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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder how Migraines can be harmless?

113 replies

FranksBank · 01/10/2024 16:55

I know they are, and don't cause damage. But the mind boggles as to how when it must impact my brain in such a huge way.

My face drops to one side, one side of my body goes numb. I cannot read and make of sense; my speech slurs. I can't recognise faces and lose my eyesight in one eye

These are just a type of migraine (confirmed by a Dr) and they're horrible. I am baffled now they can have no lasting impact on the brain

Anyone else find it shocking that you can't seen any physically evidence for them on an MRI? I'm not medical. So I'm just talking nonsense really - but it is true they cannot be 'proven'

I the post drome symptoms are nasty too.

Argh! Be grateful if someone could join me in moaning Grin

OP posts:
Soubriquet · 01/10/2024 19:48

ButtSurgery · 01/10/2024 19:28

Have you tried antisickness meds? I find if I can get the nausea under control my migraine isn't as severe and with my stomach working again the triptans have a better chance of working against the migraine.

I’ll give it a go

Safxxx · 01/10/2024 19:46

Try wet cupping therapy. I know many who have been suffering with migraines feeling much better and some even cured. I used to get very bad throbbing headaches, it all went after a session. Give it a go guys...even acupuncture is good 👍

MigGril · 01/10/2024 19:39

Alltheyearround · 01/10/2024 19:30

Really? My GP refused me the combined pill as he said as a migraine sufferer I was at increased risk of stroke.

Yes if you have migraine with aura you are at a higher risk of stroke so they won't give you the combined pill. I've no idea what @FranksBank neurologist was talking about. 🤔

LostOnTheWayToManderley · 01/10/2024 19:37

Solidarity to all. And sympathy to @ButtSurgery because I have had a similar experience of total paralysis and weakness on one side where I fell down in the bedroom returning from vomiting and couldn’t get myself up, just lay there thinking ‘This, then, is where my cats come in and eat me.’

Alltheyearround · 01/10/2024 19:30

FranksBank · 01/10/2024 18:50

I did bring this up with the neurologist who confirmed them to be migraines - He said the difference was minuscule and really no more likely than anyone else in the population to have a stroke just because I have migraines Blush he made me feel a bit silly!

Really? My GP refused me the combined pill as he said as a migraine sufferer I was at increased risk of stroke.

MigGril · 01/10/2024 19:29

susiedaisy1912 · 01/10/2024 19:01

Why are they reluctant to prescribe a Triptan tablet for you?

You shouldn't take triptains more then x2 a week, as they can cause migraine overuse headache 😫.

Migraine has to be one of the worse pain conditions in that you have to suffer with the pain. I've had six months off work recently. The first 3 in constant pain, as my botox treatment had stopped working, but no your not allowed to take triptains more then x2 a week or painkillers more then x3 times a week or they will class you as being in Medication overuse headache. So thanks for that we just have to put up with the pain. I'm not sure I even remember much of those 3 months now.

ButtSurgery · 01/10/2024 19:28

Soubriquet · 01/10/2024 19:27

I hate migraines. I get it so my head pounds, it hurts to move and I get no appetite at all despite being starving hungry. I cannot eat cos it makes me want to throw up…which makes my head worse.

Have you tried antisickness meds? I find if I can get the nausea under control my migraine isn't as severe and with my stomach working again the triptans have a better chance of working against the migraine.

EnhancedVampireEyeballs · 01/10/2024 19:28

Oh but mine have actually caused some brain damage though. Well either the migranes or the seizures, Neurologist can't be quite sure, but I have a few little lesions on my brain.

LivelyGoldOrca · 01/10/2024 19:28

FranksBank · 01/10/2024 16:55

I know they are, and don't cause damage. But the mind boggles as to how when it must impact my brain in such a huge way.

My face drops to one side, one side of my body goes numb. I cannot read and make of sense; my speech slurs. I can't recognise faces and lose my eyesight in one eye

These are just a type of migraine (confirmed by a Dr) and they're horrible. I am baffled now they can have no lasting impact on the brain

Anyone else find it shocking that you can't seen any physically evidence for them on an MRI? I'm not medical. So I'm just talking nonsense really - but it is true they cannot be 'proven'

I the post drome symptoms are nasty too.

Argh! Be grateful if someone could join me in moaning Grin

I have them with aura
and think that puts me at higher risk of strokes …./cardiovascular disease

ButtSurgery · 01/10/2024 19:27

There was a theory a few years back that migraine was a form of epilepsy, but I don't think they've gone further with that research - no idea why. It would explain a lot to me!

Another chronic migraineur here.

Hemiplegic attacks in me look like a stroke. My first one was so horrific and I was living in my own in a flat. I couldn't think straight, I was in so much pain, unable to speak, facial paralysis and no upper body strength that I actually lay down on my bed convinced I was dying and wouldn't wake up again. Felt a bit daft when I woke up a few hours later 😂. I'd take a triptan when it began, so it must have kicked in while I was sleeping.

A brain scan showed nothing unusual, but marginally more white matter than the average bear. But white matter isn't a problem.

Soubriquet · 01/10/2024 19:27

I hate migraines. I get it so my head pounds, it hurts to move and I get no appetite at all despite being starving hungry. I cannot eat cos it makes me want to throw up…which makes my head worse.

soupfiend · 01/10/2024 19:25

My migraines have never been assessed or looked at by anyone.

I was given sumatriptan and just sent on my way. To be fair when I was having them more regularly, it did the job, although knocked me out

EnhancedVampireEyeballs · 01/10/2024 19:23

I have Basilar type migranes, or MBAs as they are known now. The pain is horrendous, I can't cope with daylight, have constant nausea and vomiting, numb hands and feet, pins and needles all over.

I also have Epilepsy, which doesn't help, between both I currently have such a bad headache I genuinely want to smash my face in with a big brick. It's fucking hideous, and my current treatment is amytriptaline and a fuck load of levetiracetam. Which make me exhausted and a bit fucking crazy.

Simonjt · 01/10/2024 19:22

I have the same type as you op, they also then leave my tired for days and have a big impact on my blood sugar (type one diabetic). I once had a colleague in a fairly new job call 999 when I had a migraine at work, I couldn’t speak and by the time I’d managed to scrawl out a note they were here due to strole protocol.

Riverswims · 01/10/2024 19:20

Floogal · 01/10/2024 18:45

Further to add, I can't imagine it would be very safe to drive with auras.

I have got an aura while open water swimming I got out whilst electrolytes before often prevent it, not always

spiderlight · 01/10/2024 19:06

They've ruined my life. I'm on two daily preventives, sumatriptan, monthly Erenumab injections, I don't drink, smoke, or eat any of my trigger foods, and I still have constant background symptoms so severe that I had to give up driving 20 years ago, I can only work from home, and I often struggle to leave the house - I couldn't even walk my dog round the block yesterday and I feel as if my head's on another planet today. I haven't had a single day when I've felt completely normal for 31 years. My mental health is shot. I'm on my 4th neurologist and I don't think I'll ever feel well again. My DS is 17 and has never seen me well. I just want a brain transplant at this point. Bastard things.

susiedaisy1912 · 01/10/2024 19:01

Floogal · 01/10/2024 17:32

The bane of my life, and has become worse and more frequent since having COVID. The doctors are reluctant to prescribe more sumitriptan.

But, yes, migraines can be really disabling

Why are they reluctant to prescribe a Triptan tablet for you?

TwoUpTwoDown · 01/10/2024 18:59

I also suffer with very bad migraines and for the days after an attack feel very groggy and find it hard to hold on to information. It does feel as though they have affected my brain long after the attack. I feel as though I live in fear of having a migraine as they are so debilitating and wish there was more awareness of how awful they are and more support to combat them! My sympathies to everyone else who struggles with them!!

FranksBank · 01/10/2024 18:58

Sorry to everyone joining here to say they get them :(

I've had sepsis from kidney infection and found that more managable than the migraine - Not just the head pain with it but the weird vision, slurred speech and nausea, not being able to comprehend simple words.

Everything as a whole felt much worse than the start of my sepsis a few years ago. I'd also rather have my painful gallbladder than suffer on with these migraines Sad

I'd 100% rather be in labour. That's for sure.

OP posts:
RandomMess · 01/10/2024 18:57

My stroke consultant told me that my migraine DID contribute to my stroke.

One of the things that happens during your migraine is that the blood vessels narrow. Helped trap the clot...

Many migraines in women are linked to hormones.

BobbyBiscuits · 01/10/2024 18:57

I used to get Alice in wonderland syndrome, and hallucinate, and vomit constantly. It felt like my eyes were being gouged out and my face was so hot an iced flannel would be hot and dry in seconds. At one point I was admitted to hospital they thought I was epileptic or having a drugs overdose! I was 12. I don't get them as much now but it is so painful it feels like a virus. My whole head throbs and feels boiling. I sweat like mad and feel cold all over my body and can't speak. But yeah, it's not actually permanently damaging weirdly.

bluebluetoon · 01/10/2024 18:53

And I have to say, nothing annoys me more than people calling a headache a migraine.

A migraine is such more than a headache. I can't actually function, actually struggle to speak

soupfiend · 01/10/2024 18:50

Imfreetofeelgood · 01/10/2024 17:22

Migraine sufferers, especially women, have an increased risk of stroke and some forms of dementia. It seems sensible to do what you can to reduce the other risk factors as much as you can. Don't smoke, limit alcohol, address cholesterol and blood pressure problems, eat a healthy diet, exercise. Mine are once in a blue moon since I worked out the 2 triggers - I really feel for those with frequent migraines.

I had migraines from a teen and they virtually disappeared overnight once I became peri.

Nothing else had changed about me at all. although I think that my migraines have simply turned into vertigo

Completely hormonal as far as Im concerned

FranksBank · 01/10/2024 18:50

MigGril · 01/10/2024 17:05

I here you, 26 years off chronic migraine and I am at a loss as to how they haven't caused some sort of permanent damage. 😕

I do think when they do studies that they can see the physical effects on the brain during a migraine attack. But they have to be watching when one is happening.

Please be aware also if your doctor hasn't told you that you are at a higher risk of stroke then other people, so that is something to be careful about.

I did bring this up with the neurologist who confirmed them to be migraines - He said the difference was minuscule and really no more likely than anyone else in the population to have a stroke just because I have migraines Blush he made me feel a bit silly!

OP posts:
soupfiend · 01/10/2024 18:48

Yes I have always thought they must be either causing damage to my brain or as a result of some other damage. As you say, complete inability someteimes to manouver my face or head, strange sensations all over my face and head, the sheer pain of it

And interestingly, on the qrisk assessment it does ask you if you have migraines and I have fiddled about with it wondering why my qrisk is higher and heart health is higher than it should be, and the migraine question affects the rating

So this worries me in terms of risks for stroke and heart attack