I am a year ahead of you and sending lots of love.
Initially I did have to leave work and claim benefits as I couldn't leave DC and staying up all day and all night wrecked my health. As well as the direct supervision of DC, a lot of time was taken up with appointments and meetings often at short notice and usually smack bang in the middle of the day, so you have to take hours off work, rather than being able to come in late or leave early.
It also took time to find out what the services were and listen to all the reasons why you don't meet the criteria and they won't help you.
Nobody will help with looking after DC as they are too scared and don't want to take on the risk. I felt ashamed to talk about it. Felt like a shit parent.
I exhausted every avenue I could think of, including my MP. Any services are very limited and don't have staff and can only offer six visits. There is no proper ongoing support.
In addition to this I am now, for the first time in my life, in debt, behind on the mortgage and buying groceries on the credit card, with little hope of improvement in the short term.
When things settled down a bit I was able to get a work from home job. It's tricky though as I have one eye on the computer and one eye on DC so nothing is done properly. We are adjusting to our new normal and finding our own way forward.
I hope this will encourage you, that it's the system that is broken, not you. There are so many people with no lived experience who insist there must be some "help" and want you to waste your time on wild goose chases to find it.
You will find a way to get through it. This too will pass. Sending hugs xx