/10/2024 09:52

Do bad flare ups happen out of nowhere or are you likely to get a worse flare up if you've been pushing yourself? I have a condition (not endo) that I can guarantee will flare up with the combined stress of going abroad/pushing myself too hard one day. I won't feel it at the time but by day 2 or 3 of this my joints will be hurting and I'll be suffering with inflammation. I've learned that I have to pace myself and if I've had a day walking round the city the next day probably needs to be more chilled out

Yes, I'm the same (although it's tendinitis so the link to more-than-normal walking or climbing stairs is not a hard one to make).
Even on three day visits, I know I would be pushing it mightily to expect 2 demanding days in a row just to work, now.

Mirabai · 15/10/2024 10:48

I don’t understand why OP couldn’t go back on her own. If you have a chronic illness you need to handle it yourself and not drag other people along.

SociallyAwkwardOverthinker · 15/10/2024 10:48

Ambienteamber · 15/10/2024 00:18

I think yabu cos it's not as tho he didn't leave. He was just disappointed about leaving. As an autistic person I guess he just says what he feels. But he did acknowledge you feeling ill is more important than his need to see all of the zoo. And he did agree to leave.
So nothing has really happened here.
But he's autistic so you might be waiting a looong time if you expect him to automatically not express what he thinks are his logical feelings for fear it may be taken as hurtful by someone.
I'd just let this go tbh.
If he'd refused to leave and forced you to go round the whole zoo that's a different story.
But basically he just got briefly annoyed that things didn't go how he expected them to go.
I think that's probably the best you can expect. I have autistic friends who would be like this. 'High functioning' but yeah they will get annoyed if a plan changes. They had an idea of how to do things then that suddenly has to change. They paid money to do something they now won't be doing. Yeah they'd get upset.
The issue is if they carry on being unreasonable. They can't help initially getting upset about it. That's part and parcel of being autistic.

This is an excellent post

Rizzo8 · 15/10/2024 10:48

@Summerlilly exactly. As a person with this chronic condition, I carry around guilt about not being 'normal' and also felt guilt for not being able to complete the visit.

OP posts:
Rizzo8 · 15/10/2024 10:47

LaMarschallin · 15/10/2024 10:42

PS
@Rizzo8
Why didn't you just go back to the hotel by yourself, as you said you could?
Didn't he want you to do that for some reason?

He insisted we leave together.

I think I should suggest I'll be ok if he wants to complete the day by himself. I suspect the point is he wants to do it as a shared activity.

As a side note, the zoo was an additional activity we went to do after another main activity in the morning because it was closeby. I therefore didn't realise leaving after 4 hours would be an issue. Now I know it is.

OP posts:
Summerlilly · 15/10/2024 10:46

arthar · 15/10/2024 10:32

His disability doesn’t trump her chronic illness.

Neither does her condition trump his.

She wanted to leave though, and they both left. So what's the issue? It's ok to be annoyed about having to leave. I hate having to leave places bc of my disability so o can only imagine others would also feel that way.

Ultimately though, he supported her.

If you read the post, he initially told her no because they spent money and only relented after while.
The initial no, when she stresses she in pain is the issue here. When you have this illness it’s unpredictable and you already feel horrible enough as it is, you don’t need extra guilt

LaMarschallin · 15/10/2024 10:42

PS
@Rizzo8
Why didn't you just go back to the hotel by yourself, as you said you could?
Didn't he want you to do that for some reason?

Ramblomatic · 15/10/2024 10:41

In his defense zoos are fucking awesome, I'd be gutted if I only only got to see half, especially if I was leaving the best for last.

LaMarschallin · 15/10/2024 10:39

@Rizzo8

I see. I guess you could be better prepared (although, obviously preparing for these situations shouldn't just be down to you); I think it would be difficult for him to mask forever.
Now you both understand the extent of each other's difficulties more fully, you probably need to discuss how viable your relationship is.
Whatever happens, I sincerely hope your operation helps 💐

DoreenonTill8 · 15/10/2024 10:35

arthar · 15/10/2024 10:32

His disability doesn’t trump her chronic illness.

Neither does her condition trump his.

She wanted to leave though, and they both left. So what's the issue? It's ok to be annoyed about having to leave. I hate having to leave places bc of my disability so o can only imagine others would also feel that way.

Ultimately though, he supported her.

This, why are so many posters writing as if she was writhing in pain on the ground in front of him and he ignored her?
She got what she wanted/needed as they both left. I think anyone would be slightly annoyed a day out had been curtailed.

Rizzo8 · 15/10/2024 10:33

@LaMarschallin to explain why this hasn't really come up before:

  • my Endo didn't affect the relationship until recently. My treatment stopped working effectively three months ago. I've sought help with this and I'm waiting for an operation to remove the endrioma. But I can't fully know when a flare up will happen. However, I can be prepared with heat packs etc in future
  • likewise we've never not completed an exhibit or activity apart from once usually because these symptoms didn't exist before. I also wonder if he was masking more before.
OP posts:
arthar · 15/10/2024 10:32

His disability doesn’t trump her chronic illness.

Neither does her condition trump his.

She wanted to leave though, and they both left. So what's the issue? It's ok to be annoyed about having to leave. I hate having to leave places bc of my disability so o can only imagine others would also feel that way.

Ultimately though, he supported her.

Summerlilly · 15/10/2024 10:29

As someone who has endo also, these replies are really insulting.
His disability doesn’t trump her chronic illness.
Op you need to have serious chat with him about ways to deal with your flare ups. Or you need to bin him unfortunately.
You know how serious they can get, what happens if you are out and you need to go to A&E? Is he going to leave you passed out screaming on the path or in the ambulance alone because he hasn’t seen everything in the store?

Before anyone comes at me I have been hospitalised multiple times for this illness, you will never understand the pain unless you have it.

PlayingDevilsAdvocateisinteresting · 15/10/2024 10:21

Deebee90 · 15/10/2024 00:21

Is it Prague zoo by any chance as that zoo is a pain in the ass for walking. Honestly I’d have gone back on my own and left him to it.

I was thinking that it could be the monkey zoo in Dorset, which has at least one very bad hill, especially if you are in a wheelchair, or there is another very hilly zoo in Exmoor in North Devon.

LaMarschallin · 15/10/2024 10:18

RareLemur

It's impossible to know if his behaviour was OTT without knowing how long he expressed his disappointment or "pouted" for.

That tends to be the trouble with AIBU threads - you only get one person's point of view.

On another point, I'm supposing the relationship is fairly long term if they've gone on holiday together but I wonder, if when they first got together, they were aware of each other's diagnoses.
It sounds harsh, but I'd be wary about starting on a relationship with someone whose diagnosis meant that some unpredictability was inescapable if my own diagnosis meant that having things set out predictably was important to me and vice versa.
Perhaps thinking again, as the OP suggests, would be better for them both.

BeMintBee · 15/10/2024 10:12

Imisshimtoo · 15/10/2024 08:39

It is hard though, and I can see why relevant. Being in a relationship with an autistic person can be really hard, my ex-husband is autistic, and it can, depending on the person, require a lot of work to be understanding and accommodate their extra needs. My ex struggled to understand social cues so I used to be on edge in a lot of situations (maybe as much my problem as his). It's not easy and whilst you love who you love, getting into a relationship with someone who is autistic means you need to be prepared for that.

I now have an autistic daughter (not with my ex) and again it's hard. She is not severely autistic, probably would be described as high functioning and she's great, like all parents I wouldn't change things, but it is difficult. It is a set of additional needs. And to be fair, given the nature of this site as being somewhere we come to air problems, if this is what you base your judgement upon then yes I can see how it looks terrible from the outside looking in. There are stories of people being happy with autistic partners, there are stories of people being happy parents to autistic kids but you won't see them on a forum used primarily for advice.

It’s fine to think to yourself a relationship with someone autistic is not for me. No one’s saying ASD can’t be challenging. But really no need and not at all relevant to this thread to come on and show your disgust at the prospect of a child or partner with ASD to people who are posting who are autistic or have children with autism. There are times when it’s ok to not say what you’re thinking and this is one of them!

neverstartingstory · 15/10/2024 10:11

As others have said, he is autistic and this behaviour of manifestation of his expression of autism. This behaviour can feel painful to partners as it is a reminder that you and your feelings are not as visible to the ND partner as you might want them to be.

If this behaviour is problematic to you then you have a choice to end the relationship as his behaviour will not change.

Word of caution, expect these expressions of his autistic nature to become much more manifest if you have children, where needing attunement ( to you and the children) and flexibility and anticipating each other's needs and co-operative behaviour and multi-tasking become much more important.

cuddlebear · 15/10/2024 10:09

I have a disability that makes it difficult for me to walk around for long periods.

In this type of situation, I usually just go back to hotel and leave companion (s) to carry on with what they are doing.

TopshopCropTop · 15/10/2024 10:08

People are acting as if the OP became ill after 20 mins at the zoo. They had already been there for 4 hours. Any grown man pouting and behaving like a baby because he has to stop doing any activity he’s been doing for 4 hours because his GF is unwell is not a considerate partner.

I’d be putting this one back OP and he can find someone else to stare at a load of meerkats with for as long as he likes.

ItGhoul · 15/10/2024 10:06

I'd also be a bit pissed off if I'd gone for a day out and had to leave halfway through before I'd seen everything I wanted to see/had paid for. Appreciate that you can't help feeling ill, but I'd still be irritated and disappointed.

in the end he relented. He was nice and comforting eventually

That's OK, then, surely?

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