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AIBU?

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Comment about swaying at parents evening

40 replies

Purtyburty · 10/10/2024 20:18

Posting for traffic. My husband and I attended parents evening today for our DD in pre school aged 3. Her teacher told us that she sways from side to side a lot and have we noticed this at home? I was really caught off guard by the question, we both replied that we hadn’t noticed it but in hindsight I wish I had just outright asked her if she was implying that she was wondering if DD had autistic tendencies. DD is a hyper sensitive child and is extremely shy - she has done really well starting pre school (she has been at home with me until now) and in week 3 just walks in on her own which I thought would take months to happen so if ever so this comment really shocked me. I personally don’t think she is autistic, but hyper sensitive but I suppose I am concerned that her school think she is? I am not sure why my AIBU is, maybe should I be worried about this, do I need to investigate further. It has really upset me, because I feel like I don’t know what was implied by this.

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surreygirl1987 · 11/10/2024 18:38

Dilysthemilk · 10/10/2024 22:10

Tbh my son didn’t get his Autism diagnosis until he was 9. When he did I mentioned to his nursery teacher when we saw her at a community event. She told me that she had suspected but hadn’t like to say. Honestly - it would have been incredibly helpful if she had and would have saved him (and us) a lot of stress if he got an earlier diagnosis and therefore earlier intervention and understanding in school. So if the teacher is trying to open the conversation - good for them for being brave!

Yes - this is really common. It's far from ideal (but you can't blame the staff - they often get such hostility if they even dare to suggest there might be any possibility of ASD) so always worth following up and asking the difficult questions.

Hugmorecats · 11/10/2024 18:10

amusedbush · 11/10/2024 11:52

As kindly as possible, please don't say "high functioning". It's othering, it implies that some autistic people are "low functioning", and it belies the struggles that come with having lower support needs.

Autism is autism; you're either autistic or you're not, but the spectrum isn't linear and there are a million different presentations/levels of support needs. A lot of the time, what appears to be "high functioning" is actually someone masking as a way of fitting in, which is really exhausting and uncomfortable.

People have suggested that I am "high functioning" or that my autism is "mild" but my ability to function varies wildly depending on external factors. Autism, by nature, is disabling - that's how you get a diagnosis.

I hope this doesn't read as rude or attacking ❤

@amusedbush totally agree… I did very well at school academically, but socially couldn’t cope at all and had several suicide attempts and an eating disorder as a teenager. So in one way I might have seemed fine and coping well but that really wasn’t the case.

Bushmillsbabe · 11/10/2024 12:25

OnGoldenPond · 11/10/2024 00:11

This chimes with myself. I have never been able to stand still as my knees/ hips become really painful. Have to keep shifting my weight from foot to foot and keep moving my hips. Been like this for as long as I can remember.

I've never managed to get any kind of diagnosis for the painful and unstable joints I have suffered from all my life, GPs just do X-rays and say all looks normal then try to prescribe me antidepressants. However, I've recently been looking into hyper mobility syndrome and I do seem to have a lot of the symptoms. No idea how to go about getting diagnosis and treatment though.

Ask for a referral to physio, we diagnose this all the time. There is a specific test for hypermobility called The Beighton Scale and a certain score diagnoses you as hypermobile. Specific strengthening exercises can help but need to be done daily to be effective

amusedbush · 11/10/2024 11:52

Purtyburty · 10/10/2024 22:53

@Boobygravy I agree that if my DD was autistic it is probably high functioning.

As kindly as possible, please don't say "high functioning". It's othering, it implies that some autistic people are "low functioning", and it belies the struggles that come with having lower support needs.

Autism is autism; you're either autistic or you're not, but the spectrum isn't linear and there are a million different presentations/levels of support needs. A lot of the time, what appears to be "high functioning" is actually someone masking as a way of fitting in, which is really exhausting and uncomfortable.

People have suggested that I am "high functioning" or that my autism is "mild" but my ability to function varies wildly depending on external factors. Autism, by nature, is disabling - that's how you get a diagnosis.

I hope this doesn't read as rude or attacking ❤

Pickled21 · 11/10/2024 01:23

When my dd1 was in nursery they asked if we had ever noticed how she runs. I had but I didn't know it was unusual. She was our first child, however the teacher was around a number of same.aged children so could pick up. on things like this. It triggered me to take more notice of things my dd was struggling with and once we gained a.picture self refer to physio. She struggled with loud noises, such as the blender or firework and although is fine with them now. She didn't want to go see Taylor Swift when my friend offered tickets as she felt the music would be too loud for her. We have an appointment with a paediatrician next week too. We love her, accept her 100% for who she is but of there are areas she needs support and a teacher or hcp sees it then we would be doing her a disservice by not acting on it.

It's easy to get worried and on the defensive as your child is so young yet however it's just something to keep an eye on. I shared the above just so you could see that school for us picked up on something that helped build a picture and act as a catalyst for us.

StressedQueen · 11/10/2024 00:14

Honestly, my teenager has always swayed from side to side and has displayed a lot of autistic tendencies such as having huge sensory issues and just generally behaviour like that. But it barely affects her and nobody else ever suspects that she could have it. If she does, it's high functioning I suppose because she is incredibly academically gifted as well as in other areas compared to her other siblings.

OnGoldenPond · 11/10/2024 00:11

gamerchick · 10/10/2024 21:55

Is she hypermobile? It's really hard to stand still if you are. You do tend to get a bit of a rock from hip to hip going on.

This chimes with myself. I have never been able to stand still as my knees/ hips become really painful. Have to keep shifting my weight from foot to foot and keep moving my hips. Been like this for as long as I can remember.

I've never managed to get any kind of diagnosis for the painful and unstable joints I have suffered from all my life, GPs just do X-rays and say all looks normal then try to prescribe me antidepressants. However, I've recently been looking into hyper mobility syndrome and I do seem to have a lot of the symptoms. No idea how to go about getting diagnosis and treatment though.

MounjaroUser · 10/10/2024 22:58

She sounds like a really lovely little girl. Try not to worry. I'd go back to speak to the woman again, if I were you.

Purtyburty · 10/10/2024 22:53

@Boobygravy I agree that if my DD was autistic it is probably high functioning.

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Dilysthemilk · 10/10/2024 22:10

Tbh my son didn’t get his Autism diagnosis until he was 9. When he did I mentioned to his nursery teacher when we saw her at a community event. She told me that she had suspected but hadn’t like to say. Honestly - it would have been incredibly helpful if she had and would have saved him (and us) a lot of stress if he got an earlier diagnosis and therefore earlier intervention and understanding in school. So if the teacher is trying to open the conversation - good for them for being brave!

TashaTudor · 10/10/2024 22:09

My daughter received a diagnosis of autism at 2 when at nursery and is undergoing genetic testing and other things. I really wouldn't worry about just one comment, it could be that if it's only at nursery and she does it at a certain time, how can they support her at that time etc

Bushmillsbabe · 10/10/2024 22:05

The reason they are asking this is because for a behaviour to potentially indicate a concern around ASD, it has to be what they refer to as 'pervasive' - so present to some extent in a variety of different environments. Any assessment asks for information from both family and nursery/school. If you haven't noticed it at all at home, it's likely that the swaying is linked to something at pre school which she is adjusting to, its a comforting sensation. Or it's something she does when she is really concentrating - my oldest does this to help her focus.

Them asking is a good thing, it's shows they are paying close attention and tuning into the children's needs, they are keen to engage with you as the people who know her best.

Purtyburty · 10/10/2024 21:58

@Spinet Thank you. I totally agree with you - she is still exactly the same person she always has been and the absolute apple of my eye.

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gamerchick · 10/10/2024 21:55

Is she hypermobile? It's really hard to stand still if you are. You do tend to get a bit of a rock from hip to hip going on.

Boobygravy · 10/10/2024 21:53

My dgs hates loud noises, slimy food, certain clothing.
All sensory things.
He's 12 now and has no diagnosis that I know of.
If he is autistic then he’s high functioning.
As a small dc it was much more noticeable.

NowImNotDoingIt · 10/10/2024 21:51

Purtyburty · 10/10/2024 21:47

@NowImNotDoingIt She has always struggled with loud noises - lawn mowers, blenders etc. She is a fussy eater.

Ok so it is something that has been at the back of your head. Again, those can be common traits of kids that age , or something else. DD was similar at that age(still kinda is) and I'm still not sure what's what and she's 13!!

My suggestion would be to make a list of all your concerns (on paper so easier to keep track and express yourself) , any behaviours that worry you and ask for another meeting with the teacher. Put your cards on the table, see what they have noticed , what is their opinion?
Then go from there.

Purtyburty · 10/10/2024 21:50

@NowImNotDoingIt But at the same time she is extremely empathetic, brilliant at reading emotions etc

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Purtyburty · 10/10/2024 21:47

@NowImNotDoingIt She has always struggled with loud noises - lawn mowers, blenders etc. She is a fussy eater.

OP posts:
deademptyduck · 10/10/2024 21:45

I just realised I didn't really answer the question! We started noticing as she got older that she didn't seem to pick up at all on emotions. I lost a family member when she was around 9 and I said please be good today because I'm struggling. She didn't get why that was and then I caught her trying to force tears out by squeezing her eyes. I spoke to school and they said they would get an educational psychiatrist in. I was pretty shocked when they felt she did have autism though!! In secondary school it became much more apparent.

deademptyduck · 10/10/2024 21:43

My daughter was always very hyper. Full on all the time and we had to take her out often because keeping her in was impossible for a many years until she learnt to read! She would watch Human Planet and Blue Planet on repeat where other children watched Disney! She would always be the last to come out of school and the last to get dressed after PE etc. School questioned her hearing and sight because she was always away in the clouds yet she could answer questions. And there were an awful lot of clothes / shoes she wouldn't wear because of how they felt. So many small things really that didn't make us feel anything was majorly different. Things haven't been easy at times but she is now at university and thriving so it doesn't have to be a huge issue.

Spinet · 10/10/2024 21:40

You could make an appointment with the GP and ask them for advice. They can refer for assessment if they think it's appropriate, and they can also check for a physical cause.

Whether she is autistic or not she's still the same lovely girl she was before parents evening OP. Any diagnosis would only be to help her with any support she might need and doesn't change who she is anyway. I know it's worrying but if you think about it the "truth" about her changes nothing about how or who she is or her lovely relationship with you.

NowImNotDoingIt · 10/10/2024 21:37

Purtyburty · 10/10/2024 21:34

Thank you for the replies. They do range quite a bit from I am really jumping to conclusions, to I do need to be mindful and autism is probably what is being suggested, so I guess I still don’t know how to feel.

I know it could be a number of things, she doesn’t feel confident enough to use the toilet there so it could be needing a wee, she is an anxious child so could be self soothing, or it could be an indicator of autism. I find the not knowing for sure aspect quite difficult to deal with.

@CobbldyCook If you do not mind sharing, what were the other developmental issues your DD displayed?

@deademptyduck I have read girls mask better and symptoms can be subtle, if you don’t mind me asking how was your DD’s autism picked up in the end? Which symptoms did she display?

Do you have any other concerns/suspicions about autism? Is it something that was at the back of your mind anyway?

Purtyburty · 10/10/2024 21:34

Thank you for the replies. They do range quite a bit from I am really jumping to conclusions, to I do need to be mindful and autism is probably what is being suggested, so I guess I still don’t know how to feel.

I know it could be a number of things, she doesn’t feel confident enough to use the toilet there so it could be needing a wee, she is an anxious child so could be self soothing, or it could be an indicator of autism. I find the not knowing for sure aspect quite difficult to deal with.

@CobbldyCook If you do not mind sharing, what were the other developmental issues your DD displayed?

@deademptyduck I have read girls mask better and symptoms can be subtle, if you don’t mind me asking how was your DD’s autism picked up in the end? Which symptoms did she display?

OP posts:
SometimesCalmPerson · 10/10/2024 21:13

You are overthinking this. All they did was ask if you’d seen a similar behaviour that they had witnessed at home. It is their job to support your child with anything that might be causing them any discomfort and they can do that best if there is open communication between them and you.

Thisismynewusernamedoyoulikeit · 10/10/2024 21:09

Ask. They might have been hinting at autism, or a phyical disability, or anxiety. Or they might have just been asking.

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