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A&e regular attender

86 replies

ricepudding4 · 24/09/2024 19:12

I was channel surfing and there was of those 24 hours in A&E/999 type of shows- I watched it for 5 minutes but it featured people who go to a&e regularly and said they had been put on a frequent attender list/service thing, not quite blacklisted but certainly some kind of service where they were recognised as coming a lot and they were trying to manage how often they went to a&e. It got me thinking… is that something that happens to people who go for genuine reasons? The people included in the show were going with things that were not a&e appropriate, but if you do go to a&e regularly but it is appropriate will you still be registered as a frequent flier?

the only reason I’m asking is because I have a condition that requires me to go to a&e a lot. I’m genuinely unwell when it flares up and usually end up in Resus until it’s stabilised. I’ve been to a&e 6 ish times with it this year- I’m doing everything um
supposed to do to keep it as under control as possible but unfortunately sometimes it still flares up

i absolutely despise going to a&e because I don’t want to be a timewaster and it’s so embarrassing to be recognised because I’ve been regularly but I don’t have any other choice. After watching this, I’m sort of worried now that next time I’ll end up on some high intensity or frequent attender list or that someone is going to take me aside and speak to me about my frequent attendances like what happened in the tv programme. Does anyone know? Thanks 👍🏼

OP posts:
DryBiscuit · 24/09/2024 20:24

More the ones who go for no reason i should think

Im a regular, like you, long term chronic sick, no other options but to go in for tests, monitoring and drips and things

Its a big major trauma centre with a helipad etc and im sometimes recognised by name in the corridor (its embarrassing) but its not because i go for no reason, its because im there so often due to illnesses

The last time i was there after a CT scan, the wait for a porter was ages, and i asked if i could make my own way back, one was hesitant, the other said, oh thats ok, she’s ‘name’ shes here often, she will be ok to go back on her own

Frenzi · 24/09/2024 20:20

From a GP perspective. We get a report about frequent a&e (and 111) users. We discuss them at our safeguarding meeting. If there is good reason for them to be using it we may be concerned that their medical needs are not being met in primary care and get them in to see us.

If they are persistent users for no reason we will try and speak to them but it doesn't usually come to much as they tend to not engage with us.

Most frequent users are known to the GP practice anyway.

WetBandits · 24/09/2024 20:19

We had a very frequent flyer when I worked in acute nursing. Diabetic ketoacidosis every time, but she didn’t take any responsibility for her condition and openly said that she allowed herself to go into DKA because she enjoyed the attention she got when she was admitted. I’m amazed she is still alive because of the permanent and severe damage she’s done to her body (and I only know because she regularly posts in a local Facebook group that I’m also a member of!)

Your condition doesn’t sound like you have any warning or control over when it happens though, so please do get the emergency care you need when you need it!

ricepudding4 · 24/09/2024 20:18

housethatbuiltme · 24/09/2024 20:14

If you have a chronic condition that you are being treated for why don't you go direct to that department?

Problem is A&E is for accidents and emergencies, A&E is also where people tend to go for anything scary because they don't know where else to go or don't have anywhere else to go.

for example:

Pain/bleeding in early pregnancy. It obviously a horrible experience and people panic but A&E cannot and will not help unless you have had an immediately life a death level rupture and hemorrhage (rare).

EMU/EPU (early maternity/pregnancy unit) is where you need to go to be investigated and have any treatments done and they will book you straight in. Most people just don't know that though and spend hours sat scared, in pain and bleeding in A&E just to be discharged to their GP as its not an A&E matter without being pointed to the correct department.

Its often not people fault they are in the wrong place and many do genuinely need some medical attention. If only people where more clearly informed and sent to the correct area A&E wouldn't get so overwhelmed all the time.

You can’t go directly to a ward unless you go via a&e, if you call the respiratory ward they will just say to go to A&E and if needed they will admit you. and sometimes I dont even need to be admitted , just need to be stabilised and then I’m good to go home

OP posts:
Bluewallss · 24/09/2024 20:18

We refer to them as high volume users. They get referred to the high volume user team.

Yes, if you are a high volume attendee for a medical condition you can be referred to this team.

I can’t remember the criteria but most patients I see who are registered as high volume users visit more than once a week.

It’s not a bad thing to be referred to this team. They help with identifying the reasons you attended A&E and help with support in the community to avoid crisis. This could be social support, help with identifying when the right time to go to A&E is or arranging appointments with a specialist to help sort out recurrent issues.

housethatbuiltme · 24/09/2024 20:14

If you have a chronic condition that you are being treated for why don't you go direct to that department?

Problem is A&E is for accidents and emergencies, A&E is also where people tend to go for anything scary because they don't know where else to go or don't have anywhere else to go.

for example:

Pain/bleeding in early pregnancy. It obviously a horrible experience and people panic but A&E cannot and will not help unless you have had an immediately life a death level rupture and hemorrhage (rare).

EMU/EPU (early maternity/pregnancy unit) is where you need to go to be investigated and have any treatments done and they will book you straight in. Most people just don't know that though and spend hours sat scared, in pain and bleeding in A&E just to be discharged to their GP as its not an A&E matter without being pointed to the correct department.

Its often not people fault they are in the wrong place and many do genuinely need some medical attention. If only people where more clearly informed and sent to the correct area A&E wouldn't get so overwhelmed all the time.

Armadillosparkle · 24/09/2024 20:13

6 times a year is nothing. Some people attend A&E weekly or even more than that.

Autumnismyfavouritetimeofyear · 24/09/2024 20:11

Dearg · 24/09/2024 19:19

If you need the help, please go. They would only ‘blackmark’ someone who was wasting their time, and from what nursing friends tell me, it takes a lot of abuse/ time wasting before they would flag that.

Sorry you have to visit them frequently. But that is what they are they for.

I only went once, paramedics who came out insisted, A&E immediately put me down as a time waster, put me in a side room, lied about my reports of my pain rating - said I said it was 0 out of 10 when it was never less than 8 and I was curled up in pain and projectile vomiting. They finally gave me a squirt of gaviscon and said it was indigestion despite me telling them it clearly wasnt - it was in the wrong place to start. They came up with some guff but no tests, no compassion and no care. I had gall stones - was sent home in agony. So no, unfortunately it does not take much for nurses to decide you are a time waster.

DoIWantTo · 24/09/2024 20:06

If you’re in resus absolutely no one is going to question your need to be there. I’m sorry things are so tough though Flowers

JessicaPeach · 24/09/2024 20:06

One of my children is marked as a 'frequent attendee' because he's been admitted several times with viral induced wheeze. He's 3 and has had at least 10 admissions, 3 of which have been in the last 3 months.

No one seems bothered, if anything it seems to get him seen and sorted out a bit faster as they are more aware of what treatment he responds to better. I like it because we have a pragmatic discussion about what to do and they know I know how to administer inhaler etc so it saves us all some time!

1AnotherOne · 24/09/2024 20:03

Ex a&e staff here. No you wouldn’t be recognised as such, staff may recognise you as being their frequently but having admissions to resus means you genuinely need to be there so please use the service when you need to!

our frequent attenders were generally there every other day. They were dependent on opioids and would self discharge once they had what they needed.

Woahtherehoney · 24/09/2024 20:00

My Nan had a sort of high A&E attendance but all for genuine reasons - she was very poorly and was discharged a few times from hospital when she shouldn’t have been and ended up back in A&E.

quite a few times she was there we’d see the same people, sometimes night after night. A lot of those people are lonely or have nowhere else safe to go, there’s also people with mental health problems. It’s sad that people like this see A&E as their only option but it is for a lot of them the only way to access a safe space or the support they need.

Lammveg · 24/09/2024 19:57

You've posted this before?

Helenloveslee4eva · 24/09/2024 19:55

You will and should be on that list for all the right reasons - to get a thorough assessment to make sure there isn’t anything they can do to stabilise your condition better ( medically or socially )
if there isn’t anything they can do to change it you won’t be “ black listed “ or anything.

Gcn · 24/09/2024 19:42

We identify older people who are high a&e attendees or who have multiple admissions to see if there is any support (clinical or social) that we can provide to them at home to prevent unnecessary admission.

letmego24 · 24/09/2024 19:42

FF is just a description of frequent visits but there are many different reasons, not a judgement

Carrotmccarrotface · 24/09/2024 19:42

Outofthere · 24/09/2024 19:31

Not an expert, but my husband in the NHS has involvement locally and my colleague’s Y6 son (different NHS Trust), has been identified as a “frequent flier”.

I think the approach varies trust to trust, but is very much not about black listing people who need to use A&E regularly. It is about identifying them and understanding the reasons for the visit. Then considering if alternatives can be explored to avoid the visits. For some there won’t be alternatives, for others, eg mental health related, there may be.

In the case of my colleague, son has extreme allergies and the school have been largely ineffectual in managing this - peanuts regularly being thrown at him in school grounds etc (apparently not meant for him and only done in jest), but mum threatened with fine if she’ doesn’t send him in. The NHS has been slow around paperwork to support his allergies to give the mum the weight she needs with school.

The recent regular A&E focus seems to have got things moving in a positive direction very quickly both from the NHS and school, who are the place that call ambulances for him most often.

What should people who are having a mental health crisis do? Chuck themselves off a cliff? The NHS is supposed to treat mental ill health too you know?

letmego24 · 24/09/2024 19:40

No you are over thinking it. Frequently flyer means frequent attender like those with severe copd etc. it's not a negative judgement more a fact and perhaps alerts staff to think the person could become quite unwell.
Yes ok alcoholics / people intoxicated with drugs etc may also be frequent flyers, but for a different reason.

Cattyisbatty · 24/09/2024 19:39

Wowzel · 24/09/2024 19:22

Our frequently attendees were there multiple times a day!

How? It takes a day to be seen!!

OhMaria2 · 24/09/2024 19:37

It happened to my friend's daughter. Turns out, yes, there was something really really wrong with her after being fobbed off for 3 years of absolute nhs nonsense.

ricepudding4 · 24/09/2024 19:36

Catza · 24/09/2024 19:24

I only saw it on couple of people's files and it generally is when attending repeatedly for a symptom which, on investigation, appears to be not an urgent concern. Think frequently attending for shortness of breath and chest pain which appears to be anxiety-related other than heart attack.
And I also saw it for people who frequently attend A&E with MH crisis.
I am not aware of anyone being pulled up on it and, a lot of time, I disagree with it being kept indefinitely on someone's notes. I think it taints your perception of a person and also someone may have stopped attending years ago but notes remain unchanged.

I was thinking that when I was watching it, how sad it is for people with MH struggles and having that on their file could negatively influence the care they get

OP posts:
user1471453601 · 24/09/2024 19:35

I really wouldn't worry about this opening poster.

I had a period some years ago where I fell and cut various bits of my body open at different times.

I've got peripheral neuropathy, so falling is not uncommon (though I now use rollators in the house, as well as outside). Also have to use a steroid inhaler, which makes my skin very thin.

Result, I fall, my skin breaks, my skin cannot be stuck together with stitches, and I end up going to the doctors one of twice a week to get my dressings changed.

I once commented to one of the nurses that I was a "frequent flyer" and I knew the NHS was on its knees. She told me it wasn't those like me that they became annoyed at, but it made them sad that it was people like me who felt bad about using NHS, when others were using NHS for things other than medical needs.

Hereforaglance · 24/09/2024 19:35

I think they are talking about tjose who make it a hobby to. Go to anevo look i broke a nail/sneezed/bored lets go to ane n check in on fb n say you wilm pm someone lol know of one individual on this list thet make it a family day out at least twice a week they know tjose who are genuine and tjose who are wasting time you are genuine so try not to worry

WandaFishy99 · 24/09/2024 19:31

Surely not- your established condition requires A&E visits and you can't help that. I think this list would be for people who keep turning up for minor things

bringmelaughter · 24/09/2024 19:31

As a clinician I’d be worrying that your condition isn’t well controlled and/or that you don’t have access to the right sort of support. Having to attend ED/A&E frequently isn’t great from your perspective.