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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be absolutely sick of DS non stop allergies

92 replies

Purrdy · 12/10/2024 16:46

They are driving me literally insane.
DS 13 asthmatic spends his whole entire life doing huge shouting type massive gargantuan sneezes, over and over and over again, they are non stop. Imagine a big dog barking and barking non stop - that's what his sneezing is like and they're that loud too. And non stop sniffing up snot sniff sniff sniff sniff, his nose is like a tap of never ending cattarh. Jesus, the arguments we have about his nose. "Freddy blow your nose!!!!" "No" "BLOW YOUR NOSE!!!" "No" "Freddy your constant sniffing and snorting is driving everyone in the house mad - BLOW YOUR NOSE". "Nooooo!" "Freddy BLOW YOUR NOSE!". He finally blows his nose, blows and blows and blows, as much as he blows it out the snot instantaneously refills, he blows, snot refills, he blows, snot refills. Immediately goes back to sneezing and sniffing and snorting and says "See, this is why I don't blow my nose, there's no point whatsoever, it's pouring out of my nose straight after no matter how much I blow it". This goes on all day, all night. Kids at school turn round at their desks or nudge him and say "Mate, blow your nose". Sitting round the table for dinner is appalling, my other DC shout "Ughh, it's putting us off our food! He's sneezing over our food! (Even though he covers his mouth and nose as much as he can with his elbow or a hankie) his snot is so loud it's disgusting!" He sits there looking dejected at the table.
I am at my wits end.
It goes on all summer because of pollen. Now it's October so there's no pollen but it's still the same level of relentless 100 decibel repetitive sneezing and gallons of catarrh pouring in to his nose. It will go on all winter too, just like it has the past 2 winters. Then all spring. It is year round every year.
We're dusting everywhere, cleaning the floors non stop, pulling out his bed non stop to clean under it, I've removed curtains, got rid of carpet and rugs, bought hypoallergenic mattress covers/pillow covers/duvet, boil wash at 90 degrees his bedding every few days, OMG the work it's creating is exhausting me on top of everything else I have to do. Mometasone and beconase nasal sprays don't work at all. He takes 180mg Fexofenadine daily which is an adult dose for treating hives - you'd think if it treats hives in an adult then it would sort out a 13 year olds non stop sneezing and running cattarh....but no, it doesn't touch it. GP said he can't have any higher dose than that.
I just don't know what to do.
It's making him really depressed and it's sheer HELL to live with.
It's driving the whole family insane but me especially as I spend most time with him.
Can anyone at all give me any help or experience?!

OP posts:
beeloubee · 13/10/2024 18:02

Sounds like mast cell activation syndrome

BMW6 · 12/10/2024 21:19

Poor poor fella. He must be so desperately unhappy, what with the misery of being permanently snotty his own family berate him over something not his fault and that he has no control over.

Put yourselves in his shoes FFS.

He should be taken to see every specialist possible - either via GP referral or put your hands in your pockets and go private.

He could have nasal polyps which an operation would remove. Clive James describes being exactly like your son and his problem was polyps.

Stop moaning at him and be a decent parent by getting him diagnosed and treated!

Daffyyellow · 12/10/2024 21:06

Poor kid. He needs help not reminding to blow his nose, though I know how irritating it can be to listen to. I think he needs referring to a specialist who can reassess and maybe change his medication or give further treatment.

outforawalkbiatch · 12/10/2024 18:34

He needs a referral

FWIW I have severe hives and fexofenadine was like taking a tic tac. Did nothing
I'm on Xolair now

AcrossthePond55 · 12/10/2024 18:24

For the sinus issues try Fluticasone Furoate Nasal Spray. It's non-Rx here in the US, not sure about the UK. It's not an antihistamine, it's a mast cell blocker. It takes about 2 weeks to start working but it's great on hay fever and allergies. After a couple of allergy seasons you get to know when to start it to be in full effect when the allergy season really kicks in and when to stop as the allergens are gone. For me that's from around Easter until late June, then again in late Sept until around mid-November.

For the asthma try fluticasone propionate and salmeterol inhalation powder (Rx only in the US). It has changed my life.

Hopefully these are both available in the UK and suitable for your son. And try to remember he hates the sneezing, blowing, hacking, and wheezing more than you do. Poor kid.

unsync · 12/10/2024 18:17

I use Sterimar to clear my sinuses. Makes a big difference. The ENT consultant I was referred to for nosebleeds recommended it. It washes out allergens and mucus, but also moisturises nasal membranes (apparently).

Sunshineandrainbow · 12/10/2024 18:16

Has he got an air purifier in his room?

Mumtobabyhavoc · 12/10/2024 18:13

This will be a long one:
@Purrdy Your poor son. Imagine being yelled at constantly by everyone because of a medical problem, something you cannot control.
He likely needs a multifaceted approach:
Allergist
Ear, nose, throat (ENT) specialist
Sinus rinse with neti pot
allergy medication
nasal sprays

Re neti pot/sinus rinse: water must be boiled (5 mins) then cooled before use. I cool to 36c - 38c for use. This is imperative as it must be sterile and potential parasites must be killed by boiling. Do not use hot water taps. If your kettle shuts off at boiling, or doesn't boil long enough, boil water on the stove.
I use the Neil Med kit and have for years. You can find it on Amazon. The squeeze bottle is easiest. When nose is running like a faucet I will rinse each nostril 2-3x up to 4x a day. So much relief is gained this simple way as nose is cleaned out much better than by blowing and the rinse is soothing. Remember to breathe out through your mouth as you squeeze/flush with the rinse solution.

Allergy meds: you have to cycle them. They must be taken daily and take 30 days in your system to be effective. Don't take the same one all the time. Read labels and buy brands with different active ingredients. Use regularly.

I use Mometasone. It's safe for long term daily use and is best at reducing swelling to prevent sinus infections. Your ds is likely prone to them, as am I, due to constant irritation/inflammation of the sinus cavities and nasal passages. Continue use until things settle down.

OTC sprays to open nasal passages. Package says 3 days max. My ENT says okay up to 7 days when active sinus infection and trouble breathing. I'll often just use in worst side. I use these sprays here and there when I feel nasal passage is even a bit closed.

Really push for the specialists. ENT will confirm/rule out deviated septum, for example, among other things. Invaluable if you get a good one, especially if they will follow your ds for a few seasons to check meds and protocols. Same with allergist. Repeat allergy testing is imperative.

Your ds is likely miserable. I know I was until above. It took a long time to find a good regimen.

Hankunamatata · 12/10/2024 18:11

Dymista nasal spray beconase did nothing

Alwaystired2023 · 12/10/2024 18:10

@Purrdy i sneezed lots like it was hayfever, I was generally quite gross and gave me bad breath from mouth breathing etc

Waitingforthecold · 12/10/2024 18:10

Purrdy · 12/10/2024 16:46

They are driving me literally insane.
DS 13 asthmatic spends his whole entire life doing huge shouting type massive gargantuan sneezes, over and over and over again, they are non stop. Imagine a big dog barking and barking non stop - that's what his sneezing is like and they're that loud too. And non stop sniffing up snot sniff sniff sniff sniff, his nose is like a tap of never ending cattarh. Jesus, the arguments we have about his nose. "Freddy blow your nose!!!!" "No" "BLOW YOUR NOSE!!!" "No" "Freddy your constant sniffing and snorting is driving everyone in the house mad - BLOW YOUR NOSE". "Nooooo!" "Freddy BLOW YOUR NOSE!". He finally blows his nose, blows and blows and blows, as much as he blows it out the snot instantaneously refills, he blows, snot refills, he blows, snot refills. Immediately goes back to sneezing and sniffing and snorting and says "See, this is why I don't blow my nose, there's no point whatsoever, it's pouring out of my nose straight after no matter how much I blow it". This goes on all day, all night. Kids at school turn round at their desks or nudge him and say "Mate, blow your nose". Sitting round the table for dinner is appalling, my other DC shout "Ughh, it's putting us off our food! He's sneezing over our food! (Even though he covers his mouth and nose as much as he can with his elbow or a hankie) his snot is so loud it's disgusting!" He sits there looking dejected at the table.
I am at my wits end.
It goes on all summer because of pollen. Now it's October so there's no pollen but it's still the same level of relentless 100 decibel repetitive sneezing and gallons of catarrh pouring in to his nose. It will go on all winter too, just like it has the past 2 winters. Then all spring. It is year round every year.
We're dusting everywhere, cleaning the floors non stop, pulling out his bed non stop to clean under it, I've removed curtains, got rid of carpet and rugs, bought hypoallergenic mattress covers/pillow covers/duvet, boil wash at 90 degrees his bedding every few days, OMG the work it's creating is exhausting me on top of everything else I have to do. Mometasone and beconase nasal sprays don't work at all. He takes 180mg Fexofenadine daily which is an adult dose for treating hives - you'd think if it treats hives in an adult then it would sort out a 13 year olds non stop sneezing and running cattarh....but no, it doesn't touch it. GP said he can't have any higher dose than that.
I just don't know what to do.
It's making him really depressed and it's sheer HELL to live with.
It's driving the whole family insane but me especially as I spend most time with him.
Can anyone at all give me any help or experience?!

If he’s asthmatic have you tried Montelukast? It targets the upper respiratory symptoms of asthma (inhalers etc tackle lower).

it changed my life to be honest! I didn’t realise how much the symptoms were impacting my ability to sleep, exercise etc.

Hankunamatata · 12/10/2024 18:09

Immunology put me on montelukast which was a game changer for allergies. I take that and fexofenidine and nasal spray.
Get him to rinse his sinuses morning and night. You can buy cans of saline.
I would ask for ent referral as could have adenoid problems and immunology for allergies

GameofPhones · 12/10/2024 18:06

My bro was allergic to newsprint. Do you have newspapers in the house?

SeatonCarew · 12/10/2024 18:03

The poor child.

Plantago drops in water three times a day have changed my life. Has to be worth a try, you can get them on Amazon. ( Vogel). Look up the benefits online.

Lucytheloose · 12/10/2024 18:01

Can see why that would be hugely irritating, but you need to get to the bottom of what's causing the problem.

Gollumm · 12/10/2024 17:57

This sounds like more than hay fever and allergies. This needs an ENT referral. I'm shocked you haven't pushed for this seeing as he's now 13 and things haven't improved, so yes YABU.

Muchtoomuchtodo · 12/10/2024 17:56

Poor boy.

I take it that he’s not had investigations to diagnose what it is that he’s allergic to?

That needs addressing and then more targeted and effective treatment can start.

BarbaraHoward · 12/10/2024 17:54

Poor kid, he must be constantly feeling miserable. Quite possible he doesn't even realise how tired he is, given he's asthmatic his body is probably working so much harder just to keep going. Probably getting shit quality sleep too.

The problem here is definitely his own health, not anyone else's frustrations with having to hear it.

Definitely long past time for a specialist. Would you be able to go private? (Reputably, not a high street allergist.)

TeamPlaying · 12/10/2024 17:52

I get that it must drive you up the wall, but geez you can’t show that to him! And how can you let your other kids have a go at him?! Poor kid, he’s the one actually going through it.

I agree you need an ENT referral and full allergy testing.

ObelixtheGaul · 12/10/2024 17:44

Procrastinates · 12/10/2024 17:15

Poor kid! Imagine being unable to stop constantly sneezing and sniffling to the extent you're actively becoming depressed and instead of trying to continue to find appropriate help for the situation and be sympathetic your own mum shouts at you, argues with you about it and makes constant comments. 😥

Edited

I agree. No wonder the poor mite is depressed, his own mother is treated his ailment like some sort of deliberate act of annoyance, his siblings are allowed to make comments about it to his face, he probably feels like an absolute social pariah at school and at home.

rubyslippers · 12/10/2024 17:38

Get him referred to a really good paediatric allergist / consultant - if you’re in London / Home Counties get to the royal London and Dr Aston (the best) and a respiratory specialist as well
Get him tested for everything
find an excellent drug regime - it will take time
his life will be transformed
do it now so he can have a year to find a really good med regime and before his GCSEs

Smileatthesmallthings · 12/10/2024 17:37

Get him to the doctor's and get allergy testing and referral to immunology. DW has had terrible hayfever for years and, although it's been a long wait, now knows exactly what she's allergic to, was given more effective medication and has just started a course of immunotherapy.

Poor boy must be so miserable. I know with DW that blowing her nose or any sort of nasal spray etc can make it worse and sore. She gets headaches from it and is generally miserable march-october.

Londontown12 · 12/10/2024 17:36

Could also be nasal polyps !! Ent referral he can’t live like that it’s not fair on him or your family !

PortiaWithNoBreaks · 12/10/2024 17:35

Also is he using the spray properly, directing the nozzle towards his ear? Have a look at Dr (Prof?) Adam Fox on Instagram.

PortiaWithNoBreaks · 12/10/2024 17:34

Has he tried Avamys spray? Twice a day, the last one just before sleep? Sounds awful for you all.