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Share your dilemmas and get honest opinions from other Mumsnetters.

To think if men had to have mammograms...

131 replies

YourSpleenIsDamp · 22/09/2024 13:32

... somebody would have invented a better way to do it? Still bruised three days later - chest and boobs - and holding poses while they get the right angle has set my arthritic shoulder off. I feel bad complaining about it, because obviously I'm grateful for the screening, but my god the soreness. It's brutal. Currently on yearly screening, looking forward to only needing it every three years when I turn 50. Maybe it's less awful without F cups? But my mum is an A cup and she finds it horrendous too! Any advice for making it more bearable?

OP posts:
Pirri · 23/09/2024 13:08

@WhereAreWeNow for a breast MRI you have to lie face down and go in head first. I think mine was about 45 minutes

ByFirmPoet · 23/09/2024 12:58

What better way do you think there is?

Dariendreamer · 23/09/2024 12:22

WhereAreWeNow · 23/09/2024 06:20

That's really interesting. How long does the MRI take and are you in it head first? I'm claustrophobic and feel panicky just thinking about going in head first.

I’m not the best person to ask. The beauty of sedation is I have no firm recollection. You are face down though. Checking with DH, he could only quantify it as not that long. I’m not claustrophobic though.

WhereAreWeNow · 23/09/2024 06:20

Dariendreamer · 22/09/2024 22:43

I agree mammograms are quicker, and thus more tolerable, but unfortunately they are sometimes not the best tool for the risk profile.

I believe that my risk profile (young/dense breasts/strong family history/no lifestyle risks/no BRCA) are being let down by a screening program designed for a different patient.

I was shocked to learn that ultrasounds are a lot less effective than I thought at detecting cancer that mammography cannot. Mammos miss about 20% of all cancers. Ultrasounds are estimated to catch only an extra 1-2% of those.

MRI’s do have a false negative rate, estimated to be between 4-7 %, so nothing is perfect, but it’s not in the double digits.

I definitely did have a false sense of security around the effectiveness of relying on the mammo/ultrasound combo for my risk profile. And of course, my cancer (IDC, so nothing special) was not picked up by mammo. I was extremely lucky to be in the 1-2% group, but they couldn’t reliably find it with an ultrasound every time, so hence I’m a fan of MRIs and now qualify for annual mri screening. I also have to have mammos and ultrasounds anyway in order to qualify for the mri, which is a bit of a bore.

If you struggle with any procedure, personally I have found oral sedation to be very effective. I have a severe phobia of most medical situations so I’m not able to “relax”. Even with properly diagnosed medical ptsd it was quite a task to get my request for proper sedation and pain management taken seriously by the cancer team, but now that I seem to have that in hand, things are much easier to manage.

I’ve had an mri with one and the comment made by the care team after was that they wished more patients would be sedated as it was much easier and quicker for them, and the resulting image quality was excellent.

If you have to be in the mri machine for such a long time, I’d highly recommend exploring sedation to see if it would help you.

Just sharing the knowledge I’ve picked up on the way.

Strength to you on your journey x

That's really interesting. How long does the MRI take and are you in it head first? I'm claustrophobic and feel panicky just thinking about going in head first.

Dariendreamer · 22/09/2024 22:43

Rosscameasdoody · 22/09/2024 19:26

I had an MRI after a mammogram diagnosed a breast cancer. Sorry, but it was way worse than the mammogram. An hour and a half inside the machine on my stomach with my tits suspended in two buckets and having to keep perfectly still for each stage of the exam. I’ll take a mammogram every time thanks. And after a repeat mammogram I had extensive biopsies taken using ultrasound guidance. I wasn’t anaesthetised but the doctor made sure I was adequately numbed before the procedure started. It’s scary but not painful if you relax and be guided by the doctor.

Edited

I agree mammograms are quicker, and thus more tolerable, but unfortunately they are sometimes not the best tool for the risk profile.

I believe that my risk profile (young/dense breasts/strong family history/no lifestyle risks/no BRCA) are being let down by a screening program designed for a different patient.

I was shocked to learn that ultrasounds are a lot less effective than I thought at detecting cancer that mammography cannot. Mammos miss about 20% of all cancers. Ultrasounds are estimated to catch only an extra 1-2% of those.

MRI’s do have a false negative rate, estimated to be between 4-7 %, so nothing is perfect, but it’s not in the double digits.

I definitely did have a false sense of security around the effectiveness of relying on the mammo/ultrasound combo for my risk profile. And of course, my cancer (IDC, so nothing special) was not picked up by mammo. I was extremely lucky to be in the 1-2% group, but they couldn’t reliably find it with an ultrasound every time, so hence I’m a fan of MRIs and now qualify for annual mri screening. I also have to have mammos and ultrasounds anyway in order to qualify for the mri, which is a bit of a bore.

If you struggle with any procedure, personally I have found oral sedation to be very effective. I have a severe phobia of most medical situations so I’m not able to “relax”. Even with properly diagnosed medical ptsd it was quite a task to get my request for proper sedation and pain management taken seriously by the cancer team, but now that I seem to have that in hand, things are much easier to manage.

I’ve had an mri with one and the comment made by the care team after was that they wished more patients would be sedated as it was much easier and quicker for them, and the resulting image quality was excellent.

If you have to be in the mri machine for such a long time, I’d highly recommend exploring sedation to see if it would help you.

Just sharing the knowledge I’ve picked up on the way.

Strength to you on your journey x

ForGreyKoala · 22/09/2024 22:22

Aposterhasnoname · 22/09/2024 14:14

Honestly and I’m not remotely decrying anyone else’s experience here, they don’t hurt me at all. In fact I barely feel a thing, just a slight squeezing. It’s always puzzled me why people say they hurt. I’ve been to several different places for them too, so it’s not like we have particularly gentle staff here.

I agree. I've never had a problem, it's just a very brief few seconds of slight discomfort. I always get ridiculously anxious awaiting the results, but the actual procedure I couldn't care less about.

tothelefttotheleft · 22/09/2024 22:17

tinytemper66 · 22/09/2024 19:05

I have found it difficult due to being so short and having to stand on tiptoe whilst it is done. Plus big boobs- not a good mix.

Surely they should be able to adjust the machine height or give you something to stand on?

OtherS · 22/09/2024 21:34

Naunet · 22/09/2024 19:52

No, I’m suggesting that when people make little digs at women for ‘not inventing things’, they acknowledge the whole context. We have no idea if a woman was involved in the invention of the first machine, nor do we know (although could possibly find out) how many have been involved in making improvements.

And no, it would not be particularly sexist when you look at the funding and research that has been put into mens health over the years, compared to womens health. There have been many studies into womens pain being ignored and minimised.

You clearly haven't managed to understand my point at all. I didn't realise it was so complicated, apologies. I personally think sitting around crying that men haven't made us a better mammogram yet - and that they would if it were own comfort they were worried about - is particularly enlightened. My opinion. Now, if you want to wring your hands and weep like a damsel in distress as you plead with men to build you a more comfortable medical device as they can hardly expect a helpless female to do it, feel free - but I'm going to think you're a misogynist and I'm also going to think you're making life worse for women. Don't forget to bat your lashes, little lady.

Rosscameasdoody · 22/09/2024 20:43

Miniopolis · 22/09/2024 20:06

Thank you for sharing that, I don’t think you were harsh. That makes a lot of sense in the difference. Mine are just precautionary for high risk at the moment whereas I can see yours are far more specific. I really hope the reduction continues and you get good news for your October scan 🤞🏻 I will be thinking of you.

Thank you. I wish you well with too. I was high risk - mum was from a big family and she, my gran and two of mums’ sisters had breast cancer so I’ve had more regular screening too. In my case it paid off. Onwards and upwards !

BIossomtoes · 22/09/2024 20:42

I always found them incredibly uncomfortable until my last which was a couple of years ago and a vast improvement. I’m actually not dreading the next one now.

Rosscameasdoody · 22/09/2024 20:41

comewhinewith · 22/09/2024 20:00

I'm expecting to be invited to attend mammogram screening soon, but have very limited movement in my shoulders. Is this going to cause me problems?

I’m in a wheelchair and they did mine sitting down. Limited movement in your shoulders could be difficult because you have to lean right over the machine for some of the scans, but it might be easier for you sitting.

2Old2Tango · 22/09/2024 20:38

StopGo · 22/09/2024 19:28

I lost my DF to breast cancer. He was never expected to tolerate a mammogram.

Sorry for your loss@StopGo . How long ago was this? My DH had his mastectomy in 2020 and had annual mammograms thereafter until he died this summer (secondary breast cancer).

I have a question for @Eggseggslegs , if you don't mind....how do women with breast implants fare at mammograms? Is it easier or more painful for them? Do you find it more challenging to read their x-rays? Sorry, that's two questions 😁

Bimblesalong · 22/09/2024 20:22

my experience of mamogram has always been good, handled with care and discretion although yes there are moments of pressure. I have a frozen shoulder and my radiographer worked with me throughout testing to make sure I was comfy as possible.

all through my cancer treatment I have been treated gently and with compassion. I have been appropriately dosed with anaesthesia etc for every procedure- even biopsy was painless. Obviously it’s not easy but without the screening I’d have been facing even more surgery and a worse outlook.

just my view and I wish the same decent experience to all having to go through this.

NeverDropYourMooncup · 22/09/2024 20:18

comewhinewith · 22/09/2024 20:00

I'm expecting to be invited to attend mammogram screening soon, but have very limited movement in my shoulders. Is this going to cause me problems?

Mine told me to put my shoulder where I could and she'd work around it - and she was super fast so I didn't have to hold it there for more than a couple of seconds for her to run behind the screen and take the shot.

PaintedPottery · 22/09/2024 20:16

Generally just uncomfortable but I had one where the radiographer manhandled me so aggressively that I ended up with an injury and time off work.

IBlameTheDog · 22/09/2024 20:14

Got my first one next week. Absolutely dreading it after reading this.

Had my smear recently and it was excruciating for the first time ever.

Menopause has made me physically ill since December. It

What a fun year this is turning out to be.

Miniopolis · 22/09/2024 20:06

Rosscameasdoody · 22/09/2024 19:50

I think it depends on the type of cancer. Mine is lobular and doesn’t present as a lump - the tumour is flat and just under the skin. The scary part was that I wouldn’t have known it was there without the mammogram and very lucky it was picked up at all because a lot of lobular cancers don’t show up until they’re very large and more difficult to treat. Mine was estimated between 8-10 centimetres at diagnosis with mammogram but needed MRI to confirm because it was too diffuse in the tissues to image any other way.

The whole scan took about an hour and a half and confirmed the size and shape. I’ve been on Letrozole since April and am going for another MRI on 1st October because at the last exam a week ago, the surgeon was fairly sure there has been significant reduction due to the drug, so wants another dreaded MRI to confirm. Hopefully this will mean that after another couple of months on the drug, the tumour will have shrunk enough to have a lumpectomy instead of the radical mastectomy I’m facing at the moment.

My original post may have seemed harsh, but as your’e clearly in a similar situation you’ll appreciate why. I simply don’t understand why some women don’t realise that the few minutes discomfort of a mammogram could potentially save their lives. But I guess that feeling of ‘it’ll never happen to me’ prevails. Until it doesn’t.

Thank you for sharing that, I don’t think you were harsh. That makes a lot of sense in the difference. Mine are just precautionary for high risk at the moment whereas I can see yours are far more specific. I really hope the reduction continues and you get good news for your October scan 🤞🏻 I will be thinking of you.

comewhinewith · 22/09/2024 20:00

I'm expecting to be invited to attend mammogram screening soon, but have very limited movement in my shoulders. Is this going to cause me problems?

user1471453601 · 22/09/2024 19:59

I've said what @YourSpleenIsDamp said for years. I have a deep crease type thing in one breast (I had a lumpectomy but then the scar adhered to my chest wall, so although the scar is small less than an inch, the crease in my breast is about three inches) so they have to pull my breast apart, slam it quickly between the plates, before it springs back, before they can do my mammogram.

It hurts. I always tell them that I know it's going to hurt, so don't get freaked out about that, just get it done.

The bit that always makes me smile is when you've got your boob squashed between these plates and your stood in the most uncomfortable position and they say "relax you shoulders". Relax??? Ok😂

Naunet · 22/09/2024 19:52

OtherS · 22/09/2024 16:41

I don't understand how that's relevant to the point I was making? Are you suggesting it was actually women who designed the mammogram machine? Surely it would be even more sexist then to claim men would do a better job if they had to use it themselves?!

No, I’m suggesting that when people make little digs at women for ‘not inventing things’, they acknowledge the whole context. We have no idea if a woman was involved in the invention of the first machine, nor do we know (although could possibly find out) how many have been involved in making improvements.

And no, it would not be particularly sexist when you look at the funding and research that has been put into mens health over the years, compared to womens health. There have been many studies into womens pain being ignored and minimised.

Rosscameasdoody · 22/09/2024 19:50

Miniopolis · 22/09/2024 19:34

That doesn’t sound fun at all, mine was about 20 minutes I think. I wonder what causes the time variation, I have another soon and am curious!

I think it depends on the type of cancer. Mine is lobular and doesn’t present as a lump - the tumour is flat and just under the skin. The scary part was that I wouldn’t have known it was there without the mammogram and very lucky it was picked up at all because a lot of lobular cancers don’t show up until they’re very large and more difficult to treat. Mine was estimated between 8-10 centimetres at diagnosis with mammogram but needed MRI to confirm because it was too diffuse in the tissues to image any other way.

The whole scan took about an hour and a half and confirmed the size and shape. I’ve been on Letrozole since April and am going for another MRI on 1st October because at the last exam a week ago, the surgeon was fairly sure there has been significant reduction due to the drug, so wants another dreaded MRI to confirm. Hopefully this will mean that after another couple of months on the drug, the tumour will have shrunk enough to have a lumpectomy instead of the radical mastectomy I’m facing at the moment.

My original post may have seemed harsh, but as your’e clearly in a similar situation you’ll appreciate why. I simply don’t understand why some women don’t realise that the few minutes discomfort of a mammogram could potentially save their lives. But I guess that feeling of ‘it’ll never happen to me’ prevails. Until it doesn’t.

Oblomov24 · 22/09/2024 19:44

I find smears incredibly painful. Mammogram zero discomfort.

Pirri · 22/09/2024 19:43

@Growlybear83 Breast cancer treatment truly is a postcode lottery, I remember at the time the contrast between my treatment and those at big city hospitals. I will pursue it next year though probably have to travel some distance.

Mammogram v MRI. Give me a mammogram any day. The MRI is face down in a machine for what felt like hours. Very unpleasant.

Icantfindanewname · 22/09/2024 19:40

@Rosscameasdoody similar to you with the MRI. Yes, mammograms are uncomfortable, but they are quick and you do not need to tape cod liver oil tablets to your nipples and suspected tumour site, then lay with boobs dangling underneath the table while two radiographers furtle around to get the best position. I looked around for candid camera, while waving goodbye to any dignity I had left. Still, probably saved my life (the first time). If anyone's wondering about the tablets, it's to make nipples more obvious on the scan. I did ask if someone looking at my scan couldn't find my nipples, perhaps someone else could review the scan while reviewer #1 had some further training...

NeverDropYourMooncup · 22/09/2024 19:35

MrsToothyBitch · 22/09/2024 14:37

YANBU. I haven't been called yet but I'm frightened as I've heard awful things and have a very low pain threshold. My mum now goes regularly but she has friends who've had their lives saved by mammograms which is what has convinced her - and me. She gets very anxious before hand still and I think her nerves have affected me tbh. It's obviously a terrific, needed service but given the attention given to womens health issues and pain management vs mens, I'm not surprised no one had cared enough to put a kinder method on general roll out tbh.

My aunt never bothered getting mammograms as she reckoned the machines were so bad for your boobs.

It's rare you hear the 'it was fine, didn't feel anything, the weirdest bit was having somebody else lift and shift my breasts around' because people don't really feel like starting discussions about stuff that didn't really bother them.

If I were to say that, just as with any thread about smear tests, coil insertion or hysteroscopy that starts from the position of it being intolerable, the response of those for whom it was not simple, painless or just momentarily uncomfortable would drown out my 'it's fine, just a bit weird'. I don't think they intend to put others off from having tests, but their experiences significantly differ.

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