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Labour PIP benefit cuts

258 replies

Stickytoffeepudding6 · 25/09/2024 21:01

Can someone help me please?

I'm absolutely spiraling. I've just read up about the Labour conference and everything about PIP reforms.

I'm absolutely panicking. I feel like giving up. I'm on PIP with mental health.

I do work. Part time.

OP posts:
mrshoho · 26/09/2024 08:37

templesavage · 26/09/2024 08:21

Giving therapy or equipment would cost the government much more in the long run.

And I can see the contracts for these services being handed out to private companies (mates rates) as with so many NHS services. Who go on to make millions but provide inadequate and very poor care.

I recently found out that patient transport in our area is now dealt with by DHL. Trying to arrange it with them is a complete nightmare. Patients are suffering and if they do not have someone to speak up for them they get forgotten. So when the NHS says people are not turning up for appointments one of the reasons may be that their transport was not arranged. NHS staff are also frustrated.

librathroughandthrough · 26/09/2024 08:31

something2say · 25/09/2024 21:20

Stop panicking. It may not affect you.

FWIW I worked in one place where one lady received £1600 pcm and spent it all on stuff that later had to be donated. Her disability qualified her, but her actual need was for a part time voluntary job as she was lonely for people, not stuff.

I then worked somewhere else where one man was in a wheelchair and couldn't tolerate any interaction or he would self harm until he bled. He absolutely doesn't need £1600 of the taxpayers money each month.

Hopefully people like this will be re means assessed. Along with those who receive that amount, never spend it and regularly get benefits cut off because it gets saved and they go over the threshold....

The lady would still need benefits though as her voluntary job doesn’t earn her a living. The man who sort harms with interaction sounds like he absolutely needs the benefit as you describe very maladaptive behaviour and clear indicators of poor mental health. Why wouldn’t he need the benefit? Apologies, I don’t really understand your point at all.

Stickytoffeepudding6 · 26/09/2024 08:28

Doowahdiddydiddydumtittydoo · 26/09/2024 07:03

PIP consists of;
Standard Daily Living Component £72.65 pw
Enhanced Daily Living Component £108.55 pw
Standard Mobility Component £28.70 pw
Enhanced Mobility Component £75.75 pw

That's PIP rates. There are no other components of PIP. £737.20 once every 28 days if you are awarded enhanced rates in both components. It is EXTREMELY difficult to qualify for both at enhanced level. Most get £100ish a week or less.

So, I'm calling utter bollocks on £1600 for one person.

There may be other benefits but that's not PIP and OP is talking about PIP.

Also, I find it despicable that an able bodied person thinks they have the right to judge how much someone in a wheelchair, who is both physically and mentally disabled, needs to get by. All the extra shit being disabled costs never reveals itself until it's you. Just the sheer amount of price gouging that goes on in the disabled "personal care" sector astounding. It can be worse than that in the pharmaceutical industry. I bought my wheelchair off ebay, new, for £350. Other "care" places were selling it, exact model, for anything up to £1200.

OP. I too am scared of what they might do to PIP. Terrified actually. I'd been seriously ill and unable to work for eleven years before I even dared apply. We were struggling to get by on DH's wage alone. Both of us petrified he'd get sick or I'd get even worse. I got worse, much much worse. As in, nearly dying several times worse. Funancial stress played a big role. It's all very well living on the edge but when something extra bad happens, you're screwed. We both caught covid. Had it really bad. Two weeks off work. I had to sell/scrap thirty years of sentimental jewellery anniversary/birthday gifts and both our wedding rings to pay the bills and it still wasn't enough. Then six months on, heart attack with bonus organ failures...8 days off work...couldn’t catch up...massive rent arrears as he is the only person I've got to look after me. Now, I have to sit here alone all day while he goes to work, to make ends meet, even with PIP. I'm at risk for sudden heart death. I can't even go for a piss, 8 feet away, without ending up in pieces physically. I use the PIP for medicines/appliances/supplies/travel. NHS help causes a need for some of it but they cannot/won't supply the extra stuff required (as in meds that cause incontinence, rashes and various other things). I've had to buy a ton of stuff the rules say I should get for free because the assessment waiting times are too long or are not available at all locally due to lack of funds. I go without whatever I can so I can save some of that PIP up for when the next utter disaster hits. What non disabled people would refer to as a minor inconvenience can be devastating if you're already on the edge. It's not all about needing that exact amount of PIP THAT month. One whole month's worth of PIP is not enough to cover a bad two weeks with no wages. In fact it covers one...just about...being careful.

Applying for PIP was very stressful. Even the PIP assessor showed sympathy for my situation and they've got a reputation as hard-nosed. I don’t think I can deal with any more stress without it killing me.

Wow I'm so sorry you're going through this.

OP posts:
ThinkSkint · 26/09/2024 08:27

Maybe they'll just let it slide that the waiting lists aren't fit for purpose, bit like the poor old nhs.

Blanc0Nin0 · 26/09/2024 08:26

templesavage · 26/09/2024 08:21

Giving therapy or equipment would cost the government much more in the long run.

And both would be of no use to my dd who needs specialised therapy. Also if they’re under the CMHT and on endless wait lists how are they going to whip out therapy elsewhere. There is a shortage of professionals doing it.

templesavage · 26/09/2024 08:21

Sadcat22 · 26/09/2024 00:27

I have read that they might be reforming PIP by giving therapy or equipment instead of a monthly payment like in other countries.
They have asked the public their views and are currently dealing with that as it finished a few weeks ago.
so all you can do is wait and see what happens but try not to panic

Giving therapy or equipment would cost the government much more in the long run.

mrshoho · 26/09/2024 07:55

Doowahdiddydiddydumtittydoo · 26/09/2024 07:03

PIP consists of;
Standard Daily Living Component £72.65 pw
Enhanced Daily Living Component £108.55 pw
Standard Mobility Component £28.70 pw
Enhanced Mobility Component £75.75 pw

That's PIP rates. There are no other components of PIP. £737.20 once every 28 days if you are awarded enhanced rates in both components. It is EXTREMELY difficult to qualify for both at enhanced level. Most get £100ish a week or less.

So, I'm calling utter bollocks on £1600 for one person.

There may be other benefits but that's not PIP and OP is talking about PIP.

Also, I find it despicable that an able bodied person thinks they have the right to judge how much someone in a wheelchair, who is both physically and mentally disabled, needs to get by. All the extra shit being disabled costs never reveals itself until it's you. Just the sheer amount of price gouging that goes on in the disabled "personal care" sector astounding. It can be worse than that in the pharmaceutical industry. I bought my wheelchair off ebay, new, for £350. Other "care" places were selling it, exact model, for anything up to £1200.

OP. I too am scared of what they might do to PIP. Terrified actually. I'd been seriously ill and unable to work for eleven years before I even dared apply. We were struggling to get by on DH's wage alone. Both of us petrified he'd get sick or I'd get even worse. I got worse, much much worse. As in, nearly dying several times worse. Funancial stress played a big role. It's all very well living on the edge but when something extra bad happens, you're screwed. We both caught covid. Had it really bad. Two weeks off work. I had to sell/scrap thirty years of sentimental jewellery anniversary/birthday gifts and both our wedding rings to pay the bills and it still wasn't enough. Then six months on, heart attack with bonus organ failures...8 days off work...couldn’t catch up...massive rent arrears as he is the only person I've got to look after me. Now, I have to sit here alone all day while he goes to work, to make ends meet, even with PIP. I'm at risk for sudden heart death. I can't even go for a piss, 8 feet away, without ending up in pieces physically. I use the PIP for medicines/appliances/supplies/travel. NHS help causes a need for some of it but they cannot/won't supply the extra stuff required (as in meds that cause incontinence, rashes and various other things). I've had to buy a ton of stuff the rules say I should get for free because the assessment waiting times are too long or are not available at all locally due to lack of funds. I go without whatever I can so I can save some of that PIP up for when the next utter disaster hits. What non disabled people would refer to as a minor inconvenience can be devastating if you're already on the edge. It's not all about needing that exact amount of PIP THAT month. One whole month's worth of PIP is not enough to cover a bad two weeks with no wages. In fact it covers one...just about...being careful.

Applying for PIP was very stressful. Even the PIP assessor showed sympathy for my situation and they've got a reputation as hard-nosed. I don’t think I can deal with any more stress without it killing me.

Very well said.

Doowahdiddydiddydumtittydoo · 26/09/2024 07:03

something2say · 25/09/2024 21:20

Stop panicking. It may not affect you.

FWIW I worked in one place where one lady received £1600 pcm and spent it all on stuff that later had to be donated. Her disability qualified her, but her actual need was for a part time voluntary job as she was lonely for people, not stuff.

I then worked somewhere else where one man was in a wheelchair and couldn't tolerate any interaction or he would self harm until he bled. He absolutely doesn't need £1600 of the taxpayers money each month.

Hopefully people like this will be re means assessed. Along with those who receive that amount, never spend it and regularly get benefits cut off because it gets saved and they go over the threshold....

PIP consists of;
Standard Daily Living Component £72.65 pw
Enhanced Daily Living Component £108.55 pw
Standard Mobility Component £28.70 pw
Enhanced Mobility Component £75.75 pw

That's PIP rates. There are no other components of PIP. £737.20 once every 28 days if you are awarded enhanced rates in both components. It is EXTREMELY difficult to qualify for both at enhanced level. Most get £100ish a week or less.

So, I'm calling utter bollocks on £1600 for one person.

There may be other benefits but that's not PIP and OP is talking about PIP.

Also, I find it despicable that an able bodied person thinks they have the right to judge how much someone in a wheelchair, who is both physically and mentally disabled, needs to get by. All the extra shit being disabled costs never reveals itself until it's you. Just the sheer amount of price gouging that goes on in the disabled "personal care" sector astounding. It can be worse than that in the pharmaceutical industry. I bought my wheelchair off ebay, new, for £350. Other "care" places were selling it, exact model, for anything up to £1200.

OP. I too am scared of what they might do to PIP. Terrified actually. I'd been seriously ill and unable to work for eleven years before I even dared apply. We were struggling to get by on DH's wage alone. Both of us petrified he'd get sick or I'd get even worse. I got worse, much much worse. As in, nearly dying several times worse. Funancial stress played a big role. It's all very well living on the edge but when something extra bad happens, you're screwed. We both caught covid. Had it really bad. Two weeks off work. I had to sell/scrap thirty years of sentimental jewellery anniversary/birthday gifts and both our wedding rings to pay the bills and it still wasn't enough. Then six months on, heart attack with bonus organ failures...8 days off work...couldn’t catch up...massive rent arrears as he is the only person I've got to look after me. Now, I have to sit here alone all day while he goes to work, to make ends meet, even with PIP. I'm at risk for sudden heart death. I can't even go for a piss, 8 feet away, without ending up in pieces physically. I use the PIP for medicines/appliances/supplies/travel. NHS help causes a need for some of it but they cannot/won't supply the extra stuff required (as in meds that cause incontinence, rashes and various other things). I've had to buy a ton of stuff the rules say I should get for free because the assessment waiting times are too long or are not available at all locally due to lack of funds. I go without whatever I can so I can save some of that PIP up for when the next utter disaster hits. What non disabled people would refer to as a minor inconvenience can be devastating if you're already on the edge. It's not all about needing that exact amount of PIP THAT month. One whole month's worth of PIP is not enough to cover a bad two weeks with no wages. In fact it covers one...just about...being careful.

Applying for PIP was very stressful. Even the PIP assessor showed sympathy for my situation and they've got a reputation as hard-nosed. I don’t think I can deal with any more stress without it killing me.

DancingPhantomsOnTheTerrace · 26/09/2024 05:59

Well, the removal of the winter fuel allowance is pushing a million into fuel poverty, and under labours own numbers (albeit in opposition) will lead to 4,000 more deaths.

While I also disagree with the threshold for WFA, and think it's far too low, the 4,000 deaths was from removing WFA altogether. I presume they'd argue that by continuing to give it to the very poorest (which is where I assume the 4,000 deaths would have come from), that can be avoided.
Obviously, simply "people not dying" is not a great measure of success. Kind of a low bar in terms of quality of life.

lionleader · 26/09/2024 05:54

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lionleader · 26/09/2024 05:54

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DancingPhantomsOnTheTerrace · 26/09/2024 05:52

They had better deal with the NHS waiting lists first then oh and someone needs to tell them that PIP is NOT an out of work benefit,

Dealing with NHS waiting lists is the way they have specifically said they will get people back to work.

And they haven't said PIP is an out of work benefit. I don't think they've even mentioned PIP.

Sadcat22 · 26/09/2024 00:27

I have read that they might be reforming PIP by giving therapy or equipment instead of a monthly payment like in other countries.
They have asked the public their views and are currently dealing with that as it finished a few weeks ago.
so all you can do is wait and see what happens but try not to panic

PepaWepa · 26/09/2024 00:17

Stickytoffeepudding6 · 25/09/2024 21:16

In the media.

Newspapers.

Never believe the papers.

mycatsbestfriend · 26/09/2024 00:16

They need to improve healthcare if they want people to work

TheHateIsNotGood · 26/09/2024 00:03

Oh Jeez, I'm currently waiting for DS's PIP review to be either renewed or slashed - it's a fucking wonder of science that I'm still mentally intact after over 20 years of this shit.

DS is so very nearly over the touchline towards being an able, productive member of society - with this crone's help - cut me even deeper you new Govt - no one will ever beat us.

Stickytoffeepudding6 · 25/09/2024 23:59

PickAChew · 25/09/2024 23:49

They all copy the same unchecked shite from each other

I know. Didn't realise how bad until tonight!

Think I'm going to engage my media/news blackout again.

Nothing ever good comes from me reading the news.

Will go back to reading up about MAFS!

OP posts:
Tryingtokeepgoing · 25/09/2024 23:58

randomchap · 25/09/2024 21:16

They would not slash the payments immediately and plunge thousands of people into poverty.

Where are you getting this info from? Is it reputable and well known news outlets?

Well, the removal of the winter fuel allowance is pushing a million into fuel poverty, and under labours own numbers (albeit in opposition) will lead to 4,000 more deaths. So I wouldn’t bet that they won’t do it!

However, AFAIK it is not policy at the moment, so I would try not to worry too much. This government is tone deaf and politically inept, but they must have got the message from their members by now…

PickAChew · 25/09/2024 23:49

Stickytoffeepudding6 · 25/09/2024 23:43

No I'm defo a Labour voter.

It is just the headlines. I stay away from the media because stresses me out and today I've read the headlines and then the different/same stories in each of papers.

I'll be honest and say I don't think I've read enough about it all and just became spooked this evening.

They all copy the same unchecked shite from each other

PickAChew · 25/09/2024 23:48

Mainoo72 · 25/09/2024 21:17

Labour are making noises about long term sick needing to get back to work, so they will cut benefits in one form or another. Hard to know exactly what this will look like though.

And this would have no bearing on PIP since it has nothing to do with work. OP can stand down and maybe reconsider their preferred new outlets.

Stickytoffeepudding6 · 25/09/2024 23:45

SmudgeButt · 25/09/2024 23:17

Please don't panic when it's all speculation. It may never happen. The papers/websites that push these things should be shut down.

I agree. Having a rough week mental health wise anyway so not in a good place.

OP posts:
Stickytoffeepudding6 · 25/09/2024 23:43

deltabluesandpinks · 25/09/2024 22:57

But you haven't read anything about PIP reforms, because nothing was said about PIP reforms.
I either feel bad for you that the media have managed to spin this bullshit to make you feel scared.
Or I'm angry that you're yet another poster trying to whip up hate for Labour.
I hope you're the former.

No I'm defo a Labour voter.

It is just the headlines. I stay away from the media because stresses me out and today I've read the headlines and then the different/same stories in each of papers.

I'll be honest and say I don't think I've read enough about it all and just became spooked this evening.

OP posts:
SmudgeButt · 25/09/2024 23:17

Please don't panic when it's all speculation. It may never happen. The papers/websites that push these things should be shut down.

Jc2001 · 25/09/2024 23:17

Long term sick need to get back to work where they can says starmer

Seems fair enough

AmateurNoun · 25/09/2024 23:09

Stickytoffeepudding6 · 25/09/2024 21:13

That payments are going to be slashed immediately.

Eligibility will be changing.

The creation of PIP took a couple of years, I wouldn't be surprised if it takes a year or 2 to reform it if there is an intention to do so. Nothing is ever going to change overnight in relation to PIP - legislative change needed so there will always be a fair amount of warning.