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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be looking so differently now at Drs, schools etc etc

311 replies

Loveafridaynightchippy · 26/09/2024 22:11

Has anyone else had a change of opinion about things that they’ve not really questioned and always just accepted before, in the last few years?
It could be since a became a mum, but I’m wondering if it’s more.
My Dd has been very ill recently and I’ve gained much better help, advise from less traditional Drs-think medical Drs who focus on naturopathy too, homeopathy and so on, I never knew anything about homeopathy before my Dd got ill. The results I’ve seen are incredible and much more positive that traditional things like antibiotics, painkillers and so on.
I used to be a teacher and loved it, but I’ve found myself really questioning if this is the right system and the right way of doing things and am increasingly doubting traditional schooling. Even the way the majority of us work, the 9-5, the commutes, snatched weekends with loved ones, the yearly holiday.
Maybe I’m just becoming an old hippie! 😂
Does anyone else feel like this?

OP posts:
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7
SophiaCohle · 28/09/2024 17:54

Oh gosh, @Predes that's awful, so sad.

Predes · 28/09/2024 17:42

I absolutely agree with @SophiaCohle . My DS can very much appear neurotypical for weeks, months even, until demand exceeds his capacity, then it’s very clear he is autistic. Children pick up illnesses all the time, I could probably make the correlation that following an illness or cold DS’s AuDHD symptoms suddenly exacerbate. Having the mix of autism and ADHD can also mean that one can mask the other for a period of time.

On a different but related topic, my own aunt was very big in the alternative medicine world. She was a practising homeopath with many ‘patients’. She had all the equipment, studies, and an entire room dedicated to her work. She would research all the time. She would tell whoever would listen about her work and encourage them to reject traditional medicine and medical advice. Listening to her was very convincing and I tried quite a few of her therapies throughout the years.

Then, when she was diagnosed with an aggressive Stage 2 cancer in her 50s, she was advised to have a complete double mastectomy and chemotherapy. She scoffed that chemotherapy is what really killed people, not cancer, and that she would be healing herself. She died slowly and agonisingly 6 months later. Before she died, she had finally relented and begged for chemotherapy, but unfortunately the cancer was untreatable by that point.

NoNameNoPlace · 28/09/2024 15:53

Homeopathic remedies are literally water. If your DD is on traditional medicines and homeopathy then it is the traditional medicine that is working, or she is getting better independently.

Unless she was dehydrated I suppose 😂

cardibach · 28/09/2024 15:52

Mirabai · 28/09/2024 15:47

The OP is about a broad questioning of traditional methods of medicine and education. It’s just that you have a particular boring obsession with homeopathy.

I really don’t. But ok. I’m out.

Mirabai · 28/09/2024 15:47

cardibach · 28/09/2024 15:38

Maybe so, buts it’s homeopathy she talks about most.

The OP is about a broad questioning of traditional methods of medicine and education. It’s just that you have a particular boring obsession with homeopathy.

cardibach · 28/09/2024 15:38

Mirabai · 28/09/2024 13:48

Homeopathy is not the subject of the thread - if you read the OP more carefully she covers naturopathy as well as homeopathy - the former includes a wide range of natural therapies to which my post referred.

Maybe so, buts it’s homeopathy she talks about most.

SophiaCohle · 28/09/2024 14:50

Loveafridaynightchippy · 28/09/2024 13:07

@SophiaCohle It’s been described as children being thrown into sudden autism. Many of the symptoms mimic it, in a sudden, extreme way. But the symptoms are often not consistent at all. We have had two years in between our symptoms, once when was sick similar as she is now, lasting for 4-5 months after illness and now, two years later again. In between these times, she doesn’t display any signs of neurodivergence and presents as a *Typical child. But yes, the symptoms that occur whilst the child is ill, present very much like autism/adhd at times. My Dd also has physical symptoms-tiredness, nausea etc, until the inflammation calms, it doesn’t improve, it seems.

Have you pursued the possibility of an autistm/ADHD diagnosis at all? In my experience (as an autistic person with autistic children and siblings) the signs of autism can be uneven, despite it being a lifelong condition, because the experience of being autistic can be aggravated by environmental conditions and stressors, developmental stages (especially puberty) and by the uneven demands placed on kids by the stepwise development expected at school.

Looking at the list of symptoms on the PANDAS page, I was struck, for instance, by things like 'sudden deterioration in visuospatial skills' and 'clumsiness'. That might well relate to the dyspraxia that autistic kids often also have, but might only become apparent when they're suddenly expected to change into PE kit independently when they haven't before - the onset isn't actually sudden, just the visibility of the problem. I get that you feel it followed a physical illness, but autistic children (and adults for that matter) often somatise, i.e. complain of feeling ill when actually they're (we're!) dysregulated. If other stressors ease off, then the feeling of malaise eases off too.

These are just examples, but the point I'm making is that the idea of the autistic experience being a consistent one, in contrast with this syndrome of your DD's, isn't entirely accurate or helpful. I often feel that I'm "particularly autistic at the moment" when external demands mean that, say, sensory things that I could normally cope with become intolerable.

I can't help feeling that this PANS/PANDAS thing might have been dreamt up based on the observations of parents who have no idea their child is autistic. When I think how hard it was to get an autism diagnosis, there's no question in my mind that going to the doctor with a loose collection of traits plus a complaint of feeling unwell would probably not have led to the correct diagnosis and might instead have led to a wild goose chase after a mystery illness. It's not surprising that parents without the family history to make ASD/ADHD an obvious starting point might end up thinking their child has some new and complicated syndrome. If you can bear to, I wonder if going back to conventional medicine might offer you more answers than you think.

Apologies if this is patronising. I just remember being gobsmacked by how many seemingly mysterious aspects of my own health and daily experience were fully explained once I re-examined them through the prism of an autism diagnosis I hadn't previously considered. I'm happy to discuss mine and my children's experiences by PM, if that would be helpful.

Barrenfieldoffucks · 28/09/2024 14:01

MigGril · 26/09/2024 22:29

That is true and they have done studies on it and shown how well it can work.

But please don't believe in homeopathy it really isn't medicine in any sense of the word.

Gotta love a sugar tablet.

And water with a memory.

Mirabai · 28/09/2024 13:48

cardibach · 28/09/2024 12:36

And my point in return was that, out of those, homeopaths were different. You then kept suggesting other types of treatment which weren’t like homeopathy, and I kept reiterating that I knew that, but homeopaths, the subject of the thread, and of the comment I made you that you initially responded to, are charlatans. Not sure what your point is, honestly.

Homeopathy is not the subject of the thread - if you read the OP more carefully she covers naturopathy as well as homeopathy - the former includes a wide range of natural therapies to which my post referred.

Loveafridaynightchippy · 28/09/2024 13:07

@SophiaCohle It’s been described as children being thrown into sudden autism. Many of the symptoms mimic it, in a sudden, extreme way. But the symptoms are often not consistent at all. We have had two years in between our symptoms, once when was sick similar as she is now, lasting for 4-5 months after illness and now, two years later again. In between these times, she doesn’t display any signs of neurodivergence and presents as a *Typical child. But yes, the symptoms that occur whilst the child is ill, present very much like autism/adhd at times. My Dd also has physical symptoms-tiredness, nausea etc, until the inflammation calms, it doesn’t improve, it seems.

OP posts:
cardibach · 28/09/2024 12:36

Mirabai · 28/09/2024 12:05

Exactly, as I said I have only mentioned homeopathy in passing reference to medical doctors who train in alt medicine. So my point was about dual training not homeopathy.

And my point in return was that, out of those, homeopaths were different. You then kept suggesting other types of treatment which weren’t like homeopathy, and I kept reiterating that I knew that, but homeopaths, the subject of the thread, and of the comment I made you that you initially responded to, are charlatans. Not sure what your point is, honestly.

Mirabai · 28/09/2024 12:05

cardibach · 28/09/2024 11:56

From a post in that thread.
Mirabai · Yesterday 17:18
What of the medical doctors who are also qualified Chinese medicine practitioners/homeopaths/herbalists?

it was what you asked. It’s what I’m answering. I said the other things were different in my first reply. It’s you having your own conversation.

Edited

Exactly, as I said I have only mentioned homeopathy in passing reference to medical doctors who train in alt medicine. So my point was about dual training not homeopathy.

cardibach · 28/09/2024 11:56

Mirabai · 28/09/2024 00:01

You’re having a conversation with yourself, I’ve never mentioned homeopathy other than in passing reference to medical doctors who also train in alt medicine.

There are very few studies on many if not the majority of medicinal herbs.

From a post in that thread.
Mirabai · Yesterday 17:18
What of the medical doctors who are also qualified Chinese medicine practitioners/homeopaths/herbalists?

it was what you asked. It’s what I’m answering. I said the other things were different in my first reply. It’s you having your own conversation.

SophiaCohle · 28/09/2024 11:54

IANAD (or even a homeopath) but reading the list of symptoms on the PANS/PANDAS UK website what it overwhelmingly makes me think of is undiagnosed neurodivergence.

https://panspandasuk.org/what-are-pans-and-pandas/

Blushingm · 28/09/2024 07:09

Loveafridaynightchippy · 26/09/2024 23:13

@echt Not surprised why? I don’t have any evidence, just from what parents say has helped their children, can we all be wrong, I don’t know.
I’m not a stupid person, if I saw no benefits, I’d throw it in the bin

Not wrong intentionally but desperate for your children to feel better - if it work there would be documentation to show and it would be mainstream and offered to all

Blushingm · 28/09/2024 07:05

Loveafridaynightchippy · 26/09/2024 22:25

@nothingcomestonothing She had them and they didn’t help the problem the same way homeopathy seems to be. I know, I never even knew or bothered about it before, but ur really does seem to be working.
Definitely not discounting traditional ways and obviously realise the importance of antibiotics etc-however, there are other ways alongside traditional methods and other doctors who seem to know much more about the link between the gut and the brain for example. A lot of traditional doctors don’t seem that knowledgeable about many things these days in my experience (I’m not in the U.K..could be this, I don’t know)

'Traditional doctors' have years of training, studying and use EBP, other doctors like money and pray on desperation

puzzlesandactivediscussions · 28/09/2024 05:05

Agapornis · 27/09/2024 09:52

While the former homeopathic hospital still exists, now known as the hospital for integrated medicine, you'll be happy to know it stopped providing NHS-funded homeopathic remedies in 2018. They now do stress management etc.

Edited

That’s interesting because my friend hasn’t got a stress related illness. Not sure what she was prescribed but definitely something. My sister too although this was a while back and obviously not as treatment for her cancer.

knitnerd90 · 28/09/2024 00:31

I would be careful with PANDAS as the sources I've read (reputable ones!) do seem to indicate it is real but I have been in many Facebook groups and the like where people suggest it at the drop of a hat. So I wouldn't want to suggest it doesn't exist at all, but st the same time, I reserve judgment when someone random says that's what's the issue, if that makes sense.

by the way, the evidence in acupuncture isn't very good. I believe Ernst and Singh review that in their book as well. A lot of the studies that claim efficacy are poorly done. It certainly doesn't work the way people claim via controlling the flow of qi.

There is certainly more to health than just pharmaceuticals, but it is also not accurate to say that things like diet and talk therapy are somehow alternative. They are used and prescribed by medical practitioners all the time.

TempestTost · 28/09/2024 00:15

Mirabai · 27/09/2024 17:02

Non-traditional medicine on the other hand can be effective, but also has more chance of going wrong.

Not sure that’s true - medical error is the third highest cause of death in the US.

More chance than homeopathy, I meant.

Homeopathy is just water so s long as it doesn't have poo or something weird growing in the jar you are probably not going to get I'll from it.

But if you take some kind of herbal medicine that actual has an effect on the body it could potentially hurt you in some way. You need to have someone who knows what they are doing oversee and also who knows what other medications you might be taking etc.

Mirabai · 28/09/2024 00:01

You’re having a conversation with yourself, I’ve never mentioned homeopathy other than in passing reference to medical doctors who also train in alt medicine.

There are very few studies on many if not the majority of medicinal herbs.

cardibach · 27/09/2024 22:58

Mirabai · 27/09/2024 19:53

There’s more to the scientific community than research. Acupuncture does not have active ingredients.

if you are selling something as a medicine or therapy there should be peer reviewed evidence it works. There is for acupuncture. Homeopathy, quite the opposite.

Mirabai · 27/09/2024 19:53

There’s more to the scientific community than research. Acupuncture does not have active ingredients.

cardibach · 27/09/2024 19:13

Mirabai · 27/09/2024 19:10

You said they weren’t part of the scientific community.

Medical doctors who train in alternative medicine certainly don’t do it for the money - they could charge far more in conventional medical private practice.

It’s very common in China for example for doctors to be both medical and TCM doctors and use both in their practice. They don’t charge more for the TCM.

I said they weren’t part of the scientific community in the sense of doing research. They aren’t.
Anyone charging anything at all for homeopathy is a charlatan. I don’t want to be treated by a charlatan. As I said, traditional Chinese medicine is different. It has active ingredients.

Mirabai · 27/09/2024 19:10

cardibach · 27/09/2024 19:03

I didn’t say they didn’t work in science. Anyone who has ever researched homeopathy has concluded it’s crap. A medical doctor training in it can only be motivated by money, loses my respect and I wouldn’t trust him/her with my medical care as a result.

You said they weren’t part of the scientific community.

Medical doctors who train in alternative medicine certainly don’t do it for the money - they could charge far more in conventional medical private practice.

It’s very common in China for example for doctors to be both medical and TCM doctors and use both in their practice. They don’t charge more for the TCM.

cardibach · 27/09/2024 19:03

Mirabai · 27/09/2024 18:59

Medicine is an applied science, unless you specifically omit medical science from the scientific community.

There’s certainly a difference between material and non-material doses but acupuncture for example doesn’t fall under either.

I didn’t say they didn’t work in science. Anyone who has ever researched homeopathy has concluded it’s crap. A medical doctor training in it can only be motivated by money, loses my respect and I wouldn’t trust him/her with my medical care as a result.