To be looking so differently now at Drs, schools etc etc

That is what it means to you.

“Informed about the research” begs many questions - how informed, how much research, competency to assess the research, what types of research, studies pro and con? What is the consensus? Is the consensus country or culture specific? What are the research/treatment options in the U.K. vs Europe, US, China etc. And what about research into the individual patient?

There will be a difference in outcomes dependent on the grade which this data does not show.

But declining treatment only ever leads one way.

That’s not actually true, there are people who survive cancer who eschew conventional treatment. It might not be my choice but none of us know how we would cope with the horrific gruelling nature of chemo so there’s no point moralising about other people’s choices.

A friend of mine was diagnosed with cancer at stage 4 and started chemo but just couldn’t cope with it and stopped. It’s a moot point whether it would have given her more time or hastened her end, and given the extent of the metastases it was a question of when not if.

That is what it means to you.

“Informed about the research” begs many questions - how informed, how much research, competency to assess the research, what types of research, studies pro and con? What is the consensus? Is the consensus country or culture specific? What are the research/treatment options in the U.K. vs Europe, US, China etc. And what about research into the individual patient?

That is what it means to you.

“Informed about the research” begs many questions - how informed, how much research, competency to assess the research, what types of research, studies pro and con? What is the consensus? Is the consensus country or culture specific? What are the research/treatment options in the U.K. vs Europe, US, China etc. And what about research into the individual patient?

Well-informed definitely doesn’t mean ‘agrees with me’. It means informed about actual research in this case.

”Well-informed” is subjective. It generally means agrees with me or agrees with what I consider the paradigm.

The point is that while everyone (or at least competent adults) is entitled to make their own decisions based on their own thoughts, feelings and beliefs, not all decisions are equally well informed.

I have an acquaintance who is a homeopathic practitioner. Obviously people pay to see her privately because sugar pills are not prescribed on the NHS. She is a warm, friendly, person who operates out of a warm, comfortable house. An initial consultation with her is 60 minutes. She'll sit you down, take as much time as you need to properly discuss what's going on in depth. Contrast that to a rushed 10 minutes with a GP. Of course you'e going to feel better if you feel someone is really listening to you and taking an interest.

I do really despair though of anyone really buying into the idea that water has a memory. It's just such bad science.

#completelymissesthepoint

@SophiaCohle It’s been described as children being thrown into sudden autism. Many of the symptoms mimic it, in a sudden, extreme way. But the symptoms are often not consistent at all. We have had two years in between our symptoms, once when was sick similar as she is now, lasting for 4-5 months after illness and now, two years later again. In between these times, she doesn’t display any signs of neurodivergence and presents as a *Typical child. But yes, the symptoms that occur whilst the child is ill, present very much like autism/adhd at times. My Dd also has physical symptoms-tiredness, nausea etc, until the inflammation calms, it doesn’t improve, it seems.

For us. it’s working when other things haven’t as of yet, no placebo effect. I expected and waited for the other things to work..they didn’t, not as well anyway. I tried this, almost scoffing whilst I did it, expecting nothing, but I’ve seen results so we’ll continue for now to do both as and when needed

@knitnerd90 It’s not necessarily post strep only, there can be gut issues, mould etc, it seems to be very complex. It’s also not surprising that many children who are already diagnosed autistic also develop pans.
It’s very frustrating for the parents who have been told it’s something psychological or that their children have Odd or autism, when in fact, they don’t and see huge improvements upon tackling the underlying infection/cause and treating it appropriately and see the symptoms and behaviour disappear.

Really rude during an OP's serious concerns.
Typical of mumsnet......

Chemotherapy isn’t “faith based” at all. It has decades of research behind it. Unfortunately it’s never going to save everyone from cancer, but it does work and has saved or prolonged millions of people’s lives. Things like homeopathy save absolutely nobody.

Actually it's new improved for Mumsnet it's viper oil 24, still limited edition

If you accept that people have the right to make their own choices, the reason for those choices is entirely their affair. Deciding against chemo for whatever reason - the result is the same - no chemo. You may not know why they’ve made that decision - they may claim one thing out loud but believe another privately, they may have complex motivations.

It is finger wagging to judge other people’s decisions when you can’t control them and they won’t care what you think anyway.

Choosing chemo, or any gruelling treatment, is as much a faith-based position as an evidence-based one. People put their faith in a treatment due to evidence it works in other people. But there’s no actual evidence it will work for them, they just have to hope they’re in the % it does. If the patient didn’t believe chemo could be effective it would make it much harder to stay the course.